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Small neoplasm found

Loftydweller's picture
Loftydweller
Posts: 10
Joined: Oct 2015

i am a newbie.  Two years ago a small 1.3 cm spot was found on my right kidney.  I consulted with two urologists  who recommended active surveillance.  I have been having CT scans with and without contrast every 6 months and there has been no growth of the neoplasm.  My Dr. says I have about an 80% that it is cancer.  Well...my most recent scan showed it has grown 2 mm (which is not that much) and still my Dr. said he is good with continuing to monitor or I can have it cut out.  I have been fine until I heard it is starting to grow.  I am kind of freaked and find myself wanting it out.  I am open to advice, thoughts, suggestions...etc.  

icemantoo's picture
icemantoo
Posts: 3272
Joined: Jan 2010

Lofty.

 

Its like choosing between 2 ugly sisters (or brothers). Either way it is going to have to come out sooner or later. It gets harder as you get older. If I had the choice I would get it out sooner than later.

 

 

Icemantoo

ponzlaw's picture
ponzlaw
Posts: 14
Joined: Oct 2015

unless there is some reason you cannot have surgery, i would get a 2nd opinion on that option. good luck

Loftydweller's picture
Loftydweller
Posts: 10
Joined: Oct 2015

I am 55 and pretty healthy and active.  It seems active surveillance is the popular protocol for small cancers.  My GP, on the other hand said he would want it out.  i think with it starting to grow I should go ahead and do it. Scared. 

icemantoo's picture
icemantoo
Posts: 3272
Joined: Jan 2010

Lofty,

 

We all were scared when we were told we had Cancer and whoever heard of kidney Cancer. And this bit about surgery right out of the gate. Crazy. Mine was a lucky 13 years ago. The scaryness will pass.

 

 

Icemantoo

Loftydweller's picture
Loftydweller
Posts: 10
Joined: Oct 2015

Iceman...are you saying it is crazy to consider surgery right out of the gate?  Just want to make sure I understand. 

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Get it out!

icemantoo's picture
icemantoo
Posts: 3272
Joined: Jan 2010

Get it out. What is crazy is that the usual protocal for RCC is surgery first thing (usually meaning all of us).

 

 

Icemantoo

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Deal with it now and its all over

Leave it until its too late and then you may have a problem.

Dont worry. You dont have a problem right now, but deal with it.

Loftydweller's picture
Loftydweller
Posts: 10
Joined: Oct 2015

Thank you

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

Get it out! Mine is small and I am having cryosurgery on Monday. I just want this cancer out of my body NOW!  Best of luck to you and all of our friends on this blog. each of you are in my prayers nightly.

 

DYAN172
Posts: 20
Joined: Sep 2015

I just had a partial neph 10/8. I had almost talked myself out of surgery until I found this board. I was so afraid. The turning point was when my urologist rolled his stool over towards me and said I am going to tell you what I'd tell my wife or mother get it out. I got my path back stage 1 lowest grade RCC. No treatment other than close follow up. It's been six days since surgery and it gets better each day.

 

Praye

Loftydweller's picture
Loftydweller
Posts: 10
Joined: Oct 2015

Thank you for your replies.  I think I am going to go forward with the surgery.  I worry about telling my freinds, family and co-workers (espeiciallly) as I don't want people to look at me differently or treat me differently.  I know when people hear the word cancer they fear the worst.  I especially worry about telling my boss.  I know they will be supportive but don't want them to worry.

 

 

APny's picture
APny
Posts: 1984
Joined: Mar 2014

I'm in total agreement with everyone. Get it out, and as soon as possible. While it's typically the case, it's still not a given that only large tumors metastasize so why sit around and wait for that scary possiblility? With a small growth like that you'll have a partial neph and preserve most of your kidney and its function. I for sure would want it out and the sooner the better. I told my boss and everyone in my department and amazingly enough they all dealt with it just fine and were incredibly accommodating and supportive.

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

First of all, Loftydweller, I am sorry you even have to go through all this in your life!

But glad you found this site. We'll be here to support and inform you, if you want us to!

Here you went through all this radiation from CTs just to see this neoplasm grow.

Hopefully your surgeon will do Laproscopic incisions via robatic surgery technique.

It is much easier to recovery as it is less invasive. Most likely you'll have a "partial"

surgery, instead if a Radical, where you take out the kidney.

Since cancer is often treatable, but sneaky, and sometimes unpredictable. I would want it out now!

Keep in touch as we'll be here for you~

Sending you hope and encouragement!

Hugs, Jan

Shecka1121
Posts: 114
Joined: Apr 2015

My mass was 1.2 and my oncologist at UCSF wanted it out sooner than later.  I am 45 so not too far behind you.  Dr rationale was if it is small in the 1 cm range the chances of metastizing is so rare that long term survival is more that 98%  the chances of becoming ill from kidney cancer are far less than leaving it in. 

 

I recommend getting a second opinion from a urlogist/oncologist who has experience with partial nephrectomys.  Depending on where you live, there are doctors that we all can recomend.

 

 

Loftydweller's picture
Loftydweller
Posts: 10
Joined: Oct 2015

Birmingham AL

Denisedh's picture
Denisedh
Posts: 28
Joined: Aug 2015

I agree with the advice to get it out.  Even if it's benign, if it gets bigger it can interfere with your kidney functioning.  Getting it out while it's small has many advantages--you can do a partial nephrectomy with a laparoscopic procedure, relatively easy recovery. 

 

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

I am in agreement with everyone here - get it out. It sounds scary, but it isn't so bad. The procedures they use now are really slick.

Keep us posted!

Hugs

Jojo

 

mrou50
Posts: 389
Joined: Mar 2013

I would get a second opinion. Doctors kept putting me off and then I went from one small tumor to tumors.  My left kidney was removed, one and half years later they found a spot on my lungs.  My ONC said it was to small and to soon to tell what it was, three months later I had six tumors on my lungs two of which were pretty large. Don't wait tell your doctor that you want a second opinion this is your life if they catch it early they can do a partial nephrectomy and save much of your kidney before it grows and spreads.  That is one man's opinion anyway.

 

 

Mark

Loftydweller's picture
Loftydweller
Posts: 10
Joined: Oct 2015

Thank you all for your thoughts.  I am going to go ahead and schedule the surgery.  i also have started running a low grade temp which is very unusual and have pain in my groin area.  Maybe I have just been in denial.  Question...when you have a partial...does the rest of the kidney just resume normal function but just can't filter as much?  Does that dump more toxins into you because the whole kidney isn't there?  I know these are questions for my doctor and I will ask him when I go in next.  Just so many questions popping in my head now that it has gotten "real".  Prayers for all of you who are struggling with much more complicated issues.

icemantoo's picture
icemantoo
Posts: 3272
Joined: Jan 2010

Lofty,

 

Many of your technical questions are above my paygrade. They were not doing partials when I was initiated 13 years ago. May your journey be uneventful. I would say painfree as well, but I would be laughed off this board.

 

 

Icemantoo

APny's picture
APny
Posts: 1984
Joined: Mar 2014

I had a partial and my kindey function is as good as before. Truly no difference and that's with about 20 - 25 percent of my left kidney missing. The other simply took over it. So while the previous function was about 55 left and 45 right, it simply flip-flopped and now the right is at 55 and the left at 45. As for BUN, creatinine, and its ratio, that fluctuates a little but then it did prior to surgery as well and is always within normal range. Of coruse we're all different and it depends on where it is and how much kidney you lose but I wouldn't worry. The other kidney will simpy amp up its performance to compensate.

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

May your treatment be as boring as possible

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