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Chemo options

Maggie_mac
Posts: 32
Joined: Mar 2012

Ladies,

I haven't been on for a while, mostly because I've been pretty stable.  My CA 125 has been running in the mid 200s since early October, but have jumped from 252 to 378 in about 4 weeks.  A year ago I was found to be platinum resistant to Taxol/carboplatin so when My CA 125 took a jump, I started on Doxil.  After 6 infusions it continued to rise so I went to Avastin/cytoxan.  The same story took me to Topotecan. After 4 infusions my CA 125 was above 560.  I started on cisplatin mid-July and that brought me down to the mid 200s.  Now it looks like I've become resistant again.

These are the five infusion drugs I've been on, and I'm wondering what else you ladies have tried.  I'm concerned that we're running out of options.  Please let me hear from you.

Thanks and God bless you all.

Maggie 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Last January and February I had reactions to the carbo, so we switched to Doxil.  It helped with the small tumors, but did nothing to the larger tumors.  One intwined itself in my small intestines and I ended up having 42, cm of my intestines removed in Sept.  My doctors decided to try to desensitize me to the Carbo since it did work with the taxol. So now I am getting Taxol on one day and on the next day I get the Carbo over a 7 hour time frame.  I looks like it may be keeping it stable, but we will know for sure in Feb. when I get another Ct scan.  I am so sorry that you are having such a hard time finding something that works.  Have they tried the genomic testing to find a match?

  Hugs and prayers, Lou Ann

ConnieSW's picture
ConnieSW
Posts: 1342
Joined: Jun 2012

I don't have info but wanted you to know I'm keeping my fingers crossed that the magic bullet is out there for you.  Good luck.

takingcontrol58
Posts: 226
Joined: Jan 2016

 

Maggie,

Please ask your doctor about metformin. It is a pill that is anti-cancer and anti-diabetes. It is the most prescribed diabetes drug
in the world. It is generic and cheap.

In Jan 2014, two months after my hysterectomy, my CT showed  34 cm of metastatic tumors (liver,spleen,rectum, plus nodules on lungs,spleen,colon). 

After month on metformin, my CA125 went from 280 to 20.
88% of my tumors disappeared after one month on metformin.
In August 2015, I was declared NED, in remission.  All tumors gone, without surgery.

Metformin is a miracle drug. 

I would suggest you try the metformin first as the chemo is obviously not helping.  You may be chemoresistant at this point.

I had 6 treatments of taxol/carbo and started metformin after two infustions. I contintue to take metformin and many supplements. 

I would take it for a month or two then get retested.

You can read my whole story under NED from Stage IV metastatic cancer.

May God be with you.

Taking Control58

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2462
Joined: Mar 2013

takingcontrol 58, I have a friend who has had their UPSC reoccur and I told her about your post.  Can you provide me more information?  Where did you get treated, who treated you, what was your diagnosis, did you just receive this treatment recently...?

She is not a member of the chat board and I promised I would reach out for answers.  The only thing I could find was information at the NCI website from April 2013 - almost 3 years now.  

Thank you in advance.

takingcontrol58
Posts: 226
Joined: Jan 2016

You can read my whole story in detail- first post Jan 10, 2016 "NED from Stage IV metastatic cancer."

In summary.
Diagnosed initially with Grade 3 endometrioid carcinoma 
Hysterectomy( had small tumor on outer rectum and small spots on ovaries as well) Nov 2014

Jan 2015 - CT revealed cancer metastasized as told above - 34cm measurable tumors- now Stage IV
Told I had 4-6 mos to live,very fast growing cancer.  More tumors after surgery than before surgery

Began chemo (Taxol/Carbo) Jan 30, 2015 at MSKCC in NYC (only got chemo from them)
Joined trial that added metformin to Taxol/Carbo -half patients got placebo

Had 2 chemo infusions then met with integrative oncologist Dr. Mitchell Gaynor- who died in Sept 2015. Famous oncologist in NYC- Gaynor Oncology
I asked to be put on the real metformin because I couldn't risk dying over a drug that 125million people take around the world- was approved by FDA in 1995.
Wasn't going to be a guinea pig for a drug that has been around 20 years.  MSKCC wouldn't put me on the drug. Also take 44 supplements daily.  Some do the
same thing as metformin.

