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Tomorrow is surgery day! Happy St. Patrick's Day!

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Hi Sisters!

Well, the day has finally come and I am scheduled for surgery at 8:00 tomorrow morning.  It will be the whole shebang, robotic total abdominal hysterectomy bilateral salpingo oophorectomy (TAH BSO).  What a mouthful!  I'm hoping for a flatter tummy!  So having a fun day today with the bowel prep, which actually is not as bad as colonoscopy prep so I'm okay. 

Would appreciate any and all advice regarding surgery recovery.  Did you have a sore throat from being intubated? How long before you were up and about?  How was the pain?  What did you use to control any pain?  How long before you had the pathology report?  If you needed any futher therapy, how long after surgery did you start?  How long before you could travel by car? by plane? Any other words of wisdom would be greatly appreciated.

Thanks, in advance, for all your comfort and encouragement.  It has so helped through this painful process.

 

EZLiving66's picture
EZLiving66
Posts: 1469
Joined: Oct 2015

Best of luck on your surgery tomorrow!!  I think having it on St. Patrick's Day is a sign of good luck Laughing

I had such an easy surgery using the DiVinci robot.  My surgeon didn't have me do any bowel prep - just nothing to eat after midnight.  I had a total hysterectomy but no lymph node sampling at around 1:00 p.m. and I literally danced out of the hospital the next morning around 10:00 a.m. after I urinated on my own.  They gave me Percoset but I didn't need it.  If I would have had to, I could have gone back to work in a few days.  I was prohibited from driving for two weeks and longer if I was taking the Percoset.

I was supposed to meet with my surgeon a few weeks after my surgery for the biopsy report but I thought I had UTI the next week so made an appointment with the PA.  They called back and told me the doctor wanted to see me the next day so I went in to give a urine sample and he told me it was a lot more serious than they originally thought.  I had Stage II, Grade 3 UPSC and he wanted a CT scan to make sure it hadn't spread.  I prepped for the CT scan the next week and thankfully, it showed nothing.  He told me there was a 50/50 chance he had gotten it all when he did the hysterectomy but to be on the same side, he recommended six rounds of chemo.  I made it through three.  The first two were easy but the third one was awful.  I believe a fourth chemo would have killed me.  My liver reacted badly - my live enzymes were way off, I started to have terrible night terrors, my blood sugar skyrocketed even when I wasn't eating, my legs and ankles swells up, my blood pressure was in stroke range - all signs of liver failure.  I went to my GP the day before my fourth scheduled chemo and she said my body probably couldn't take another chemo.  My oncologist did not offer to reduce the dosage, change the chemo drug or go to a weekly dosage as other women's doctors on this board had.  He just stopped it.  I had seen him the week before when he removed my infected port and told him how sick I was (I was in a wheel chair because I could only walk a few steps on my own because I was so dizzy and my feet were numb) so it wasn't like he didn't know.  I also had no feeling in my fingers and the left side of my face, was nauseous and had uncontrollable diarrhea - just miserable.

I had my first of many three-month followups last week.  I had some spotting and was concerned.  My PA did a vaginal exam and said everything looked great - no sign of cancer.  She though the spotting was from some little pieces of scar tissue that had broken as I became more physically active.  Today, 14 weeks after my last chemo, I feel pretty good.  It took six weeks at wound care to get my port site healed.  I still have the neuropathy in my fingers and feet and my feet feel like they're on fire at night but I start physical therapy next week.  My hair is starting to grow back except for a few bald patches (Taxotere can cause permanent hair loss) and my finger and toenails which had fallen off are starting to grow back.  I'm still having some stomach problems but it's getting better.  My eyes still water a lot but that's getting better too (another side effect of Taxotere).

I was considered NED (no evidence of disease) when I had my hysterectomy so it will be six months on March 30th and I plan to celebrate.  I know UPSC is an aggressive cancer and I hope between the surgery, the chemo and my own immune system, it's gone for good.  But, I'm also a realist and would not be surprised if it rears its ugly head in the future.  When and if it does, I will deal with it but I doubt I would ever go the chemo route again.

