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My mother's Hysterectomy

MrsBee
Posts: 43
Joined: Aug 2015

My mother just got back from a 4 day hospital stay following a hysterectomy. They removed her Uterus, ovaries and lymphnodes. 

Her bladder Dr.(not sure what they call that) was also present during the operation and said it looked good (she had bladder cancer several years ago and recovered from that).

My mother also had lung noduals show up on her Pet scan-too small to biopsy).

I spoke with the gynocological oncologist who preformed the operation after it was over and he said there was a mass on the uterus, but thathesawnothing else. When I asked about the lung noduals he said if the cancer had spread that far, he would have expected to have seen more than just the mass on her uterus.

Now, I know fro reading posts on this site that they can't really know what's what until after they examine the organs removed during the operation-but is it really a good sign when the surgeon doesn't see anything obvious besides what they were expecting to find beforehand-nothing extra I mean?       Thanks!

 

I should also say that it was about 4 months from the time she first noticed post-menapausal bleeding until she actually had the hysterectomy.    

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Even more special. You are a good son. She is a lucky lady. Lou Ann

AWK
Posts: 364
Joined: Mar 2013

she is lucky to have you.  sending orayers.  Anne

MrsBee
Posts: 43
Joined: Aug 2015

It's the "Mrs Bee" that's confusing.

I originally set up the acct for my mom to use

but I'm doing the posting for her, at least for the moment.

Thanks! 

MrsBee
Posts: 43
Joined: Aug 2015

My mother's first chemo treatment went pretty well.

But her heart started racing during first chemo drug, so they

had to slow everything down. They had to keep the facility open

an extra 3 hrs-the whole thing took 13 hrs.

 

She was seeing double after we got home and is shakey this morning.

Otherwise doing fine so far. Slept well. And she's taking the anti-nausea medicine

even though there's no nausea yet.

 

Because she got done so late yesterday, she can't go in for her shot (don't know what it's for)

until tomorrow. Hope she's not too sick to go then-she was supposed to go today.  

Lou Ann M's picture
Lou Ann M
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Joined: Feb 2015

Glad everythiing went pretty good.  My 1st chem also went quite long.  We got there in the dark and went home in the dark.  The next time it won' take quite as long. I am thinking that the shot is nuelasta..  It is given 24 hr.  after chemo.  It helps keep the white bood cells from dropping to low.  It sometimes makes your bones hurt, but taking Clariten the day before and for a day or so after helps a lot with that.  Hugs and prayers, Lou Ann

MrsBee
Posts: 43
Joined: Aug 2015

Thanks again very much.

I'll make sure she takes the Claratin today and for several days after the shot. 

MrsBee
Posts: 43
Joined: Aug 2015

She got her post Chemo shot this morning.

This is her second day after Chemo day.

she had some shakiness at the hospital,

Took to her bed around noon after returning.

When I ask her if there was anything that specifically

hurt, she said no. But she's clearly not feeling well.

She ate something, but not much.   

 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Help her to stay hydrated.  She needs to drink a lot  I have been told at least 64 oz.  It doesn't have to be all watet, Juices , soup amilk popcycles work too.  Cantilope and watermellon are also sourse of liquid.  If she would become dehydrated, your cancer center can give hydration through her port.  Chemo wears you out and she may not feel well for a week or so,  Hugs and prayers to both of you,  Lou Ann

MrsBee
Posts: 43
Joined: Aug 2015

She doesn't feel like eating much.

I'll try and get her to drink as much as possible.

She seems to be doing fairly well-

this afternoon when she went back to bed I thought,

OK this is the start of the bad stuff!

But she got back up again later and seemed pretty good-

I guess it can start later for some people-tomorrow's her third day

after Chemo already. She definetly has very low energy, but no real pain

of any kind. Her mood's still pretty good, too.

MrsBee
Posts: 43
Joined: Aug 2015

My Mom says she had bone pain since shortly after going to bed last night.

She describes it as not real bad pain but traveling from place to place (including her ears)

and making her uncomfortable.

I told her to take Tylenol but she's afraid it will intefere with the Chemo drugs.

She's using a heating pad and I massaged her feet both of which seemed to help.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Did she have Taxol. It causes bone pain that can be quite severe for a few days.  I have a prescription for hydrocodone that I take for it.  I have have heard of others that take Aleve. I am sure that Tylonal would be fine. It is the only over the counter pain pill that my Dr. Recomended because it is not a blood thinner.  Hugs nod prayers for both of you. Lou Ann

MrsBee
Posts: 43
Joined: Aug 2015

Yes, she had the Taxol, and something like "Carbo-"?

Thanks for the prayers.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1801
Joined: Jun 2015

MrsBee's Son - All of the above medicines should be fine for your Mom.  For me, Tylenol doesn't work.  I have the best results with Advil. But, caution.... it could make her stomach upset.

