CSN Login
Members Online: 4

You are here

janderson scan results

janderson1964
Posts: 2215
Joined: Oct 2011

Well today was the day that I feared for a long, long time. I saw my onc. The scan was not good to say the least. I have 12 new nodules in my lungs. a spot on my spleen. A spot on my abdominal wall. it appears that there might be more tumor hidden behind what they took out of my chest wall back in September. The spot on my liver that I did SIRT followed by ablation appears to have grown. Although I am getting a second opinion on that from my IR to see if it is just more scar tissue building up there from the ablation.

So the plan is get a port in ASAP and start FOLFIRI plus Cryamza (New monoclonal antibody drug).

I don't know if anyone has ever said to any of you that they could be hit by a bus. I heard it recently. There is also the cancer patients response. "A healthy person could get hit by a bus but a cancer patient sees it coming". Well if that is the case the bus is in my face with the high beams on and I don't have many places to run and hide.

Trubrit's picture
Trubrit
Posts: 5489
Joined: Jan 2013

Jeff, d***! I am so sorry. Words are just plain usless right now, there is no way on earth I can communicate my feelings. 

What a dance this is turning out to be. A never ending merry-go-around. 

You know you will have all of my most sincere thoughts and prayers and good vibes (I'm all about those good vibes) as you go forward. 

Cyber hugs, mate 

Sue - Trubrit

lizard44's picture
lizard44
Posts: 409
Joined: Apr 2015

I'm so sorry to  read this.  I wish we could all  join together to hold that  bus back and dim its lights.  Sending positive vibes and hope that the  new  treatment regimen will have a positive effect so you can keep on fighting.

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

because really there no words adequate to express myself here.  You've been so strong, Jeff, and fought this crap for so long.  My hopes for you are that you continue to find the strength to keep up the battle, and that the chemo plan will do its job and knock the new stuff back down.  And that you will get lots more time to ride that bike and continue to be the bad a s s that you are!

<3 from me 

Lovekitties's picture
Lovekitties
Posts: 3372
Joined: Jan 2010

Prayers for the new treatment plan to work its magic and shoot out the tires and lights on that bus.

Hugs,

Marie who loves kitties

 

Ruthmomto4's picture
Ruthmomto4
Posts: 706
Joined: May 2013

I am sorry, I hope the new treatments work  and that bus  breaks down never to run again.

vtspa6
Posts: 172
Joined: Aug 2015

I am so sorry to hear this.  You fight so hard against this terrible, awful thing called cancer. 

sflgirl
Posts: 220
Joined: Jan 2015

Wishing you the best in getting that port in fast and getting started on Folfiri.  We all know how discouraging this is, but the fight is on again.  You are an inspiration to so many of us, hope you can sense the good wishes and prayers coming in your direction.

 

lilpep1972's picture
lilpep1972
Posts: 80
Joined: Dec 2014

My prayers are with you and your family.. Stay strong and Positive.. Make that bus hit what we call up here in the north east a jug handle... And turn that F#%*ker around.. :) 

lp1964's picture
lp1964
Posts: 1240
Joined: Jun 2013

I just wanted to express my support to you and wish you a successful treatment. I will be thinking of you every day until you have some better news for us. 

Laz

Cathleen Mary
Posts: 827
Joined: May 2011

Dear Jeff,

My heart hurts. Prayers, thoughts, rage....they are all spoken for you.

Hugs, 

CM

jen2012
Posts: 1607
Joined: Aug 2012

Yes, what CM said.   I read this yesterday and have not known what to say.  I'm sick about your news, but know you will keep on doing what you do to fight and advocate for yourself.   

janderson1964
Posts: 2215
Joined: Oct 2011

Thank you all for your support. The funny thing is the night before I got the news i was listening to some music in my car and it really moved me. I cried like a baby. I mean I really let it out. When I went for the results I was remarably calm. Even my blood pressure was good which is usually high when I am waiting for scan results. I stayed very calm when my onc went over the scan report with me and agreed to chemo without any hesitation. I think it was because I got it all out of my system the night before.

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Hey Jeff,

I'm really so very sorry that you're back in the fight once again.  You've been through so many ups and downs over the years, but I know that you'll continue the good fight.  Like Craig would say, "time to roar!".

All my best, take care,

Cynthia

janderson1964
Posts: 2215
Joined: Oct 2011

I am roaring. This one is for you Craig.

