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Lou Ann update

Lou Ann M's picture
Lou Ann M
Posts: 987
Joined: Feb 2015

In the last week I have had a CT Scan, Angiogram, appointment with my Gyn-Onc, and today with my Onc.  CT Scan showed only shrinkage and no new growth.  The Avastin was working.  Angiogram showed nothing wrong with my arteries.  Doctors all agree the the heart attack was caused by a blood clot that got loose in my heart and has since dissolved also a pumping malfunction all caused by the Avastin.  Everyone is sure I can't go back to the Avastin. Darn it.  My Gyn-Onc says I look good in his area of expertise and agrees with my Onc. My Onc is trying to get me on something called Keytruda. We filled out the papers today to get a compassionate approval.  It seems to be similar to Opdivo.

This heart attack has zapped the little bit of energy that I had.  Two of the medicines that the hospital put me on have been dropped because my arteries  were not clogged at all, and that is helping a little.  Sometimes my head is so tired that reading is a problem.  I have not been able to read as many posts as I would have liked or posted much.

i need to say welcome to all the new members of this club and let you know that I am praying for you.

Hugs and prayers to all, Lou Ann

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1323
Joined: Jun 2015

Lou Ann, Thanks for taking the time to update us. So sorry about the heart impacts. Sure sounds like Avastin was working well for you. On a good news note... shrinkage and nothing new! Woo Hoo! I'm praying for you that you can get on the Keytruda asap and that it is the final magic formula for you.

I hope you are able to build your strength up and can have some really good days before you start the next steps.

Take care of yourself my friend. Hug your puppy and your hubby!

Love and Hugs,

Cindi

brissance's picture
brissance
Posts: 192
Joined: May 2016

God bless you..  it is so difficult to handle all this stuff, especially when you feel yukky..  I am sure when they get your energy back you will be back in the battle ready to leap some more tall buildings.  You have done it before and you will do it again.  Just be good to yourself and realize you have a lot of us saying our prayers for you and Keytruda.  I firmly believe in their healing powers and you will definitely be in my prayers.

EZLiving66's picture
EZLiving66
Posts: 1045
Joined: Oct 2015

I'm so sorry you can't continue on the Avastin but glad that it worked while you took it.  Don't worry about not being able to answer posts; we're just happy you're doing good although very tired.  (((Lou Ann)))

Love,

Eldri

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Rest and build your strength up.  And good news on the no new growth.  Your doctors are always looking out for you and finding options.  That's wonderful.  Maybe Keytruda will be the magic bullet.

Hugs,

Chris

CheeseQueen57's picture
CheeseQueen57
Posts: 483
Joined: Feb 2016

There are so many options these days. Keep the faith that one will work for you. We're all behind you!

Donswife48
Posts: 268
Joined: Nov 2015

You are such a warrior.  I too am glad that the Avastin worked to shrink the tumors, it shows that you can be treated.  Now onward with the next treatment so you can continue on your way to health.  Hugs Nancy

NoTimeForCancer's picture
NoTimeForCancer
Posts: 1959
Joined: Mar 2013

Lou Ann, good to hear from you.  Please take care of yourself right now.

EZLiving66's picture
EZLiving66
Posts: 1045
Joined: Oct 2015

How are you doing, Lou Ann??  I've been worried about you.  (((Lou Ann)))

Love,

Eldri

CindylovesMike's picture
CindylovesMike
Posts: 50
Joined: May 2016

for you Lou Ann. sending you lots of love and hugs.

Cindy

Red Corvette
Posts: 90
Joined: Jan 2016

You are fierce. Thank you for letting us know about you. You are most definitely in our prayers and know that you will get stronger soon.