Metformin is prescribed for PCOS (polycystic ovary syndrome) so most gynecologists know about it. My own gynecological/oncologist/surgeon prescribes it.
She is associated with Lenox Hill Hospital in NYC. She is who I visit today for follow-up.

Metformin works at a cellular level and metabolic level- and key risk factors for EC is being overweight, diabetes and insulin resistance (I am Insulin Resistant)
Insulin fuels cancer growth
Metformin has many anti-cancerproperties.  Go to www.pubmed.gov for hundreds of articles (search metformin and cancer). It helps all types of
cancers because it works on key body processes we all have.  If you want to get technical, look up article PMCID: PMC328095. It also targets a key pathwayP13K/AKT/Mtor
Many drugs are in development to target this pathway- none have been successful so far (everolimus is one). 80% of cancers have mutation in this pathway.

They have known about the anti-cancer properties since the drug wasFDA approved back in the 1990s.  There are many trials with this drug you can look up at
www.clinicaltrials.gov.  I don't understand why they are doing trials when a doctor can just prescribe if it can help you - called "off label" prescription. The dose I
started with was much lower than the dose in the trial.  I've had no side effects from this drug.

After 3rd chemo and one month on metformin (March31, 2015), got anotherCT scan- 88% of my tumors were gone- down to 4CM measurable tumors
Got 3 more chemo infusions (6 in total)
Last chemo May2015
Next CT Jun 2015- 2CM tumors left- refused additional chemo* (MSKCC said Taxol/Carbo only works on UP to 40%of patients: useless for remaining 60%)
PET/CT in August 2015- declared NED
Next CT this week
No new tumors since CT of March 2015

I've spent alot of time researching why I got cancer as the doctors will not do this for you.  I've eliminated most of the initial risks I had which probably
gave me the cancer. Hoping this is the way to stop a recurrence.  Have to find the root cause of your cancer. Chemo doesn't do that.

Does your friend know her tumor mutations?  I know mine and metformin addresses two of them as well.

Let me know if you have other questions.

Takingcontrol58

 

 

 

 

 

debrajo's picture
debrajo
Posts: 1095
Joined: Sep 2011

No time, I have been on Metformin for over 10 years for pre then type two diabetes.  I still take it every day.  Don't know if it has played a roll in me staying NED all these years, but not about to stop now.  I have been very stable on the Metforman for diabetes and diet.  It wasn't till the last open heart surgery that I'm having trouble keeping it under control.  Hope it does have some anti-cancer properties...I could use a break!  Debra

Maggie_mac
Posts: 32
Joined: Mar 2012

Wow! I never expected so much information from my post.  I looked up some of the information you sent about metformin and I plan to talk to my oncologist when I see him on Tuesday.  Since I became platinum resistant on the taxol/carbo I figured the cisplatin wouldn't work forever. 

As expected, most oncology teams will try the most successful chemo first and work down the line from there.  Doxil seems to be the preferred second choice.  After avastin/cytoxan and topotecan didn't work either, the hope was that my body would forget that I was platinum resistant.  It worked for almost 6 months.  Metformin would be nice because it would mean less frequent trips to the cancer center.

I too have had neuropathy since the beginning [2011].  I take 100mg B-6, 1000mcg B-12, and Lyrica.  It hasn't made the neuropathy go away and I can only guess whether it has slowed the progression.  Thankfully, it has not been painful, just numbing.

Thanks for the help, and my prayers go out to all of you.  Stay strong.