Love,

 

Eldri

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Thanks for the feedback Eldri.  Hang in there....Sorry your doctor was such a schmuck! 

ncg007
Posts: 136
Joined: Nov 2015

I had the same surgery as you, but as you know everyones experience will be different.  Being laparoscopic recovery was pretty quick, pain was minimal and I only took pain pills (Norco) for the first few days then switched to Motrin.  I highly suggest a compression belt, this helped tremendously with the swelling and gave support.  Hospital sent me home with it, so ask if they don't.  Probably was a week or two before the real soreness subsided.  I was moving around and driving after a few days and felt fully recovered after four weeks. The biggest discomfort was trying to lay in bed the first few days, so i did find it more comfortable in the lazy boy chair.  I had no throat pain. I had my pathology report review at my two week surgery follow up with Gyn/Onc (stage IIIC1/Grade 3).  Dr. had me recover a full six weeks before starting treatment, which day one consisted of both chemo and radiation.  My advice is to relax and don't push yourself, try not to be too anxious on when you receive results. I know it's hard as your life/plans are on hold while waiting.  Praying for a successful surgery, recovery and good results.

Nancy

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Thanks Nancy!  I'll definitely ask about the compression belt.  I had a c-section so I'm anticipating this will be a piece of cake compared to that Laughing.  Thanks for the timeline on the biopsy results.  I was figuring it would be about 2 weeks.  What I'm really wanting to do is take off to Florida while I wait. 

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

I did not have a sore throat at all.  My catheter was removed as soon as I was taken to my room after recovery and I had no problems peeing.  I did take some pain pills that night in the hospital, but once I got home, I took half pills of hydrocodone but only at night for a couple of days.  More important for me were the stool softeners.  The worst pain for me was the gas from the laparoscopic surgery.  That was far more uncomfortable than the pain from the surgery itself.

My surgery was the first one in the morning and the nurses had me up and walking later that day.  Though I was scheduled to come home the day after surgery, I had a mild bout of nausea late that morning and they decided to keep me one more night.  I rode home in my BF's '65 Volkswagen holding a pillow between me abdomen and the safety belt.  It wasn't the most comfortable ride in the world, but it was doable. I also had an abdominal binder, I'm guessing similar to the compression belt, that really did help with support.  I walked every day at least once a day outside of my house, going a little farther down the block every day, holding my pillow against my stomach.  

The pathology was back in about a week, but my post-surgery appointment with my doctor was 3 weeks after surgery.  Frankly, I concentrated on just recovering from the surgery and was in no hurry to find out about what would come next.  In my case, chemo began 6 weeks after surgery.

One side note:  my abdomen was extremely sensitive to touch after surgery, enough so that I wore dresses for weeks afterwards.  I could not stand any pants touching the area at all, including underwear, and it wasn't just where the incisions were.  I went "commando" a lot.  This may not happen for you, but if it does, you'll know it is not uncommon.

Good luck tomorrow.  My hysterectomy was my first surgery ever, and I was extremely nervous, but it turned out not to be too bad at all.

Chris

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1746
Joined: Jun 2015

My experience was very similar to Chris'....

There is a thread where we discussed our post surgery experiences but I can't remember what it was called. Chris, do you remember? I think it would be helpful for her if we can find it. Even though my surgery was only 8 months ago, it seems like a lifetime! So many other things since then.

I think walking is key to getting better quickly. And, drinking water or other fluids...

My doctor was really strict about not lifting or exercising for 6 weeks.  That included no house cleaning! Sounds great right? Nope, drove me nuts! lol

Anyway, I hope all goes well for you. It will be over before you know it.

Love and Hugs,

Cindi

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Thanks all.  I'll be sure to take a pillow and ask for compression belt.  I already have the Miralax in my cupboard.  No problem with the house keeping.....I hate that anyway!!!!!

