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Hi Ladies - I am new

firecracker1
Posts: 7
Joined: Mar 2016

I have not been diganosed with Uterine Cancer but I have an appointment tomorrow for a uterine biopsy and just wondered if any of you ladies could answer my questions

My uterine thickness is .42 cm. Isnt that what the "ENDO Thick" means?  I am 44 and not in menopause. is that not pretty close to normal? My doctor requesting a biopsy due to this tomorrow but I am wondering if it is more due to my ovaries on the ultrasound

RT Ovary 4X4X3.2 complex cyst SEP.24cm

LT Ovary 2.2X2.2X1.5 simple cyst

there is also some readings on PSV and PGMAX i assume this is blood flow readings but i dont know what they mean and whats good and bad?

I have been having urinary urgency, irregular or "dysfunctional" uterine bleeding and muscle cramps in my feet as my only recent symptoms - I have gained about 15 pounds in the last 1 1/2 years and my sex drive is now ZERO. 

My doc is going to do the biopsy and then put me on progesterone for 6 wks and do a follow up ultrasound on the ovarian cysts. Does this all sound about normal? Should i be terribly concerned. How bad is this biopsy going to hurt??!

Thank you ladies in advance - you all seem so brave and strong - i feel like a weenie and i dont even know yet if there is anything wrong with me  :(

Gardena
Posts: 102
Joined: Jan 2016

I think many on this forum will echo my sentiment -- don't get too far ahead of yourself with thinking you have cancer.  There can be many reasons for your symptoms.  First things first, one step at a time, get thru your biopsy. 

As for your questions - we've all had a myriad of symptoms,  some ladies had no symptoms at all. My dx included a pap (clear, no cancer), a transvaginal ultrasound showing thickness in uterus and a biopsy/DnC.  My biopsy was done under anesthesia at a hospital and I went home the same day. Dr told me I might have cramping but I did not. I received my results/dx a few days later. My Dr (gyno) had prepared me it might be cancer so I used the days between biopsy and results to research onco gyno w surgical skills. My gyno referred me to a onco gyno but I ended going w my choice, and very glad I did.  I have had great care. 

Please keep us posted on your situation. I am sure others will chime in on your post, there are so many knowledgeable people on this forum. All the best to you, truly.

 

It happened to Me's picture
It happened to Me
Posts: 206
Joined: Apr 2014

Hopefully you won't need us very long.  As for your questions, I don't have any answers.  I agree with Gardena that you can't think too far ahead.  My story is that I was 51 and spotting and bleeding from Feb. 13 to May 13.  They did a pap test and two different atypical cells were found.  That led to a colposcopy which is basically a biopsy of the uterine wall.  The results came back as endometrial cancer.  My gyn referred me to an onc. gyn and he was the one who informed me that I had a rare form of enometrial cancer.  Long story shorter, I had hysterectomy, found out it had already spread.  Stage 3a  Grade 3, then had 6 rounds of chemo. .  As of this year, I am over 2 years NED. 

My suggestion to you is to write down every question you have and take the list to your doctor's appointment.  I would also suggest that you take someone who you trust to take notes for you, so you can concentrate on what the doctor's say.  After your meeting, if you want to get a 2nd opinion, get it. 

Once you get more information, you will be able to make an informed decision.  You are stronger than you think firecracker.  Some of the other ladies on the board might be able to answer some of your questions, so it might take a couple days for others to read and respond.

Keep us informed of what's going on.  Feel free to ask us whatever, this is one of the best group of ladies I've ever met and have the highest regard for.  We may not have all the answers, but we are here to listen, encourage and help each other.

Soup52's picture
Soup52
Posts: 902
Joined: Jan 2016

My symptoms were unexplained bleeding after menopause. I had a d and c and that pretty much confirmed cancer. I had to wait 2 weeks for the results which was pretty standard where I live. My gyro referred me to my oncologist and he's pretty much considered the best one where I live. He is great. I also had ct scan and then robotic surgery. Here's hoping yours doesn't confirm cancer, but if it does you have come to the right place. There are many knowledgeable gals here and you will get plenty of support. Here's hoping for the best. Keep us informed!

firecracker1
Posts: 7
Joined: Mar 2016

Thank you ladies for responding and  welcoming me! I'm trying to not jump to conclusions. I am very optimistic that it could be one of many many benign things that cause these problems. Mostly I am worried about the biopsy because they are doing it in the office and  told me that I should just  take some ibuprophen because it would be "very uncomfortable".  