Maggie      

CJC43's picture
CJC43
Posts: 2
Joined: May 2015

Hello Ladies! My name is Jennifer, I am new to this site and I'm really not sure where I should be posting. I have questions about Chemo so I figured this board was as good as any. My mom (Carol) was diagnosed with UPSC cancer lllC in March of 2011. She had a complete hysterectomy and 8 rounds of Carbo/Taxol and then 12 rounds of maintenance chemo of Carbo/Taxol. She then stayed in remission until May of 2015 when a her CA-125 levels went up and PET scan showed cancer back in her abdomen. She then had 6 more rounds of Carbo/Taxol and went back into remission. She just had a CT scan last week after her CA-125 levels went to 73 and the CT scan showed the cancer back her abdomen in two small places. The doctor told her since it came back after just 3 months of treatment that Carbo/Taxol wasn't an option for her anymore and that she would need to try a new Chemo drug. She is scheduled for 3 rounds of Chemo starting this Thursday with the Chemo drug Doxil. I have read a lot of posts on these message boards and I know it works for some people and some people not so well. I have also read where it helps to put ice on your hands and feet during Chemo and after. Do any of you have any experience with Doxil and can you suggest tips for warding off the side effects? She has always done well with her previous Chemo treatments so trying a new one is kind of scary. Are there any other treatments we should look into? At what point did any of you search out a second opinion for more options? Other than this my mom has always been very healthy with no cancers like this that run in the family. She is 72 years old and still works full time (just for the interaction and fun of it) even when she was taking Chemo after her surgery back in 2011. She's a trooper and I want to make sure I research all that I can to make sure she is getting the best care and treatments available. She is actually feeling great right now so finding out that her cancer was back was a complete shock to her. Her doctor told her it would be ok with him if she waited 3 months and did another CT scan before trying the chemo and tried to explain quality of life vs quantity of life to her which by the way didn't go over very well at all! He told her they could be as agressive as she wanted to be with this and so she opted to try the Chemo now because I am not sure she could really enjoy life knowing that this is just sitting and growing in her without trying to get rid of it. Please let me know what you think or if this question needs to be somewhere on this site. I appreciate your time and or willingness to help. Thank you!

Jennifer

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2462
Joined: Mar 2013

Jennifer, welcome to this site.  I am sorry we are having to meet because of your mother's cancer, but she is lucky to have such a loving and caring daughter.  While I can't imagine what my family thought when I told them I had cancer, I do know, I couldn't have made it without their love and support.

I don't think there are a whole lot of options out there.  I do have a friend who has UPSC and is taking Avastin for her recurrence.  Maybe you can inquire about that as an option.  My friend is tolerating it very well, but it is very expensive.  Also, is it possible to talk to another doctor??  It may be the doctor she had, but maybe he isn't the right doctor for her now????

There are a terrific group of women here, and they will tell you what they know.  You can ask anything here.

 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

 Jennifer, welcome to this site, and I am sorry that you had to come here.  This is a good place to be for encouragement and information.  There is a tread called "Ladies going through chemo" that has a lot of helpful information.

I was on Taxol/ Carbo for 17 treatments until I started having a reaction to the Carbo. And then I was switched to Doxil. And I felt like I was starting All over.I was on Doxil from Feb. 2015 to Sept. 2015. 7 treatments in all.  I had  have an echocardiogram before and After 3 to check my heart. The older form of Doxil can cause heart damage.  The newer version is a lipasome and the chance for heart damage is a lot less.  I had the newer type and had no heart damage.  Results were kind of so so.  it seemed to kill off very small tumors, but did nothing to my larger ones.  while I was on it a tumor entwined itself in my small intestines, and caused a bowel blockage.  Doxil can cause hand and foot syndrome, which is similar to nueropathy. I ended up with both, Nueropathy from the Taxol and the other from the Doxil.  They always put ice booties on me when I got he Taxol, but they didn't during the Doxil.  Doxil can be very unpredictable with side effects.  The fatigue was similar to the Taxol/ Carbo, but digestive problems were much worse.  I didn't have much bone pain even though I had the Nuelasta shot.  My experience with it was not so good,,,,,  but I know that others have had success with it.  One suggestion would be to make sure she stays hydrated,  I had many problems with that.  There are other types of chemo out there and there are trials that can be looked into.

