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CheeseQueen checking inn

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

It appears I'm trouble forming my words. I'm in the hospital being investigated a possible TIA. Good news CT scan clear. MRI in the morning. My cancer hospital but I'll just have to deal. Hope don't screw up my port. Keep you posted. Chemo-the gift the keeps on giving. No chemo for me tomorrow. 

beccabtown's picture
beccabtown
Posts: 234
Joined: May 2016

So sorry to hear this. Good luck with the MRI. Be strong and try to take things one step at a time. 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2803
Joined: Mar 2013

I remember the memory and language issues I had with chemo.  I was looking right at my boss and the thought flew right out of my mind.  He knew how frustrated it would make me - I remember crazy, wicked stuff - and held out his hand to say, "Hi, my name is Brad".  It could be misconstrued as mean, but I had to laugh about it.  Chemo is powerful stuff for sure!

Here is hoping your issues are nothing major - please let us know how you are doing.  

Soup52's picture
Soup52
Posts: 903
Joined: Jan 2016

Oh dear! I hope the MRI goes well. Ahh chemo and memory:(. I realized yesterday that I had an episode. I was shopping at a tjmaxx yesterday and had just 2 items in my basket. I totally forgot that I had anything in there. Thank goodness I just pushed the cart back to the other carts and left! What if I'd just pushed the cart outside to my car! Someone would have been bailing me out of jail! Keep us posted; were praying for you!

MAbound
Posts: 1086
Joined: Jun 2016

Good grief! As if you aren't  already dealing with enough!  At least the T in TIA stands for transient, so here's hoping this just alerted you and your doctors to something brewing so it can prevented from becoming permanent. Hang in there!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1686
Joined: Jun 2015

Oh gosh Cheese! I hope all goes well today. Feel better and please let us know the results.

Love and Hugs,

Cindi

giggs100's picture
giggs100
Posts: 91
Joined: Oct 2015

Here is hoping all goes well for you.  My thoughts and prays are with you.

Love,

Jerri

 

janaes
Posts: 800
Joined: May 2016

I will be thinking and praying for you today.  Hope you feel better soon.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Hoping this is just a temporary issue, Cheese.  Good luck with the MRI.  Thinking of you.

EZLiving66's picture
EZLiving66
Posts: 1436
Joined: Oct 2015

(((Susan))) That is awful!!!  Let us know how the MRI turns out.  I don't think most people realize how powerful those chemo cocktails are and the damage they can cause.  My doctor thinks I had a hemorrhagic stroke.  All I know is that it has caused some big time brain, nerve and muscle problems.  I hope everything is ok!!!!

Love,

Eldri

CindylovesMike's picture
CindylovesMike
Posts: 50
Joined: May 2016

Thoughts and prayers for you. I did have a lot of memory problems after chemo, couldn't think of words I wanted to say. I am a year and 2 months out from chemo and it seems to be getting better. Hoping this is a temporary thing that will clear up.

hugs, Cindy 

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

it appears I had a frontal stroke effecting only speech. Apologize for mistakes. I'm confident speech fully back with speech therapy. Chemo next week but need to press oncologist if chemo contributed.  New box of junk to deal with.  Good grief. Remaining optimistic. 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

CQ, I am so very sorry to hear about this turn of events. You've been doing so great! Hopefully it has nothing to do with the treatments so that they can continue. Sounds like you have a good plan in place with the speech therapy. I pray that the doctors can figure out why this happened so that it never happens to you again. Wishing you strength and healing, Kim

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2803
Joined: Mar 2013

I am sorry to hear this, I had hoped it was nothing like this.  You are right, you can work on this and please - no apologies is necessary.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1686
Joined: Jun 2015

Cheese - so sorry to hear this! I hope you feel better soon and get back to your sassy self!

Please let us know what your oncologist says.

Love and Hugs,

Cindi

beccabtown's picture
beccabtown
Posts: 234
Joined: May 2016

Very sorry to hear this. I know it is one of the cancer-related risks that no one talks about much.

It sounds like you and your doctors are on top of the situation. One step at a time! Best wishes.

Double Whammy's picture
Double Whammy
Posts: 2828
Joined: Jun 2010

I hope this is resolved and you don't have to worry about this added to your plate!  I'll be thinking about you.  Please keep us posted.

