Anal Cancer Pain

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Cornfused
Cornfused Member Posts: 10

my pain is so bad. The pain drove me to get diagnosed and is getting worse. I am getting treatment at a wonderful place - The Cancer Treatment Center of America. Just 10 days in. 

I had some pain pain relief for a couole of days, but appears to be back big time today. So scary. None of the usual work - believe it or not Tykle il has done more than anything. Medical Marijuana pills help me sleep. 

I even tried interventional radiology but it didn't work 

all the opiates are constipation which makes the pain work. 

Would love to hear your ideas. Cheers. 

Sorry any typos. 

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  • Cornfused
    Cornfused Member Posts: 10
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    Tylenol

    Tylenol

  • jcruz
    jcruz Member Posts: 379 Member
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    pain

    I took oxycontin and miralax to combat the constipation it would cause.  That worked for me.  I can't imagine having gone through that without the oxy

  • eihtak
    eihtak Member Posts: 1,473 Member
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    Cornfused....

    Hi, I am so sorry for the situation you have found yourself in and will pray you get the relief you need.  Like others, I too took oxycontin on a regular schedule of every 12 hours and oxycodone in between for break-through pain. As long as I took a regular stool softner everyday, constipation was not a problem. That being said, there are others who made it through without.

    I will keep you in my thoughts as you move forward, and please stay in touch as things progress, as no matter where or how our treatment plans differ, it is most helpful to connect with others who have been in your shoes.

    katheryn

  • nicotianna
    nicotianna Member Posts: 209
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    pain management

    Hi - Is the Pain Management team at CTCA aware of your pain?  They should be able to manage it.  If not, then go elsewhere!

    Nic

  • lp1964
    lp1964 Member Posts: 1,239 Member
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    Dear Friend,

    2.5 years ago I suffered severe pain with rectal cancer. 600-800mg ibuprofen(Advil, Motrin) 3-4 times a day took care of it. But you have to stay ahead of the pain because it takes a while for the medication to kick in. 

    The radiation treatment eliminated the pain for me after 2-3 weeks as I remember. 

    Keep us posted about your treatment because there are a lot of misconceptions out there. 

    Mall the best, 

    Laz

  • Cornfused
    Cornfused Member Posts: 10
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    eihtak said:

    Cornfused....

    Hi, I am so sorry for the situation you have found yourself in and will pray you get the relief you need.  Like others, I too took oxycontin on a regular schedule of every 12 hours and oxycodone in between for break-through pain. As long as I took a regular stool softner everyday, constipation was not a problem. That being said, there are others who made it through without.

    I will keep you in my thoughts as you move forward, and please stay in touch as things progress, as no matter where or how our treatment plans differ, it is most helpful to connect with others who have been in your shoes.

    katheryn

    Thank you

    i have just finished 30 days of radiation, the last were a "boost". That boost created some bad external second degree burns, darkened my whole buttock area, and my anus is in more than ever. 

    I thought I would start to get better but every time I have a bowel mo cement, still all watery, I scream in pain. 

     

    Thank you you all for writing and praying. Might try the oxytocin again, using noting now. Or ibuprofen. 

  • judyv3
    judyv3 Member Posts: 143 Member
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    Cornfused said:

    Thank you

    i have just finished 30 days of radiation, the last were a "boost". That boost created some bad external second degree burns, darkened my whole buttock area, and my anus is in more than ever. 

    I thought I would start to get better but every time I have a bowel mo cement, still all watery, I scream in pain. 

     

    Thank you you all for writing and praying. Might try the oxytocin again, using noting now. Or ibuprofen. 

    Pain

    I remember quite clearly the day I caught sight of my black butt in the mirror.  I was devastated.  You WILL start to get better.  I can only tell you what worked for me - as I am typically constipated I did not want to take the pain meds for fear of making that worse.  I took 4-6 stool softeners a day and Miralax twice a day, just to keep going.  And yes, going was painful.  I would coat the area with Aquaphor and Aquaphor with lidocaine (prescription) before going and then just step in the shower and use the sprayer to clean up very carefully.  The worst time for me was two weeks after treatment ended and then slowly but surely, I came back to "normal".  

    I am sending you positive thoughts for improvement soon.

    Judy

  • Lawchick618
    Lawchick618 Member Posts: 20
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    pain

    I am 2 years out from diagnosis and still live with anal pain with BM's.  The key is keeping the stool soft.  This is a hellish nightmare cancer so take any pain pills the doctors will prescribe.  Hugs

  • 2tuff4you
    2tuff4you Member Posts: 7
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    Anal Pain

    I had the same problem and they gave me two weeks off radiation and then I finished the last week. It still was extremely painful to go to the bathroom for about a month after. I applied Aquaphor after every bowel movement. Do not get constipated. I had to take stool softeners. You are burnt on the inside as well as the outside. It will get better but until then you will be in pain. I would get in the shower immediately to clean off instead of wiping. Stay on pain pills. Prayers for you because I know how painful it is.

  • KC49
    KC49 Member Posts: 6
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    2tuff4you said:

    Anal Pain

    I had the same problem and they gave me two weeks off radiation and then I finished the last week. It still was extremely painful to go to the bathroom for about a month after. I applied Aquaphor after every bowel movement. Do not get constipated. I had to take stool softeners. You are burnt on the inside as well as the outside. It will get better but until then you will be in pain. I would get in the shower immediately to clean off instead of wiping. Stay on pain pills. Prayers for you because I know how painful it is.

    Anal pain

    I can empathize.  The pain is brutal and mind consuming.  Thge worst part is people denying your pain.  Just throws salt on the wound.  I was told by my pharnacist that even "really

     

    sick"people " are harassed at pharmacy.  I am stage iv cancer  Is that considered really sick? guess not I can wait