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34y/o and I just found out a few days ago I have CML.

MrSegura82's picture
MrSegura82
Posts: 1
Joined: Nov 2016

My stoach started hurting real bad about 2 onths ago, and I went to the er. They said I was just constipated and set me home. But the paid never went away so I went and saw another doctor. This time, they did blood work. The results came back, and I was told I needed to see an Ouncolagist. I didnt even know what kinda doctor that is so when I googled this doctor and saw cancer, I broke down. 

They took bone marrow and a biopsy, and those tests came back positive. Im freaking out so bad. I have 2 little girls 8 and 5, and I so scared I wont see them graduate highschool. The doctor I see the doctor next week and we're going to go over options. What's going to happen? Do I just take this pill and I'll be ok. I have a million questions, but I dont know where to start. Sorry if this is a bad post, I'm not all here

Bravemama's picture
Bravemama
Posts: 17
Joined: Oct 2016

I don't know a lot about CML, I have CLL.  But from what I know, the word Chronic, indicates a slower growing cancer.  Praying that this is true for you as well.  I have 5 children and think the same thing, wishing to see them graduate, get married and maybe even have babies.  Be real open and honest with your dr, ask a lot of questions.  If you don't love your dr, find a new one, they will be an important part of your life from now on.  

HannaM
Posts: 8
Joined: Nov 2016

I'm sorry I don't have any answers, but I just want to say be strong and kick butt! Be strong for youself, and for your little girls. I will pray for you. 

leighaa93's picture
leighaa93
Posts: 30
Joined: Jan 2016

I honestly know very little about leukemia but my prayers are with you. 

proudmommy
Posts: 8
Joined: Jun 2008

I was diagnosed Feb.2008 on my birthday.I am currently taking 400mg of Gleevec. I was in complete cytogenetic response after 2 years meaning that is berely visibility of CML. Keep the faith and believe and everything will work out.

Lynn0609
Posts: 7
Joined: May 2017

MrSegura82, 

I am sorry to hear about your new diagnosis. It happens to the best of us. I do know that CML is obviously chronic but my cousin who is 38 years old and she has  CML for 6 years now and she is on a clinical trial called 

  • Imatinib (Gleevec) she is not on any chemo and she is doing well. I did see a documentary about surviving with CML on Youtube (https://youtu.be/FotPqi5VhNk). You should check it out and see what are your best options. I believe asking questions and even if you think is dumb, honeslty its not because you or your family are asking all the questions and maybe you should take your family with for moral support and they can also help with asking questions too. 

Good Luck to you and wish the best on your journey. 

mellys.survival
Posts: 4
Joined: May 2017

Hi,

I too had a chronic type of leukaemia and I am here to tell you that there is a light at the end of the tunnel.

I couldnt believe what they were telling me, it almost didnt feel real.

My cure was a bone marrow transplant, it wasn't an easy process but I am now in remission.

Stay strong, listen to your doctors and remember that there is hope.

 

sroth
Posts: 3
Joined: May 2017

Hoping things are going good for you and big hug.

Just read this study and it sounds interesting.  My husband's cousin had extreme success with cannabis oil with lymphoma.

 

http://www.bloodjournal.org/content/105/3/1214.long?sso-checked=true

and this is interesing too.

http://constancetherapeutics.com/knowledge-center/cannabis-oil-and-leukemia.html

 

DadysGirl
Posts: 346
Joined: Aug 2011

My sevond time getting referred to a hematology/oncology for leukocytosis unspecified

what were your values for neutrophils when you all got diagnosed and did any have cough with phelm that did not go away after a cold?

thank you.

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