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Recurrence

TAyers's picture
TAyers
Posts: 86
Joined: Aug 2012

Ladies I received the news that my one solitary nodule that they took 1/2 my middle lobe out for was a recurrence of UPSC. So now I wait to see my oncologist this coming Thursday. I've been reading all the recurrence posts seeing what line of defense is used. Has anyone went on Social Security disability with this? I am also interested in maybe an integrative oncologist....All questions and comments encouraged.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

So sorry to hear this.  No one wants to hear those recurrence words.  I had a recurrence in Dec, 2013. With mets to my neck, liver and several in my abdomen.  I change Cancer centers, for many reasons, and was blessed with the wonderful oncolonist that I have now.  We went back to the Taxol/ Carbo chemo and it did work bringing my CA 125 back down to 7 and tumors shrunk small enough that they couldn't be detected on a CT scan.    I was already old enough for Social Security at this time, but I think that stage 4 and maybe stage 3 cancer would qualify a person for Social Security.  

Sending you Hugs and prayers, Lou Ann

Kaleena's picture
Kaleena
Posts: 1875
Joined: Nov 2009

Tayers, have you looked into immunology?   My husband needs to do chemo again (he had chemo, then surgery and now they want him to do chemo again).  He is looking into immunology.  If I find anything out on it, I will let you know.  He meets with his oncologist next week.

Nellasing
Posts: 529
Joined: Oct 2016

So sorry to hear that it was indeed a recurrence Embarassed  Prayers and big ole (((HUGS))) as you meet with your team and decide what to do next.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Sorry to hear that this was indeed a recurrence. You might consider working with a board-certified naturopathic oncologist as well as your conventional medical team.  A list can be found here:  http://fabno.org/membership.html  Many specialize in complementary care working with your medical team to enhance chemo, radiation, etc. and reduce undesirable side effects while strengthening your body's own self-healing mechanisms.  In my experience, naturopaths or integrative doctors take a more whole patient approach to healing that could include diet, exercise, supplements, meditation, yoga and other types of self-care.

CheeseQueen57 applied for and got Social Security Disability.  I remember this because I was considering on applying earlier this year. If she doesn't come along, you might send her a message about that.

CheeseQueen57's picture
CheeseQueen57
Posts: 717
Joined: Feb 2016

So sorry you are going through this. Yes, I got SS disability and it was approved very quickly. It's worth a try to apply. 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2416
Joined: Mar 2013

Tami, I am so sorry to hear your news.  I can't add anything on SSD, but it is worth a try as CheeseQueen said.  Please let us know what the doctor said is his thoughts on attacking this.  Hugs 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Oh, Tami, I am so very sorry to hear this news. Praying for you and for your medical team to develop a plan to get you to NED. Stay strong! Kim 

ConnieSW's picture
ConnieSW
Posts: 1337
Joined: Jun 2012

Wish this hadn't happened.  I wish a good response to whatever treatment you have.  I'm feeling awful about all the recurrences our members are having.  I don't recall so many in a short period of time.

Northwoodsgirl
Posts: 478
Joined: Oct 2009

Tami, I join the other ladies in expressing how sorry I am to hear of your reoccurence. I will keep you in my prayers as you continue your treatments. It just shouldn't happen again....(HUG)). Lori 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1416
Joined: Jun 2015

Tami, Hate the news and I'm sorry you are having to deal with it. Please let us know the plan of attack once you get it. Sending you loads of support.

I hope you are able to get on Social Security. I bet you can!

Love and Hugs,

Cindi

cindy0519
Posts: 173
Joined: Nov 2015

Sending prayers for healing and obtaining SS quickly and easily.

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

I am sorry to hear your news, you have company here and hopefully we can get through this together.  Stay strong! 

laura25's picture
laura25
Posts: 171
Joined: Mar 2011

Hi Tami,

I'm so very sorry to hear the news.  I echo what everyone has already said, this board is wonderful and a wealth of information.   I hope that this Thursday goes well and you leave with a clear direction and path.  

God Bless and keep us informed.   You will be in my prayers.

