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It's back!

abrub
abrub CSN Member Posts: 2,174 Member
in Colorectal Cancer #1

After nine years, my cancer is back with a new tumor, hopefully isolated.  I'll be having surgery again at Sloan Kettering (Dr. Paty) probably followed by EPIC.  I really thought I was done.

Dam.

Alice

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Comments

  • beaumontdave
    beaumontdave CSN Member Posts: 1,303 Member
    edited August 2016 #2
    Apparently adult language is

    Apparently adult language is still blocked so I'll just say that you were one of the ones I thought were safe, Alice, and I'm sorry as heck that you have to revisit this crap again. Hoping for the best....................................Dave

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  • ron50
    ron50 CSN Member Posts: 1,723 Member
    edited August 2016 #3
    Hugs Mate

       My doctors have always warned me about new tumours springing up. My surgeons exact words were' ýou have beaten this tumour but your are in the zone now and you have to remain vigilant'. with 10 + scopes I have done that but I will always be at risk. I am sorry it has happened to you,,Ron.

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  • Semira
    Semira CSN Member Posts: 381 Member
    #4
    oh no

    what a xxxx!!! (add the most bad word you can imagine)

    Thinking of you an sending a big hug from Germany
    Petra

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  • NewHere
    NewHere CSN Member Posts: 1,433 Member
    edited August 2016 #5
    K-Rap

    So sorry to hear this Abrub.  I have the same issue.  (New, not met).  Did surgical pretesting at MSK yesterday.

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  • Trubrit
    Trubrit CSN Member Posts: 5,808 Member
    edited August 2016 #6
    Noooooo!

    I am so very sorry, Alice!   I fear the news of a new met, after so many years, is probably more of a blow than hearing it within months, when you really are still expecting the worse. 

    I'm sure you've caught it early, and will get it all taken care of in no time. 

    Keep us up to date on when your surgery is, so we can be sending all those good vibes and prayers. 

    SUE

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  • JanJan63
    JanJan63 CSN Member Posts: 2,478 Member
    #7
    Aw, I'm so very sorry that

    Aw, I'm so very sorry that you're going to have to go through this crap again and go back to the every few months tests and all that bs. GD cancer. See, I've figured out a way to say what I feel without being edited. I pray they find a cure or less invasive treatments before I die. It's something I want to see in my lifetime. Best of luck. I hope it's an isolated incident and is easily fixed. Praying for you. For all of you.

    Jan

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  • traci43
    traci43 CSN Member Posts: 771 Member
    #8
    No way!

    Unfair! Really thought you were in the clear.  Sounds like you have a good plan of attack doing what worked last time.  Good luck Alice.  Traci

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  • Cathleen Mary
    Cathleen Mary CSN Member Posts: 827 Member
    edited August 2016 #9
    So sorry, Alice.  Hopefully,

    So sorry, Alice.  Hopefully, all will soon be well. Sounds like you have a good doc and a good plan.  You are in my heart and prayer.

    CM

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  • jen2012
    jen2012 CSN Member Posts: 1,607 Member
    edited August 2016 #10
    Ugh my stomach just dropped

    Ugh my stomach just dropped reading this.  I am so sorry.  I hope there is an easy fix.

    Grrrrrr!

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  • maglets
    maglets CSN Member Posts: 2,576 Member
    edited September 2016 #11
    oh nooooo

    Alice I am so so very sorry to hear this news. That is heart-breaking.  A lot of the long-timers here will understand that feeling of gradually sneaking away from the beast only to feel it again.....nine years......not fair Alice!!

    mags

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  • abrub
    abrub CSN Member Posts: 2,174 Member
    edited September 2016 #12
    NewHere said:

    K-Rap

    So sorry to hear this Abrub.  I have the same issue.  (New, not met).  Did surgical pretesting at MSK yesterday.

    My pre-op

    is next Friday.  When is your surgery?  Mine is the 27th.  Do you want to walk the halls together?

    Alice

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  • Trubrit
    Trubrit CSN Member Posts: 5,808 Member
    edited September 2016 #13
    abrub said:

    My pre-op

    is next Friday.  When is your surgery?  Mine is the 27th.  Do you want to walk the halls together?

    Alice

    Pictures

    If you do meet, I want pictures. 

    How neat would that make a not so neat experience. 

     

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  • John23
    John23 CSN Member Posts: 2,121 Member
    #14
    UGH.

    UGH.

    We had the same time-frame - -  9 years to a recurrence. PHOOOOOOOO --OOO--- OOIE....!

    Ok, so we'll do it again, alright? Here's lookin' at another 9 years for us!

    (Hold my hand? I feel better not having to do this alone)

    Be well Alice!

    John

     

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  • NewHere
    NewHere CSN Member Posts: 1,433 Member
    #15
    abrub said:

    My pre-op

    is next Friday.  When is your surgery?  Mine is the 27th.  Do you want to walk the halls together?

    Alice

    A Few Days Before Yours

    They may have gotten me in quicker actually.  Not a met, #3 primary in a year and a half.  I have always been an overachiever ;)  Barring complications and the rest, I should be out about 2 days before you come in.  Kind of bummed actually.  But if I am up for it, will come back in to hang with you.  Seriously.  You are in my thoughts as we both go forward...

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  • annalexandria
    annalexandria CSN Member Posts: 2,571 Member
    edited September 2016 #16
    Oh no!

    I don't check in that much any more, and to pop on and find this news...I'm just stunned.  I'm so sorry you have to face this again.

    I really hope it will be a quick surgery and then done for good.  Keep us posted.

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  • annalexandria
    annalexandria CSN Member Posts: 2,571 Member
    edited September 2016 #17
    Btw...

    how did they catch it?  Symptoms or scans?

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  • ellend
    ellend CSN Member Posts: 109 Member
    #18
    So sorry to hear this

    I think many people have said this, but this disease sucks. I'm sorry you are facing this after 9 years. Wishing you the best with surgery.

    Guess it just goes to show that we need to continue to be vigilant.Ellen

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  • abrub
    abrub CSN Member Posts: 2,174 Member
    edited September 2016 #19
    NewHere said:

    A Few Days Before Yours

    They may have gotten me in quicker actually.  Not a met, #3 primary in a year and a half.  I have always been an overachiever ;)  Barring complications and the rest, I should be out about 2 days before you come in.  Kind of bummed actually.  But if I am up for it, will come back in to hang with you.  Seriously.  You are in my thoughts as we both go forward...

    Paty could have gotten me in a week sooner

    but he's going away for a couple of days at the end of the prior week, and he wants to be there for me those first few days post op.  Who is your medical onc?  I've just been assigned to Dr. Reidy.

     

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  • abrub
    abrub CSN Member Posts: 2,174 Member
    #20
    John23 said:

    UGH.

    UGH.

    We had the same time-frame - -  9 years to a recurrence. PHOOOOOOOO --OOO--- OOIE....!

    Ok, so we'll do it again, alright? Here's lookin' at another 9 years for us!

    (Hold my hand? I feel better not having to do this alone)

    Be well Alice!

    John

     

    Holding hands.

    Holding hands.

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  • abrub
    abrub CSN Member Posts: 2,174 Member
    edited September 2016 #21
    annalexandria said:

    Btw...

    how did they catch it?  Symptoms or scans?

    MRI

    No symptoms. My dr was just saying "one more clean scan and we'll throw you out for good."  Didn't quite reach that point.  Now I'll never be thrown out for good.

    Alice

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