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My wife was just diagnosed with Adenocarcinoma in her lungs.

CessnaFlyer's picture
CessnaFlyer
Posts: 110
Joined: Aug 2009

A recent CT scan showed that my wife had multiple ground glass nodules and opacities (GGO’s) in both lungs. They did a needle biopsy Wednesday and her doctor just told her she has Adenocarcinoma. Further testing will be necessary to determine if it is in both lungs, but since the GGO’s are in both lung my wife is certain she had cancer in both lungs. The doctor told her that if this is the case then she is in the advanced stage of cancer. She is now making an appointment with an oncologist, but needless to say she is devastated and believes she is going to die. Have any of you had Adenocarcinoma and how was it treated.

 

 

z's picture
z
Posts: 1413
Joined: May 2009

Please go to the inspire web site and find the lung cancer section.  There is so much that can be done now.  Lots of information and the cancer should be tested for biological markers to identify what treatment will work best.

CessnaFlyer's picture
CessnaFlyer
Posts: 110
Joined: Aug 2009

Thanks you so much for the info. This is exactly the type of information I was hoping to find.  From what I have learned so far, ground glass opacity (GGO)-dominant tumors correspond to pathologically low-grade adenocarcinomas. Also,  GGO-dominant group rarely exhibited pathological invasiveness. This certainly is giving us increased hope. 

z's picture
z
Posts: 1413
Joined: May 2009

I am so glad it is helpful, there are so many posters and so much good information.  This lung cancer discussion is good but not as many posters.  I wish you and your wife well.  Lori

LiveWithCancer's picture
LiveWithCancer
Posts: 5
Joined: Aug 2014

I was diagnosed with adenocarcinoma back in 2012, stage 4. My tumors are in both lungs, are inoperable and radiation wasn't an option. 

I have been on Opdivo for the last nearly 3 years and feel great and am doing great. Please tell your wife that if we have to have lung cancer, now is a good time for it - there are many new and effective treatments available.

dennycee
Posts: 836
Joined: Mar 2011

5.5 years here with an agressive adenocarcinoma.  I'm way past my doctors guesstimate of 10-15 months.  

mcaguth
Posts: 5
Joined: Sep 2016

Hi:

I was just diagnosed(1.5 months ago) with adenocarcinoma, stage 4 lung cancer. your post gave me reason to hope. I hope you are doing well.

I had my first chemo treatment yesterday and so far no problems. Thanks for the inspiraton

Michelle911
Posts: 6
Joined: May 2016

I have GGN opacites in my lungs.  one is 1cm and that is the size that is considered cancerous.  And I'm scared as hell.  Its all I think about.  Ive known since February and my Dr.doesnt even want to see me until August.  Lord knows what it will be by then

Apaugh's picture
Apaugh
Posts: 851
Joined: Aug 2016

Did you see a new doc? 

niecie70
Posts: 2
Joined: Sep 2016

I was diagnosed with Adenocarcinoma May 24th of this year, which is inopperable.  I began chemo treatements consiting of cispaltin and alimta, September 8 2016 and thus far the side effects for me have been rough. I am trying to stay possitive, because I do want to survive this, and I pray for all of you to survive this a well. 

cjeinSF
Posts: 2
Joined: Sep 2016

I was diagnosed with adenocarcinoma last December, stage 4.  I had surgery for the cancer that had spread to my bones, radiation for the cancer in the bones and chemo for the lung cancer.  The first six months of the chemo were absolute hell (I have a secondary bleeding condition) and ended up in the hospital ER about every 2-3 months.  But working with my doctor, we tried different medications, different dosages, different regimens, etc. Now after nine months, I am learning to live with the chemo (which I find a lot more difficult than living with the cancer) and learning to accept the fact that instead of being cursed with knowing I am going to die early, I am blessed with being able to wrap up my life to my satisfaction. I may live for many more years or just many more weeks, but it doesn't matter. We all die and I am so grateful that I get to prepare my husband, especially, and the rest of my family for the end. Believe me, I know how scary it is, and how many tears are shed when no one is around because we don't want to burden them with our fear. Stay positive, live one day at a time, offer your heart and your joy to every single breath you get to take, and best wishes. It's hard, I know it's hard, but (cliche warning!) it is what it is. Please let me know how you are doing. I care.

