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Crawling back up towards the living after chemo 2

Donswife48
Posts: 297
Joined: Nov 2015

I went into chemo two so much better prepared (or so I thought), and it still drug me down into the hole.  I kept ahead of the nerve pain until yesterday, took Narco during Saturday night and it must have helped a little because I slept 2 hours at a time.  However, yesterday, I didn't want to take another so I tried to outlast it.  (It won, but I still kept going with Advil only).  I'm feeling like the rest of this treatment is moving forward, but I also feel druggy on just vitamins and Advil.  I found myself reading old threads on here, and got kind of sad to read of all the ladies that thought they were doing great, only to be told they recurred.  Dang, I sincerely hope those I don't see posting anymore have made it and simply just stopped following this forum, althought I know in some cases that's not fact.  Does cancer always win for those of us with stage 3?  I know, I'm probably feeling the after effects of the steroids and it is making me less optomistic, sorry, I'll snap myself out of it soon.

EZLiving66's picture
EZLiving66
Posts: 1358
Joined: Oct 2015

I'm always amazed when people going through chemo are ok.  It kicked my butt!  But, I've seen women with Stage IV NED for many years so yes, I think women with Stage III and IV do make it.  I'm sorry you have to go through this chemo hell.  It's been almost four weeks since my last chemo and my hips and legs still hurt at night along with other side effects.

Love,

Eldri

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1554
Joined: Jun 2015

You will get through this! And, it isn't easy but for most doable. Trust your body to know if enough is enough (like Eldri) if necessary.

You will also learn to get your strength for the next one during the "good week" or so between treatments.

Glad you read the older threads too. Lots of great information in there. Also, if you haven't already... the newer thread titled ladies going through chemo describes a lot of journeys.

Sending you lots of positive energy.

Love and Hugs,

Cindi

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I think we are on a rollercoaster!  Sometimes it takes longer need to make that turn and head uphill.  I am stage IV with 2 recurrences and even though cancer treatment is a major part of my life, it hasn't gotten me yet and it has been almost 3 1/2 years.  I have many more good days than bad.  I usually have a day or two of feeling "down in the dumps" after each treatment and then I get a better attitude back again.  This time has been one of my harder times. Heartburn has been bad and the pain in my back and legs is still around particularly at night.  I don't like taking Hydrocodone are even Tylonal, but I might give in tonight.

Hang in there it will get better.  Hugs and prayers, Lou Ann

Donswife48
Posts: 297
Joined: Nov 2015

Thank you, I just needed someone to be a shining star, someone who is around after the initial diagnosis.  You're my inspiration!  Hugs back.

ComestheDawn
Posts: 1
Joined: Dec 2015

Hi Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1358
Joined: Oct 2015

Welcome to this forum!  You can start a new thread and introduce yourself.  Everybody here is very nice and can be quite helpful if you have any questions.

Love,

Eldri

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Welcome to this site, and sorry you had to come here.  Glad you found this place .  It is a good place to come for encouragement, support and information.  Don't be afraid to ask questions.  someone here will have ideas for you.  Lou Ann

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

For me chemo was terrible! BUT, it's almost 2 years since I finished chemo and I am still NED. I recovered my strength and my health and I am enjoying life and hope to continue a cancer free life for many years. I was diagnosed stage 2 grade 3 in October 2013. I had a radical hysterectomy in Dec 2012 and chemo from Jan thru Apr. I had a really hard time with chemo- a lot of aches and pain, especially in my joints, neuropathy in my hands, legs and feet. I always felt like I had the flu! I know that I needed to take hydrocodone to sleep more nights than not. Definitely not an experience I hope to repeat, but it did work. Please keep your eyes on the goal and know you can do it! This is not a death sentence!

ncg007
Posts: 132
Joined: Nov 2015

I'm a 8 days out from chemo #4 which was my second round of carbo/taxol, first 2 were Cisplatin; this round has kicked my butt!  I've gotten past the nausea and tiredness, but I have absolutely no strength to even walk a short distance in the house or stand in kitchen.  Last round I experienced this same weakness but recovered by now.  Will recovery time lengthen with each round, any tips to boost my strength?

