I have been thinking a lot about you too Jeff. I would love to hear from you as I gird up for Round 4 and likely a big mess o chemo. Jeff if you just don't feel like talking right now that's okay too.....know that you there are lots and lots folks here thinking about you and pulling hard for you
I go in for paracentasis tomorrow. In plain English it means they will be draining fluid build up in my belly and right lung pleura. Please keep me in your thoughts and prayers that I get the relief I so desperately need. The last couple of months have been the biggest challenge of my life. I miss you all. I have been following just not posting.
No luck today. Not enough fluid to drain WTF. AlL the bloating is inflamed tissue. I am just supposed to live with it. My onc said to supplement with Boost or Ensure and start me on Fentynal patch. Great more drugs.
You have meant a lot to a heap of people here. You have helped and supported so many . Wishing you freedom from pain and a miracle would not go astray either. Ron.
The bloating started out on my right side in the cavity where the 2 ribs that they removed used to be. Apparently fairly normal for that type of operation my oncologist and surgeon confirmed. It gradually moved to my upper abdomen and suddenly since my last treatment my lower abdomen got really bad. I emailed my concerns to my oncologist again yesterday. he said he would like to get my surgeons opinion. My surgeon couldnt offer an opinion until I get a scan. So they are setting up a scan now. It is definately nerve wracking and stressful. Not to mention very uncomfortable and painful at times. I cant stand to even look at myself in the mirror. Not because of vanity but it is scary to look at how much I have changed in a short time.
to see ourselves with all of the scars criss-crossing our bodies, and now you have to deal with bloating, which disfigures you even more. And like you say, its not so much vanity but what Cancer has created; almost a monster; some kind of Frankenstien.
I hope the can expidite your can and get you in today or tomorrow. The sooner the better. The sooner you know what is happening the better.
to read about all you've been going through. I can't begin to imagine how painful and frustrating it must be for you. I join everyone in hoping you can get the scan you need pronto and that the doctors can find a way to get rid of the bloating and give you some relief.
Pain is getting better. I think the patch and the diuretics are helping. Almost done with 4th of treatment. It went surprisingly well with the nausea. The only bad thing was about 8 hrs of hiccups which have finally stopped. Scan next Wednesday the 10th at 8am. I have my sleeves rolled up and ready to fight.
This past treatment was BRUTAL. Worse than the last treatment which I didn't think was possible. I had to have 2 days of IV fluid again.. diarrhea nausea constipation urinary tract infraction you name it and I probably had it. The edema around my belly is getting. I eat lots of very tiny meals followed 1/2 fighting off nausea.. there were 2 nights that I didn't know if I would make it through the night. Either trying to stay awake or taking 15 minute naps. I am doing much better now. Thank God. I have a scan tomorrow but don't get results until next Tuesday. I wanted to have as peaceful of a weekend that I could have.
Not just the treatment but our nerves can make us feel terrible. I remember when I was diagnosed I could not sleep. I was walking up and down the living room and felt like if I stopped walking and massaging my body I will die. Great stress causes great panic in our body.
I wish you some restful days and expecting some good news on Tuesday.
I came on her go see what's really going on after your post on Facebook. They should have given you an emergency scan and something like ativan to relieve the naseau. Leaving someone scared and suffering is not cool. I am glad you got through the night. Now on to getting things better and better.
I do have plenty of pain killers and At Ivan along with all the nausea drugs. In fact I just got some refills today. My scan was already scheduled as a routine scan. I told my onc that we can still wait until Monday which I did just push up from Tuesday. I just wanted to get through the weekend first.
it breaks my heart to hear of your suffering Jeff. I hope you can find some peace and a little pleasure this weekend. Sending so much Valentine Love.......
You've certainly earned something on the enjoyable side of the scale, I hope all your cravings are fulfilled. Then I hope you get more cravings, sort of a non-vicious cycle of stuff you like and can have. Hang tough Jeff.............................................Dave
I had some my wife's awesome brownies. Probably than I should, but the will make up for not riding my Harley. I did do 20 minutes each day on the stationary biicycle. I think I am starting to develope pneumonia
Joined: Jun 2006
jeff
I have been thinking a lot about you too Jeff. I would love to hear from you as I gird up for Round 4 and likely a big mess o chemo. Jeff if you just don't feel like talking right now that's okay too.....know that you there are lots and lots folks here thinking about you and pulling hard for you
best love, mags
Joined: Aug 2015
I am thinking of you too.
I am thinking of you too.
Joined: Jun 2013
Dear Jeff,
I'd like to join in on wishing you the best and hoping you are doing well.
