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NED

lindary's picture
lindary
Posts: 695
Joined: Mar 2015

This is what my Oncologist told me this last Tues when I went in for my Rituxan maintenance. I had the PET/CT scans the week before. She told me the result were that there was no sign of any disease. What did show up was some inflamation in the sinus indicating sinuitis (I've had it for several years now) and inflamation in my left shoulder. (Two days before I had a deep tissue massage and my shoulders and neck had a lot of knots.) Then there was one prhase in the report she didn't know and had to look up.  It turns out it referred to scar tissue from the surgery for the perforated bowel. Since my last chemo was Oct 1 - 4 of 2015 I guess this would be considered the 1 year mark.  Yah-Hoo!!!!!

Just need my hair to fill in enough so I can stop wearing the caps. 

po18guy
Posts: 1083
Joined: Nov 2011

Now, if that is not great news, I do not know what is! May remembrance of the cancer recede as the hair advances.

Anonymous user (not verified)

Wonderful!

PeprmntPat55's picture
PeprmntPat55
Posts: 64
Joined: Aug 2016

Lindary that is such great news and what an encouragement to others!  I'm so very happy for you and your family.  I hope that you will celebrate appropriately during the upcoming holiday season!

PP55

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3505
Joined: May 2012

You deserve this more than most Linda...your fight has been so tough.

I could not be happier.

max

illead's picture
illead
Posts: 860
Joined: Aug 2012

Yes you have been through it, and always cheerful (on the outside that is). These posts are what we love.

My best,

Becky

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

The absolute best news I've have all week.  It's like the weight of the world just got lighter!

Everything is better, whether it's a sunrise or set, chocolate or vanilla.....its just better with NED.

Enjoy!  

I feel like dancing in the rain, love that!!!

Sal0101's picture
Sal0101
Posts: 132
Joined: Sep 2015

I am so Happy and thrilled to hear such good news!! 

lindary's picture
lindary
Posts: 695
Joined: Mar 2015

Thanks for all of the responses.  The lab had posted the results a week before but I wanted to wait until I had talked with my oncologist.  I know how good news makes all of us feel and it was hard to wait that week beofre sharing the results.   

GSP2's picture
GSP2
Posts: 103
Joined: Feb 2015

to see your report. Congrats !

Steve

Rocquie's picture
Rocquie
Posts: 839
Joined: Mar 2013

Congratulations, Linda. I hope you have a luxurious head of hair soon and can put this chapter of your life behind you.

Hugs,

Rocquie

 

lindary's picture
lindary
Posts: 695
Joined: Mar 2015

My youngest feels my hair is long enough to get it "styled'. Since she will be at the house next weekend I am going to see if she wants to go with me. Either way I am thinking of changing the head gear from the caps to just a hair band carefully positioned over the area where the hair is still very thin. A coworker was telling me that is what her mom started doing when her hair began thinning out.  I am actually getting kind of excited about the idea since most of the consultants and a few employees have never seen me without the caps. So as of now the only people who are aware of this plan is my one coworker and all of you.  Now I can't change my mind!  

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3505
Joined: May 2012

The hair band idea sounds great Linda.  Plus, women have hat options men don't -- women can wear stylish headgear indoors that men can't. A hat accessory on women usually looks very chic.

I hope the experience is inspiring and liberating to you.

OO7's picture
OO7
Posts: 282
Joined: Sep 2014

Wonderful!  You'll rock any style you wear, have fun and own it!

So Happy for You and wishing you lots of fun and success on your journey.

Happy Thanksgiving in advance!

lindary's picture
lindary
Posts: 695
Joined: Mar 2015

I have to laugh because our company has a list of behaviors they encourage. One of the is Own It! Now that I think about it, it is pretty much how I dealt with wearing the caps. So now it's time for a new look.

Rocquie's picture
Rocquie
Posts: 839
Joined: Mar 2013

I called it chemo chic. Have fun!

lindary's picture
lindary
Posts: 695
Joined: Mar 2015

That works too.

lindary's picture
lindary
Posts: 695
Joined: Mar 2015

Last Saturday I went to get my hair trimmed. My hair is very fine so I tried to keep my hopes in check. I filled the woman in on what has been going on and told her I just want it to not look so raggedy. She did what she could and it does look better. However I found out that it is thin in back too. So I am going to keep wearing the caps for a couple of more months. Considering that winter is coming and it is getting colder in this area, it's probably not a bad idea to kee something on my head.

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