Hugs and prayers to you and your mother, Lou Ann

CJC43's picture
CJC43
Posts: 2
Joined: May 2015

Thank you both for your replies! Lou Ann mom never got ice booties for chemo on Carbo/Taxol but I wonder if that would have kept her from having Neuropathy so bad. That has been such a pain for her to deal with even when she is off Chemo it has had a lasting effect. The Nuelesta shots were awful! She only had one during her first round of Chemo and it made her bones hurt so bad and she said it was like her mind wouldn't cut off at night and she payed solitaire in her head all night long. After that her doctor didn't make her take anymore until she had her recurrence and then she had to get one after each chemo. It wasn't as bad as that first one but it still wasn't great. I think she had more side effect from it than the Chemo. She also had to have a handful of blood transfusions after her first go with chemo but last time she didn't have to do that. She asked if she would have to take the Nuelesta shots with Doxil but I believe he told her no. She had her echocardiogram last Friday and I assume it all turned out ok. I am glad to know that they have improved the drug and that it is less likely to cause heart damage. I was really worried about that! I am going to do my best to try and show her this site and get her set up to where she can read these boards and post. She's not the most tech savvy person in the world but I think she would find great comfort in knowing that someone else understands what she is going through. You ladies are truly an inspiration. I have lurked on this board for a very long time not know how or what to post. All of your posts have been of great comfort to me and to many others I'm sure. Thank you for sharing your stories and a little piece of your life to help others :) 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I finally gave in and took  prescription for Gabapentin for nueropathy and it works somewhat.  when I had so much throwing up from the Doxil/bowel blockage I was told to try Lorazapan.  Didn't work for that but lol. It made my feet feel better.  My doctor gave me a larger prescription for that and I take it with the Gabapentin and I can sleep pretty pain free. Hand and foot syndrome is a little different, but burns the same.  It made my skin feel really tight.  I used Utter Cream and slathered my feet with it.  It kept them from cracking and getting super sore.

I had the Nuelasta shot with the Doxil.  If you take Claritin starting the day before chem and for a few days afterward, it really helps with the pain.  I take it all the time for allergies and have had very little pain from the shot, but a lot from the taxol.

Lou Ann

 

takingcontrol58
Posts: 226
Joined: Jan 2016

Maggie,

I have minor neuropathy in my left toes from the Taxol/Carbo

I take Alpha Lipoic Acid supplements (Jarrow). They were recommended by my integrative oncologist.
They increasethe production of glutathione, something our body makes.  He also said
that an IV infusion of glutathione would cure the neuropathy. Since he recently diied, I have not tried the infustion.
You would need to speak to a doctor about that.

I'm trying to avoid taking more drugs.  Just on metformin andsupplements.

My husband has neuropathy- no doctor can determine why- he started taking the supplementsand says they
have helped him tremendously.

takingcontrol58 

EZLiving66's picture
EZLiving66
Posts: 1260
Joined: Oct 2015

I am going to try the Alpha Lipoic Acid to see if it helps my neuropathy.  I also take Metformin for Type 2 diabetes which was really bad while I was on chemotherapy.  Thank you for the suggestion!

Love,

Eldri

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Maggie, another chemo option to consider is Ifosfamide/Mesna/Taxol. I have MMMT uterine cancer which is very aggressive so the gyn-onc is throwing everything they have at it. I've had 3 rounds of this combo so far, will start 25 radiation treatments in February and then will have 3 more rounds after that.

Wishing you strength and good health,
Kim
Debulking Surgery 10.5 cm (TAH & BSO, 14 lymph nodes excised) - Sept 2015; 47 years old
Dx: Uterine MMMT Stage 1b, Grade 3 - Sept 2015
Frontline: Chemo (Taxol-day 1 & Ifosfamide/Mesna-days 1-3) - 6 rounds - Dec 2015 - Apr 2016
Radiation - external, 25 treatments over 5 weeks - Feb - Mar 2016

Maggie_mac
Posts: 32
Joined: Mar 2012

Thank you all for your suggestions and support.  I saw my oncologist this past Tuesday and we talked about metformin.  He had participated in a metformin study of breast cancer patients but had not received any results.  His recommendation was Taxotere, so I started on that.  In the 2 weeks since my last blood tests my CA125 jumped from 378 to 422.  That will be my starting point for measuring the efficacy of the Taxotere. 

I will be getting the Taxotere every week for 3 weeks and then have a week to recover.  I expect my hair to be gone before my recovery week and even before we know if its working.  This will be the 4th time I've lost my hair so I know the drill.

I wish you all strength and happy thoughts.  God bless you all.

Maggie   

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

Maggie please speak to your Dr about permanent hair loss with Taxotere. There is a conversation going on on this board about it. I received Taxotere in my last three chemo treatments. That was in the spring of 2014. My hair did grow back but much thinner than before, especially on the top and in front. It doesn't happen to everyone but it's worth discussing.  Sandy

Maggie_mac
Posts: 32
Joined: Mar 2012

Dear Sandy,

After my first Taxotere infusion on Tuesday I did look up the drug.  From what I read, between 6% and 7% had permanent hair loss.  Since yours wasn't complete loss, I don't know if women in your situation are included in the statistics.  Since I've failed on so many drugs, I don't know where to go if I stop the Taxotere.  I also wonder if I'm more suseptible because I will be getting it every week ( 3 weeks on, 1 week recovery).  I also don't know if my regimen is a lower dose.  I guess I have a few more questions at my infusion on Tuesday.