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Here is one thread that TeddyandBearsMom started after her surgery.  You might find some helpful info there as well.

http://csn.cancer.org/node/295717

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1746
Joined: Jun 2015

I didn't remember being the one to start it though.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I had my surgery in Oct. 2012 .  I had a radical hysterictomy, cut from around my belly botton all the way down.  My surgeon wanted to be able to feel everything and would not do the robotic surgery.  I did have he bowel prep stuff which I  though was total digusting.  They had me sip Coke with the clear liquid and that did cut the taste somewhat.  My surgery was about 3 hours from where we live so we went over the afternoon before and did the bowel prep there.

surgery went well.  I was there longer than planned because my bowels would not wake up and they would not let me leave until I could pass gas and have a bowel movement.  I ended up with somehing called an illius(sp).  I started throwing up and ended up with a tube down my nose.  Otherwise I healed very quickly and they had me up walking the same night as the surgery.  At 7 days I was able to make the 3 hour trip home with no problems.  They did advice not driving for a few more days.  I started chemo at 4 weeks and was backing teaching school at 5 weeks.  I did no have any sore throat from the tube at all.  They will usually give you shots to take home to prevent blood clots.  They are given in your stomach.  They do sting a little, but are not bad. Usually there are 10 of them.  I wasn't supposed to pick up anything weighing more than a jug of milk for 6 weeks.  

My hospital mattress was very thin and my back ended up hurting until I put a sherpalike throw down.m and I wish I had brought my own pillow, because it also lacked comfort.

Hope you have an easy day and a quick recovery.  Hugs and prayers, Lou Ann

Gardena
Posts: 102
Joined: Jan 2016

My radical hysterectomy was done using the DiVinci machine; five small incisions were made. My lady parts and removed nodes were bagged before being brought out thru my vagina. I didn't have any pain upon waking up but was surprised to have a catheter and some crazy mesh underpants on holding a pad in place. I spent the night in the hospital b c my surgery was done in the afternoon. The next morning it was all about getting the catheter out, getting me up and walking and urinating. Was told not to lift anything over 10 lbs, vacuum or drive for six weeks. I took aspirin and had oxycodone if pain got bad but it never did.  I purchased a compression belt before surgery but didn't use it - it felt like it was squishing my insides instead of supporting the new "arrangement" in there. I started chemo 3 weeks after surgery - carbo/taxol every 3 weeks. My port was placed the same day as receiving my first chemo infusion.  I think my hysterectomy has been the easiest part of my cancer experience,  certainly the least painful. 

Wishing you a smooth surgery and quick healing~  

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

I wish that I had had the DaVinci surgery!  As my D&C revealed UPSC in both my uterus and cervix, my doctor recommended doing an open abdominal radical hysterectomy so that he could really look around for any spread of the cancer and I ended up staying in the hospital for 5 or 6 days. I don't remember having a sore throat when I woke up, but I did have quite a bit of abdominal pain for the first few days. They took the catheter out after 24 hours and I did have some trouble urinating. In fact, for months afterward I had trouble urinating and often felt like I wasn't emptying my bladder completely. My surgery lasted about 7 hours and they didn't take me to my room until that evening so they didn't make me get up until the next morning. It's been over 2 years since my surgery, 12/5/13, so some memories are a little sketchy. I did have a morphine drip for the first day after surgery and then they switched me to oxycodone. They had run out of abdominal binders(!), so I never used one. The nurses were great but made sure I was out of bed and either sitting in a chair or walking the halls for a big part of the day. My husband and my daughter took turns staying with me. I was in quite a bit of discomfort for the first few days, but moving around and getting out of bed helped a lot. I also used a pillow under my seat belt on the way home- it really helps!

I think the biggest problem I had with the surgery was not pain but, rather, nausea and extreme fatigue. This was the first time I had ever had surgery and I hope it will be the last! It took me several weeks to recover from surgery and even longer to lose the nausea. I started chemo about 6 weeks after surgery.

I don't think I saw the pathology report until I went for my follow up visit about three weeks later and was relieved to hear that the cancer had not spread anywhere else nor was there any in all the lymph nodes that were removed(28) nor in the abdominal wash. I was able to take short trips by car( we had a 1+ hour drive home from the hospital) and I think I was given the OK to drive at my 3 week follow up visit. As I was feeling like cr*p, I had no desire to go anywhere in any case!