Suzanne

EZLiving66's picture
EZLiving66
Posts: 1436
Joined: Oct 2015

http://www.webmd.com/stroke/news/20150107/study-finds-link-between-cancer-diagnosis-stroke-risk

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Thanks for this article.  I believe my hypertension and hyperlipidemia, although well controlled, and my history of migraine aura , pre diabetes put me at risk, despite my age (58). I was lucky just minor speech effects this time and might not be so lucky next time. Definitely discussing this with oncologist and neurologist.  I tried to discuss with my current neurologist (migraine auras) but he didn't do anything. Time to change neulogists.  Excuse mistakes. 

Soup52's picture
Soup52
Posts: 903
Joined: Jan 2016

I'm so sorry Cheese.

janaes
Posts: 800
Joined: May 2016

Im so sorry Cheese.  I dont know what it is like to have a stroke but i do know what it feel like to have more things to deal with while going through chemo.  Its not fun.  Thanks for your optimistic attitude. your a good example to me.

MAbound
Posts: 1086
Joined: Jun 2016

Sorry! I know that heading sounds harsh! But this is for others on this site, too.

We're all dealing with a lot and come here for information and support and no one should feel like they need to apologize for negative feelings, spelling errors, or whatever treatment decisions they choose to make! No apologies needed. This ride is a roller coaster and we are all each others safety net. Feel free to share whatever with us and we'll be there with you as you are here for us.

CheeseQueen, I'm in awe that you have been sharing this as it's been happening to you! Here's hoping that all of the typing is excercizing your brain where you were affected by the stroke and is therapeutic for your recovery. Spelling and grammar mistakes happen to all of us without the excuse of having had a stroke. Keep the updates coming! God Bless!

 

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

My cardiologist pinned the stroke on a-fIB. I'll begin protocol for that. Could have been a lot worse. Now cardiologist needs to coordinate with oncologist. Hope it goes smooth. Could have been a lot worse. Thanks for your support. I'm still in ICU but getting better. 

EZLiving66's picture
EZLiving66
Posts: 1436
Joined: Oct 2015

Hang in there CQ!!!  We're all pulling for you.  Have you had A-fib before???  Hopefully you can continue your chemo but I've read reports regarding heart problems and chemo.  Heck, there probably is an obscure report out there showing the connection between ingrown toenails and chemo!!

Rest, my friend!!

Love,

Eldri

BC Brady's picture
BC Brady
Posts: 70
Joined: May 2015

Glad to have read down far enough to see that a-fib caused the stroke and that you have some answers. How are you doing now?

Billie

MoeKay
Posts: 293
Joined: Feb 2004

Gee, things can really come out of left field, can't they?  I hope you're feeling better and out of the hospital real soon! 

 

 

brissance's picture
brissance
Posts: 192
Joined: May 2016

I am sooo sorry to hear this but as usual, you are showing grace and helping us understand yet another Mountain we may all climb..  Actually, I am right behind you, turn around a you will see my freckled head shining and me waving.  I just got home from emergency. Started out as possible blood clot...  by the time I left I had A-Fib, enlarged heart  AND a hole in my heart.  Scared the stuffin out of me, tried to hide but they kept finding the 6' bald woman.  don't know how.  But looks doable so now coordinating meeting with Onc/Cardi. So when I read your post I just had this conversation, literally a few hours ago, with the Emergency Room Cardiologist.  I am on blood thinners, asprin as AFIB causes blood clots that make the stroke.

Luckily, no stroke...  I will say mega prayers for you and keep me (us) posted.  I will share info I get with you as well.  

Again, God Bless you, Strong Lady. 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1686
Joined: Jun 2015

OMG Patty! So sorry to hear this. I'm glad you are home and I hope they can minimize any discomfort you may experience. Just way too much for both you and Susan. Dang it Ladies!

Sending healing thoughts to both of you.

Love and Hugs,

Cindi

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I'm lucky just have mild speech impairment from my stroke. But have to wait 9 days for anticoagulant therapy because apparently research says after stroke if you start anticoagulant immediately risk of hemhorragic stroke day 3 and 9 post stroke. Critical 9 day period I have to get through. 

brissance's picture
brissance
Posts: 192
Joined: May 2016

Well, that is scary.  I will keep you in my prayers.  

