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I officially joined the club today

medic1971's picture
medic1971
Posts: 189
Joined: Sep 2015

Today I officially joined a club that I never wanted a membership to... My doctor, from MD Anderson, called this evening with the pathology results, and I did have cancer. I actually had two masses on my right kidney. The first was 2.2cm and the second one was 8mm both were malignant, but both are now gone and I got to keep 95% of my right kidney.

I have a stage I renal cell carcinoma subtype:chromophobe. The margins were clear.  The surgery was done robotically at MD Anderson on Oct 23rd 2015.  

I want to thank everyone on this board for sharing their stories, fears, and wisdom.  It has helped me more than you will ever know.   

icemantoo's picture
icemantoo
Posts: 3208
Joined: Jan 2010

Medic.

 

That was one hell of an initiation, wasn't it?

 

Icemantoo

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Yes it was one heck of an initiation. Glad the surgery was a success and now behind you! Now you can relax and move forward with your life. Just keep up with your scans and you should be just fine.

Hugs

Jojo

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

I'm very sorry you had to join, but it's good news to know the surgery was a success. Stage 1 is the best pathology report someone can have, as far as I know, the recurrence rate for chromophobe is low, so wish you a long healthy life Forough

 

 

 

 

Nana4life's picture
Nana4life
Posts: 78
Joined: May 2015

Sorry  to hear the C word but glad they got it out. I too am a chromy. (diagonosed in May 2015) Weird thing is my son who lives in Houston area is going in for a  radical nephrectomy next week he is 36 and a father of two boys. We are very concerned.  I have been told that chromies are rarely hereitary. So who knows? May I ask who your doctor is at MD?  My son is going to Houston Methodist.

How soon did you get your pathology report? We are very anxious to get it because I have other children and grandchildren that will need to be checked.

Thanks

nana4life

 

 

medic1971's picture
medic1971
Posts: 189
Joined: Sep 2015

Hello Nana,

I saw Dr. Jose Karam at MD Anderson and I was so very happy he is my doctor.  I live in OKC and traveled to Huston for treatment.  Has your son considered MD Anderon for a second opinion?  Those two hospitals are less than a 1/4 mile, if that, from each other.  I stayed at the Marriott hotel that is connected to Houston Methodist.  Looks a very nice place. 

http://faculty.mdanderson.org/jose_karam/

It took 11 days total to get my path report back.  I was warned that the path report could take a couple of weeks to hear something back.  Dr. Karam actually called me himself with the path report last night at around 7pm.  

Has anyone mentioned Birt–Hogg–Dubé syndrome to you?  No one has said anything to me yet, but I am going to bring it up and see if I need to get tested.  I have a 6 year old daughter and I wonder about her.  I have no family history of kidney cancer with the exception of my great, great grandmother who died of kidney cancer at the age of 87 in 1948 so who knows...

 

 

I'm wishing you and your son the best of luck! 

Nana4life's picture
Nana4life
Posts: 78
Joined: May 2015

Thank you. Yes I have heard of Birt-hogg-dune. As far as we know no one in my family has had kidney cancer. But you never know. We are going to do some genetic testing as soon as we get the pathology report. I have already begun to getting some genetic work done. my sons Dr is Brian Miles. They are going in thinking full neph but if they can they will do partial. Take care and ILLC keep you in the loop. Us chromies are a bit different. Take Care

 

Nothingtolose's picture
Nothingtolose
Posts: 2
Joined: Nov 2015

Good day to everybody,

i joined here in this site because ia am also a nephrectomy patient i was undergo operation last May 10,2015 and truly its hard to cope with this especially you knew that you have a cancer eventhough you know that the operation was a succesfully removed the cancer,now everytime i felt pain in any part of my body i was thinking it is maybe a cancer,but now when i was joined here and i read the comment maybe little by little i can cooe with in for knowing that im not alone.Thanks to all wonderful and supportive comment ive read.

 

God  bless us all

 

Pearly

 

icemantoo's picture
icemantoo
Posts: 3208
Joined: Jan 2010

Pearly,

 

Welcomr to the club nobody wants to join. Congrats on your first 6 months and may your now cancer free live continue forever.

 

Icemantoo

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Welcome Pearly!

I am happy you found us! I cannot imagine going through all of this without this wonderful and supportive group!

Hugs

Jojo

Ree_Maryland's picture
Ree_Maryland
Posts: 157
Joined: May 2014

I had my right kidney removed ,April 2014 , now and again I get anixous when I have pain,but reading comments on here has helped me not to panic ,so i know the feeling ,but im getting better . 

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Pearly,

I'm so sorry you had to join, who wants to? It's normal to have fear and anxiety after cancer diagnosis, it took me almost 9 months to pass it and step by step come back to the real me. If you think you need someone to listen to you , we are all here, we 've been there and truly know how it feels so please don't hesitate. A therapist,csn members,my best friend and  last but not least my willing to live every minute of my remained time helped me a lot. Hope you can find yours soon.

Forough

 

Ree_Maryland's picture
Ree_Maryland
Posts: 157
Joined: May 2014

So happy for you and your family,now you can calm done and enjoy your life and family. 

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Stage I is the best outcome we hope for,and you have it. It's good,isn't it?

I'm happy that the surgery is done successfully.

Wishing you health and happiness

 

adman's picture
adman
Posts: 338
Joined: Jul 2012

 

Continued love, healing, health & happiness as we all celebrate all that we have to be thankful for.

I'm really trying to learn the lessons the good Lord is trying to teach me. Gratitude is at the top of the list.

God Bless us all!

 

 

 

mrou50
Posts: 389
Joined: Mar 2013

I am sorry you had to join this club, there are much better clubs to be part of, but no finer people to be in club with.  The support gained from this site and the wonderful people that are here make the horrible disease a little bit more bearable.

 

Mark

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