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daisybud's picture
daisybud
Posts: 487
Joined: Jan 2016

Had pain in right upper stomach and goes straight through to back.  Went to gp and had ultrasound with showed only fatty liver.  Still had pain so gp had ct with contrast and now it says 2.0x 1.7 cm heterogeneous enhanced lesion.  Probable renal cell carcinoma.  I am so scared and worried.  I am a 56 year old female.  Had no idea I had it was found because i have fatty liver disease and gp thought the pain was from that.  I have mri scheduled next week and am seeing the urlolgist on the 26th of January.  Just wanted to join the group because you all sound so supportive of eachother and boy do I need that right now. The waiting is killing me.

icemantoo's picture
icemantoo
Posts: 3273
Joined: Jan 2010

daisybud,

 

If you have to join our club there is nothing luckier than to catch the tumor right in the bud. Two cm. is small by our standards and the prognosis for a full and complete recovery is as good as it gets. Lets hope for now that it is something else, but if it turns out to be RCC with such a small tumor you will be fine. The only thing you will have to go thru to get initiated is a partial or full Nepherectomy. We have all been there and done that. Mine was a lucky 13 and 1/2 years ago.

 

 

Icemantoo

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Scarey aint it? Thats the worst thing:the fear.

Sounds like theyve caught it really early, which usually means its treatable.

The C word will send your mind through a flip. Everyone here has been through it. Everyone here will tell you that the worst moment is when you have a diagnosis but dont know what happens next. 

You'll be fine. It sounds like you have a little lump, probably very treatable.

daisybud's picture
daisybud
Posts: 487
Joined: Jan 2016

Thanks for the support.  The worse thing has been hearing the word Cancer!  And the waiting to see the doc and find out whats next.  I am taking my daughter with me because I want to make sure I have support at the appt and the second pair of ears.  Also wondering if you notice a difference only having one kidney to do the work that both were doing for all those years.. I have been lurking on the site and finally decided to join the family.

icemantoo's picture
icemantoo
Posts: 3273
Joined: Jan 2010

Daisybud,

 

Most of us with 1 kidney instead of 2 are doing just fine. Although our kidney function numbers tend to be lower than our 2 kidney brothers and sisters we are here for the long run. We do have to watch our blood pressure, weight , salt intake and not become diabetic to keep our remaining kidney as good as can be. Than we are allowed to do the one thing that lowers our kidney function. Grow older.

 

Icemantoo

daisybud's picture
daisybud
Posts: 487
Joined: Jan 2016

Thanks for the reasuring words.  Scary but def helps to have people who have been through it. 

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Ive noticed no difference in only having one kidney. Sems to work as well as two.

Cancer is a horrible word. Its bad when you hear it and worse when you tell other people; Thhey get what I call cancer face, a mixture of shock, sympathy and horror. Difficult to deal with but they mean well.

When you go to the doctor, always take a spare pair of ears, because I dont know about you, but when I first heard the word cancer I heard nothing else of the conversation.

As it is, Cancer is on its way to being a chronic, rather than a fatal disease.

You can face cancer. Our life is now> we dont need to fear the future, we are recieving so much help. We are part of a generation who are helping cure this disease.

As Fox (A poster here) says - we are not dyeing of cancer we are living with cancer.

So:

Dont worry

If you do worry(and we all do) let us know and we can have a chat.

Have a look at the board, we're good at it.

medic1971's picture
medic1971
Posts: 193
Joined: Sep 2015

Well I hate you had to come to this site, but at the same time we are glad you are here!  

You may not feel like it, but you are very lucky you found this when you did, ten years from now and you may have had a much different outcome.  A 2.0x 1.7 cm heterogeneous enhanced lesion is a good thing..  Kidney cancer is extremely slow growing so it's possible you've had this for several years.  Whatever was causing your belly pain have saved your life. 

 

I had a 2.2cm and an 0.8cm mass found on my right kidney last summer and I had surgery at MD Anderson this past October and I still have 95% of my right kidney.  Mine like yours was an incidental finding.  

 

Here are some things to keep in mind

1.  Don't pay attention to the survival rates you find online.  They’re based on a one year study that was done 15 years ago.  I would put our 5 year survival rate at greater than 98%.

