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6 Month CT Scan Results

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Went for my first 6 month CT scan after frontline yesterday and got the dreaded call this morning - there is a 4 mm mass in my chest. Going for a PET scan next Wednesday, 12/14 to find out more. This is the pits but there is nothing I can do about it at this moment so I'll do my best to let my doctor worry about it while I try to get on with my life.

oldbeauty
Posts: 191
Joined: May 2012

I will be interested in your update if you care to share.  I have been in remission for five years from first recurrence (first dx in 2005). I last had a PET/CT 2 years ago that showed NED.  3 weeks ago I had some symptoms that resulted in a new CT, which showed five 4 mm nodules scattered in both lungs.  My doctor said they are too small for biopsy and bc they are scattered I am not a candidate for surgery or radiation.  I've been offered the standard carboplatin/taxol chemo.  This is my second recurrence.  I'm not being sent for a PET bc doctor says there's no real likelihood it's not cancer; I had scattered lesions in my lungs that showed on my first recurrence in 2012, altho' they disappeared after I started a regimen of high dose progesterone.  I can wait 3 months for a re-scan and if there's further growth that confirms recurrence but doctor says if I plan to pursue treatment at all he has enough info to recommend that I proceed with chemo without further delay.  Is this your first recurrence?  If so, I imagine that is why you are being sent for PET.  4 mm is very small.  From my research, something that small is called a nodule and is too small to be called a "mass".  You're lucky there's just one.  You may have more treatment options than I do.  Good luck.  Old beauty

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

That's never the news you want to get, but oldbeauty is right.  That is VERY tiny.  As you said, there's no use expending energy playing the "what if" game, though that's easier said than done.  Damn.  Hoping the PET scan shows it is nothing.

Nellasing
Posts: 529
Joined: Oct 2016

Just want you both to know you are in my thoughts and prayers as you wait and decide what to do next.  (((HUGS)))

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

So sorry to here this news from both of you.  Hoping for fast results from tests so that you know for sure what your are dealing with and can make good plans.  Hugs and prayers for both of you, Lou Ann

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2582
Joined: Mar 2013

Lou Ann, you took the words out of my mouth.  I hate to hear this too.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1532
Joined: Jun 2015

Kim and Old Beauty,

Crappy news and I'm sorry that you are both having to deal with it. Dam cancer!

We are all here for you. Please let us know what your next steps will be.

Love and Hugs,

Cindi

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, everyone. I appreciate the support.

Old beauty, I am so sorry that you're dealing with a second recurrence. Have you decided on your next course of action? I will definitely post whatever I find out from the PET scan. This would be my first recurrence (still hoping that it's not - I tend to be optimistic). Also, thank you for the correct nomenclature - nodule is much better than mass anyday! I will ask that my gyn-onc reconsider his choice of words in the future. :)

MAbound
Posts: 858
Joined: Jun 2016

This is so hard to hear: nodule, mass, 1st or subsequent recurrences....it's all not what any of us want to hear. Why is it all so stubborn to make go away? Not fair! Not fair! Not fair!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

I agree, MAbound. Not fair at all but if this ends up being something serious I will not give up and will fight this bugger to the very end!

Dsr
Posts: 19
Joined: Dec 2016

Sorry to hear this.  Keeping you in my prayers.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thank you, Dsr. I appreciate it!

derMaus's picture
derMaus
Posts: 559
Joined: Nov 2016

Kim, I always love seeing your picture and your posts although this one, not so much. But as a friend once told me, everyone with cancer focuses on being *cured*, i.e. surgery, treatment, etc., then getting back to your 'normal' life. She said that for her, cancer is more of a process; she focused on the long term and expected bumps along the way. I don't know if this is of any help or not but, as the others have noted 4 mm is a very small bump along your way. Be well, my online friend. B

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thank you, derMaus. It does help. It's easy for me to get ahead of myself and to think that it was all over once I got that first NED when that was really just one sign post on a long journey. I think that when my gyn-onc told me that my frontline would either work 100 percent or zero percent on this aggressive disease that I just figured it had worked 100 percent. Truth be told, the jury is still out on this one. :)

janaes
Posts: 758
Joined: May 2016

Im so sorry.  Not the news i wanted to hear but i hope you can find peace as you wait for your pet scan.  Hope it turns out to be nothing

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, Janae! I'm working on it. Like everyone says, the waiting is really the worst part of this whole process.

beccabtown's picture
beccabtown
Posts: 234
Joined: May 2016

So sorry to hear this, Kim. I hope you can focus on other things until you have more information and a plan for treatment. I know your positive attitude will make a big difference.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, Becca! Staying positive has worked so far so I intend to keep it up as long as possible!

