34y/o and I just found out a few days ago I have CML.

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MrSegura82
MrSegura82 Member Posts: 1
in Leukemia #1

My stoach started hurting real bad about 2 onths ago, and I went to the er. They said I was just constipated and set me home. But the paid never went away so I went and saw another doctor. This time, they did blood work. The results came back, and I was told I needed to see an Ouncolagist. I didnt even know what kinda doctor that is so when I googled this doctor and saw cancer, I broke down. 

They took bone marrow and a biopsy, and those tests came back positive. Im freaking out so bad. I have 2 little girls 8 and 5, and I so scared I wont see them graduate highschool. The doctor I see the doctor next week and we're going to go over options. What's going to happen? Do I just take this pill and I'll be ok. I have a million questions, but I dont know where to start. Sorry if this is a bad post, I'm not all here

Comments

  • Bravemama
    Bravemama Member Posts: 17 Member
    #2
    I don't know a lot about CML,

    I don't know a lot about CML, I have CLL.  But from what I know, the word Chronic, indicates a slower growing cancer.  Praying that this is true for you as well.  I have 5 children and think the same thing, wishing to see them graduate, get married and maybe even have babies.  Be real open and honest with your dr, ask a lot of questions.  If you don't love your dr, find a new one, they will be an important part of your life from now on.  

  • HannaM
    HannaM Member Posts: 7
    edited November 2016 #3
    I'm sorry I don't have any

    I'm sorry I don't have any answers, but I just want to say be strong and kick butt! Be strong for youself, and for your little girls. I will pray for you. 

  • leighaa93
    leighaa93 Member Posts: 30
    #4
    Hi

    I honestly know very little about leukemia but my prayers are with you. 

  • proudmommy
    proudmommy Member Posts: 8 Member
    #5
    I was diagnosed Feb.2008 on

    I was diagnosed Feb.2008 on my birthday.I am currently taking 400mg of Gleevec. I was in complete cytogenetic response after 2 years meaning that is berely visibility of CML. Keep the faith and believe and everything will work out.

  • Lynn0609
    Lynn0609 Member Posts: 7
    #6
    hello

    MrSegura82, 

    I am sorry to hear about your new diagnosis. It happens to the best of us. I do know that CML is obviously chronic but my cousin who is 38 years old and she has  CML for 6 years now and she is on a clinical trial called 

    • Imatinib (Gleevec) she is not on any chemo and she is doing well. I did see a documentary about surviving with CML on Youtube (https://youtu.be/FotPqi5VhNk). You should check it out and see what are your best options. I believe asking questions and even if you think is dumb, honeslty its not because you or your family are asking all the questions and maybe you should take your family with for moral support and they can also help with asking questions too. 

    Good Luck to you and wish the best on your journey. 

  • mellys.survival
    mellys.survival Member Posts: 4
    #7
    Hi,

    Hi,

    I too had a chronic type of leukaemia and I am here to tell you that there is a light at the end of the tunnel.

    I couldnt believe what they were telling me, it almost didnt feel real.

    My cure was a bone marrow transplant, it wasn't an easy process but I am now in remission.

    Stay strong, listen to your doctors and remember that there is hope.

     

  • sroth
    sroth Member Posts: 3
    #8
    Hello

    Hoping things are going good for you and big hug.

    Just read this study and it sounds interesting.  My husband's cousin had extreme success with cannabis oil with lymphoma.

     

    http://www.bloodjournal.org/content/105/3/1214.long?sso-checked=true

    and this is interesing too.

    http://constancetherapeutics.com/knowledge-center/cannabis-oil-and-leukemia.html

     

  • DadysGirl
    DadysGirl Member Posts: 346
    edited June 2017 #9
    My sevond time getting

    My sevond time getting referred to a hematology/oncology for leukocytosis unspecified

    what were your values for neutrophils when you all got diagnosed and did any have cough with phelm that did not go away after a cold?

    thank you.

  • smurfin57
    smurfin57 CSN Member Posts: 29
    edited January 2020 #10
    mellys.survival said:

    Hi,

    Hi,

    I too had a chronic type of leukaemia and I am here to tell you that there is a light at the end of the tunnel.

    I couldnt believe what they were telling me, it almost didnt feel real.

    My cure was a bone marrow transplant, it wasn't an easy process but I am now in remission.

    Stay strong, listen to your doctors and remember that there is hope.

     

    CML

    Would you mind telling me why you had to resort to a Bone marrow transplant> Did you try drug therapy first? Thanks

  • smurfin57
    smurfin57 CSN Member Posts: 29
    #11
    CML

    Just wondering what the rest of your story is? I'm newly diagnosed and have started Gleevec 400mg. hoping for a good outcome! Thanks, Steve

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