2.  Always get a second opinion, unless you start off at major cancer hospital.  I know you want to get this out of you, but take your time and find a good urologist that has a lot of experience with this type of problem.  There is a very real possibility that you could go another year and not see any growth in your mass.  

3.  If you start to have anxiety issues with this talk to your doctor about it.  I was on 0.5mg of Xanax for about 3 months to help me sleep at night.  

4. You won’t know for sure what this is until you get a pathology report back after surgery. 

5.  Eat right, exercise, and get plenty of rest.  If you smoke stop this very moment.  Cleaning up your diet may help out with the fatty liver too.

Here is a video that gave me a lot of hope and comfort.  It also answered a lot of questions I didn’t even know to ask

 

The doctor in this video was the one who did my surgery at MD Anderson.   

https://www.youtube.com/watch?v=NIzkLgjoE7U

 

 

icemantoo's picture
icemantoo
Posts: 3273
Joined: Jan 2010

daisybud,

 

I agree that your 5 year survival rate is greater than 98%. THe only reason that I would not say 100% is that at 54 years of age you have a less than 2% chance of not surviving 5 years for other reasons. In other words your diagnosis should have no effect on your 5 year survival rate.

 

 

Icemantoo

APny's picture
APny
Posts: 1984
Joined: Mar 2014

 

I’ll never forget walking through the doors of Sloan Kettering for the first time thinking, what am I doing here? I have cancer? How can that be? It was surreal; I was in a daze. The fear is the worst thing; surgery was nothing compared to my fear and my gloom and doom imagination.

 

Yours is very small so chances are they can do a partial nephrectomy if it’s in a spot where that’s possible. If they recommend radical, get a second opinion. Partial is more complicated so some surgeons don’t feel comfortable doing that. If you can save most of your kidney, do so. If you can’t, well, as they said, many live with just one kidney but I have a feeling with one the size of yours can be done partially. Great idea to bring your daughter with you for the consult. Also have a list of questions ready, to which do write down the answers.

 

Wishing you the best! We're here for you.

 

Pandabear1011
Posts: 123
Joined: Jun 2014

Oh i know! Hearing the word cancer was so surreal. Just like Apny said. I didn't feel like a cancer patient. You are very lucky that it is only 2 cm. Keep us posted. We are here for you. Hugs, Panda

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

and I'll quote footsie. Kidney cancer is becoming a chronic disease that can be managed for a long time. The fear goes away. Some. I recently found my cancer spreading again after nearly 5 years. And I'm actually excited. Because there are so many drugs available. I am pumped to enjoy 2016. Fear not. Lot's of role models here.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Sorry about you having to join us, but you'll find lots of support here.  You obviously have found things early and that's great.  I was 59 when mine was found.  The stuff on the internet can be helpful, but very scary.  For instance, my surgeon removed "Bob the Blob" via robotics, much like laparascopic surgery.  I have 4 small incisions vs. one big incision.  When I was reading up on the DaVinci robot I read lots of nightmare stories.  That only increased my anxiety, surgery is scary enough and there are nightmare stories with any surgical procedure.  The robot isn't for every case, depends a lot on location of the mass and how comfortable your surgeon is working with the robot.  For me, all was successful.  I would suggest getting 2 opinions and make sure you feel comfortable with your doctor and have a good repoire. 

Stay with us and keep us updated on your appointments.

Do your best to remain as positive as possible and take care of yourself.  For me, that meant eating well, talking with those closest to me and praying a lot.

:-)  Donna~

Bonngo's picture
Bonngo
Posts: 79
Joined: May 2012

Sorry to have to meet this way, but you will find this group to be not only very supportive but we also like to laugh!  As others have stated it seems this was found early based on size.  Soon this will be behind you and you will celebrate being cancer free.  initial diagnosis is scary, but as you get to learn what some have here have overcome, you will gain much inspiration. 

Remaining positive is the most important thing to do!

~Bonnie

Allochka's picture
Allochka
Posts: 911
Joined: Nov 2014

Sorry ou have to be here, but your situation sounds very faaaaaar from worst case scenario. Cancer is a scary word, but cancers are very different, and a small kidney cancer is one of the best options you can get if destined to be diagnosed.

Read the board to get acquainted with RCC specifics, prepare list of questions, come here for support/info. Looks like you'll be allright!

