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5 days post op

mysilvstang
Posts: 11
Joined: Oct 2016

Well I am on day 5 since surgery. Lucky I have not had pain, some soreness but not pain. I walk as much as I can and I am sure at this point some neighbors are wondering about my 5 gallon home depot bucket LOL hahahaha. 24 Oct cant get here quick enough as the cath is causing more discomfort than anything LOL. Family and friends say they are really surprised at how well I am doing. Since day 2 I have been able to roll onto my sides for sleeping and to get the pressure off the back side. 

mikedayton62
Posts: 22
Joined: Sep 2016

Glad you are doing well so far. Did you have the robot assisted surgery?

mysilvstang
Posts: 11
Joined: Oct 2016

Yes it was the robot assisted surgery. It was done at St. Joseph hospital in Tampa Fl.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 2664
Joined: May 2012

Congrats, Silverstang. My DaVinci was two years ago, this December.

The cath was probably the most unpleasant part of it all.  When the RN removed it, a "blast" occured, so warn your's.

I only wore a diaper for a day and a half, so at least partial urinary control returned very fast for me. But expect to be wearing pads for some time. Kegel exercises apparantly helped me a lot.

Smooth sailing,

max

mysilvstang
Posts: 11
Joined: Oct 2016

Glad to hear control returned quick for you. I hope I get control quick too but realize I will need pads for a while. Once Dr tells me I can I will continue to do the Keegles to help me out. Thank you for the advice.

MK1965
Posts: 64
Joined: Jun 2016

I had robotic assisted radical prostatectomy on November 2nd. Suffeared so much pain in postvop days until post op day #7 when I was able to stand up from chair by myself without my wife assistance.

My recovery was extremly painful. I am also young, 51 and in very good physical shape.

I am totaly disappointed with robotic surgery and would not recommend it to anyone.

Gleason 7 (4+3)

MK

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 2664
Joined: May 2012

Mike,

I know that I, and very likely every guy here, is disappointed that your post-op period has not gone well.  Your troubles and degree of pain are unlike any I can recall reading here,  ever.  Among the many men whom I have known face to face, none ever approximated your description .

From what you have shared, your surgery was successful, no mishaps. If the issue is indeed only pain, that will pass, likely soon. Unpleasant for now, but in the respective of a lifetime, a couple of weeks to achieve lifetime cure fades into a trifle.  Yes, radiation would have hurt less, or not at all.

This is not "easy for me to say." I have been run over by a car, had two cancers, my own RP.  I know what pain is.  I had a scare this week regarding  low oxygen due to severe lung damage (fibrosis) from chemo, an ongoing issue since 2010.  But I bless the chemo I received every day.

Post op pain for any surgery last only a while.  The limited pathology data you shared sounds like very likely PCa is history for you now forever.   The problem in your situation  is unlike any I have ever heard here, and should rectify over time. Limited penile shrinkage for life does at times happen, but not total "disappearance."    I read the the links someone thoughtfully submitted. Not  my experience or the men I know, but valid data.       Some new guy here wrote a day or two ago that he in effect feels like he walked into a bar fight at this site when he started reading.  A sad takeaway for any man to have.

shipjim's picture
shipjim
Posts: 137
Joined: Apr 2006

Good news!!  As to the cathater, 2 pieces of advice.  !. Don't wear the leg bag and take a nap after 2 jumbo ice teas!!   2.  Go to the movies with the big one inside the zipper of you zip off leg Columbias or what ever.  It will be the first and last time in years you could sit thru an entire movie with out going!!

Good luck sounds like you're in good shape.jj

mdo53
Posts: 5
Joined: Oct 2016

Great news!  My recovery was similar to yours!  FYI, catheter removal is painless and you should leave the doctors office in a thin diaper....keep up those exercises and a few days later it will be pad only.  I'm no longer wearing pads and have full control after 9 weeks...