Warrior Woman
Posts: 1
Joined: Nov 2016

Could you explain what side effects your "cocktail" gave you? They are the 2 I start tomorrow. I know we are all different, but I've only been given a handout.

dennycee
Posts: 836
Joined: Mar 2011

Are you referring to the entry that mentioned cisplatin and alimta? I had cisplatin as one of my doublet. The platinum will make your food taste funny. Using plasticware will help reduce that. My hair thinned, it didn't all fall out. When the metallic taste sticks around between meals I found lemon drops helped relieve that. I don't know if alimta will cause it to thin or not.

If you develop a ringing in your ears, let your oncologist know. Also watch for neuropathy, if you develop a cold burning sensation or pins and needles in your hands or feet you need to report that. If caught early the cisplatin can be switched out for carboplatin and the damage does not have to be permanent. Stay well hydrated, it will help flush the chemo through your kidneys and prevent damage. Take all steroids exactly as directed to avoid severe nausea. Use a stool softener daily, the chemo will bind you up and a blockage could be life threatening.

Pecs
Posts: 12
Joined: Nov 2016

This is about how it is going with me.  I have a different kind of aggressive lung cancer.  I started Topotecan friday as part of fighting small cell lung cancer's comeback after an initially successful period of chemo.  I get constipation instead of diarrhea.  I never needed my anti nausea drug but I started taking it pro-actively since I started something new (the topotecan). 

So far it has been constipation with the topotecan.  I haven't used any stool softenerand haven't had a blockage.  I've had some incredibly hard blockages in the past.  This was while regularly using prune juice (a favorite of mine).  I will be on the lookout.

Worth mentioning, I have initially had very intense fatigue and "chemobrain" with the start of the topotecan.  I just finished taking a steroid.

I will needa  short procedure for the lung with the cancer so I can talk normally again.  It is coming up soon.  This was to be expected.  There will always be a slight chance of lung collapse as this goes on.  Very slight.  Something called a partially collapse.

It's spread into my liver.  I'm glad it hasn't spread into the other lung.  I drink a lot of liquid but temper that to keep my saline level normal.  I have to watch out for that.

My hair was coming back like gangbusters until this second wave started.  I suppose it will fall out again.  I am a guy and look pretty good with no hair so it is no problem for me.  I like not having to get haircuts or shave.

I've been staying away from detox's until I finished the prescrips I have that came with the new chemo (potassium supplement, steroid, some other stuff).  I will start them up again soon.

- I follow the Budwig Diet except I don't believe in the Flax Seed oil that you buy refrigerated.  I think it is impossible to have absolutely non-rancid Flaxseed oil squeezed by any process and I think what you get at the store tastes very suspect and not "nutty at all". I am good with taking it in capsules from the pharmacy.  I love the cottage cheese, yogurt, smoothies, nuts, dried fruit, etc., that comes with the diet.  I like dandelion root tea.  That is he only detox you can take while using another one.

-  I will probably do another 6 week Essiac Tea regimen soon, after I start to feel less fatigued.

Good luck to your wife my friend.  You will be great support for her.

TillieSOK's picture
TillieSOK
Posts: 252
Joined: Jul 2013

I had a left upper lobectomy on the 12th of this month, due to a GGO. When it was first seen, 3 years ago, it was under .5cm, and "suspicious for primary lung cancer or metastatic disease".  My oncologist for my stage 3 Chromophobe kidney cancer said it was too small to do anything with and we would just watch it until it was 1.0 cm.  We did just that, and after 2 more years, it was 1.7cm, and according to the radiologists, "concerning for primary lung cancer or metastic disease." When I approached my oncologist about it, he said we would just continue to watch it. That was last April. I made an appointment at Moffitt Cancer Center in Tampa, FL., and saw a kidney cancer specialist, who immediately referred me to a thoracic surgeon.  They ran another CT and the thing had grown to 2.3cm.  The radiologist summarized that it was most certainly an adenocarcinoma.  I was not a candidate for a wedge resection, because of the nodule's location, so we opted for a lobectomy. (The frozen section during surgery proved it was indeed an adenocarcinoma) I'm recovering well and getting stronger every day....but still have not gotten the pathology report back telling me what stage it is, or the path report on all the lymph nodes that were removed.  If they are clear, and the path report shows no invasiveness of the tumor, then I'm golden on the lung cancer front.  If there is activity in the lymph nodes or in the tumor, then we will decide what direction to go next.  