:-)

 

mrou50
Posts: 389
Joined: Mar 2013

Sorry you had to join the club.  It is scarier but there are great things happening you have a great support group here and can have lots of questions answered.  Hang in there.

 

Mark

daisybud's picture
daisybud
Posts: 487
Joined: Jan 2016

Thanks for the support..  Its been hard waiting for the mri appt and dr appt . I am a type A person  and feel out of control about this whole thing.  I also have to stop googling bc the stats are not good out there.  Medic1971 thanks for the stats you gave!!  Much more positive.  I told my twin daughters not to google either because the are now upset about this whole thing too,. GOOGLE is BAD!!  I also have been making a list of questions to ask when we go to appt after seeing great advice with this group.. Thank you all, you have been a blessing.   

Kim

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

I'm happy you found this board, it was real help during time i was shocked,terrified and hopeless. The best help i got was from members who had been through this, cancer is the uninvited guest but sooner you know better to kick ***. I wad diagnosed with 10 cm tumor 17 months ago but it was confi ed which made me stage two. Yours is fortunately small and they got it soon, so be hopeful for cure and notonly treatment as smal stage one patiants have great chance to be cured right after the surgery.

Forough

 

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Hugs to you Daisy! You came to the right place. This forum answered all my questions and concerns before my surgery.

I am doing excellent 2 years later!

BUT one thing I learned was an MRI is usually not the right test. Urologists want a CT

My primary ordered an MRI and it was a waste of time and money. So ASK your urologist

when they want for testing. okay? I did and yes he wanted an CT first, then we met to discuss

the surgery.

 

I also used a lumbar wrap with velcro to hold my sore muscles together post 2 prior surgeries.

It helps you get UP,  out of a chair,  or bed.

I also put dry ice inside the velcro wrap over the incision(s) and it reduced pain/swelling and therefore

took less  pain meds.

Keep asking questions. You'll be okay. We'll walk this journey along side you.

Often the cancer is contained in the kidney.

Sending you warm wishes and hugs,

Jan

daisybud's picture
daisybud
Posts: 487
Joined: Jan 2016

Thanks Jan for all the great information.  About the mri...  I don't know why I am getting one anyway because I had a cat scan with contrast this week and that where the probable renal cell diagnosis came from.  On the report the person who read it said to have a followup MRI to define the characteristics of the mass.  This is a scary journey.  I am already tired of crying :(  and I have a long road ahead.  Sorry for acting like a baby but I am having a hard time getting my head wrapped areound this.  Someone earlier suggested taking xanax and thats the next thing on my to do/ask about list.  Thanks again!

Kim 

APny's picture
APny
Posts: 1984
Joined: Mar 2014

The stats for a tumor that small are excellent and chances are very good that surgery will be the end of it. Of course nothing in this life comes with a guarantee but the odds are certainly in your favor. Xanax saved my sanity. Nothing wrong with taking the edge of our fear and anxiety. You're not acting like a baby; being told you have cancer really does your head in. Wishing you the very best!

Bakergirl's picture
Bakergirl
Posts: 7
Joined: Mar 2014

This forum has helped me tremendously, I posted on here about two years ago when I was was having anxiety about an upcoming scan. The responses I got have really helped keep the anxiety at bay, everyone was so nice. I actually haven't been on here in a long time but it's scan time again and with that comes the anxiety. I had a 1.5 cm clear cell rcc removed with a partial Nephrectomy in 2012 and haven't had say issues since. The surgery was uncomfortable but I was back at my busy job in the er in a month (would have been sooner but no lifting rules made it hard). As I'm sure you'll hear from the awesome people on this forum the chance of this being removed and that being the end of it are very good. Please message me if you have any questions, Bewellwithpink@gmail.com 

daisybud's picture
daisybud
Posts: 487
Joined: Jan 2016

Thanks Bakergirl,

Its so nice to hear all the supportive comments.  I will def feel better after I know better what is going on.  Its the waiting...... I post when I know more.

Kim

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

Sorry you have had to join our little group but, as I have learned, everyone on this forum will do their best to assist in putting your mind at ease. I too had a small cancer, and I can assure you that my family here helped me through many days and sleepless nights.  I have found that we laugh and cry together which is what we all need at different times.

Keep us posted, you have some might good people here to help you through your new life.

 

Nancy

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