Has anyone had the biopsy in their doctors office without anesthesia?

EZLiving66's picture
EZLiving66
Posts: 1370
Joined: Oct 2015

I had my endometrial biopsy in my gynecologist's office with minimal discomfort.  She gave me three Advil afterward and my husband drove me back to work.  That was the second one I had.  About 15 years earlier I had one and I remember having some mild cramping afterward.  I know everybody is different but, for me, it was pretty painless.

Love,

Eldri

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

I had two biopsies done, years apart, both in the doctor's office, and I was awake for both.  I took ibuprofen befofe the first one, because it was scheduled. The second one was not scheduled but done right after my exam, so I did not take anything for that. I would describe both of them as uncomfortable but not awful.  It seems everyone has a different experience with them, but mine was not too bad at all.

Chris

Hopeful162's picture
Hopeful162
Posts: 82
Joined: Sep 2014

I had an office biopsy with no prior warning, so I did not even know that a little iboprophen would have been very helpful! I had previously had a CT scan for another issue, but the scan had shown a possible uterine problem, so they sent me to my gynecologist. She said she thought it was nothing, but would do a biopsy just to make sure. Well, eventually the biopsy turned out to show UPSC, an aggressive, high grade cancer!

But back to the biopsy...it certainly did hurt (I kept saying "ow"), but it was over in about a minute. She actually had to go in twice as the first pass was clear fluid, but the second was tissue and blood. She apologized about having to do it again, but the instrument was already in place through the cervix anyway. I was post menopausal which may have made it harder to get through the cervix to begin with. There was minimal cramping afterwards, but I drove myself home and took it easy the rest of the day.

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

I really agree with Cheesequeen! I went to my Gyn because an ultrasound had revealed a thickening of uterine wall and I had also had some vaginal bleeding. He suggested doing a d&c to get a definitive answer. It was done under anesthesia in an ambulatory care center and I had very little pain or cramping afterward. He called me into his office a few days later to give me the bad news- UPSC in both the uterus and cervix.

I have noticed that so many ladies here have had the biopsy done and then their doctors went on to do a d&c anyway. The D&C gives a more definite answer and will speed things along regardless of the outcome. If I were you I would ask the doctor if he could just skip the biopsy and do a D&C. 

Please try not to worry( easy for me to say!). There are so many other things that could be going on. Good Luck, Sandy

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

As hard as it is, try not to panic.  It is a scary situation so not feel bad about being afraid.  Wait until after you know all of th results.  Sounds like you have a proactive doctor who is trying o get to your problems.

I had a biopsy during a D&C sow I was out and didn't feel anything, afterward there may if been a litttle crampiming and achiness, but not enough to require pain med.  I had the D&C on a Friday and was able to go back to school on Tuesday.  Would have been Monday except I did something stupid and had a small bleeding problem on Monday.

hang in there. You are much stronger than you think.  Hugs and prayers, Lou Ann

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1577
Joined: Jun 2015

Ditto what the other ladies have said.

I have had two biopsies in the office over the years. One hurt - caused a lot of cramping and the second one was just a bit uncomfortable. Both were done years ago. The biopsy I had during my D&C last year ended up being a removal of a polyp which ended up being cancer.

I hope yours comes back as negative! And, if it doesn't, you will have the strength to address it! You will amaze yourself on that front.

Please come back with any questions... Someone will most likely have an answer for you. (I don't have answers to your initial post, sorry!)

Love and Hugs,

Cindi

firecracker1
Posts: 7
Joined: Mar 2016

Thanks to you two, too - Lou Ann and Eldri (especially Eldri for letting me know yours wasnt too bad) I think i have myself mostly worked up right about the biopsy hurting, rather than worrying about results .