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

NCG007, have you looked into getting a Neulasta shot? I get one after each chemo treatment and it helps me bounce back quickly.

ncg007
Posts: 132
Joined: Nov 2015

Ive considered it, but the list of serious effects scare me!  Has everyone experienced positive results?

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1554
Joined: Jun 2015

I only took Neulasta one time. While I did have less fatigue, the bone and muscle pain was horrible. So, I refused to let them give it to me after that.

There are other ladies that have had positive results with it.

joannewtta's picture
joannewtta
Posts: 43
Joined: Jul 2014

I had six shots, took Claritan and had no problems.

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

only had discomfort the first time

 

 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I will be getting my 19th Nuelasta shot tomorrow with the new on body delivery system and I have never had any problems or side effects from it.  I do have bone pain but I m sure it comes from the Taxol.  It does keep my white blood cells up at a decent level.  Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1358
Joined: Oct 2015

I had one Neulasta shot after 2nd round of chemo but the pain in my hips and pelvis was awful - it felt like they were vibrating in pain.  It's been four weeks since my 3rd chemo and I still have pain in my bones - hips and legs.  This might be from my chemo or a lingering side effect from the Neulasta.  Today my chemo nurse got me a presciption, Gabapentin, to help with the pain in my feet - it feels like they're on fire with needles poking in them and it's much worse at night.  At least my fingers are just numb - no pain or tingling.

But....a LOT of women have made it through chemo with minimal damage or discomfort.

Love,

Eldri

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I use Gabapentin and it does work for me.  I also use Lorazapam and that makes it work better.  it is not usually subscribed for Nuerapathy, but my dr is letting me try it.  he originally gave it to me for my stomach and my feet stopped burning. LOL.  I hope the Gabapentin works for you.

I so hope that your wound starts to heal correctly now.  Hugs and prayers, Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1358
Joined: Oct 2015

Any side effects from it, Lou Ann?

Love,

Eldri

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

no side effects that I can tell. Health food stores also have things they say work for Nueropathy.  One is an oil that you rub on.  It does work but doesn't last long.  also a pill called Alph nepoic acid.  It is supposed to have all natural ingredient.  I have a bottle but haven't trird it yet, since the other seem to be working.  I can't stand the idea of putting one more pill in my mouth.  Lou Ann

ncg007
Posts: 132
Joined: Nov 2015

thank you all for the feedback.  I'll review options with dr.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2597
Joined: Mar 2013

I never got nuelasta.  I had to delay my sixth chemo by one week. 

I know you think you will never be your old self, but it just takes time.  Think of what you are doing to your body.  You are assaulting it with chemicals to kills cells - that is a lot for your body.  As it has betrayed us, it also does amazing things. 

As hard as it is to believe, you will get better.  You are goign to amaze yourself.

giggs100's picture
giggs100
Posts: 91
Joined: Oct 2015

I had a Neulasta shot one time after my first application of chemo.   I had some bone pain for two days and that was it.   They changed to Neupogen because the Neulasta shot spiked my white blood cell count up to 51.8 (five times what it should of been).   It came back down to 13.9 before my second application of chemo otherwise if it had stayed too high it would of stopped my second application of chemo.    I just had a blood test yesterday and will have another this coming Friday to see what the Neupogen will be doing to my white cell count.  I did notice a bit more tiredness this time after the application of chemo but still energy level picked up 4 days after chemo.   So was able to start doing normal things again.   With the Neulasta shot energy picked up 3 days after shot.    So not much difference in energy factor with either one.   What I did notice was hardly no pain at all after shots.  But there is a draw back with the Neupogen I have to have this shot for 5 days in a row starting on the second day after chemo.  Now I am anxiously waiting to see what the wbc (white blood cell) count is.

Jerri

Hopeful162's picture
Hopeful162
Posts: 82
Joined: Sep 2014

FYI, I never had a neulasta shot,  yet during chemo for three or four days each round of three weeks, I had terrible bone and joint pain in my hips, thighs and knees, which I attribute to the taxol. I also had neuropathy in my fingers and toes, but that has completely resolved. However, a little more than eight months post surgery I did get significant lymphedema in my left leg which has improved greatly with eight rounds of physical therapy and compression. (I had 13 lymph nodes removed during surgery for UPSC.)

