Update on Brain Radiation

shen

Understand have been arrested, had the shooting not happeded.  The ribs are fractured which is better than had the broke inhalf?  Guess better chance of healing.  The worst part was she was laughing according to the people around who were wonderful.  Just some tried to pull me up until, my friend Lynn told them I had cancer thru my bones and you can't just pull me up. So amazing how wonderful strangers are, and you learn how willing people are to help, when you need it, so not everything was awful, but there is nothing you can do for cracked or broken ribs.  

They said they use to bind them, and they were finding the ones who did need up with pneumonia as binding kept them from taking deep breaths.

And Sherry, it is the flying alone that has stopped me now for 2 years from going to CA.  My sister in Sacramento, and brother in Mission Viejo keep offering to send me a ticket to sta1-2 weeks its them, high I would love to do, if I wasn't flying alone!  I get that part of it all the way.  Brother even offered to have dilemma co.e with me again, but she works full time, and my son and his girlfriend here work full time.  He would have gone this summer except ripped his a chile's tendon in two, had surgery, but has ET (Essential Thrombosis Cytosis), a former of blood cancr, ended up with 13 embolism after the surgery, I got into it with his pulmonary Dr who was doing a study on blood clits, and wanted him to go home like that, made her call his oncologist who agreed with me to do an us on the calve of the foot they did the surgery and he had a 4 1/2 inch clot.  After having clots myself and being on wayfaring forever now, I told her he has to be throwing pieces off something.  

She was not happy when his onco, wanted him in until they could get his clotting factor don't.  If he threw a clot any larger, he could have a heart attack or stroke, so he is still being treated for the clot, and now is back on the mess for his ET, as his spleen is swollen and his platelet count is just under a million, when it hits a million they are saying he will need a bonemarrow transplant, which he, like me says that is the least thing he will do, as recovery from that his onco says would be anywhere from 8 months to years.  He knows how sick he will be if he has from just taking the chemo, and there is no guarantee  that it will even work.... so. He ended up taking classes all summer towards his teaching, (he teaches at risk kids, who are on the brink of dropping out of high school.  He is in the richest area, yet his kids have so little parental support that they feel whatever difference does it make?  

So he points out would a he diploma they would be lucky to work at a fast fod, so they would have menial jobs, where just getting their diploma will at least give them an edge over high school kids on getting a job.  Then for those definitely not going to college, if he can keep them in high cholesterol. He has been able to convince to many to go half day to getting their he diploma, and12-5p to the technical college where they can learn a trade, such as cnw, welding, aprentiship electrucians, animal techs, radiology tech programs...  last year he set up a new program with his mentor, the school psychologist/assistant principwl, and he was successful in keeping about 90% in some program rather than drop out.  So it has been an all around odd summer, but still happy to be here.

 

 

Thee zip line I will be going on is for all abilities including handicapped. It still is over the ski resort, but it is only the top part, and you have a break that you can control the speed.  It has the padded chairs that you are harnessed in, like a car seat, rather than what's we see where people doing a zip line are hanging tethered upright to a harness.  

Now the extreme zip line is also a seat but it is closers to 2000 feet and is faster, and has that long drop from where mine stops and the extreme Flys on.  Pretty mild yet looks like so much fun!  

I am waiting to get monco's results before doing it.  But I know I will do it either way.  I was closed as one of the 14 for coasting for Surbival.  I asked him if he thought I could do it.  He said go for it, as long as I am able to walk, he said to go. The worse that will happen is, if I am unable to do the fishing, I will have a 3 day pampered weekend on the Provo river.  He has been the dr. On call for some of them and said the friendships and staying at a 4* resort right on the river, next to the Hokestead, is amazing, all the leaves will be changing.  

 

thanks Sherry

Saw the pain PA yesterday, told him we

I was debating on doing the zip line until I finally get my results in another hour now.  I was expecting him to say no way.

He left the room, came back said Dr. PULLEY  said if your scans come out okwy! Meaning not well, he said these are state of the art, padded and you are sitting in a soft chair lift,,,, "GO FOR IT!",  

SO I am doing the Casting for recovery September9-11, and zip lining this next

Tuesday or Wednesday! ;we lost 2 more from my cancer support group.  Both of which quit living when they were diagnosed, one with pills, the other naturally.  Either way extremely sad, but everyone has the right and respect to make there o

 

 

My sister's think the cancer in My brain is causing me to make decisions I wouldn't normally make, but I would have done this in a minute had I have know it was there. So we are looking at Wednesday.

I would have just done it before and not told them.  They also think the fishing is too much excoriated my sister who just went thru her own BC!  

Time to go back to living. 

Love you guys!  I will keep praying for everyone else also.

Hugs,

Carol

Well, I didn't want to go out saying, man I wish I would have done that, I always wanted it to beI can't believe I did that, not I wish I would have done a  that"

So. If  guess I am back on track with me.  I have always loved wild rides, roller coasters, the faster the better, fshing, doing basic ally.  All my sisters are shoppers, more indoor than out, and definitely would not choose Magic Mountain, or Disney over shopping, but could you imagine 5 daughters

hi everyone,

I am still waiting, have the brain scan after Sept. 20th, my next appointment to see if the radiation worked.  I am not optimistic at this point.  My legs are weak, I took another spill, than God for the implant on the mastectomy side, it took 13,days, today to get my arms up over my head again.  Went down bringing the dog in at 1a, my son heard me hit the tile floor in the kitchen, didn't know weather to laugh or cry.

Tomorrow I am going on the Canning for Recovery fly fishing retreat.  I talked to my once and he said to go for it, but have to wait a little longer on the zip line, my blood was still too thin, so we dropped the dose further.  The steroids are still horrible, my face and neck have rolled into one, but again trying to drop the dose makes me go further to the right.  

I look in the mirror and still look like my son's old cabbage patch doll, Chester, with the sports hair, which we call the donald, I can do a come over that makes it a little better, just don't want a cold head as the weather is starting to collect off.  People keep saying just shave it but I didn't like sleeping with a beanie, and my boys said it looks better than being bald.  Just can't believe how puffed out this steroid is making me.  

I am still enjoying so many things and am really blessed with my support system.  The hardest part is at my support group for all cancers, we have 3 new ones, 27, 28, 28.  2 of the three with terminal cancer, one with young children, onedx'd w/ an acute children's leukemia, that is currently in remission.  Her maintenence regimen to keep her here is a weekly chemo infusion, as well as a daily chemo drug! She was diagnosed at their one year anniversary, she thought they were pregnant because she was so exhausted, and they were ecstatic, but it was not to be.  And we have a 9 yr old girl who had a double mastectomy, her parents do the caregiver support group, and she is at children's hosp. For support.

This is when, no matter how I feel, I realize just how blessed my life 'is and has been.  Puts everything in perspective, even the drooling, headaches, and upper back pain!

I I'll update when I know more.  If you look up the Zerlot Spa and Resort in Midway Utah, it is where the fishing retreat is.  12 women were chosen.  This was the 4th year I applied, nothing the first 2 last year I was the 12th alternate, and this year I got the notification that I was #3 chosen the day before I learned it is in my brain.  Kind of nervous, first time doing something like this not knowing anyone, but so looking forward to meeting new people and flyfishing!  One of my son's who Flys was trying get to teach me but gave up. Lol.

Hugs and prayers to all,

Carol