The bone pain does jump around.  And, she may get stabbing pains in the oddest places too.  Please give her doctor a call if she or you are uncomfortable adding medication to her arsenal. You will both get over that soon! It is hard in the beginning to figure out what hurts to determine what to take.

Foot massage! AWESOME!

Thanks for taking such good care of her.

Love and Hugs,

Cindi

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2911
Joined: Mar 2013

Carboplatin - it is the common, second chemo drug used.  

As already said, Tylenol is fine to take.  Like your mom, I experienced the pain and called to ask what I could take.  It won't interfere with chemo.  

Your mother is lucky to have such a good son.  

MrsBee
Posts: 43
Joined: Aug 2015

I'd like to get some rough idea about how long the bone from the post chemo shot can last.

Lou Ann M's picture
Lou Ann M
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Joined: Feb 2015

For me the bone pain usually lasts for several days,  It usually gets worse in the evenings and nights and not so bad during the day,  I first thought it came fome ther Nuelasta shot, but I have found that mine comes from the Taxol.  Lou Ann

Sandy3185's picture
Sandy3185
Posts: 228
Joined: Oct 2013

Its been 1 ½ years since I completed chemo but I do remember the deep bone aches and pain so well! I never had a Neulasta shot so I am sure the reaction was from the Taxol. The pain would begin on the third day after treatment. At first it would last about 5 days but with each treatment the pain lasted longer, almost 2 weeks. Like Lou Ann, the pain was worse at night and I often needed to take an oxycodone pill to be able to sleep. I also have restless leg syndrome which was aggravated by the chemo and made for some uncomfortable nights. The good news is that all the pain goes away once you complete chemo. Chemo was the hardest part of my treatment but it was doable and even on the worst weeks there were many good days.  Sandy

TeddyandBears_Mom's picture
TeddyandBears_Mom
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Joined: Jun 2015

The worst of my bone pain has lasted about 3 days with most of it resolving in about 6 days. It has been 9 days since my last treatment and I still have slight pain off and on.  Like the other ladies said, I believe the Taxol causes my bone pain. And, the pain starts on day 3 for me too.  However, I also believe that the Nuelasta made it worse. And, I had a lot of muscle pain with the Nuelasta.  My pain tends to be constant on the bad days. Day and Night.  For me, this is the hardest part of getting through the chemo impacts. But, we can get through it. And come out of it with a chance to live a full life! I hope your Mom feels better soon. Love and Hugs, Cindi

MrsBee
Posts: 43
Joined: Aug 2015

Thanks everyone!

My Mom's feeling, and sounding better today after a not so good yesterday with the bone pain!

She also has more of an appetite.

Her voice sounded weak yesterday but normal today so far-

she also slept well.

This is her fourth day after Chemoday. 

MrsBee
Posts: 43
Joined: Aug 2015

after her shower today my Mom could not get from her bathroom door to her bed, a distance of about four feet!

I helped her, but it kind of scared me. Very sudden, and very little energy. It took her three or four hrs to get her strength back.

MrsBee
Posts: 43
Joined: Aug 2015

On her 11 day after Chemo-

after 3 days of moderate bone pain

and 3-4 of severe fatigue-

Mom's been feeling pretty normal again.

The first difference I noticed was that

her voice sounded normal again-

it had gotten so weak and far away sounding lately.

Then she started getting out of bed more and not spending the whole day in PJ's.

The change was fast and dramatic!

Her appetite's back, too.

Editgrl's picture
Editgrl
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Joined: Jun 2015

And it's a very good sign that her appetite is back.  I've found I always feel better when I feel like eating normally.

Hugs to both of you.

Chris

NoTimeForCancer's picture
NoTimeForCancer
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That is great news!  

Lou Ann M's picture
Lou Ann M
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So glad to hear this.  Keep track of the tie fram.  It will probably be very similar the next times.

Hugs and prayers for both of you.  Lou Ann

MrsBee
Posts: 43
Joined: Aug 2015

My mom's says her feet and calves feel funny-not pain-

just funny.

making it hard for her to walk.

She's wondering if it will be a permanent thing.

MrsBee
Posts: 43
Joined: Aug 2015

For two days in a row the blood testing office in our local shopping cntr was closed!

My mom was supposed to get the test before her Monday Chemo day.

It's closed tomorrow too, and so is the Doctor's office until Monday!

She's pretty upset about it all, and wonders if she should just go to the Chemo appt, anyway!

Has anyone else been in a similar situation oe have any ideas?

Editgrl's picture
Editgrl
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Joined: Jun 2015

Is she getting her chemo at a hospital or cancer center?  I now get my blood test done early the morning of my chemo appoint at the hospital where I get my chemo.  Could your doctor put in an order for her there?  She might possibly even be able to get into a lab there over the weekend.  