 

firecracker1
Posts: 7
Joined: Mar 2016

And Cindi! Thank you all for your kind words

BabyCoach's picture
BabyCoach
Posts: 95
Joined: Mar 2016

Done in the office. I was warned that I would feel cramping like during a period (had forgotten about that!). It was similar to that and one sharp swipe for the cells. Not fun, but not horrific. I just tried to imagine myself lying in sand dunes with ocean waves sounding nearby! Tried to keep breathing deeply. Not that bad - you'll do fine. Over very quickly. Good luck!

CheeseQueen57's picture
CheeseQueen57
Posts: 836
Joined: Feb 2016

Now that I've got a lot of this behind me, here's what I would have done differently:

I think the endometrial biopsies they do in the office are a waste of time. They hurt and rarely do they get enough tissue to tell you anything. Mine came back normal when the in reality, the doctor really didn't get enough tissue for it to determine anything. If I had it to do over again, I would have skipped the in-office biopsy and fast forwarded to a D&C and hystocopy by a Gyn/oncologist.  This would be after having a transvaginal ultrasound.  

Alt my endometrial biopsy was normal, transvaginal ultrasound was suspicious and D&C confirmed uterine cancer  If I had just moved ahead with D&C I would have had answers a month ago

Good Luck Firecracker!  

 

It happened to Me's picture
It happened to Me
Posts: 206
Joined: Apr 2014

That was in office.  My pap was pretty painful, so for the biopsy, the doctor suggested I take 600 mg of ibuprofen take an hour before the procedure.  I had a huge number of people praying that I wouldn't have pain.  Prayer answered.  A little uncomfortable, but no pain.  Prayer and 600 mg. of ibuprofen.   That biopsy showed the cancer. 

Best Wishes.

Brighton
Posts: 15
Joined: Mar 2016

I had mine in the office, it caused cramps for about 1 minute, then it was over.  The worse part was waiting 2 weeks to have it done.  I was like you worried and scared.  I know it is a little late but dont worry, you will be fine with it.  Relax.....wishing you all the best.

Mary Ann

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

I would describe it as uncomfortable but nothing like what I was expecting.

firecracker1
Posts: 7
Joined: Mar 2016

Well, I survived the biopsy! Thanks for all the kind wishes. I wish I could say it didnt hurt but it was absolutely horrible! I think this was only because my cervix refused to dialate because I didnt really feel the sample itself when she took it.

 My doctor said she wasnt going to be able to do it after trying a few times, but then she got in and got the sample. I almost passed out but within about ten minutes I was fine and was able to drive home. They also took blood for a CA-125 yesterday. I should know today or tomorrow. My doctor said she fully expected my uterine biopsy to be normal but would feel negligent if she didnt do it to be sure. She is very concerned about my right ovary. I got a script for progesterone and a follow up ultrasound appointment for May 2. Unless my CA-125 comes back bad and then she said she would recommend we go ahead and schedule surgery to see...

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1577
Joined: Jun 2015

Thanks for letting us know. Glad that part is over for you. I sure hope your doctor is right about everything being normal for you.

Hopefully you can put this all behind you very soon.  Please keep in touch as you learn more.

Love and Hugs,

Cindi

CheeseQueen57's picture
CheeseQueen57
Posts: 836
Joined: Feb 2016

Glad you survived. Yes, they hurt. My cervix also did not cooperate. Which makes it really hard for the doctor to get a good sample. Did you have a transvaginal ultrasound?  I would look closely at your pathology report when it comes back (mine took over 2 weeks). You might want to ask about getting a D&C and hystoscopy just to be sure. You are put out for this procedure and I had no pain involved with it. They get a much better  and definitive sample. BTW, not trying to scare you but many of us on this forum had our endo biopsy come back normal only to have the D&C show cancer. You want to be sure. 

firecracker1
Posts: 7
Joined: Mar 2016

Cheesequeen

yes I had the ultrasound first which showed cysts on both ovaries, one 2cm simple and one 4cm complex. And a little uterine thickening. i think at this point she is more worried about ovarian cancer than uterine cancer.

 

ps - love your picture !!

CheeseQueen57's picture
CheeseQueen57
Posts: 836
Joined: Feb 2016

Also, CA-125 not really reliable for uterine cancer. Mine was normal. 

