CSN Login
Members Online: 5

You are here

Update about me and a question

beccabtown's picture
beccabtown
Posts: 234
Joined: May 2016

I've now had 10 out of 28 external radiation treatments, and having no major problems so far (knock on wood). The technicians at my radiology center are so nice. At first I found the machine itself kind of scary, but am learning to think of it as my friend.

I met my brachytherapy doctor on Friday and really liked him. Everything about the way he talked about the treatment gave me confidence, and it sounds like his practice regularly sees women with endometrial cancer. He has a bit of a Count Dracula accent, so it did sound rather funny every time he said something about what he would do to "your vagina." I'm only having 3 brachys plus one mapping session, so that's a relief, too.

One issue that's starting is a little bit of pain when urinating and general sensitivity down there. Can anyone recommend anything for this? My doctor's instructions say Aquaphor or Eucerin, but these don't generally seem like the best kind of thing for this.

Thanks much!

 

Soup52's picture
Soup52
Posts: 903
Joined: Jan 2016

Unfortunately, I don't have too much to add about brachytherapy soreness. I was one who had a lot of pain with the whole process. I do know that some people mentioned using lidocaine before brachytherapY. It's wonderful that you have a kind dr. I loved the nurses at my radiation center, but I'm not a fan of that doctor. He didn't have a good bedside manner. Best of luck. I'm sure you'll do well with your teams support.

MAbound
Posts: 1039
Joined: Jun 2016

Definetly tell your rad. onc. you're having this issue. Aquafor and Eurcerin would be more for skin irritations. What you're having is called dysuria and it can be treated with a drug called Pyridium.  Here's a link about it and other radiation side effects. Drugs.com gives more info on Pyridium. Sorry this is starting to get uncomfortable for you!  Hope this helps.

https://www.mdanderson.org/transcripts/poe-radiation-late-effects-malatek.htm

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1659
Joined: Jun 2015

One other OTC that might help you is AZO.  I didn't need it but that is what my radiologist recommended in case I had any bladder issues.  I agree with MA - please make sure your doctor knows you are having these issues.

I hope the rest of your treatments go well for you.  You are doing GREAT!

You may already know this.... There is a thread called Let's Talk about radiation that may also give you some insight if you haven't read it. I'll see if I can find the link and post it.

Love and Hugs,

Cindi

 

Updated with the link:  http://csn.cancer.org/node/296985

MAbound
Posts: 1039
Joined: Jun 2016

Same thing, just easier to pronounce name  ;-)!

janaes
Posts: 800
Joined: May 2016

Dont have any advice since im not there yet, but when you mentioned count dracula i couldnt help but hear his voice in my head.  It made me laugh

Janae

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Though I didn't have external radiation, I did have brachytherapy, and I, too, developed sensitivity, urgency "down there."  I took the AZO, figuring it was the brachytherapy causing the issue.  As it turns out, it was a UTI which turned into a kidney infection.  If the issue continues, definitely tell your doc, and you might want to do the whole "pee in a cup" routine.  Mine was caught because at my last brachytherapy session, I had a very slight fever so the doc ordered the urinalysis.  The AZO will take care of the symptoms, but if it is a UTI, it will not take care of that.

CheeseQueen57's picture
CheeseQueen57
Posts: 924
Joined: Feb 2016

Becca, looks like we're on the same timeline. I've got 11 out of 28 external radiation treatments left and will have the same internal regime as you. 

beccabtown's picture
beccabtown
Posts: 234
Joined: May 2016

Thanks for all the suggestions, ladies. I'll certainly discuss it at my weekly meeting with the doctor this week.

CQ, I hope your radiation is going well!

It's exhausting to think about how much more I still have to do (not just radiation but also three more chemos). I'll be glad to pass the halfway point in the radiation this week.

Subscribe to Comments for "Update about me and a question"