I'll have to admit I'm getting weary, even though I know I need to stay strong for my husband, the kids and grandkids.

Maggie

EZLiving66's picture
EZLiving66
Posts: 1260
Joined: Oct 2015

I had Toxotere, Maggie, and my hair, after eight weeks has not grown back at all.  This week I noticed that half my left eyebrow is also gone now.  But.....I did read that doing Taxotere every week resulted in LESS permanent baldness, so you probably will be fine.

Love,

Eldri

ConnieSW's picture
ConnieSW
Posts: 1342
Joined: Jun 2012

do you know why they gave you taxotere instead of taxol?

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

In my case I was having periferal neuropathy from the Taxol. It began after my first treatment and got worse with each treatment. By the time I had the third treatment my hands, fingers, feet and toes were numb and I was getting shooting electrical pains in my right leg. My doctor told me that Taxotere was as efficacious as Taxol and doesn't cause neuropathy. So I switched to Taxotere for the last three treatments. The neuropathy did stabilize and, after a while, began to diminish. Today I only have a little bit of numbness in my feet and toes but my hair is very thin on the top of my head! 

Dont get me wrong, I am grateful that I am still NED but I would like to have known that this could happen. If taxotere was the best option fine, lets go for it. But let me know what's available and what are the pros and cons. Enough! I'm alive and healthy and that is wonderful! Done whining, Sandy

EZLiving66's picture
EZLiving66
Posts: 1260
Joined: Oct 2015

I have no idea why my oncologist gave me Taxotere but after three chemos, my toes and fingers are numb along with my face (cheeks) and at night my feet feel like they're on fire with needles poking into the arch of my left foot so......I can't imagine what Taxol would have done to me - LOL!!  It's almost eight weeks since my last chemo and I am starting to get some feeling back especially in my left hand and right foot although no hair is growing anywhere and last week part of my left eyebrow fell off - it gives me a very "distinctive" look.  I'm thinking of taking a light brown sharpee and drawing it on.

Love,

Eldri

EZLiving66's picture
EZLiving66
Posts: 1260
Joined: Oct 2015

I also found a woman on Facebook who completed six rounds of chemo with Taxotere and her fingernails are falling off too - just like mine.  I don't remember being told that was a possible side effect either.

Love,

Eldri

Donswife48
Posts: 280
Joined: Nov 2015

Well, actually not my doctor, but my chemo nurse.  When I sat down with her before scheduling, she gave me a expandable file folder from American Cancer Society full of information and a calendar.  She also gave me fact sheets of every drug I would be getting, from the nausea medicine through the chemos.  She read each one with me and we discussed anything that I didn't understand.  Since I was given taxol & carboplain they both had numerous side affects, but taxol listed loosening of the fingernails.  She also said which of the side affects were the most common, but when I mentioned the fingernails, she said that was not common with taxol.  I'm sorry your doctors team didn't go over the stuff you were taking, or that they could lower your dose if you had extreme reactions.  I'm still on the fence aout taking a lower dose  next time, this is day 11 for me and the fingertip neuropathy and also the feet are pretty bad.  I guess if I had to choose, I'll live with the fingertips, but I'm concerned about the feet.  I live alone, so I'm it!  If I lose my mobility????

EZLiving66's picture
EZLiving66
Posts: 1260
Joined: Oct 2015

I probably spent 10 minutes with my chemo nurse which included a tour of the chemo area before my chemo started.  I had no idea which chemo drugs I was even going to receive (if I knew then what I know now).  My advocate kept telling me to mention to my doctor the side effects I was having and write them down.  I did that and he wouldn't even look at the list.  After my bad reaction, no alternative chemo options were given to me at all.  Even going in twice with my infected port, he just couldn't be bothered.  His PA tried to get him to come and look at my infected port when I was in the second time.  He just grunted and said it will get better.  When I went in for that third chemo and my blood press was 220/160, I still had the chemo.  My chemo nurse had two failed IVs and they finally went into the crook of my right arm - my only good vein which had been used over and over to draw blood - so I had to keep my right arm perfectly straight for four hours.  My GP said that was totally unacceptable - between the high blood pressure, infected port site and using an overused vein for the infusion - anyone of those things SHOULD have stopped the chemo right there.