EZLiving66's picture
EZLiving66
Posts: 1343
Joined: Oct 2015

I'm so sorry, Kim!  But, as everyone has pointed out, it's very small and it's been discovered really early so it can be treated.  The waiting is the worst but I like your attitude - let the doctors worry.  Sending you all my good vibs and positive thoughts.

Love,

Eldri

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, Eldri! Keeping busy is the very best way for me to keep my mind from wandering to the "dark side". :)

Soup52's picture
Soup52
Posts: 901
Joined: Jan 2016

Oh Kim I'm so sorry:( This is what we all fear, but as others have said it is small, so there is hope and as always you have a great attitude. I can relate to this all as my treatments have taken over a similar time period to yours. My prayers are with you.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, Soup. I couldn't believe it when I saw the doctor's name come across my phone yesterday. The dread while answering it was very physical but it subsided quickly once they told me what it was they saw. Keeping my fingers crossed that it's nothing serious!

cheerful
Posts: 244
Joined: Apr 2011

Hi Kim:

  I am sorry to hear about your small nodule.  Your doctor can treat it as it was found early.  I wish you all the best.  I will keep you in my prayers.   

  Going through a Pet Scan I feel is easier than going through a Cat Scan.  I went through my first Pet Scan in October.   Good luck with your Pet Scan on Wednesday.

  Please keep us informed.

Cheerful

a/k/a Jane

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, Jane. I appreciate that info on the PET (this will be my first) and will let you know what I find out. My follow-up isn't until the following Thursday (12/22) so will send out an update then.

CheeseQueen57's picture
CheeseQueen57
Posts: 802
Joined: Feb 2016

pray for you dear one. 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, Susan. I appreciate it and love, love that picture of you!

ConnieSW's picture
ConnieSW
Posts: 1440
Joined: Jun 2012

I'm going to choose to believe this is going to have another explanation than cancer unless you learn differently after the follow up.  POLLYANNA was one of my favorite books as a child so I always hope for the best.  I'll be thinking about you.

 Cheese, love the pic of you ringing the bell.

 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thanks, Connie. I feel the same way and always hope for the best!

MoeKay
Posts: 205
Joined: Feb 2004

I'm very sorry about your CT results.  I found an abstract of a 2010 study from the Journal of Thoracic Oncology on PubMed on the issue of small lung nodules (4 mm. or less) detected on CT scans in oncologic patients.  Here's the conclusion and a link to the abstract if you want to check it out:

CONCLUSION:

In oncologic patients, 28% of small pulmonary nodules detected at initial CT will increase in size, suggesting metastasis. 

https://www.ncbi.nlm.nih.gov/pubmed/20978449

This study would appear to indicate that the large majority of small nodules (at least 72% in this case, assuming that all of the nodules "suggesting metastasis" turned out to be metastatic cancer) in oncology patients are benign.  Wishing you completely normal results on your PET scan on Wednesday!!

 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thank you, MoeKay! I'll take those odds any day!

Kaleena's picture
Kaleena
Posts: 1958
Joined: Nov 2009

Kim and Old Beauty, I am thinking of you.  So sorry you both have to go through this.  But as Editgirl indicated 4 mm is very tiny.   For reference, I have a soft tissue mass which is PET low-level positive that is 5.4 cm. x 2.2 cm.   I get PET scans frequently to keep tabs on it.

In measureable terms,  5.4 cm is equal to 2.1 inches.      4 mm is equal to 0.15748 inches.

Keeping all of you in my prayers.

