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Conjunctiva MALT Lymphoma

Sadie Teacher
Posts: 5
Joined: Aug 2016

I hope this is okay.  I thought since I've had trouble finding others with ocular cancer I'd post my story to-date for future readers. 

At a regular  optometrist check up in May I was told I had bad inflammation in my eyes due to allergies.  I used steroid drops for three weeks for inflammation.  At a follow up visit my left eye had much improved, but my right eye had not.  During this time I had NO symptoms, nothing.  I was referred to an  ophthalmologist for further follow-up .

The ophthalmologist examined my eyes and told me I had a growth in the conjunctiva of my right eye requiring a biopsy  and I was referred to a second ophthalmologist. I saw the second ophthalmologist in July and the next day a biopsy was done. Three weeks later we were told the growth was lymphoma.

 At the end of August I saw an oncologist at Princess Margaret Hospital in Toronto. He explained that I have MALT lymphoma in both my right and left eye.   That day I had blood work done and my mask was made for radiation therapy. The next day I had a bone marrow biopsy done to check for lymphoma in my marrow and a CT scan is scheduled for the end of September to determine if there's cancer elsewhere.   In the meantime I will have 10 radiation treatments over the next two weeks on both eyes at the same time. We have been told this will be low-dose radiation and has a very high success rate. 

 Although I have been able to find information on ocular MALT lymphoma, due to the rarity of this cancer, I have found no one to talk to with a similar experience.  Hopefully, if anyone in the near future comes here looking for support they will reach out.

Thanks,

Sadie

Anonymous user (not verified)

with this condition but in one eye. He had standard radiation then they planted a small kernal of radioactive material in his eye which will be removed after 6 mos. He is fully active living a normal life. Only sign is redness in the affected eye. That may be something you could ask about. He says it is painless except for some occasional itchiness. Hope this helps in some small way. All my best wishes.

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