Awesome news

We decided to seek out a new doctor for my Dad.

The new oncologist ordered Dads first PET scan to see if the R-chop was working. Today we got the results. The two lymphoma cancers that Dad is fighting did not light up on the PET scan. The lymphoma is dead. He still has 3 more rounds of chemo to go through but it is working.

After that is done Dad will have to have surgery to remove the kidney cancer. 

I am so happy for my Dad. He is fighting so hard.

 

Comments

  • OO7
    OO7 Member Posts: 281
    edited September 2016 #2
    Amen

    Many blessings to you and your father, hang in there.

    I'm so very happy for you.

  • illead
    illead Member Posts: 880 Member
    edited September 2016 #3
    Such good news

    Thank you so much for letting us know the good news.  I was hoping that time would be on your father's side.  Many times lymphoma has really drastic symptoms and with the addition of the side effects of many chemos, it seems hopless.  I am so happy for you all and wish you many years of continued happiness as you get on with your lives.  From one caregiver to another, you did good.

    My best, Becky

  • po18guy
    po18guy Member Posts: 1,298 Member
    WooHoo!

    Thank you for reporting back! So, it sounds like one down, one to go.

  • lindary
    lindary Member Posts: 711 Member
    edited October 2016 #5
    Great news!

    So glad to hear the news about your dad.

    One thing I've learned is that I should have made sure I was walking more during and after treatment. Because I made sure I rested I relaxed too much and it has been hard getting my energy & stamina back up.  

  • Psjeepster
    Psjeepster Member Posts: 63
    edited October 2016 #6
    Thank you everyone! I was

    Thank you everyone! I was really excited to share this with everyone. 

    I know Dad still has a long way to go and the fight is not over, but I feel like I can finally breath a little.

     

    Lindary.. Dad was very active before this all started. We have talked about the fact that.. well I think if he was not in  such good shape to begin with he would not of been able to survive everything he has been through. He feels the same way so he tries to keep as active as his body allows. Everyday he feels stronger and that motivates him to push himself harder. 

    As much as I want to put him in a bubble where nothing can harm him. I know I have to encourage to have a life. 

  • Jeff148
    Jeff148 Member Posts: 184
    edited October 2016 #7
    YESSSSSS

    That is wonderful!!!!!

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,736 Member
    edited October 2016 #8

    Thank you everyone! I was

    Thank you everyone! I was really excited to share this with everyone. 

    I know Dad still has a long way to go and the fight is not over, but I feel like I can finally breath a little.

     

    Lindary.. Dad was very active before this all started. We have talked about the fact that.. well I think if he was not in  such good shape to begin with he would not of been able to survive everything he has been through. He feels the same way so he tries to keep as active as his body allows. Everyday he feels stronger and that motivates him to push himself harder. 

    As much as I want to put him in a bubble where nothing can harm him. I know I have to encourage to have a life. 

    Dad

    Psjeepster,

    It is wonderful that your dad, after being so weak so many times, has beaten the lymphoma part of his battle.

    From this distance it seems that much of his recovery is due to you: You fought the doctors so many times, demanded answers, demanded aggressive treatment. Be very proud.

    He may in fact need a certain degree of "protection" that you place around him, so have no regrets.

    Be aware that there is a Kidney Board here also, if you need it. Every cancer, I learned, is very different, and no one here would have been able to advise me on prstate cancer the way that the Prostate Board did.  

    But please continue to give updates here on his progress.

    You are a blessing,

    max

  • Psjeepster
    Psjeepster Member Posts: 63
    A week ago Dad got another

    A week ago Dad got another round of R-chop. As you all know we are normally in the hospital by now with some kind of infection. Well this time we are not. YEAH!

    Dad is doing really well. The first two days after chemo were rough, but we figured out it was due to him being so darn tiny that the dose of Prednisone he was taking was making him sick. The doctor reduced the dose and he is doing great. 

    Got my fingers crossed that he does not have to deal with any more infections.

     

     

  • lindary
    lindary Member Posts: 711 Member
    Prednisone

    Prednisone is what got me to this discussion board. By the third round of treatment I got used to the routine of highs, lows & crash.  Then again, no one would refer to me as tiny. I am very glad that his dosage was adjust and he is doing well.  Saying a pray that infections & ilnesses stay away from your family, at least until your dad is done with his treatments. 

     

  • Psjeepster
    Psjeepster Member Posts: 63
    You had problems with

    You had problems with prednisone too Lindary?

    As soon as Dad started taking a lower dose he felt great. 

    I refer to Dad as tiny. He is 5'4" and 135 lbs. So I pick on him for being small. He picks back tho because I'm a lot smaller then him. 

    So anyway Dad is doing great. He did not get sick after his last chemo. His blood counts did go down but this time they went back up. Every other time he had to get blood. Things are good right now. 

  • TALVAREZ23
    TALVAREZ23 Member Posts: 1

    You had problems with

    You had problems with prednisone too Lindary?

    As soon as Dad started taking a lower dose he felt great. 

    I refer to Dad as tiny. He is 5'4" and 135 lbs. So I pick on him for being small. He picks back tho because I'm a lot smaller then him. 

    So anyway Dad is doing great. He did not get sick after his last chemo. His blood counts did go down but this time they went back up. Every other time he had to get blood. Things are good right now. 

