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Uterine carcinosarcoma treatment experience

Christina1001
Posts: 9
Joined: Sep 2016

my mom had a recurrence of uterine carcinosarcoma after first round.   It is stage IV and has spread to distant organs. Can you share your experience with this cancer, treatments (names of meds) and any other info you may think would be helpful.  Thank you!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Hi Christina, I'm so sorry to hear of your mother's recurrence. I posted this same reply to your other MMMT post but I'm pasting it again just in case:

I was also diagnosed with MMMT (uterine,stage 1b, grade 3). My frontiline chemo treatment used the same meds that your mother will be receiving (Ifosfamide/Paclitaxel). They seemed to work for me as I have been NED since June 2016. 

I received 6 rounds of treatment every 21 days (with 28 external radiation treatments between the 3rd and 4th rounds). Each chemo round took 3 days. The first day was the longest - about 8 hours -because both meds were administered (along with Mesnex to protect the bladder from the Ifosfamide and a whole host of anti-nausea meds). The second and third days were shorter - about 4 hours - because just the Paclitaxel and the anti-nausea meds were administered.

I also received a Neulasta injection the day after each round - the cool little "onpro" injector that automatically gives you the shot the next day. 

Overall, I had very few side effects from the chemo. The Neulasta injection was a different story. I had major bone pain in my jaw after the first shot. It was super intense so I ended up taking some of the pain meds that were left over from my sugery along with keeping a heating pad on my jaw. It took about 2 days to start to subside and then I just took Advil. The second - sixth shots were not nearly as bad so I just took the Advil along with the heating pad. Of course, I lost all my hair, eyebrows and eyelashes but those all came back after the chemo ended. My taste buds changed too but that seems to have cleared up now, too.

I hope this information is helpful. Please don't hesitate to ask any questions. Wishing you and your mother strength and peace as you continue on this journey. Kim

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