~Laura

TAyers's picture
TAyers
Posts: 86
Joined: Aug 2012

My oncologist said since it sbeen 31/2 years since chemo we can use carboplatin and pacilitaxol again. He was presenting my solitary nodule to the tumor board at Magee's Womens Hospital in Pittsburgh. Usually it doesn't come back as a solitary nodule? I get my port put win on December 30. I asked at a clinical trail and he didn't think there were any available right now.... I had to call twice to get my port set up. Isn't that weird? 

ConnieSW's picture
ConnieSW
Posts: 1337
Joined: Jun 2012

you have to face this again.  Did you save any of your headgear from last time?  I think I should donate my wig, caps and scarves but then I think twice and don't.  I liked what I had and would hate to shop all over again.  Also, I might be a touch superstitious.

Did you tolerate the chemo pretty well last time?

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2416
Joined: Mar 2013

Tami, I am sorry to hear you have to go through the chemo again but if it kicks it than that is the road to go.  Please let us know how you are doing.  I didn't know you were in Pittsburgh - I am originally from there.  Hugs, Tami!  

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

I'm hoping that you have few side effects, and most importantly, that it kicks the cancer to the curb.

Peace and strength,

Chris

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

but if it will get you back to dancing with NED, it will be worth it. You caught this early, that has to be a good thing.  It does seem odd that you had to call more than once for an appointment to get a port put .  Maybe the holidays have something to do with that.    

My advice to everyone would be to leave that port in for a really long time and keep your head gear.

Hugs and prayers, Lou Ann

Soup52's picture
Soup52
Posts: 850
Joined: Jan 2016

Tami, I'm hoping the chemo will get you NED again. I'm taking Lou Ann's advice and keeping my port and head gear. I know unfortunately it's always a possibility to need it again one day.

Red Corvette
Posts: 104
Joined: Jan 2016

Mrs. Red is keeping her port in.  Because you know as soon as you have it removed the cancer gods give you a reoccurrence!

Red

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

You caught it quick and have a plan. That is the best that any of us can really hope to do. Stay strong and know that we are all here to help you get through treatment. ((Hugs)) and lots of positive energy coming your way. Kim

laura25's picture
laura25
Posts: 171
Joined: Mar 2011

Hi Tami,

How are you...  You mentioned port was being put in on the 30th.   

txtrisha55's picture
txtrisha55
Posts: 676
Joined: Apr 2011

Sorry to hear of the recurrence and going back on chemo.  Praying for you and your medical team to come up with good trearment plan. Just wanted you to know that we are here to support you. Trish

TAyers's picture
TAyers
Posts: 86
Joined: Aug 2012

I did have my port put back in I am waiting for the phone call to set up the chemo.

Thanks for the support ladies!

LA123's picture
LA123
Posts: 38
Joined: Oct 2015

I am sorry to hear this set back. You will be in my prayers.

Lucy

TAyers's picture
TAyers
Posts: 86
Joined: Aug 2012

I start chemo on Monday Januarary 9, I had to call and set it up. My doctor only goes to McGee Women's hospital now because he is also doing administrative stuff there.I went to a different facility last time where he went to and felt more connected. I told his nurse I feel like I might get lost in the crowd there. She couldn't explain who dropped the ball on calling me....This is why you have to be your own advocate and pursue appointments. I will be getting carboplatin and pacilitaxol again for 6 treatments. Thanks for your prayers and thoughts.

Soup52's picture
Soup52
Posts: 850
Joined: Jan 2016

Prayers!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

You are so very right, Tami. It stinks that you had to do that but hopefully that was the worst of it and it will be smooth sailing from here on out. Good luck to you!

Nellasing
Posts: 529
Joined: Oct 2016

Its' a bummer when someone drops the ball- so glad you caught on that something was up and got them back on track.  Thanks for sharing that so that others will benefit.  It's so hard to see these centers all SO BUSY!!!  That is a LOT of cancer Frown 

We'll be praying for you as you begin treatment that everything goes smoothly and having high hopes that you'll be dancing with NED again soon.  (((HUGS)))

Dsr
Posts: 19
Joined: Dec 2016

So sorry for your news.  You'll get some great help on this board.  

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