Laz
Joined: Sep 2015
me too
I have not been around her long and not super active. But I think of you often Jeff. Hope you are well.
Summer
Joined: Oct 2011
I'm still here.
I'm still here.
Joined: Apr 2010
HUGS (((())))!!!!
HUGS (((())))!!!!
Joined: Aug 2012
Glad to hear it Jeff. hang
Glad to hear it Jeff. hang in there,
Joined: Oct 2011
I go in for paracentasis
I go in for paracentasis tomorrow. In plain English it means they will be draining fluid build up in my belly and right lung pleura. Please keep me in your thoughts and prayers that I get the relief I so desperately need. The last couple of months have been the biggest challenge of my life. I miss you all. I have been following just not posting.
Joined: Aug 2012
We miss you too Jeff. My
We miss you too Jeff. My husband is having a rough time now too. I hope tomorrow is a good day all along. Prayers and warm thoughts for you.
Joined: Jan 2013
Dash it all!
Will think of you tomorrow, Jeff. So sorry to hear that you've been so rough. You're always thought of, and always in my prayers.
Sue - Trubrit
Joined: Sep 2014
Sorry, same here
I had 4 liters of fluid drained on Monday. Unfortunately the bloated belly is back already. I hope you have longer relief.
Joined: Feb 2015
You Have Them
The thoughts and prayers and with you. I will be thinking of you tomorrow.
Joined: Apr 2012
You are in my prayers
Jeff,
It is great to hear from you. You are in my thoughts and prayers. Stay strong my friend.
Joined: Jun 2006
Jeff
Jeff I will be thinking about you today . I hope your procedure brings some relief to you.....
all the very best, mags
Joined: Oct 2011
I hope you get some solid relief, Jeff...
I'll be thinking of you.
Big hugs~AA
Joined: Aug 2011
Jeff, you reached out to me
Jeff, you reached out to me in some of my most anxious moments... I will never forget that!
I am praying for you, praying hard. I am asking for you to not only get relief, but that you get on top of this battle again.
Thank you for being a friend, God bless you.
Brenda
Joined: Oct 2011
No luck today. Not enough
No luck today. Not enough fluid to drain WTF. AlL the bloating is inflamed tissue. I am just supposed to live with it. My onc said to supplement with Boost or Ensure and start me on Fentynal patch. Great more drugs.
Joined: Jun 2006
darn
oh Jeff....so so sorry that did work out for you....how upsetting for you.
sending love.....mags
Joined: May 2005
Well
I know sarcasm when I hear it! Not a fan of Ensure, especially warm like they gave it to me in the hospital.
You're in my thoughts Jeff
Joined: Aug 2012
I'm sorry ...this disease
I'm sorry ...this disease just sucks.
Joined: May 2011
Oh, Jeff, I am so sorry the
Oh, Jeff, I am so sorry the procedure offered no relief. You remain in my heart and prayer.
CM
Joined: Aug 2015
Just darn! Any bloating is
Just darn! Any bloating is uncomfortable and painful, but this has got to be off the charts!
Joined: Jul 2007
darn it, so unfair
I hope you find some relief soon. prayers for you my friend, Traci
Joined: Jun 2009
Dear Jeff, I have been
Dear Jeff, I have been thinking of you. God bless.
Joined: Nov 2001
Hugs mate
You have meant a lot to a heap of people here. You have helped and supported so many . Wishing you freedom from pain and a miracle would not go astray either. Ron.
Joined: Oct 2011
The bloating started out on
The bloating started out on my right side in the cavity where the 2 ribs that they removed used to be. Apparently fairly normal for that type of operation my oncologist and surgeon confirmed. It gradually moved to my upper abdomen and suddenly since my last treatment my lower abdomen got really bad. I emailed my concerns to my oncologist again yesterday. he said he would like to get my surgeons opinion. My surgeon couldnt offer an opinion until I get a scan. So they are setting up a scan now. It is definately nerve wracking and stressful. Not to mention very uncomfortable and painful at times. I cant stand to even look at myself in the mirror. Not because of vanity but it is scary to look at how much I have changed in a short time.
Joined: Jan 2013
Its very hard
to see ourselves with all of the scars criss-crossing our bodies, and now you have to deal with bloating, which disfigures you even more. And like you say, its not so much vanity but what Cancer has created; almost a monster; some kind of Frankenstien.
I hope the can expidite your can and get you in today or tomorrow. The sooner the better. The sooner you know what is happening the better.
Cyber hugs!