But I did recover, had chemo and internal radiation and am now celebrating 2 years NED! You are having robotic surgery so I am sure your experience will not be like mine. I think the waiting before surgery and the not knowing we're worse than anything that came after. Tomorrow will be the first day on your road to recovery. You can do this! With love and caring, Sandy

 

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

I have the robotic surgery also. The surgery is much easier than a c section and similar to the kidney removal I had 8 years previous. My catheter wasnt removed until the following day. They did release me from the hospital the following day after giving me 2 units of blood as I was severely annemic. I had no throat pain and really the worst part on being home was getting up and down from bed as no hospital bed! Really for me I felt 100% better after surgery and almost like my old self. Maybe I had been feeling so bad because of the anemia, but also my eating had been poor before surgery. I didn't have any bowel prep either just nothing to eat or drink night before. I really wasn't scheduled to meet with the dr for reports until 4 weeks later, but I must have complained enough thT they ended up scheduling me two weeks later and he gave me a copy of my report.

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Well, got through the surgery. Wasn't as simple as anticipated. Surgeon ended up doing incision similar to c-section. Oh well. Longer recovery. No Florida for me. Have to stay in hospital extra day with catheter. Guess they roughed my bladder up pretty good due to previous section. But I'm not in a lot of pain, been up walking and eating. Doc says path report should be back in a week. Let the games begin.....

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Cheese, glad to hear that you're doing well eventhough the surgery was tougher than anticipated. Walking helped me bounce back from my surgery fairly quickly so hopefully your experience will be similar. Sorry about your trip being postponed but it does give you something solid to work towards in the future! I hope you have a good weekend and get some rest.

Anonymous user (not verified)

Now, let the healing begin.  And let the path report be negative.  Hugs Nancy

ncg007
Posts: 136
Joined: Nov 2015

CQ....happy to hear that even though surgery took a different route that you are feeling well.  I know it's disappointing to cancel another trip.  Now is the time to rest your body and mind.  I pray that you get good results and your game is a short one.

Nancy

Lou Ann M's picture
Lou Ann M
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Joined: Feb 2015

Even though you ended up taking a different route, you still got there.  Let the healing begin So you can get on with the rest of this journey.  Hopefully Healing will be quick and recovery quicker.  Hugs and prayers, Lou Ann

EZLiving66's picture
EZLiving66
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Joined: Oct 2015

Cheesy, I am happy to hear you made it through surgery even though they had to open you up.  Sometimes I think that's better than the DiVinci because the doctor can see everything better.  Hopefully the pathology report will be showing no spreading of the cancer!!  

Love,

Eldri

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1746
Joined: Jun 2015

Glad to hear you made it safely through surgery! And thanks for letting us know so quickly!

I hope recovery goes well for you. Walk, rest, eat, rest... rest... rest! Be kind to yourself.

Love and Hugs,

Cindi

molimoli
Posts: 514
Joined: Aug 2014

Happy to hear the news that you have come through stage 1 of this journey I am hoping you will miss all the other stages and NEd will find you.  I have a feeling you will ride this pony one day at a time taking only that day's necessary stride so you don't waste precious time and energy worrying about next month or next year, no good can come of that.

Yes Florida for you , just not now.It will be there still though and because after this scare you will see things and places in a different way from before therefore the enjoyment and appreciation will be enhanced. Take it easy as you mend , breathe, we are here for you.

Moli  sending  healing hugs.

 

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

As everyone has said, allow your body to heal.  Being still is sometimes the hardest thing to do, but let your body recover from this trauma.  We're with you.

Chris

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

I'm sorry that you didn't get the robotic surgery you had hoped for. Take your time to heal now! My prayers are with you. Here's to a speedy recovery

BabyCoach's picture
BabyCoach
Posts: 95
Joined: Mar 2016

YEA!  YEA!  THIS is behind you. Glad for you.  I have my surgery scheduled April 4 and will be happy to report out that IT"S OVER!!

Take care of yourself and let others do that too.

