NED from Stage IV metastatic endometrial cancer
This is my first posting to this site. After reading many of the entries on this site, I felt I had to join.
August 2014 - experienced post-menopausal bleeding - had ultrasound- endometrial
lining was .8-.9cm-double what it should be(normal is .4cm)
Sept 2014 - endometrial biopsy was not totally conclusive but precancer found-
recommended repeat of test or D&C
October 2014- diagnosed with Grade 3 endometrioid endocarcinoma with a D&C. (endometrial cancer)
November 2014- total hysterectomy, plus removal of ovaries, fallopian tubes, cervix, 11 lymph nodes, part of omentum and perirectal tumor <1cm, cancer went into lymphatic system.Staged as Stage IIIb,Grade 3.
January 2015- CT scan prior to recommended treatment of radiation and chemotherapy.
Cancer had metastasized to liver, spleen, vaginal cuff/outer rectum (5cm) plus nodules on lung, spleen, kidneys &outercolon- 34 cm of measurable tumors in total - two months after surgery priorto any treatment - MSK radiologist told my husband he believed I had 4-6 months to live. Now Stage IV. No radiation.
Was told radiation destroys the liver.
My gynecological oncologist/surgeon recommended I meet with integrative oncologist, Dr. Mitchell Gaynor (NYC) - He wrote The Gene Therapy Plan - he saved my life. He died a few weeks after I went into complete remission.
January 30, 2015- started chemo infusions at MSKCC of Taxol/Carboplatin-joined a trial that added metformin or placebo to Taxol/Carboplatin treatment
(may have been getting a placebo-will find out when trial ends in Sept 2019)
end of February 2015- met with Dr. Gaynor, after 2 chemo infusions - tested various blood markers- were extremely high - CA125 was 280 (there are many other cancer markers that I am tested for regularly ).
Dr. Gaynor put me on the real metformin because I am insulin resistant (and metformin is known to have anticancer properties for many types of cancers)
I removed myself from the trial at MSKCC. Metformin was discovered in the 1950s- approved in 1995 by FDA. 125Million people around the world take drug for
diabetes and insulin resistance plus a few other conditions, like PCOS, and has been known for quite some time to have anti-cancer benefits for
some of the most popular cancers. Dr. Gaynor also put me on 34 supplements.
Mid-March 2015- third chemo infusion.
March 23, 2015 - met with Dr. Gaynor after 3 chemo infusions and one month on metformin- CA125 was down to 20
March 31, 2015- another CT scan- went from 34cm of tumors to 4cm- MSKCC could not explain why
April - May 2015 -Had remaining 3 chemo infusions of Taxol/Carbo
June 2015- another CT scan - now down to 2cm of tumors (on spleen and rectum). MSKCC wanted to give me up to 4 more chemo infusions- I refused.
Dr. Gaynor increased my dosage of metformin and added 9 more supplements to my regimen.
August 2015- PET/CT declared NED, two weeks before Dr. Gaynor died.
You can research thousands of articles on metformin at www.pubmed.gov (National Insititutes of Health).
One of the articles calls metformin a "magical" drug. Made from the French lilac.
My surgeon had genomic testing performed so I was able to research that metformin targets two of those mutations, for which there are no
successful targeted therapies yet, except Everolimus was recommended for one of my mutations by my integrative oncologist but I refused
it because the metformin was working so well.
If you have advanced or metastatic EC, I believe you have to attack cancer from many directions. You have to correct the issues that are
driving YOUR cancer. You have to address theroot causes of your cancer. I stopped eating processed food, eliminated almost all sugar
(I was a sugar junkie), eat mostly organic, hormone free meat and chicken, drink only purified water, walk 2 miles five days a week,
and cut out 99% of the wine I was drinking, also down 40 pounds.
I also take 1 low dose aspirins each day along with the metformin and supplments. I also get monthly massages using frankencense oil. You
need to figure out the causes of your cancer and address your underlying health issues. I figure you have to get back to your healthier self,
prior to when you had cancer. You have to figure out what was fueling your cancer. For me, I believe it was my high insulin growth factor-1
(IGF-1), high serum insulin and high iron levels (ferritin). Every cell in the body needs iron to divide, and cancer cells are dividing rapidly.
Cancer cells have an enhanced dependence on iron relative to normal cells- a term called iron addiction. High iron levels are seen in many
patients with cancer.
There is no one single treatment that will heal you. You have to address all your own health issues to fight your cancer, or at least those you
have control over. And you have to boost your immune system (I do this with supplements and my healthy diet). Standard cancer
treatments are only a small part of the picture. You need a comprehensive plan to heal cancer and you have to follow it for the rest of your life.
Goal is to remain in remission. Last chemo May 2015. Continue to take metformin, aspirin and 44 different supplements each day,
have maintained my ideal weight, exercise everyday and eat a healthy organic diet.
Still NED as of February 2020. It is now five years since I began this journey.
Hope this helps some of you looking for other solutions. My message is you can heal metastatic cancer.
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