Sue - Trubrit
Joined: Aug 2015
I sure hope you get the
I sure hope you get the answers. I pray that you can get some relief from this.
Joined: Apr 2015
It's painful
to read about all you've been going through. I can't begin to imagine how painful and frustrating it must be for you. I join everyone in hoping you can get the scan you need pronto and that the doctors can find a way to get rid of the bloating and give you some relief.
Joined: Apr 2012
Jeff, i hope they figure
Jeff, i hope they figure things out quickly and they implement a plan that brings relief. You will continue to be in my thought and prayer.
Joined: Oct 2011
Pain is getting better. I
Pain is getting better. I think the patch and the diuretics are helping. Almost done with 4th of treatment. It went surprisingly well with the nausea. The only bad thing was about 8 hrs of hiccups which have finally stopped. Scan next Wednesday the 10th at 8am. I have my sleeves rolled up and ready to fight.
Joined: Aug 2012
Glad the pain is getting
Glad the pain is getting better Jeff...and that you are as determined as ever!
Joined: Apr 2012
Trooper
Jeff, you are a true trooper. Glad to hear that the pain is a little better and praying for continued relief and SUCCESSFUL treatments!
Joined: Oct 2011
You are one of the strongest people I know, Jeff
your tenacity and will to fight are just incredible.
Keep it up!
Joined: Oct 2011
This past treatment was
This past treatment was BRUTAL. Worse than the last treatment which I didn't think was possible. I had to have 2 days of IV fluid again.. diarrhea nausea constipation urinary tract infraction you name it and I probably had it. The edema around my belly is getting. I eat lots of very tiny meals followed 1/2 fighting off nausea.. there were 2 nights that I didn't know if I would make it through the night. Either trying to stay awake or taking 15 minute naps. I am doing much better now. Thank God. I have a scan tomorrow but don't get results until next Tuesday. I wanted to have as peaceful of a weekend that I could have.
Joined: Jun 2013
Dear Jeff,
Are you getting chemo now?
Not just the treatment but our nerves can make us feel terrible. I remember when I was diagnosed I could not sleep. I was walking up and down the living room and felt like if I stopped walking and massaging my body I will die. Great stress causes great panic in our body.
I wish you some restful days and expecting some good news on Tuesday.
Laz
Joined: Aug 2012
Sorry this chemo is kicking
Sorry this chemo is kicking your butt Jeff. After all this time, it would only be fair if it was easy on you.
cyn has a rice recipe that may help. Ive yet to make it for my husband but will be soon.
enjoy your weekend and prayers for good scan results.
Joined: Apr 2012
Jeff, Please know that there
Jeff,
Please know that there are many friends on this forum sending prayers and positive energy your way!
I'm sending prayers for Peace, Love, Light, and Healing!
Sincerely,
Phil
Joined: Oct 2011
I know many love me here as I
I know many love me here as I all of you warriors but thanks for the reminder Phil.
Joined: Apr 2010
Hugs!
Joined: May 2012
I came on her go see what's
I came on her go see what's really going on after your post on Facebook. They should have given you an emergency scan and something like ativan to relieve the naseau. Leaving someone scared and suffering is not cool. I am glad you got through the night. Now on to getting things better and better.
Joined: Oct 2011
I do have plenty of pain
I do have plenty of pain killers and At Ivan along with all the nausea drugs. In fact I just got some refills today. My scan was already scheduled as a routine scan. I told my onc that we can still wait until Monday which I did just push up from Tuesday. I just wanted to get through the weekend first.
Joined: Jun 2006
dear jeff
it breaks my heart to hear of your suffering Jeff. I hope you can find some peace and a little pleasure this weekend. Sending so much Valentine Love.......
hugs. mags
Joined: Oct 2011
My appetite has returned
My appetite has returned some. I have had no appetite for the past 2 weeks. Now I am actually cravings for certain doods.
Joined: Jan 2013
Good news!
Happy to hear this, Jeff.
May you enjoy a little something that you crave, on Valentine's Day and beyond.
Sue - Trubrit
Joined: Aug 2013
You've certainly earned
You've certainly earned something on the enjoyable side of the scale, I hope all your cravings are fulfilled. Then I hope you get more cravings, sort of a non-vicious cycle of stuff you like and can have. Hang tough Jeff.............................................Dave
Joined: Oct 2011
I had some my wife's awesome
I had some my wife's awesome brownies. Probably than I should, but the will make up for not riding my Harley. I did do 20 minutes each day on the stationary biicycle. I think I am starting to develope pneumonia