Kathy

 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

I was finally able to access the radiology report online today and here is what it says under the chest section: "In the anterior mediastinum in the region of the thymus, there is new soft tissue present measuring 3.8 x 2.3 x 4.1 cm. Lymph node enlargement is suspected."

I guess my chemo brain made me hear millimeter instead of centimeter when speaking with the doctor's office last week. Oh well, this really doesn't change anything. I just wanted to correct the record. Thanks again to everyone for your support!

Mmpeterson
Posts: 124
Joined: Sep 2016

Hang in there Kim!!!  Staying positive does make a huge difference.  Keeping u in my prayers that all will be ok. Many warm hugs to u!   Maryanne

cindy0519
Posts: 173
Joined: Nov 2015

So sorry to hear this Kim!  Thinking of you and sending prayers for a much better understanding of what is going on with the PET scan tomorrow. 

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

PET scan is much easier.  What other tests do we have where you basically get to be a slug the day before and then spend an hour in a darkened room, resting, before they do the scan?  Small blessings, but nonetheless...

I, too, hope the scan gives you a better idea of what you're dealing with.  I'll be thinking of you tomorrow.

Nellasing
Posts: 529
Joined: Oct 2016

Hope you are resting and that tomorrow you have peace during the PET scan- it was easy for me too and I was so glad they had approved it so we could KNOW what was going on in there- amazing they have that technology!  Prayers for you tonight and tomorrow  (((HUGS)))

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Thank you, all! The PET scan went fine today and I'm already back to work trying to keep my mind occupied so that I don't obsess over getting the results. I'll post an update once I know something.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1532
Joined: Jun 2015

Kim, Thanks for posting. I was thinking about you earlier today! Looking forward to hearing your results and hoping that it will be the best of news.

Love and Hugs,

Cindi

namedropper
Posts: 102
Joined: Dec 2014

KIm, Not the news I was expecting to hear from you. This MMMT cancer sucks but we are both strong and will get through what ever they throw at us.  I am sending HUGS and prayers.

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

I am sorry to hear about your results.  I know you will chase the devil here!  My best hopes are with you on that one

 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

I heard from the gyn-onc's office today about the results of the PET scan and signs point to it being a benign "thymic rebound" although malignancy cannot be completely excluded since there was some metabolic activity noted. I may still need a biopsy to confirm that it is benign and will find out for sure on Thursday at my next appointment.

From my research, it appears that thymic rebound is usually seen in children who have gone through chemo or some other extreme stress inducing trauma but it is not unheard of in adults who have gone through strong chemo, too. It tends to resolve itself within a few years without intervention.

So, I will be celebrating this good news all weekend long and hope that you all do, too! Keep the hope and don't ever, ever give up!! 

cindy0519
Posts: 173
Joined: Nov 2015

Excellent news Kim! A biospy might also help with peace of mind but these results sound very, very promising! Great Christmas present ;)

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1532
Joined: Jun 2015

Kim - fantastic news!!!! I'm so happy for you. Thanks for updating us. YIPPEE!!!!!

Love and Hugs,

Cindi

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

That's great, Kim!  Hurrah!  Yes, definitely celebrate this weekend!

beccabtown's picture
beccabtown
Posts: 234
Joined: May 2016

It does give me hope!

Nellasing
Posts: 529
Joined: Oct 2016

Oh so happy- my heart is singing with joy!  So glad you got this info before Christmas and shared it with us!  YAY!!!  (((HUGS)))

janaes
Posts: 758
Joined: May 2016

Yea sounds like good news!!!

Soup52's picture
Soup52
Posts: 901
Joined: Jan 2016

Great news Kim! Enjoy the weekend!

derMaus's picture
derMaus
Posts: 559
Joined: Nov 2016

Let me add my voice to the alleluia chorus! This is wonderful news, Kim. I'm so pleased for you !!

 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

What good news! We all need that every once in a while.  Enjoy your weekend and hopefully many many years to come

EZLiving66's picture
EZLiving66
Posts: 1343
Joined: Oct 2015

That is wonderful news!!  I am so happy for you.  It seems like we have not had a lot of good news lately so this is a welcome change!!!

Love,

Eldri

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