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Anybody else try physical therapy?

EZLiving66's picture
EZLiving66
Posts: 1415
Joined: Oct 2015

I've gone through four sessions of physical therapy.  The first one was just testing to see where I am now compared to where I was before chemo.  Needless to say, I'm worse.  

But, after each session, I feel worse!!  Now I'm having problems with my left knee that was just fine before I started the PT.  After yesterday's session, I alternated between heat and cold all night and took a couple of Advil.  Around one this morning I woke up, my knee was killing me and I had the dry heaves.  We usually have a bigger lunch and a light supper so it wasn't like I had eaten too much either.  I was up a couple of times and finally around three thirty I took a whole Percoset - I hadn't had to use that for at least a month.

My physical therapist is having me tested for a cognitive problem.  When I was so sick from the chemo, my GP thought I might have had a mini stoke and now my physical therapist thinks so too.  My left side is a lot weaker than my right side and she said my gait looks like the gait of a stoke patient.  I drag my left foot when I walk.  I also get dizzy if I try to lay on my left side.

Before this d*mn cancer I could write with both hands.  It's somewhat difficult to write with my right hand (I used a magic marker to address my christmas cards) but it's getting better as my fingers become less numb.  But I can hardly hold a pen with my left hand.  The left side of my face was also numb for quite a while.  It's better now but it still doesn't feel like the right side of my face.  The earliest they could get me in for a full evaluation is in two weeks.  I'm going to talk to my physical therapist next week about my knee pain and see if we can change some of the exercises or get a brace for that knee.  I do NOT want to have to have surgery on my knee!!

When will this end???  I just want my life back Yell

Love,

Eldri

Donswife48
Posts: 326
Joined: Nov 2015

I can't say anything to make it better, sorry.  I hope that you didn't suffer a stroke, but it's a possability.  I have only had physical therapy for problems not related to chemo or neuropathy.  In most cases, it helped, not hurt, but I never got any relief from my sciatica type pain.  It's possible that you could still have nerve problems, and I really don't think PT can help the pain.  What it can do is strenghten your legs, but if it's hurting your knee, then no it's not helping.  I have read that chemo can worsen joint arthritis, I know my knees are hurting now, but I'm still "technically" doing chemo.  Also, when I hurt, I feel sick to my stomach, could that be a reason for feeling sick?  Wish I could help.  Hugs Nancy

EZLiving66's picture
EZLiving66
Posts: 1415
Joined: Oct 2015

Thanks, Nancy, for the hug!  I think I expected once the treatment was over things would get better quickly and I could get on with my life.  It's like I take one step forward, then two steps back.  And, always in the back of my mind is..... if, and/or when, the cancer is going to come back.  Even last night when I was having those pains I was thinking what if it's already spread to my stomach?  What if it's spread to my brain and that's why I'm so unsteady on my feet?  A person could drive themselves crazy and I know I have to stop but at 2 a.m., it's hard to push those thoughts out of your mind.

Love,

Eldri

EZLiving66's picture
EZLiving66
Posts: 1415
Joined: Oct 2015

Ok, forget all my complaining.  I just went back and read what some of these young women are going through and I need to get over feeling sorry for myself.  Pity party is over!!  Onward and upward for this old lady!

Love, 

Eldri

CheeseQueen57's picture
CheeseQueen57
Posts: 924
Joined: Feb 2016

Dont have anything to say but love and hugs to you Eldri.  You are my inspiration. You are entitled to occasional pity party. Just try not to have them be endless. 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

You deserve a good pity party.  You have been through a lot.  I was hoping that the PT would help you at the last some.  I did Have OT for awhil last spring for pain and stiffness in my left arm and shoulder.  My therapist was pretty sure that the chemo had caused damage to the nerve sheaths that ran from my shoulder to my fingertips.  Also had some major stiffness in my neck.  She pulled and prodded and manipulated and I do feel a lot better.  Hugs and prayers, Lou Ann

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

Eldri you have been through the wringer! No need to apologize, your experience has been pure hell and you have been so upbeat through all of it! Everything that you have gone thru and now a stroke on top of it- Wow! Don't try to push yourself, just take it day by day and let yourself heal. We're all rooting for you. Love and hugs, Sandy

BabyCoach's picture
BabyCoach
Posts: 95
Joined: Mar 2016

dear Eldri!  I want my life back too and I haven't officially lost it yet! Still awaiting path on my removed uterus. But I asked for a photo of it and it looks full of tumors to me. But, I'm afraid we have this life now ... And it belongs to us. 

Im so sorry about your ailments  it's hard to know which ones to pin on Cancer and which we would have experienced anyway  I had both knees replaced at the same time - brutal. Hope yours improve  

Soup52's picture
Soup52
Posts: 903
Joined: Jan 2016

I'm so sorry to hear about all the physical problems you are experiencing. It's so unfair and you have all rights to complain! Where else to do it! I hope they can find some therapy to help. Keep your chin up.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1659
Joined: Jun 2015

Eldri, I hope you find some relief soon. And, some answers to all of this would be great for you.

You continue to be an inspiration for all of us. And not one person expects you to be upbeat all of the time. Your body has gone through hell. Please feel free to vent, cry, cuss and celebrate the good days. We are here for each other!

Let us know the results!

Love and Hugs,

Cindi

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Oh, Eldri.  I so wish you would get your life back, too.  You have dealt with so much in such a short period of time.  I hope the doctors can find some answers, and more importantly, some remedies for you.  

Chris

Fayard's picture
Fayard
Posts: 436
Joined: May 2011

Hola,
I did PT for about 6 months. Unfortunately, chemo causes osteoporosis and arthritis :( The PT worked for me. Keep in mind that excess weight will hurt your knees, so trying to lose weight will not hurt you. It is going to take a while, before you can see any changes. Good luck!

EZLiving66's picture
EZLiving66
Posts: 1415
Joined: Oct 2015

Thank you, my friends, for you kind words.  The clinic just called me and are switching my appointment on Monday from the physical therapist to another person to test for cognitive brain damage.  Since I started driving after chemo when my eyes got better, I would go someplace and for a few seconds to a couple of minutes, I would not know where I was and nothing looked familiar.  This scared me but my GP said it could also be stress related from the cancer.  It's been happening less and less but it happened to me again on Monday on my way to therapy.  I came to a place in the road and had to decide if I should go right or straight - I didn't know where I was and I have gone through that intersection by my house for almost 25 years!!!  I went straight and figured I'd just drive up the hill and pull over (when it would first happen, I'd panic) until my brain came back.  Luckily, I had made the right choice; when I go to the hill I knew exactly where I was. 

I know something is wrong.  I could read three different books at one time; now I can hardly keep the plot straight in ONE book and reading is not as pleasurable as it was before cancer. 

I'll let you know how things turn out on Monday.  I wrote everything down and read it back to them since one day I came an hour early for my appointment.

Love,

Eldri

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