Hopefully, your wife's nodules are small enough for either VATS or wedge resection.  Make sure you have a really good oncologist that specializes in thoracic surgery.  Prayers, white light, and good thoughts going up for your wife and you.

This is my first post to the lung cancer section of CSN....I'M usually found on the kidney cancer site.  My older sister passed away in September, 2012 from small cell lung cancer.  My name is Tillie and I have both lung and kidney cancer as primary cancers.

manaus2001
Posts: 1
Joined: Dec 2016

I just had my 4th chem treatment which is end of my first cycle this afternoon with Cisplatin and Pemetrex. After the 2nd chemo, I took regular CT with contrasst and it did not show any real noticeable change on the tumors except my lower lobe had small 1.5 cm nodule slightly enlarged and doctor suspect it may not be tumor,so she scheduled me for a biopsy this friday. I will have wait for 10 days for my PET scan to get an idea how Thoracic surgeon will proceed with surgery.

I am fortunate not to have any side effect other than losing some hair so far. I  only have tumors in all lobes of my right lung. My largest tumor at upper lobe is 4.7 cm.

Make sure you can eat healthy like veggies and fruits plus protein- some meat. Exercise a lot. I walk about 45-60 minutes mostly in the morning and  Chinese swing hands exercise for one hour- you cna find the demonstration in youtube.  I am energized. I believe Taichi can do the same.

Good luck to y'all from Houston

 

 

mom1996
Posts: 2
Joined: Jan 2017

My mother-in-law was diagnosised with Stage 4 adenocarsinoma non-small cell lung cancer in both lungs in early 2015. We were told it had spread to her lymphnods between the two lungs but no where else. After a couple of scans and a biospy, she beagn treat in early April. We were told that surgery and radiation were not an option and she was on two chemos, carboplatin and alimta, every other week for about 4 months and then they took her off of the alimta and she stayed on the carboplatin every other week until Mid November 2015. She did not loose all of her hair, it just got very thin. She did experience the metal taste in her moth and using plastic silverware and eating lemon drops did help that. From what we understand she was very fortunate as her only major side effect was that she stayed extremely tired. the treatment would completely wipe her out for about three or four days. She HATES to drink water so staying hydrated for her was a problem. Becasue staying hydrated is so important during chemo, they would do her chemo treatments on Thursdays and she would go back for 4 - 6 bags of fluids on Friday.

 She opted to go off of treatment for the holidays in 2015 and when we returned to the doctor in January 2016 they told us that her current treatment wasn't an option anymore and that they were putting her on Opdivo. So she began that the next week and does it every other week. She still stays tired but defiantly not like when she was on the chemo.

We were told when we started this journey that it was incruable and that they would give her the best quality of life they could for as long as she had left. They said she could have 6 month or 6 years...they did not know. To be honest they made her diagnosis seem dire; and I don't mean that in a negative way becasue she has cancer and that is dire. But the doctors just made it sound like they thought she was more on the 6 months to a year end of things and just didn't want to say anything. In reality, she is doing good. So at the moment she just continues treatment and wait. 

She choose in the beginning to not really want to know how bad she was and didn't want the dr's to say anything negative about her situation. So for a long time we lived in this bubble of not really know how she was doing; and still live there to some degree today. Living this way can be very difficult for your family. She may not want to talk about the end, but we need to know her wishes. Having cancer stinks, and sometimes you have to have some tough conservations, and sometimes you have to hear some tough answers, but there are some decisions that need / have to be made. We have tried to allow her to have control of her health care and keep that until she is no longer able to do it for herself. But in order to do that we as her family have to have all of the inforamtion. 

I've herad people say that things can change in a instant with cancer and that it can go from good to bad very quickly...so she contiunes with treatment and we wait.

Best wishes to everyone on here affected by this truely horrible disease!

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