Martha

EZLiving66's picture
EZLiving66
Posts: 1358
Joined: Oct 2015

Nancy, how are you doing???

Love,

Eldri

EZLiving66's picture
EZLiving66
Posts: 1358
Joined: Oct 2015

Nancy, how are you doing???

Love,

Eldri

Donswife48
Posts: 297
Joined: Nov 2015

I'm recovering good now, it's day 11 (I think) since chemo.  The nerve pain is gone, but the fingertips are numb.  When I talked with my nurse on Thursday and told her I couldn't feel texture, the fingers hurt when I used the adding machine or hit the keyboard, she said they would probably have to lower my dose.  I told her no, so I'm not going to complain about this again.  I need to give myself the best first time treatment because my cancer is advanced, and I'd rather live with dead fingertips than not live!  Anyway, I also got a bad case of folliculitis, and I had an appt with my regular GP on Monday (six month wellness), she looked at the fluid filled red bumps and prescribed an antibiotic which thankfullly is working along with Dial Gold soap.  They kept breaking and the infection would spread so she said to use the soap because it was 99% bacterial.  Now my scalp is dry and itching.  But again, when I think of all the things others have went through (including you) and what my dear husband endured, I won't complain too loud.  I do find it hard to type and spell correctly, so please forgive.  I can't wear my wigs or stylish hats, so I'm sticking with scarves or going without anything in the house.  It looks like I have a bad case of the measles on my head, so I have to wear something there.  I did manage to work a full week, including some overtime so I guess I'm doing great.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1554
Joined: Jun 2015

Nancy - I had a bad rash on my head that also required an antibiotic cream.  That did get rid of the infection.  I still have a slight rash that hopefully will go away now that I am finished with chemo.  Just thought I would mention that I applied a cortizone cream to my scalp and that helped a lot with the itching an dryness.

My fingers and toes are still numb. But it has only been 19 days so I think it is too soon for me to expect that to be resolved.

You are doing great!  Keep up the can do attitude.

Love and Hugs,

Cindi

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

Nancy it is important that you let your doctor know about any reactions you are having. From my experience, the neuropathy continues to get worse with each treatment. Are you being treated w/Taxol?  My doctor had to take me off Taxol after my third treatment because of increasing neuropathy in my hands, feet and legs. He switched me to Taxotere and told me it was equally effective but did not cause neuropathy. It seems to have worked for me and the neuropathy did slowly abate. Its been 20 months since I completed chemo and I am still NED. The bottoms of feet are still slightly numb but otherwise the neuropathy numbness and shooting pains are gone. Your doctor is the best person to discuss this with. I don't think there is just one right treatment that works for everyone. Please talk to your doctor so he can work with you to find the treatment that is best for you.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

happy that you are starting to feel a little better.  I agree that you should fill your doctor in on all of the side effects.  Nueropathy can get a lot worse.  Some people have a great deal of trouble walking with it.  If your doctor knows He may be able to give you something that will help.  I put off taking anything for the Nueropathy for a long time and finally gave in and flled the perscription for Gabapentin that the Dr. Gave me.  It helps and I am glad My stubborn self finally gave in. 

 A rash on your head must be miserable.  I hope that heals soon.  Everyday I am reminded about how lucky and blessed I have been. I have had a lot of side effects, but most of the time they have been only mildly irritating.

I couldn't type or spell even before.

Hugs and prayers, Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1358
Joined: Oct 2015

I'm glad to hear you're recovering from your last chemo.  My doctor or chemo nurse never once mentioned lowering the chemo dosage despite all the side effects I was having.  It continues to amaze me the number of different treatments different doctors recommend.

Love,

Eldri

cindy0519
Posts: 173
Joined: Nov 2015

Agreeing with others regarding not mentioning neuropathy to doctors again. Though I will readily admit I said the exact same thing to my husband about not mentioning it again when the dr mentioned potentially cutting back. 

Have you tried accupunuture?  I get both accupunuture and massage through interventional care at my cancer treatment center once a week.  It really seems to be helping with both neuropathy and nauseau/gastro issues.  Both my fingers and feet get pretty bad during week 2 of the cycle but are pretty good (except the very tip of my thumb at the end of cycle 2) by the time the next cycle rolls around.  Might be worth trying it if you have the option to do so.

 

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