Lou Ann M's picture
Lou Ann M
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Joined: Feb 2015

My blood work is always done at the cancer center on the morning of chemo.  It usually takes about 30-45 minutes for them to get the results back.  Your mom could probably get labs done at the ER too.  It seems like every time I walk in there they want my blood. I have found that our ER is not very good at using a port though.  Hugs and prayers to both of you, Lou Ann

MrsBee
Posts: 43
Joined: Aug 2015

Thank you both!

I was wondering if they couldn't do it at her hospitol.

I'm sure it's happened to others before and they must have a way of dealing with it.

We'll find out by monday at least.

NoTimeForCancer's picture
NoTimeForCancer
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Joined: Mar 2013

MrsBee (son) I don't think they would give her chemo without the test and they can do that at the hospital.  As Lou Ann said, she had always gotten hers the day of and I have showed up not knowing if it would be high enough so it was tested then.  

You are correct, she is not the first one this has happened to.  Try not to worry about it and show up tomorrow.  

Good luck

MrsBee
Posts: 43
Joined: Aug 2015

My mother went to her first pulmanologist appt today.

She's half way through her 6 chemos-getting ready to do a month of radiation before last 3 chemos.

The Pulmanologist (no idea how to spell it!) said he thought she had the uterin cancer in her lungs-

though he said her lungs sounded very clear and the nodules were too small to biopsy.

Couldn't say 100% but thought that they were cancer from looking at original petscan.

He also said that her current chemo might be keeping them tiny.

She looks really good-does not get short of breath and doesn't have any cough.

Of course I'm scarred to death to hear this sort of thing!

The dr that operated said from what he saw when operating was not in keeping with a cancer that would've spread

to the lungs-that the noduels were probably not cancer.

My mother's going back this Monday to get another Catscan to see if noduels have changed since last pictures.

If her cancer has spread to her lungs-can't she still be alright eventually? 

MrsBee
Posts: 43
Joined: Aug 2015

So Mom's almost halfway through Radiation therapy-25-28 daily treatments set between first 3 and last 3 chemo treatments.

It's been over a month and she's wondering why her hair hasn't started to grow back.

Is it that for some-hair doesn't come back after chemo-or does radiation also block hair growth.

BTW, she's weathering the radiation very well-up and doing normal househild things she wasn't doing during

chemo. I was prepared for much worse! 

Hopeful162's picture
Hopeful162
Posts: 82
Joined: Sep 2014

I believe there is some variation as to how soon hair grows back after carbo/taxol chemo treatment, but in my case it was at least three to four months, maybe a bit longer until it was really noticeable. I lost my hair within the first three weeks of starting treatment and was shiny bald, not so bad with a blond wig when I wanted to be less conspicuous. I always slept with a hat as I did feel cold at night. In short, I suspect your mom will have to wait longer for her hair to return.

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

The time for it to come back does vary greatly.  Mine began coming back noticeably (instead of just wishful thinking coming back) between 5-6 weeks post chemo, but it does take some women longer.  The radiation shouldn't affect her hair.  Glad to hear that she is weathering that well so far.

Chris

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I was on the same treatment plan as you mom, and My hair did not state to grow during the time I was on radiation.  It did start to return about 4 weeks after I finished the last 3 rounds of chemo.  Every body is a little differnent, sometimes it takes longer.  Hugs and prayers for both of you.  Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1479
Joined: Oct 2015

It's been almost eight weeks since the last chemo and my hair hasn't started to grow back yet. As a matter-of-fact, I'm still losing some of my eyebrows. Hopefully, your mom's hair will come back after her last chemo!!

Love,
Eldri

MrsBee
Posts: 43
Joined: Aug 2015

So Mom's almost halfway through Radiation therapy-25-28 daily treatments set between first 3 and last 3 chemo treatments.

It's been over a month and she's wondering why her hair hasn't started to grow back.

Is it that for some-hair doesn't come back after chemo-or does radiation also block hair growth.

BTW, she's weathering the radiation very well-up and doing normal househild things she wasn't doing during

chemo. I was prepared for much worse! 

MrsBee
Posts: 43
Joined: Aug 2015

Well my mom's hair started growing back but now she suddenly getting very bad diarrhea.

She had to miss yesterday's radiation treatment but managed to go to today's.

She's been doing so well until yesterday-only about a week and a half of radiation left and

she was so much back to her old self-cooking, sewing, eating well-even driving again!

She's eating a few Activia Yogurts a day now-and they gave her some kind of medicine for it,

but she still didn't feel that great this morning.

I'm guessing this is a common problem. 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I made Imodium my best friend and really stayed on a bland diet and I survived that.  Hugs and prayers for you and your mom.  Lou Ann

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