 

Red Corvette
Posts: 114
Joined: Jan 2016

Hang in there Cheese A Reno, you made it through major surgery and have come out the other side. You'll be fine!

Red Corvette

Red Corvette
Posts: 114
Joined: Jan 2016

Hang in there Cheese A Reno, you made it through major surgery and have come out the other side. You'll be fine!

Red Corvette

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

wow!  That was a challenge. By the time I got upstairs my teeth were chattering. But I think I'll stay up here for a while. Hubby is getting used to the caretaker role. He'll get there, bless his heart. He spilled his whole glass of wine and had to change his bed sheets and clean all that up too. Looking forward to my friend's lasagna tomorrow. Hope I'm ready to tolerate it. Thanks for all your kind words and support. I should have verdict on next steps in 7-10 days. 

EZLiving66's picture
EZLiving66
Posts: 1469
Joined: Oct 2015

I'm so glad to hear you're able to move around a little.  Isn't it wonderful when friends (angels) bring over meals?  I had a couple of good friends including our son's fiancee's mother, who brought over complete meals including the dinner rolls.  I wasn't eating much but my husband and our son LOVED them and took a load off my mind on what to serve (frozen pizza anyone??).

My husband was a godsend too.  I don't know how I would have gotten through the surgery, the chemo and the side effects without that man.  Yeah, he changed the sheets and put the pillowcases back on inside out but they were clean and he was trying!!  LOL

Love,

Eldri

Double Whammy's picture
Double Whammy
Posts: 2831
Joined: Jun 2010

Check that off your list.  Sorry the surgeon had to revert to open procedure, but I'm sure he did it for a good reason, either for better access or visibility.  And that's what we all want.  I had early stage, low grade cancer but I was scared to death of having an open procedure.  The surgeon (gyn oncologist) assured me he does open procedures all the time, but I was so frightened primarily of the surgery itself.  Heck, I was scared of the robotic surgery, too!  But we do get through this part and can look back on it being not as bad as we thought it would be.  I hope your pathology report does not have any surprises and you can put the surgery behind you and move on to the next step and then put that behind you.   And lasagne can be frozen and eaten later if you don't feel like it now, but know you're going to want some later!  We learn to adapt. . .

Best,

Suzanne

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Hi Sisters

I'm hanging in there. Now just taking extra strength Tylenol cause I was afraid of GI bleed with levonox. I have to say, I'm really having trouble with the injections. Although they didn't hurt when I gave it to myself in the hospital, they hurt now. Maybe I'll try injecting in my belly tomorrow. Only 14 more days, right

ncg007
Posts: 136
Joined: Nov 2015

CQ, Keep hanging in there and the 14 days will fly by!  What injections are you having to do?  Hope they get easier for you.  Wishing you a speedy recovery.

Nancy

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

The Levonex is an  njection of low dose heparin. They prescribe it to help prevent blood clots after you've had abdominal surgery these days. 

EZLiving66's picture
EZLiving66
Posts: 1469
Joined: Oct 2015

They tried to start me on that when I was in the hospital.  When I asked the nurse to doublecheck because I've had problems in the past with my blood NOT clotting, she never came back.  Next time I went into the doctor, they had it on my list of medications.  I AGAIN told them that I have never taken it and if they'd check, they'd see in my chart that I bleed very easily and shouldn't be given any kind of blood thinner.  Just another instance of looking out for yourself and questioning everything.

Hope the pain from the injections stops soon (((CQ))).

Love,

Eldri

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Thanks Eldri,

Boy, you've really been through the ringer, bless your heart 

I finally broke down and asked for a home care nurse to visit. Why not?  He/she can look at my incision, help me with my injection, and generally make sure things are going as they should. I'll let you all know how it goes. 

