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Test Day

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

Today, starting this afternoon, will be my three month testing. Blood work, lung CT scan, brain MRI, chest/abdomen MRI and pelvis MRI. Not looking forward to being in the MRI machine for so long. 

I wanted to address the questions I have seen arise regarding MRI vs CT scan. Each patient has to be managed according to their specific needs even where age is also considered.  If Doctor deems that testing needs to be done every three months, like in my case, I don't believe CT scan is advisable that often. Then we come to the question of contrast or not. If patient has chronic kidney disease, again like me, the contrast used for the CT scan cannot be used. When I was first diagnosed four years ago and after my first surgery, my doctor then did CT scans every other year with no contrast. In the case of MRIs, contrast can be used as long as the patient's gfr is above 30. That is why I have MRIs both due to frequency and being able to have contrast. 

I have since moved and had to find a new oncologist. I feel if my doctor four years ago had used MRIs with contrast rather than the CT scan without, my 2nd recurrence would have been found sooner before it grew near the vascular space which consequently metastasized.  

Tomorrow I will get results of today's testing that will determine if I begin the Votrient blind study. 

Your prayers will be appreciated!

~Bonnie

 

APny's picture
APny
Posts: 1988
Joined: Mar 2014

My prayers and thoughts are with you. Wishing you the very best results, Bonnie! And your explanation of MRI vs CT is perfect and much appreciated.

Pandabear1011
Posts: 123
Joined: Jun 2014

Prayers and Positive Thoughts coming your way, Bonnie!!! Hugs, Panda

angelsnls
Posts: 67
Joined: Nov 2014

Prayers and hugs coming your way lots of love 

Angela x

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

May God richly bless you and move things forward in a positive direction.  Thank you for the medical explaination.  It can definitely get very confusing.

Keep us posted huh?

Donna~

Srashedb
Posts: 482
Joined: Dec 2013

Bonnie:

First of all, good luck on today's tests; please check in when you're done.

Reading your post, when you were first dx, were you getting CT scans every other YEAR? If that was the case, it doesn't sound like the testing delayed the recurrences but rather, the infrequency of those tests.

Very glad you have found a new oncologist; again, good luck today.

Sarah

mrou50
Posts: 389
Joined: Mar 2013

Bonngo first of all the best of all luck today, my thoughts and prayers are with you.  As for contrast I only have one kidney left and I still use the contrast but instead of injecting it I drink it, with a delicious lemonade mix, at least they tell me it's delicious I have yet to discover that, so far my Kidney has held up so I figure as long as it is working I will do it.  I am sure that is what they have in mind for you, but I could be wrong, regardless all the best today.

 

Mark

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

Thank you all for your well wishes. Mark, even when I had 1 2/3 kidney I could not have CT contrast because my gfr was too low due to kidney disease. As long as my gfr stays above 30 I can have MRI contrast. Each case is different. 

I did not even make it home and the oncologist called me because my labs were abnormal.  I need to go see him first thing tomorrow morning instead of late afternoon.  He did not have the CT scan and MRI results yet.  

We are all fighting our own battles here, I encourage you all to stay positive and fight!  For me, my faith is what sustains me.

~Bonnie

 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I am amazed that the sickest here get great numbers with their blood work, with the younger healthier not so much. My creatinine is .7 and gfr over 60. Like a healthy 20yo with 2 kidneys. Makes no sense. My latest blood work somehow demonstrates all numbers within acceptable range for all tests. My current supplemental drugs are only for bp and my thyroid. How different we all are.

Ree_Maryland's picture
Ree_Maryland
Posts: 161
Joined: May 2014

Hey hope all is well for you , I was wondering ,did you have to take tyroild meds alfter the dr dx you with kidney cancer.? thanks for all your positive imputs.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I've been on thyroid meds since spring 2015. With my numbers now within normal range, I cannot tell the difference.

Ree_Maryland's picture
Ree_Maryland
Posts: 161
Joined: May 2014

Thanks for answering my message , I have heard people who have had kidney cancer has thyroid problems. Happy you are ok .Fox

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

225 mcg per day

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

i have taken thyroid medication for 24 years. 

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

Hope it goes well for you.  Good luck.

Allochka's picture
Allochka
Posts: 929
Joined: Nov 2014

Good luck, keeping fingers crossed!

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

......and lots of prayers too.

Donna~

APny's picture
APny
Posts: 1988
Joined: Mar 2014

Thinking of you this morning.

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

Wow!  Two very long days at the hospital, but what started out very scary ended up awesome! While riding home from the day's testing, I received a call from the doctor telling me my blood tests were abnormal (possibly indicating pancreatic cancer) and that I needed to be back up to the hospital the next morning. New blood tests the next day had the values back to normal (one was 500 x higher than norm and one was 200 x)!  They couldn't believe or understand it! Of course I told them I had lots of people praying for me.  Had to wait for all the MRIs and CT scan results which showed no cancer!  Pancreas looked great, lung CT unchanged, and no new liver tumors, woo hoo!  I will begin the Votrient blind study drug trial within the next week or so.

Fox I'm so happy for you that you do not have the added issue of chronic kidney disease as well.  It does make treatment a little more complicated. I was happy my gfr went up from 43 to 47 (creatinine 1.2). You are doing a great job keeping us inspired!

~Bonnie

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

I'm so happy for you that things are looking up.  Puts a smile on my face everytime I read the good news on this sight.

We all have to keep in mind there are a lot of false positive's with lab work.  Lots of factors involved there, everything from tech errors to uncalibrated equipment and the list goes on.  Not discounting the prayer's though, I've personally been through things that even doctor's have actually stated they "couldn't explain and had to be divine intervention".

Donna~

Shecka1121
Posts: 114
Joined: Apr 2015

So happy to hear this and I believe in the power of prayer.  May you continue to have great results.

APny's picture
APny
Posts: 1988
Joined: Mar 2014

Thrilled with your news. So very happy for you!

daisybud's picture
daisybud
Posts: 491
Joined: Jan 2016

So very happy for you! :)

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Everyones combined well wishes snowballed into a powerful energy of some kind. Now push it back into the karma pool. I've had good luck too and I'm loaded with positive vibes. Good things are happening to many of us. FLY.

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

Great news for you.  Congratulations.

mrou50
Posts: 389
Joined: Mar 2013

Glad things turned out well with lots of people praying for you, and thinking positive thoughts you were bound to get good news.  Keep up the positve vibes and and enjoy the break from worry.

 

Mark

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

Bonnie, you have my prayers, today and always.

 

Nancy

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

Thank you everyone.

You are all in my thoughts and prayers as we travel this journey TOGETHER!

Hugs

~Bonnie

Allochka's picture
Allochka
Posts: 929
Joined: Nov 2014

Great news, happy to hear! I can't imagine getting the info about possible pancreatic cancer - this one is one of the worst, I'd get a heart attack, I guess...

Maybe they've done smth wrong with blood sample before analysis, I've heard from one hematologist that sometimes this happens and changes the results abnormally, causing unnecessary worries

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Great news, Bonnie!! Keeping you in my thoughts and prayers!

Hugs

Jojo

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