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A Little Concerned

tommyodavey's picture
tommyodavey
Posts: 596
Joined: Nov 2011

Hi All,

 

It's been awhile since I've posted anything related to my cancer.  But today after doing some yardwork it felt like I had some food stuck on the top of my mouth.  I figured that's what it is was because I had just finished lunch before working.  When I looked in the mirror I saw a high raised white bump on the middle top of my tongue.  First I tried a tongue scraper and it didnt' budge.  So now I have this weird bump on my tongue with no clue on what it is.  And yes of course I Googled it and found that it's most likely something benign and not out of the ordinary.  But you all know what goes through our minds when we see a bump on the tongue.  Or should I say those of us who had tongue cancer.  My original tumor was on the base of my tongue and came out with clear margins.  The recurrance rate of Mucoepidermoid Carcinoma, low grade, is between 3 and 0%.  So I haven't been too worried about a relapse.....until now.

 

I don't see my cancer doc for several more months but I will see my GP the first week of January so maybe he can decipher what it is.  My guess is it'll just go away by itself.  Probably a result of constant dry mouth during the night.

 

My question is.  Do I even tell me wife?  Why worry her if it's really nothing?

 

Thanks for letting me vent.

 

Merry Merry, and Happy Happy,

 

Tom

wolfen's picture
wolfen
Posts: 1313
Joined: Apr 2009

Just my opinion...............As wives, we love you very much and are(or were, in my case) "joined at the hip".

Your wife may sense that something is on your mind anyway, so do not keep the secret. It is better for her to be prepared for the possibility than to be "blindsided". With that being said, remember as our friends here say "it ain't cancer until they say it's cancer".

My best to you.

Luv,

Wolfen

 

Noellesmom
Posts: 1853
Joined: Aug 2010

I agree she will know something's up.

Personally, I hate surprises. 

CivilMatt's picture
CivilMatt
Posts: 4400
Joined: May 2012

Tom,

For all our collective peace of mind, call your ENT and have it looked at.  Nothing short of that will satisfy you.

Matt

MrsBD's picture
MrsBD
Posts: 607
Joined: Nov 2014

Could be from dry mouth. Could be you burned it on hot pizza. Could be it will disappear before you get to see the ENT! (But tell your wife.)

tommyodavey's picture
tommyodavey
Posts: 596
Joined: Nov 2011

I can't keep anything from my wife so I did tell her.  For now, it is a wait and see approach.  If it grows larger or looks suspicious in any way I'll make an appt. with my ENT.  If not, I'll just wait for the 4th of next month and see what my regular doctor says.  He knows my history so I do have a little faith.

 

Thanks Everyone!

 

Tom

Barbaraek's picture
Barbaraek
Posts: 613
Joined: Aug 2015

You are partners in all - so no holding back. Hopefully it will be something innocuous. Til then remember that "worry is interest pain on a problem you don't own yet." Enjoy your holidays!

 

Barbara

GavinP's picture
GavinP
Posts: 114
Joined: Feb 2013

Could you not get an appointment with your dentist before Christmas? In my experiance dentists tend to be more "clued up" about these pesky white "spots" than GP's anyway?

jcortney's picture
jcortney
Posts: 503
Joined: Sep 2012

Dude, the wife is/was a no brainer, but so is getting your but to your ent. Why would you even hesitate an instant. As a "survivor" you need to be right on top of these kinds of issues. Your gp, no matter how talented is just not trained to give you an informed opinion. 

GO TO YOUR ENT. 

Joe

wmc's picture
wmc
Posts: 1798
Joined: Jan 2014

You would expect her to tell you. So you tell her. Also it doesn't care which H&N C you had, when you see a bump, lump, or anything, it will be about the first thing you think of. It is most likely nothing. I had a few small white spots show up on the back part of my tounge and they were nothing they were even concerned with. To them it was just like havinf something stuck between your teeth. HOWEVER, always get it looked at, just so you know it is nothing.

Bill

donfoo's picture
donfoo
Posts: 1649
Joined: Dec 2012

Unless you have to get a referral from your primary, get into the ENT pronto if it does not disappear in the next week or two. No need to voluntarily wait. Likely nothing but no harm in having it checked out.

tommyodavey's picture
tommyodavey
Posts: 596
Joined: Nov 2011

What I ended up doing was not calling for an appointment.  Reason being, from what I read on WebMD and a few other medical websites what I have is not uncommon to the tongue.  I had to look at the big picture and know that a reoccurance right on top was extremely minimul.  The article I read said that it will probably go down by itself (and it did) and my regular GP will see it next week for confirmation.  If he is suspicious at all then off to the ENT I go.  The C I had to begin with was a very slow growing type so I didn't want to go into panic mode.  My wife agreed.

 

Thanks Again Everyone!

 

Tom E.

Barbaraek's picture
Barbaraek
Posts: 613
Joined: Aug 2015

We are all like family here, so when one is worried...we all worry to some extent. Glad to know that you are more at ease and will have it checked out in the not too distant future.

Barbara

donfoo's picture
donfoo
Posts: 1649
Joined: Dec 2012

As it was reducing in size, all is good. Glad to hear and sure, no need to panic. But it's better to always look for things and keep an eye on them. As you say, they almost always resolve themselves but always good to be vigilant without freaking out. Merry Christmas!

jtl's picture
jtl
Posts: 456
Joined: Sep 2011

It popped and went away.

 

tommyodavey's picture
tommyodavey
Posts: 596
Joined: Nov 2011

Maybe funny, maybe not.  It's back again but not as large.  My doctor will the telltale signs of what it is and should know what course of treatment (if any) I should take.  It may be as simple as a food alergy but I can't figure out which one.

 

Thanks for all your concerns everyone!

 

Tom

Edit: My cancer team Oral Surgeon removed most of it for a biopsy.  3 stitches later and the result was benign.  But with my history he couldn't take a chance.  Understandable.

joannaw81
Posts: 167
Joined: Sep 2011

I'm glad it was nothig!!!Laughing

armana's picture
armana
Posts: 64
Joined: Aug 2014

Tom,

I am so happy for you. I bet it was a scary experience.

 

IAmStrong's picture
IAmStrong
Posts: 58
Joined: Feb 2012

I had moved from hospital to dr's office and worked for a very experienced and seasoned derm.  I had a white plaque on the side of my tongue, realized it didn't seem to be healing and asked him about it.  His record for looking and dx from looks was impressive, before lab results.  He said it looked benign.  My dentist at my checkup missed it..I was getting ready to leave and remembered.  Oh wait!  Will you look...did a bx and the rest is hx.  I agree with dentists followed by ENT.  Glad you confirmed your wondering suspicions without question.  Great news!

 

IAmStrong's picture
IAmStrong
Posts: 58
Joined: Feb 2012

Cool  oops!  Went twice!

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