Uterine carcinosarcoma treatment experience

My uterine carcinosarcoma treatment

Hi Christina, I'm so sorry to hear of your mother's recurrence. I posted this same reply to your other MMMT post but I'm pasting it again just in case:

I was also diagnosed with MMMT (uterine,stage 1b, grade 3). My frontiline chemo treatment used the same meds that your mother will be receiving (Ifosfamide/Paclitaxel). They seemed to work for me as I have been NED since June 2016. 

I received 6 rounds of treatment every 21 days (with 28 external radiation treatments between the 3rd and 4th rounds). Each chemo round took 3 days. The first day was the longest - about 8 hours -because both meds were administered (along with Mesnex to protect the bladder from the Ifosfamide and a whole host of anti-nausea meds). The second and third days were shorter - about 4 hours - because just the Paclitaxel and the anti-nausea meds were administered.

I also received a Neulasta injection the day after each round - the cool little "onpro" injector that automatically gives you the shot the next day. 

Overall, I had very few side effects from the chemo. The Neulasta injection was a different story. I had major bone pain in my jaw after the first shot. It was super intense so I ended up taking some of the pain meds that were left over from my sugery along with keeping a heating pad on my jaw. It took about 2 days to start to subside and then I just took Advil. The second - sixth shots were not nearly as bad so I just took the Advil along with the heating pad. Of course, I lost all my hair, eyebrows and eyelashes but those all came back after the chemo ended. My taste buds changed too but that seems to have cleared up now, too.

I hope this information is helpful. Please don't hesitate to ask any questions. Wishing you and your mother strength and peace as you continue on this journey. Kim

I don't know if you are aware, this post is 8 years old. I hope she answers but our website has changed in that time. She might not see your post. There are others here with carcinosarcoma. The board is just unusually quiet.