EZLiving66's picture
EZLiving66
Posts: 1370
Joined: Oct 2015

I'm sorry it hurt!!!  Mine was pretty painless but then, I had two live births and those kids just about dropped out - LOL!!  Even going in for my first examination after chemo, I had no pain at all and believe me, my oncologist looked at every inch of the inside of my vagina because I had been spotting.  He even apologized (and the guy hardly says a word) if he was hurting me.  I told him I could feel pressure but no pain. 

Hopefully, everything will be negative but if it's not, we're all here for you!!

Love,

Eldri

firecracker1
Posts: 7
Joined: Mar 2016

Eldri,

you made me laugh :) :) - my cervix didnt want to dialate when i had my son, even with the pitocin (sp?)

My CA-125 came back normal!! I know that does not mean anything 100% but it sure made me feel alot better (bc of my ovaries). Now just waiting on the biopsy to come back! Thank you all ladies for chatting with me. You all seem like an awesome group of women. I have definately educated myself reading over all of the uterine and ovary cancer boards. I dont think ever in my life that it occurred to me that my  normal PAP smear did not assure me of being cancer free in the lady parts!?? Just never crossed my mind. So i feel much better armed if i do have to fight a battle like this and will be educating my lady friends. There is so much put in our heads constantly about breast cancer and what to do and how to know and the signs and treatments. I never hear much about the things "below the belt" - WHY is this not talked about more!!!?? It makes me angry and sad. Especially when i read that most of these ladies heard the same things from their PCP - "you are just getting older", "you have to much stress"," its all in your head, your lab work was normal", etc etc .... or MAYBE !? its the giant cysts on my ovaries?!!?

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

is what makes me the maddest.  I read so many times about women who were told just that...  it's all in your head, it's menopause, etc. for months and in some cases years.  It took a friend of a friend 18 months before she was diagnosed with Stage IV uterine cancer.

It makes me crazy and makes me feel so fortunate that my ob/gyn was so proactive.  I shudder to think what might have happened had she not been.  

So, so far your news is good.  Hoping that it continues to be for you!

Chris

 

pinky104
Posts: 574
Joined: Feb 2013

Glad your CA-125 came out fine.  I just want to let you know that I had a little bleeding when I was 51, three or four months after menopause.  I had a hysteroscopy, and a benign polyp and endometrial thickening were found.  Ten years later, I had bleeding again (only a small amount) and I was assured by my GYN (a different one from the first) that the polyp he found on my ultrasounds would be benign.  Instead, I had stage IVb UPSC which had spread to both my ovaries, the omentum, and the small intestine.  I was referred to a GYN/onc for surgery, then I had chemo.  I'm still here 6 years after my initial diagnosis, with no evidence of disease.  My initial CA-125 was 94.  Now, it runs in the 7's most of the time and the 6's on occasion.

If you develop any future symptoms, don't hesitate to get checked out again.  It saved my life.

Double Whammy's picture
Double Whammy
Posts: 2827
Joined: Jun 2010

I have had a total of 4 endo biopsies in my life.  Two were when I was young and had not had children.  They were also done by a general practice doc and not a gynecologist.  They were far from pleasant.  I was also 21ish at the time, it was a long, long, time ago.  I think they used a crow bar and tongs to get the tissue they needed. 

As a grown up and many years later (age 55ish) I had another one due to spotting and marginally increased stripe.  I was advised ahead of time to take ibuprofen.  I was scared to death given my earlier experiences.  I had also had 2 children some 30 years prior.  The biopsy was uncomfortable and not something I'd like to do every day, but it was very very tolerable.  I think the ibuprofen (800 mg) really helped.  I had to have another one at age 62.  While I did not look forward to it, and it was not recommended, I still took the 800 mg. ibuprofen and the biopsy went quite fine.  The gynecologist commented on how well I tolerated the procedure.  I'm sure it was the ibuprofen and I told her. 

Good luck on your biopsy. I think a whole lot of the pain issue has to do with the skill of the gynecologist and prior meds.  It is over quickly under any circumstances.

Suzanne

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