MAbound
Posts: 1086
Joined: Jun 2016

I've heard misery loves company, but aren't you two carrying this too far?  

May I ask which chemo drugs you or your doctors think is causing this or is it just that future chemo's now an issue because of what's happened to you?

CQ are they keeping you in hospital for the 9 days? That would be a long stretch when I'm sure you'd rather be home. We're all pulling for you and Patty here and will be on pins and needles right with you through this. 

 

brissance's picture
brissance
Posts: 192
Joined: May 2016

Guys, I didn't have a stroke and I am fit and happy.  I have a hole in my heart but from what I am reading and hoping it can be glued up right nicely.  The Afib. (remember that show Emergency, remember those guys always had patients with Afib and gave them ringers lactate!) well not sure, weight loss and blood thinners and enlarged heart may be from Afib so that may lessen.  I made it sound like I was on deaths door and I am not and don't plan on being there anytime soon,  PC doc (who is also the President of the Medical University) thinks I should fare well and he is monitoring this.  

There is an interesting twist.  I am going to check w/ dr. manana.  1st Chemo was Taxol and Carboplatnim..  I had what was classified as one of the most severe sensitivity reaction taxol.  My back still hurts to this day and it was horrid.  Next chemo they loaded me up on steroids slowed the drip to twice the time and bingo in a few minutes the sensitivity but not quite as severe. Now I wonder, did this blow out my heart? My 3rd and next 3 chemos will be taxotere and carboplatin. I will let you guys know what the heart and chemo dr thinks caused the problem and if it is related to our chemo.  Should be interesting ; It is probably because I am overweight and was formerly a smoker. 

The next 9 days I will follow Cheese and pray she stays well on strong.  

Love to all and special prayers for Cheese

Patty

brissance's picture
brissance
Posts: 192
Joined: May 2016

I apologize that I took over post..  this is for Cheese.  If I get any more news I will start a new post and leave this thread for Cheese as it was started.  I am sorry, Cheese, just thought we had same malady or close to it was so strange, I was blown away.  

EZLiving66's picture
EZLiving66
Posts: 1436
Joined: Oct 2015

There is a lot of information on the web about the connection between chemo and heart problems.  As I've said before, 50 years from now medical science will look back and say "OMG, what did we do to these poor women!!"  That's why they don't make Coca Cola with cocaine anymore!

(((Susan))) and (((Patty)))  That's me giving you both firm but gentle hugs.

Love,

Eldri

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I'm out of ICU in a step-down unit. My cardiologist says a-fib and stroke had nothing to do with chemo. Just something that happens. I could have been walking around with it for a couple years. Thank God this didn't happen while I was in Italy between my surgery and chemo. I anticipate going home tomorrow. I have an appointment with my oncologist on Wednesday. Hopefully they can coordinate the care and I can start back on my chemo the following week. I have that battle to fight!

Thanks all of you for your support and encouragement. 

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Hope you are home by now.  It just sucks to be in and out of the ER and/or hospital.  Hopefully, everyone can coordinate and you can be back on chemo next week.

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I came home yesterday and it was sure good to hit that shower. They arranged for home health for my speech therapy so that will help. Apparently I will start on anticoagulants July 26. I have appointment with my oncologist Wednesday so I'm sure I'll get the skinny for when I'll resume chemo. Meanwhile I'm on a boat load of drugs and I've gained 10 pounds in 5 days!  

EZLiving66's picture
EZLiving66
Posts: 1436
Joined: Oct 2015

Yeah!! Home is a good place to be.  Keep us updated on what your oncologist says.  Sending you all my good thoughts!!!

Love,

Eldri

Soup52's picture
Soup52
Posts: 903
Joined: Jan 2016

So happy you are now home! I hope they can coordinate with your chemo.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1686
Joined: Jun 2015

Glad you are home CQ. I hope you are feeling much better too. Wow, 10 pounds! That's a lot in a very short time. Too bad it doesn't come off as fast as we can pack it on. Take care of yourself.

Love and Hugs,

Cindi

Moped7946's picture
Moped7946
Posts: 40
Joined: May 2016

Just read this...I hope you are feeling better!!!