Will Doran
Posts: 201
Joined: Sep 2015

Mysilvstang,

Sounds like you are making progress.  I, like you, Had no pain post robotic surgery, and Yes, the cath and that bag were the biggest "pain".  I used a plastic bag from the State Liquor Store to cover my bag.  Ha! Ha!  My Urologist laughed like crazy the day I came in to have the Cath removed. I was on a treadmill two days post surgery, and back on a spinner bike in 6 wweks.   As of Dec 10th,  I will be a 3 year survivor from the time of surgery.  Had two years HT and 8 weeks of daily radiation.  My Testosterone is now back up into the normal range, and I'm feeling pretty good at this time.  Right now, my biggest discomfort is the side effects from my treatments for bone Density (Prolia).  These shots are being done to try and help repair damage to my femurs, done by the Radiation.  I was a PSA of 69 with a Gleason of 7 (3+4).  I had 40% involvment of the prostate, as was shown post surgey pathology and one very tiny (too small to show up in my MRI's) spot in one lymp node.  Since all my surgery and treatments, 3 years, my PSA is still undetectable. (<0.010 - 0.035)  We are hopeful it will settle in there and stay.  However we are prepared to do whatever we need to do to keep this beast at bay.  Bladder control hasn't been a big problem, but I wear a pad just in case.  I leak on occasion, depending on what type of exercise, lifting, etc. I'm doing.  That seems to be getting better.  Yes, as Max said "Kegel".  As to Cath removal, My GP told me when he had surgery the pain was terrible when they removed the Cath.  So, I took a strong dose of Tylenol with Codine.  I had been given that post surgery and never needed it. I could have cared less what they did to me at that point.   I got to the office and was laying there and before I knew it the nurse had the Cath removed and was holding it up showing it to me.  I didn't even realize she had removed it.  Of course she and the doctor, again, laughed like cray when I told them I had taken the Tylenol. 

Its' a hard fight, But you are on the road and seem to be making progress.  Keep up the Fight and the Faith.

Love, Peace and God Bless

Will

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 2664
Joined: May 2012

Will, Mustang, every guy pre- and post-surgery,

A month or so prior to surgery, my urologist scheduled me for "Kegel Training."  I met with an RN who talked about the exercise, and they do a test to ensure that the patient is exercising the right muscles:  It involved the insertion of an ultrasound probe, and she monitored a trace, somhow showing what muscles I was flexing.   At times I did the exercise WRONG, so it does take a little training.  Ask about this.

Also, AFTER surgery, when I restarted the exercises, the feeling was "different"  -- maybe numbness or whatever. Stuff that used to be there is now gone, tissue was stretched.  They said I could retrain on the ul;trasound, but things were going well enough that I didn't ever feel it necessary. I live at the doctor's office to begin with (urologist, medical oncologist, Pulmonologist, GP), and if an appointment is disgressionary, I'll usually opt against.

But do ask about Kegel Training. When they trained me, they said they had not been doing the training more than a few years, so not every practice does provide it.

 

max

 

Gleason Score 9...
Posts: 60
Joined: Nov 2016

Max,

Thanks for your comments. My husband has been concerned about this...of course, a a woman that has had babies, I now Kegel exercises from a woman's perspective but had no idea they were available for men too!

Thank you!

Will Doran
Posts: 201
Joined: Sep 2015

Max & Score 9,

Yes, Kegel Training.  My doctors gave me exercises to do pre surgery. I didn't have training pre surgery, and  Max, I think that would have been better.  My urologist did talk me through all the exercises and sent pages of instructions home, which did help me understand the right and wrong way to do the exercises.   Then after the surgery was complete, and after the Cath. was removed I was to start the exercises again. I was not to try any of them while the Cath. was in place.  Then they sent me to Physical Therapy.  I went to PT twice a week for a month or so and got more and more exercises to do.  They did help.  And yes, it did "feel" different post surgery.  However as time has gone along, I now have complete control, if I don't "wait too long".  The "feeling" of control from the muscles seems to be getting stronger all the time.

Best of Luck

Love, Peace and God Bless

Will

Gleason Score 9...
Posts: 60
Joined: Nov 2016

Thank you, Will!

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