    Anyone with support for Double Hit "DHL"

    I just found out that my 76 year old mother, my best friend, has non-hodgkins lymphoma, double hit. She had cancer when I was 10, I am 40 now. I've never been so worried and scared of what's still unknown, how she'll handle the chemo at her age, are we getting the right treatment regimen, etc. @psjeepster I am relieved to see your dad is also older and you have great news, wondering what type he had. My mom has a neck mass but the symptoms have been more than a year and we don't know how far it has spread because the PET was just ordered AND her biopsy to remove more of the mass to confirm the double hit type, is tomorrow. We've been ordered for her to start R-CHOP, 6 months, every 3 weeks at a lower dose. She needs the PORT installed I am told. Any insight is greatly appreciated?

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,736 Member
    Uncommon

    Tal,

    Your mother's disease is a very uncommon one, and treatment protocols are rather "fluid": they depend on your particular doctor's best-guess, but R-CHOP is among the most common.

    Her age will make treatment more challanging, but many patients here her age or older have been successfully cured or made well, in long-term remission. A port is definitely a good idea, and most clinics receiving some of the drugs (Adriamycin and Vincritstine, both of which are blister agents) in R-CHOP demand (require) a port, while other clinics leave it as optional.  My cancer center demanded a port for those drugs: You either got a port, or the drugs were not given. Luckily, port intallation is usually a 30 minute proceedure, with few or no side-effects.

    max

  • lindary
    lindary Member Posts: 711 Member
    edited October 2016 #14

    You had problems with

    You had problems with prednisone too Lindary?

    As soon as Dad started taking a lower dose he felt great. 

    I refer to Dad as tiny. He is 5'4" and 135 lbs. So I pick on him for being small. He picks back tho because I'm a lot smaller then him. 

    So anyway Dad is doing great. He did not get sick after his last chemo. His blood counts did go down but this time they went back up. Every other time he had to get blood. Things are good right now. 

    Prednisone

    First round of R-Chop started on a Tuesday. Tue - Sat I felt great as I worked from home. Sat was also the last day of the predinose. Sun went to church. Monday a little tired as I was working from home and figured I may have over done things. Stopped about 2 and took a 3 hour nap. Tues same routine but more tired. Had the follow up with my oncologist. Told her how I was so tired and she was not happy that the nurse had not warned me about the crash. Went back to the office Wed. 

    Second round of R-Chop I did the same as the first time, but ready for the crash. 

    I read about the high you can also get and figured that is why I felt so good Wed- Fri of the first week of the cycle. This time I felt like the crash hit me harder. 

    Third round I decided to take a nap on Sunday after church. Seemed to make Tued-Wed afternoon a little better, still took a nap. 

    Each round I was more tired which is normal. Made sure I took a nap everday I worked from home. On days I went t the office I rested when I got home or went to bed earlier than I used to. 

    I did look forward to that 3rd & 4th day of the prednisone because I did have more energy. Those highs & lows from the drug can be tiresome by itself. All I could do is keep pushing forward, get rest and be ready for the next cycle. In my case the Dr did not feel my experience with the Prednisone was out of line so the dosage of 100 mg a day for 5 days stuck.  

    On the positive side, prednisone made me create a schedule for those 5 days. that schedule ended extending to the whole cycle of 15 days. It got me through it all. 

  • Psjeepster
    Psjeepster Member Posts: 63
    lindary said:

    Prednisone

    First round of R-Chop started on a Tuesday. Tue - Sat I felt great as I worked from home. Sat was also the last day of the predinose. Sun went to church. Monday a little tired as I was working from home and figured I may have over done things. Stopped about 2 and took a 3 hour nap. Tues same routine but more tired. Had the follow up with my oncologist. Told her how I was so tired and she was not happy that the nurse had not warned me about the crash. Went back to the office Wed. 

    Second round of R-Chop I did the same as the first time, but ready for the crash. 

    I read about the high you can also get and figured that is why I felt so good Wed- Fri of the first week of the cycle. This time I felt like the crash hit me harder. 

    Third round I decided to take a nap on Sunday after church. Seemed to make Tued-Wed afternoon a little better, still took a nap. 

    Each round I was more tired which is normal. Made sure I took a nap everday I worked from home. On days I went t the office I rested when I got home or went to bed earlier than I used to. 

    I did look forward to that 3rd & 4th day of the prednisone because I did have more energy. Those highs & lows from the drug can be tiresome by itself. All I could do is keep pushing forward, get rest and be ready for the next cycle. In my case the Dr did not feel my experience with the Prednisone was out of line so the dosage of 100 mg a day for 5 days stuck.  

    On the positive side, prednisone made me create a schedule for those 5 days. that schedule ended extending to the whole cycle of 15 days. It got me through it all. 

    That explains a lot of what

    That explains a lot of what Dad was saying to me.

    Sense we have changed the dose he has been doing really well. 

    One more round of chemo then off to surgery to remove the kidney cancer.

    After that I am not really sure what happens. 

  • lindary
    lindary Member Posts: 711 Member
    edited November 2016 #16

    That explains a lot of what

    That explains a lot of what Dad was saying to me.

    Sense we have changed the dose he has been doing really well. 

    One more round of chemo then off to surgery to remove the kidney cancer.

    After that I am not really sure what happens. 

    good luck

    Good luck to your dad.