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Unexpected symptom -- blood in urine

JoanneNH
Posts: 115
Joined: Sep 2013

Background:  Stage II renal cell cancer diagnosis in September of 2013.  Right nephrectomy.  All scans have been NED.

I had my every-six-month CT scan just the end of August.  CT scan of the abdomen and pelvis and a chest x-ray.  Everything NED.   On Thursday morning, my morning urine looked a bit pink in the toilet.  I did a dipstick of the urine which came back positive for blood.  So I tested my second urine of the day and it also was positive.   All subsequent urines tested negative.   I called my urologic nurse and she said to come in for a urinalysis and urine culture, which I did the next morning.   They did the urine culture and it came back negative.  They neglected to do a  urinalysis even though it was ordered.

Got a message to call the nurse which I did.  She said my urologist wants to do a cytoscopy.

So after a month of celebration of being NED, now I am scared again.  Scared of the cytoscopy and of what it might show.  I am thinking it is pretty unusual to have kidney cancer and bladder cancer.  I've had no other symptoms.

Just looking for a bit of support as I am now a bit scared.

todd121's picture
todd121
Posts: 1449
Joined: Dec 2012

It could be lots of things besides those really bad things. And it might just go away!

Annoying, I know. Let them look and try and be patient and not rush to the worse possible thinking. Staying in the "who knows" place is difficult, but it's what we all have to try and get used to. In reality, we don't know until we know.

Have you seen a nephrologist? Other kidney issues can cause blood in urine. I see one regularly.

I'm sure your specialist will figure it out soon.

Hope the best for you,

Todd

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

ER or Doc for you RIGHT NOW! Every bit of paper or advice  youve been given says so. I know you want to be told its perfectly normal and that it might go away. But you know the truth seek medical attentionNOW!

jason.2835
Posts: 337
Joined: Nov 2014

JoanneNH,

There are many possible reason for blood in the urine.  Did you happen to perform any strenuous activities in the day previously?  

HOWEVER, it's still worrisome considering our history, and should be checked out as soon as possible.  I would echo Footstomper's sentiment (albeit in a more gentle way LOL) to seek medical attention in the next day or two if it persists.  It may, in fact, go away without another problem.  

- Jay

JoanneNH
Posts: 115
Joined: Sep 2013

It has not persisted.  Just that one time on Wednesday.  I talked to the urology nurse late Friday after she had the urine culture result.  There was no indication from her that it is an emergency that has to be addressed right NOW.  So I am asking for an appointment to come in and talk about the cystoscopy.  I think I will go ahead with it.  She did speak to my urologic oncologist who is the one who wants it.  

icemantoo's picture
icemantoo
Posts: 3351
Joined: Jan 2010

Joanne,

 

Hopefully nothing. If this guy can survive that procedure, you should be able to as well.

 

Icemantoo

SFBob's picture
SFBob
Posts: 33
Joined: Mar 2015

For what it's worth, I've had blood-in-urine a few times. A couple were diagnosed as "runner's hematuria", one turned out to be a kidney stone (in the same kidney that years later grew a tumor and had to be removed--probably coincidence but who knows), one turned out to be for "unknown reasons". My understanding is that there are lots of possible reasons for blood-in-urine. Some of them have to be dealt with, but worst case is usually just something that needs to be treated.

I had a friend who, after noticing blood-in-urine got diagnosed with bladder cancer at the same time my kidney cancer was found. Sounds scary, but since the cancer wasn't very advanced, it was just a minor procedure to scrape it from the bladder wall. I would have been happy to trade cancers with him. :)

Since you've been having CT Scans that would have picked up any kind of well-developed bladder cancer, my guess is that your worst-case possibility is a small bladder cancer that's very treatable. And again, that's worst case.

Re the cystoscopy, by the way--I've been through a few now. The idea of a scope going up there (especially if you're male) gives one pause if you haven't been through it before--but it turns out to really be no big deal.

Good luck!

APny's picture
APny
Posts: 1998
Joined: Mar 2014

While I'm no physician I agree that most likely your August CT scan would have picked up bladder cancer. Everyone says how sensitive these scans are so even if it was tiny I imagine it would have picked it up. Cystoscope is a good idea just to put your mind to rest. And if worse comes to worst and it's bladder cancer most likely it's in the very early stage. My girlfriend was diagnosed and they scraped it out as said above. She just goes for cystoscopes every six months now. Hopefully it's nothing.

JoanneNH
Posts: 115
Joined: Sep 2013

"runner's hematuria" is interesting.  On Monday, I had a Holter monitor put on.  That evening I did a "mini" stress test on my treadmill, where I walked and jogged.  Then Tuesday a.m., i did the same--alternating walking and jogging.  Jogging is something i don't do and I was really pounding on the treadmill.  Wednesday a.m. is when I noticed the positive blood urine dipstick.  But I am leaning towards having the cystoscopy anyway. 

 

 

SFBob's picture
SFBob
Posts: 33
Joined: Mar 2015

Mostly because there's no downside to it. It sounds like a big deal (especially when you're a man :) ), but in reality it's quick and painless (both times I've felt some mild irritation, but no pain).

nancybuck's picture
nancybuck
Posts: 117
Joined: Sep 2015

I just had an in office cystoscopy and it was not painful at all. Hoping you find that to be true for you. However, I don't think it is very pleasant for a man.

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

I dont think its as bad as it looks

mrou50
Posts: 389
Joined: Mar 2013

I am sure it will be fine hang in there and let the docs help you, stay positive and strong.

 

Mark

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Sorry for your new worries. You are doing all the right things. Hoping for the best results.

Take care and keep us posted!

Hugs

Jojo

JoanneNH
Posts: 115
Joined: Sep 2013

Update:   I had my cystoscopy this afternoon.   My bladder is fine and healthy.  The only SLIGHTLY uncomfortable part was when the nurse injected the lidocaine into my urethra, but I think it was mostly pressure and not pain.  Never really felt the insertion of the cystoscope.  I even watched the procedure on the monitor.   My doctor does think it probably was due to the strenuous exercise I was doing while on the Holter monitor.  The most uncomfortable part is now I have a bit of burning on urination (like a UTI) but that should go away within 24 hours.

 

 

foroughsh's picture
foroughsh
Posts: 779
Joined: Oct 2014

I'm happy it was easy and you're healthy and happy.

Forough

APny's picture
APny
Posts: 1998
Joined: Mar 2014

Glad to hear the cystoscope turned out to be ok.

suzymcdo
Posts: 20
Joined: Sep 2015

That is good news!

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