EZLiving66's picture
EZLiving66
Posts: 1469
Joined: Oct 2015

Home health care sounds like a great idea!  When my port site wound wouldn't heal I had to pack the "hole" twice a day by myself.  It wouldn't have been so bad except my fingers were numb and my right hand shook.  I would work so hard to stuff it with this gauze that looked like a shoestring dipped in some kind of solution using a little stick.  I would go to cut off the excess "shoestring" and pull the whole dang thing out and have to start all over again - LOL!!!  When I told my wound care doctor how hard it was to take care of myself, she said I only had to do it once a day - no home health care was ever offered.  She did ask me if I had a friend who was a nurse that could do it - so much for our health care system!!  Tongue Out

I hope everything goes smoothly from now on!

Love,

Eldri

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

I had the injections also after I went home, too. My husband gave them. I have had a blood clot 8 years ago and never what one again. Most of the time the shots didn't bother me, but towards the end I had some bruising.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Hi Cheese, I found that the injections are less painful if you inject them very slowly. I guess it's because the medicine is thick? Doing it quickly (which is natural since you want to get it over with) made it hurt like heck! Good luck on your continued recuperation.

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Hi Sisters,

Thanks again for all your suggestions. 

The home care nurse came promptly this morning and what a doll. Firm yet very caring. I'm very fortunate because my PCP is also my dear friend. I also work as a consulting dietitian in their office. Those people will do anything for me and it's such a relief to have that kind of support. My doc/friend sent her daughter across the street with their own personal bottle of extra strength Tylenol. Last night after leaving the office after 9:00 pm and stopping to check on her elderly father, she sent over a pillow bolster for me to use to be more comfortable. She and her husband are angels on earth. Choose your PCP wisely. I asked them who had the best home care agency because Fox Chase is about 40 minutes away and they don't know the local areas as well.

Although the care manager in the hospital met with me and discussed home care, she didn't push it. And I, trying to be the stoic one, didn't either. In hind site, I think most insurances would pay for this and we should all take advantage of it, especially at certain critical times. She checked my incision, injected the Lovenex (but is not letting me off the hook learning to do it myself) and reinforced the discharge instructions. Now frankly, we were given so much info at discharge that this is probably of most value. I would encourage you all to request a home care visit get scheduled before you leave the hospital. It will give you and your caregiver great peace of mind and keep you on the right track. Just make sure you use a good home care agency. If you are in an HMO, you may need to use whoever they are contracted with in the area (which also may be good). 

Back on Percocet for pain. Stoic didn't cut it yesterday. Thanks again for all your love, support and suggestions. I value each and every response as I know what an effort it takes to read and respond when you are not well. God bless each and every one of you special ladies. 

EZLiving66's picture
EZLiving66
Posts: 1469
Joined: Oct 2015

That sounds soooo nice - being so well taken care of.  I am so glad you have all that available to you.  If my cancer comes back, I am going to be so ready!!  I didn't know any of this stuff was available.  I didn't even know about "wound care" until somebody on here told me about it.  I probably would still have that big old port site hole if I hadn't gone there.  This forum is a god-send!!

Love,

Eldri

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Hi Sisters!

Every day is better thank goodness. I successfully injected the Lovenox under the supervision of my home care nurse this AM so I'm more confident about that. Now if I could just get those old bowels moving.  I'll be seeing my doctor 1 week from today to learn what will be the next leg of my journey. Trying to remain positive no matter what. Thanks for all ypur support. 

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Hi Gals!

Just checking in to let you know I'm healing nicely. I made it up and down the steps yesterday and had dinner at my kitchen table. Everything seems to be moving nicely (if you know what I mean) and spotting is minimal. Pain really just from the incision and I might be able to just go with Tylenol today. 

Only problem I'm still having is giving those darned injections. My home health nurse is coming again today so maybe she can help me correct my technique so they don't hurt. When I did it when she was here, it didn't hurt. Go figure. 

I'm going to ask my doc today if it might be okay for me to take a 3 hour car ride tomorrow down to our condo at the beach. Might be a nice change of scenery. For those of you who had abdominal surgery, not just DaVinci, what do you think about this?

Wishing you all who celebrate, a very blessed Easter weekend!

ncg007
Posts: 136
Joined: Nov 2015

CQ...happy to hear you are healing nicely.  I think a drive to the beach would be wonderful and nice to get out of the house.  Wear compression belt and take a pillow to hug to help cushion those road bumps.