Red

Lou Ann M's picture
Lou Ann M
Posts: 987
Joined: Feb 2015

I am starting to get some of my strength back, but still get tired easily. I still have no appitite and my nueropathy has gotten worse for some reason.  I am trying to make good use of my 5 week chemo vacation.  Last weekend we made it to Twin Falls, ID to see all four of our great grand babies.  What a treat.  This coming week we are going to try to make it to Seattle to see three of our kids. If I am still upto it we are going to head down to Seaside, OR for a couple of days and watch the ocean.  I just heard on Monday that I was approved by Merck for Keytruda and my doctor's office called today to say that they are reviewing it tomorro.  I will start infusions on the 11th of July.  I really feel like I am starting all over with no idea what to expect and a little scared after the heart attack from the Avastin.

my thoughts and prayers are with all of you.  Love, Lou Ann

joannewtta's picture
joannewtta
Posts: 43
Joined: Jul 2014

I didn't realize you live somewhere in the Pacific NW. I'm in Vancouver, Wa. Not BC and not DC

Joanne

Lou Ann M's picture
Lou Ann M
Posts: 987
Joined: Feb 2015

I live in South western Montana and have kids in Monroe and Everrett, WA and Boise, ID. Also one in Alabama.  We have been through Vancover.  Beautiful area

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

How great that you were able to see all of your grandkids!  Indeed you are taking advantage of the chemo vacation.  I'm sorry that your neuropathy is worse, but it's promising that your strength is coming back.  Sending all good thoughts to you for the rest of your vacation and for the new chemo.

Chris

Soup52's picture
Soup52
Posts: 678
Joined: Jan 2016

Sending good thoughts! I hope you enjoy your chemo vacation!

CheeseQueen57's picture
CheeseQueen57
Posts: 483
Joined: Feb 2016

All good thought. And vibes sent your way. 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1323
Joined: Jun 2015

Thanks for taking time to let us know how you are doing. So glad to see you taking advantage of your chemo vacation. You deserve the healing time with your family.  Did you take you little doggie on your trips? :-)

I don't blame you for being a bit afraid of starting up again after your last experience. You have great doctors watching over you and hopefully this next treatment will be much kinder to your body. And, that it will get rid of ALL of the darn cancer cells!

Continue your wonderful vacation and come back strong.

Love and Hugs,

Cindi

Charissa's picture
Charissa
Posts: 97
Joined: May 2016

Thank you, Lou Ann, for posting this information. It is valuable to others that may experience some of the same side effects. I am so glad they approved the new drug in place of the Avastin. Now, let's just pray it has the same, or better yet, is more effective then Avastin. Try to rest and take care of yourself. That is one area I was poor in. I always tended to everyone else's needs and put mine on the back burner. I quickly learned, I'm not invincible and if I don't care for myself I wont be here to care for my family. Blessings with love and hugs.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Well said, Charissa. The analogy I like to use is that there is a reason that the airlines have you put your oxygen mask on before helping others with theirs. Kim 

Charissa's picture
Charissa
Posts: 97
Joined: May 2016

It's sad it took something like this to get my attention.  And, this last week I have been kind of slacking off more on the strict diet they have me on. Then today, I get a phone call from my oncologists office they found a nodule in my right breast (from my mammogram last week) and need to do further tests. Seriously?? I'm remaining positive that its nothing.  About seven years ago, they found one in my left breast and it was nothing of concern.  However, when you are told once you have cancer, your mind tends to quickly go back to every ache, pain, or image is now cancer. But, I do like the air mask instructions. I will retain that image and thought in my mind, as I move forward in this journey. Love and hugs.

janaes
Posts: 510
Joined: May 2016

Charssa, I really loved how you said that.  I too used to put others first and forgot myself. I yell way to much if I dont take care of myself.  That is why I love this forum because I can work on myself here and then beable to work on my kids when i get the help i need.  

Charissa's picture
Charissa
Posts: 97
Joined: May 2016

Thank you, Jana for sharing. I think as moms we have a tendency to keep plugging along, with good intentions of eating and exercising ONCE we're done with "This or that". However, after we're done with "This" or "That" there are always a few other "This or That's" following. It's never-ending.

And then, when our health is restored and the demands of every day life return, it can feel like more work caring for yourself, which then in turn becomes overwhelming and you end up falling back into old patterns. I hope and pray that this time I will remain committed to caring for myself. As I start feeling better and with it being seven weeks since the hysterectomy, I find myself doing more and more each day. Oh, how I wish there was a "Pause" button for the busyness of life. Wouldn't that be nice?

I love following your journey on here and seeing all the love and support being offered to all of you. Such a blessing!

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