Double Whammy's picture
Double Whammy
Posts: 2828
Joined: Jun 2010

Take good care of yourself.  I'm happy you're home.

Suzanne

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Well I saw my oncologist yesterday. I don't need to make up last week's chemo. But before I got chemo yesterday, she questioned whether I wanted to continue (12 out of 17) despite the rather dismal results generally of chemo. Now I knew the chemo had a 50/50 chance of working. But I really didn't hear from that her, that's been my research. Something with hearing her speak of dismal results, for some reason, really upset my husband and me. But I'll get over it. i plan to be in that upside of 50! It's just been a little hard to get my balance  

We had a nice talk with the fellow regarding anticoagulant therapy and I'm feeling much more comfortable with the Eliquis the cardiologist is recommending.  

What a way for my husband to celebrate his 60th birthday.  I guess he really meant "in sickness and in health."  Bless his heart  

Thanks for all your love and support.  You make me have hope  

 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

CQ, it's always a bit of a surprise when your doctor tells you something about treatment that they hadn't before, isn't it? In the last appointment before my last round of chemo, mine said that "either this will work or it won't - it's 100% or 0%." I just about fell out of my chair. He had always spoken more optimisticly to me before. I'm so very glad that he hadn't said that in the beginning because I'm not sure how I would have reacted. Good news is that it seems to have worked 100% for me. I know that your treatments will work for you, too. Keep fighting and wish your hubby a very happy birthday! Kim

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1686
Joined: Jun 2015

Hey Cheese,

Great attitude! I'm glad you are feeling more comfortable with your recommended meds.

We celebrated my husband's 60th birthday last November when I was doing chemo. And, Christmas with my last chemo treatment.  You know... it is all just small stuff in the overall scheme of life. I feel like I did everything I could to beat the odds and have the opportunity to celebrate many more. Sounds like you are doing the same. :-)

I hope you continue to heal.

Love and Hugs,

Cindi

MAbound
Posts: 1086
Joined: Jun 2016

Give your husband and "attaboy" from me!  Husband's are subjected to the roller coaster right along with us and it's no picnic to pick up the slack when we aren't up to our normal routines! Tell him I'd hug him if I could!  

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Thanks for the encouragement!  Soldier on my comrades! 

EZLiving66's picture
EZLiving66
Posts: 1436
Joined: Oct 2015

With Stage II, Grade 3 UPSC, my oncologist, Mr. Fun, gave me a 50/50 chance the surgery had cured me and with six chemos, he said 80 to 90%.  I don't think he was sugar coating anything because he sure isn't a sugar-coater - he hardly says a word to me much less something encouraging.

Yeesh, we go through enough without a doctor being so negative!!

Love,

Eldri

MAbound
Posts: 1086
Joined: Jun 2016

I know I have advanced high grade cancer, so I think I'm happier not knowing my odds on recurrance becuase I know I'm high risk, irregardless.  I'm learning more about everything else, but odds aren't written in stone and would only make living with this harder. Sometimes ignorance is bliss and I want to focus on the positive and not worry about what I can't change at this point. I get a lot of good, positive energy from this website hearing how others are NED even when more advanced or agressive than what I have and it keeps me looking forward rather than feeling sorry for myself. Thank you everyone!

brissance's picture
brissance
Posts: 192
Joined: May 2016

You are a class act and I like your thinking.  No matter what the odds makers come up with there still a win margin and that is where we will be, regardless of their modern math.  We are winners.  

survivingsu's picture
survivingsu
Posts: 134
Joined: Apr 2013

Yup, I totally understand.  There is a time for fact-finding and a time for just focusing on what you can do.  I am so glad that while I was undergoing treatment I did NOT research online and read about all the dismal statistics for undifferentiated small cell carcinoma of the uterus.  For one thing, most of the research online is already out of date.  For another, sometimes you just have to work with your doctors, family, etc. and magnufacture your own sense of hope.  Later I really appreciated how lucky I am to be here after reading stuff online...later.  I would have just been even more scared if I read that stuff while undergoing treatment!  It has been about 7 years NED, which is fantastic compared to the various 2% survival, or whatever listings!  As the wise women on this site remind us, we are each our own statistic.

Cheers,

Susan

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