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Chemo # 28

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Chemo #28 done.  Extremely tired, but doing Ok so far.  Yesterday labs, Dr. Visit and taxol.  Hemoglobin still low, anemia, platelets lower that the cutoff for treatment by 7. We decided to go ahead with treatment anyhow.  CA 125 was up by 30.  I will have another Ct scan after the next round.  Today was the Carbo treatment We got there at 8:30 and left at 5:00.  I was the last one out.  The slooooooooow dose seems to be working.  I have not had any reactions to it.  Now waiting for the side effects and then good days will be back. Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1434
Joined: Oct 2015

I don't know how you do it, LouAnn.  After just three chemos, I had to quit because of the side effects.  I hope you're feeling better soon.

Love,

Eldri

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

you haven't had any reactions to the carbo.  Hoping the side effects don't last long an the good days are back soon!

Chris

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1683
Joined: Jun 2015

I'm glad you were able to get your treatment.  Do you know yet how many more you will have to do? Or is it all dependant on the scans?

Sending you lots of positive energy and prayers that this gets rid of all the darn cancer!

Love and Hugs,

Cindi

ConnieSW
Posts: 1504
Joined: Jun 2012

what an inspiration you are.  I love tough ladies.

Cucu me
Posts: 214
Joined: Apr 2015

and great example to follow!

Wishing you sooner, more and better good days!

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

i was told 2 years ago that I would probably be on chemo for the rest of my life.  Both my Gyn-Onc and my Onc would be happy if we could get to stable.  After one more treatment I will have another CT scan to see if the return to Taxol/Carbo is working.  If it isn't, we may be able to try the genomic match.  I have 2 great doctors who will keep looking for new treatments if this doesn't work. I have been blessed in many ways and have learned to enjoy my good days.  Right now this is my normal life, but I don't give up hope for a cure for all of us.  Lou Ann

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2802
Joined: Mar 2013

Lou Ann, you are a rock star.  Is there any clinical trials out there they could put you in?  I just posted somewhere else I just met a woman who has UPSC stage 3C and she is on Avastin right now and has no side effects. 

I know nothing about the drug and am just throwing it out there.  

 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Avastin is what the genomic testing came back as a match, but it is not approved for endometrial cancer by Medicare.  My Oncologist will have to beg them to use it.  And he will but he thinks it will be a 50/50 chance that they will approve it.  We have to wait until after my next CT scans for proof that the Taxol/Carbo isn't working.  The CA 125 can't be used for that.  Lou Ann

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2802
Joined: Mar 2013

A new member, and I apologize for not remembering her name, posted the NYT article on the head of the FDA who recently lost his wife to ovarian cancer.  He is going to be pushing for new drugs or drug approval (THANK YOU GOD!!) so have your doctor push.  The woman I just met is traveling now, but we are totally connected and I am sure she will be willing to share with me and let me pass it along if there is anything you can use.  

We all need to start demanding.  I am so impressed with the women here.  Educated, knowledgeable, not afraid to delve in to the research -- WOW!  I don't think researchers know just how much we know and how determined to get better care and treatments.  

takingcontrol58
Posts: 261
Joined: Jan 2016

Please ask your doctor about metformin.  Metformin inhibits angiogenesis, which is when new tumors form blood vessels to feed them so they can grow.   

That is what Avastin does.  And Avastin has serious side effects.  Since you have had much chemo so far, I hope you would try a drug that has few side
effects and has many anti-tumor properties.  It is written up in all the medical journals.

My integrative oncologist wanted to add Avastin to my treatment of Taxol/Carbo but I refused when I learned that Metformin does the same thing. He did put me
on metformin.

I was diagnosed with Stage IV metastatic EC in January 2015- I had 34 tumors after my surgery the prior Nov (liver, spleen, rectum)- started metformin February 26, 2015
and by August 25, 2015 I was NED. I did go through 6 treatments of Taxol/Carbo from Jan - May. I saw miraculous results after one month on metformin. My 34CM of tumors shrunk
to 4CM. Metformin stopped my cancer in its tracks.

You have nothing to lose and metformin is a generic drug- very cheap.  You can take it for a month or two and see if you get better results on your next CTscan before you
get on the Avastin.   You have already had so much chemo and like I said, you have nothing to lose.

takingcontrol58

 

 

Good luck.

 

 

 

 

 

 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

thanks for the information.  I will certainly look into it.  My doctor is pretty open to things I might want to try. 

BC Brady's picture
BC Brady
Posts: 70
Joined: May 2015

This is very hopeful news about metformin. Thank you. I'm going to ask as well. I have a scan on the 25th - chemo on the 29th. Only 3 doxil's down - hope it's enough to see a difference in the right direction. I, too am understanding that I could be on this the rest of my life. The side effects are different than the taxol/carboplatin cocktail - but weirder - less predictable. Does anyone have trouble with depression while on Doxil? Stupid question I know! We all are depressed about the disease - but this is a definite cloud about day 2 or 3 and lasts for a week. Pretty prounounced and totally counter to my general disposition. Now I'm prepared for it - but need to lean on a Xanax to get through the evening for a few days. 

Thank God I found all of you. XOXO

Billie

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I had 7 rounds of Doxil and I hated it .. I think mostly because of the unpredictability of it.  I had several days that I was defiantly down in the dumps and crabby. I would feel find for awhile and then find myself throwing up.  Couldn't eat or even drink for a few days . ended up having to go into the infusion center for hydration more than once.  It did work on several very small tumors, but did nothing to the 3 larger tumors.  it is miserable stuff so I hope you get some good results from it.  Hugs and prayers, Lou Ann

Donswife48
Posts: 326
Joined: Nov 2015

Another one down.  I hope your side effects are minimized and the chemo treatment outcome is maximized.  You are one of the ladies I look to when I'm down, I wish there was a way to repay you with hugs and prayers.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1683
Joined: Jun 2015

Thanks for the clarification. And, I'll revise my prayer for a cure and that Medicare steps up for you and anyone else that is using it. I'm glad you have doctors that are willing to fight for the right things for you. It seems like we are behind the times a bit in our care when it comes to insurance - private or otherwise!

I hope you are feeling better today.

Love and Hugs,

Cindi

EZLiving66's picture
EZLiving66
Posts: 1434
Joined: Oct 2015

How are you doing, Nancy?  I hope your side effects are minimal!!

Love,

Eldri

BC Brady's picture
BC Brady
Posts: 70
Joined: May 2015

You are a ROCKSTAR! Good luck and Godspeed through this!

XO,

Billie

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