Easyflip's picture
Easyflip
Posts: 588
Joined: May 2013

there man. You've faced this down before you can do it again. Stay strong, the fact you took the news so calmly shows your inner strength. I'll be thinking about you, keep us posted.

Easyflip/Richard

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

I thought of Craig right away.  He would have had something to say for sure.

geotina's picture
geotina
Posts: 2123
Joined: Oct 2009

 I am so sorry for the news you received. 

Hugs - Tina

NewHere's picture
NewHere
Posts: 1340
Joined: Feb 2015

So sorry to hear this man.  Thoughts are with you.  

NEDbound
Posts: 54
Joined: Sep 2015

Your persistance and attitude have been a guiding light for me.  So sorry to hear that you have to restart chemo.  Prayers for low side effects and amazing results.

Sincerely,

Summer

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

Jeff - That's awful.  I so feel for you.  Ihope that the FOLFIRI and Cryamza knock things out in short order.  Maybe put a little in the gas tank of that bus and knock it out of commission.  Prayres and healing thoughts going your way.  Traci

beaumontdave's picture
beaumontdave
Posts: 1166
Joined: Aug 2013

I don'y know what to say on a bad report, I wish it weren't so, but it is what it is. Knuckle down and deal with it, do whatever they say is the best course of treatment. Hang tough, don't let the negative bull s**t cloud your mind. You can deal with this, others have, new stuff is coming down every week, you just have to hang on untill the proper treatment comes down. Hope is what we all live on, hold on to it.........Dave  ps: sorry if it sounds too rahrah, but thats what I tell myself on every reoccurance.

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 508
Joined: May 2012

So sorry to read this, it seems just when you think you are good a brick falls on your head.  I hope Folfuri can knock this down, there is always hope and that's what we need to hold on to.

Brenda Bricco
Posts: 579
Joined: Aug 2011

Jeff,

It breaks my heart to hear this... you are and always will be an inspiration to me. I have no words except that the bus you speak of is coming for us too, I hate this for you, I hate this my Husband and I hate it for everyone.

God's blessings

Brenda

tanstaafl's picture
tanstaafl
Posts: 1302
Joined: Oct 2010

You know Jeff, I'm a big believer in tweaking off label chemistry and getting better blood chemistry.  My version of carrying a pocketful of tire tacks for aggressive bus drivers with a bad attitude.

If I were in your situation, I'd talk to this Belanger guy to see if he has any clear suggestions.  In the US, you have more advanced blood labs available.  I'd definitely use them. For us now, it is always that last molecule or two that does the trick.

Anonymous user (not verified)

Sending good thoughts and prayers to you. 

P.S. I now have a witty retort about the "anyone could get hit by a bus."  so thanks for that.

Sue

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

   I am sorry to be late to respond I got side tracked as most of us appear to. Into the second month of a 32 week withdrawel from oxycodone. Sometimes I wish they did a bit more profiling before the suggest meds for us. I don't know if the current treament they are suggesting is to take out the cancer or a containment protocol to let them think up a new regime. I know you will be doing the research long before they think of it and perhaps making a few suggestions of your own.  As always mate I can only wish you well and hope that there is something really special in the way of treatment just around the corner. That was always my hope for Craig and that it would turn up sooner than later.I have everything crossed for you and I don't think run and hide is in your character. Hugs ron.

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

Jeff, that truly sucks. Miracles can happen. Hopefully one will happen to you.
-p

UncleBuddy
Posts: 1019
Joined: Aug 2013

I'm sorry to hear this. i thought you would really kick cancer's butt. This disease sucks!!!

I hope things get better for you. Thinking of you!

Lin

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

oh Jeff......I am so so sorry....what an enormous staggering blow that must have been......must be.........   love your bus analogy....so that's what you have to do dear friend.  Look at at that damned bus and start out again.....

Jeff I am facing a breast involment this week and it has me totally freaked.....I wonder how to contain my fears.....and so I think of you and all you are facing.....hard hard hard.....

sending all the warmest hugs......mags

marbleotis's picture
marbleotis
Posts: 715
Joined: Mar 2012

Sorry to read this.  I am sending all good thoughts to you that you will knock down cancer again!

Phil64's picture
Phil64
Posts: 838
Joined: Apr 2012

Jeff,

I'm so sorry to hear this news. You are in my prayers.

If/when I see the high beams heading my way I hope I can turn my back to them. And focus on living, loving, family, friends.

Love and Light to you today.

Philip

Subscribe to Comments for "janderson scan results"