Nancy

Lou Ann M's picture
Lou Ann M
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Joined: Feb 2015

i road for 3 hours home from the surgery and in two weeks back and forth for those 3 hours for my checkup. And I did fine.   Glad you are healing quickly.  Hugs and prayers, Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1469
Joined: Oct 2015

I'm glad to hear you're doing good!  I agree - a ride to the beach sounds wonderful!! Cool 

Love,

Eldri

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Hi Sisters,

Recovery from surgery is going great. Hard to believe they opened up my belly a mere 11 days ago!  I'm enjoying being at the beach and will be picking up my new recliner on the way home. That's the good news. 

My gyn/onc just called and said lymph nodes were positive. I didn't bother to ask her which ones, all of them were suspicious (by all I mean the ones up in the aortic area too ). I also didn't ask her specifically about the path report. I made a commitment to not look at it online until I meet with her on Wednesday. She has also set me up to meet with a medical oncologist right after I meet with her.  I will look at the path report online on Wed AM before my appointment. No need to lose sleep over stuff now. Let's hope for a good path report and if not, the strength to play the hand I'm dealt with all the skill possible. 

Thanks for your support!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1746
Joined: Jun 2015

So glad to hear your recovery is moving along nicely!

Sorry to hear about the lymph nodes. Your attitude will get you through this. You are very strong and positive. Please let us know what you learn on Wednesday. And, in the meantime, enjoy the beach. Once you have a plan, you will find strength that you never knew you had.

Love and Hugs,

Cindi

Abbycat2's picture
Abbycat2
Posts: 644
Joined: Feb 2014

best! I remember all too clearly my experience when I returned to the gyn/onc's office to get the results of my pathology report ( on 11/07/13).  Everything I experienced happened in slow motion. After waiting over an hour to see the nurse practitioner, I told my partner that this "delay" did not bode well for me. Finally, she came into the room and sat down in a wheeled stool and rolled it close right into my personal space. My head was exploding with "Oh, no, oh no, oh, no bad news is coming!! Then she showed me a picture of the anatomy of the female reproductive system and I am screaming silently. I KNEW that the news would not be in my favor. She does her spiel telling me that I had stage 3a UPSC. After hearing this horrific, Earth-shattering news, I can remember saying out loud OMG, this is VERY bad news!

But you know what, Cheese? I never expected to survive almost 2.5 years after my hysterectomy and yet I have greeted another year that I never believed I would see. Always, always have hope even in your darkest hours! Strangely, I am no longer as terrified of what may happen to me. I seem to have reach a higher plain and am much more accepting of my eventual demise. After all, none of us will get out of this life experience alive. 

I am there in your corner on Wednesday when you learn more about your diagnosis, Cheese. Regardless of what you hear, believe that you can "do this"; this cancer treatment. 

I know that you can!

With Love and a Hug,

Cathy

 

 

 

 

Anonymous user (not verified)

From what I've read, it doesn't matter which nodes are positive, peri aortic or pelvic.  It's simply considered a spread outside the uterous.  They will recommend chemo for adjuvant therapy, maybe radiation.  The path report will just show the size and extent of the tumor within the uterous.  Maybe I missed it, but have they determined the type, endometrial, clear cell or serous?  I consider all of it to be treatable, some are just more common to recurrance than others.  You have a bunch of people on this board on your side, some are NED, some have recurrances but are still enjoying life while having treatment, some of us are just finishing up front line chemo, and others like you are just beginning.  You have a great attitude, kudos for putting aside the stuff that you can't do anything about for now.  Hugs Nancy

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

 I'm glad that your recovery from surgery is going well. Soak up that sun.

Wednesday is soon enough to deal with the other stuff.   And I'm pulling for you on Wednesday, too.

Chris

 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

so happy you are healing.  I am jealous of the beach, would love to be sitting there in the sunshine.  I am glad you are not wasting precious time worrying about what may be.  You will have plenty of time to do that as time goes by.  You are strong and will amaze yourself with how strong you are going to be through this.  Hugs and prayers, Lou Ann

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