I would change gyno/oncologists but I'm in an HMO and he is IT.  I've been told he is an excellent surgeon but has a horrible bedside manner and I think that's very true.

I bought the book "Radical Remission" and reading about the cancer patients she interviewed and how they were treated by convention medicine made me realize I am not the only one this has happened to.  I am lucky to have the GP I have.  If my cancer returns, I would agree to surgery but no more chemo or radiation.  I would rather have quality over quantity.  

Love,

Eldri

molimoli
Posts: 514
Joined: Aug 2014

Me too Eldri, me too,quality all the way. If the knife can't do it then I'll house it till such time.as alternative kicks in.

I  hope you are feeling much better now with that port.

Nuff love Moli.

BC Brady's picture
BC Brady
Posts: 70
Joined: May 2015

So much good information on this string - much appreciated. I had good results after 6 cycles of carbo/taxol (stage 4 post debulking and total hyst) - Scan in August showed "no hypermetabolic activity". But a sneaky node remained on my cardiophrenic fat pad - does anyone else have this? Even tho it wasn't lighting up in the scan and was reduced in size, I didn't trust the result. Sure enough, in October, that node had multiplied and other areas, too, in the peritoneum. All nodal. So - I swtiched to a research hospital - Roswell in Buffalo - and they put me on Doxil. Scan last Monday showed mixed results - some progression. I haven't the courgage to check the report myself yet to see how much progression. My new dr called me at work ( I'm still working full time) and said she was changing the chemo to carboplatin and Gemza. I never knew what was the 'sickiest' before, the carbo or the taxol - but I think by the way I feel today at this point, I may tolerate the carbo better than the taxol. Have dizziness and fatigue but nausea is not too bad. I'm sure I'm experiencing the tail end of the doxil as well - skin issues! Good Lord! Thought I had shingles! Thankfully, no. As for the Gemza - it's a different class of drugs altogether and I'm still getting my head around what it's supposed to do. I did ask about the metformin - and no real discussion ensued. They have their cookbook and and that's what they want to do first I guess. My original tumor was genetically tested and found 3 markers - all of which have no therapies - and just indicate the rare-ness of my disease - a fact I could have lived without. I'm 57 and active and healthy otherwise - waiting for my first grandbaby to be born any day. I will fight this to the last fiber of my being and know you all will too!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1399
Joined: Jun 2015

Congrats on the new grandbaby!

I hope and pray this new treatment will bring you the NED that we all so strive to achieve.

Glad to see you keeping up the fight.

Stay strong.

Love and Hugs,

Cindi

Maggie_mac
Posts: 32
Joined: Mar 2012

I went back for my second taxotere on Tuesday, but my oncologist was not happy with the hand and foot syndrome I was experiencing [welts on my palms and heels] or the bloody nose problem so he said he didn't want to wait and we would make the switch to Gemzar as soon as my labs came back.  I asked him if I was his wife or sister what would he advise.  He said the Gemzar.  My labs came back, and he came back to tell me he couldn't give me anything because my WBC, RBC, hemoglobin, platelets, etc. were too low.  We'll try again next Tuesday.  I was feeling pretty low.

Now for the good part.  That afternoon the phone rang, and the caller ID said it was my youngest step-daughter.  When there was no response to my "hello" it dawned on me that it was my 2-year old grandson Giovanni.  In his little 2-year old voice, I heard, "I love you".  Those three little words disolved all my anxieties.  Of course he got some prompting, and I well be forever grateful to his mother.

Please let us know about your new grandbaby and wish me luck on Tuesday.

   

EZLiving66's picture
EZLiving66
Posts: 1260
Joined: Oct 2015

Maggie, I had blotches and then the skin peeled on my hands, feet and finally my face when I was on Taxotere AND I also had constant bloody noses but my doctor just kept giving me chemo.  Also, right before my 3rd chemo my blood pressure was in "stroke zone" and my port was infected....still got the chemo.  Honestly, I probably could have had a fatal heart attack and died in the chair and they would STILL have pumped this chemo into me!!  I am so glad you have a doctor who is watching out for you!!

That is so cute about your little grandson.  And, good luck on Tuesday!!

Love,

Eldri

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