End of my Rope

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SpTeach
SpTeach Member Posts: 32

Hi all.  I know I may have no right to post here, I've only been a caregiver since October of 2013.  My wife had Invasive Ductal Carcinoma and underwent 16 rounds of aggressive chemo.  She opted for a bilateral mastectomy, and when final pathology report came back she was HER-2 positive.  That meant another year of treatment, 17 more rounds of infusion with herceptin.  I am only posting right now because I don't know what else to do.

My wife is an intelligent, caring and passionate person, but I see this slipping away.  Nothing I do/say/or attempt is right.  I have been told I was no help whatsoever during her treatment, I was unsupportive, I have no idea what it's like.  She went so far as to tell me that she might as well of taken the couch with her to her appointments, that about how helpful I was.  I was at every appointment, procedure, treatment and surgery.  I was there every single step.  I guess I failed at being a caregiver to her standards.  I do all the housework, I do the shopping, laundry, cleaning etc.  Only thing I don't do is cook, but if she doesn't feel up to it we go out or order in. 

I don't know where I failed.  The last time we were in the hospital, she was crying and I sat on the bed to hug her and she screamed at me "You're just trying to make yourself look good!"  It broke my heart and now my spirit is breaking.  Any advice is welcome.  I admit I don't know what it's like to have cancer, but that doesn't mean I don't care or that I don't want to try and understand.

I watched my Father die from Lung Cancer so it's been a nasty part of my life since the early 90's.  I hate it!!  Thank You for allowing me to vent.

 

Doug

 

Comments

  • mbeaulieu
    mbeaulieu Member Posts: 16
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    I am sorry you are going

    I am sorry you are going through this with your wife.  This may not help but by the sounds of it you are a loving, caring person who is trying your best to help as much as you can.  I know when I was going through it with my mom, she would say some things to my dad, brother and I that just wasnt "her".  Sometimes hurtful.  She never meant it, and I know if she wasnt on all the drugs she was on it wouldnt have came out that way.  It is so hard being on both sides, and people who dont have cancer will not understand but it goes the other way too, people who have never given care to someone with cancer also will never understand.  All you can do is keep loving her and doing as much as you can.  Hang in there...

  • SpTeach
    SpTeach Member Posts: 32
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    mbeaulieu said:

    I am sorry you are going

    I am sorry you are going through this with your wife.  This may not help but by the sounds of it you are a loving, caring person who is trying your best to help as much as you can.  I know when I was going through it with my mom, she would say some things to my dad, brother and I that just wasnt "her".  Sometimes hurtful.  She never meant it, and I know if she wasnt on all the drugs she was on it wouldnt have came out that way.  It is so hard being on both sides, and people who dont have cancer will not understand but it goes the other way too, people who have never given care to someone with cancer also will never understand.  All you can do is keep loving her and doing as much as you can.  Hang in there...

    Thank You

    Thank You for the kind words.  I appreciate it.  I will keep plugging away.  God Bless and I will keep you and your family in my prayers.

  • Terri Sue
    Terri Sue Member Posts: 22
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    SpTeach said:

    Thank You

    Thank You for the kind words.  I appreciate it.  I will keep plugging away.  God Bless and I will keep you and your family in my prayers.

    I'm so sorry!

    I know it hurts clear down to your soul when your spouse says hurtful things.  My husband too is taking chemo (for over a year now for the 2nd time) and he has told me that he was going to be selfish.  He has lived up to his words, but deep down I know he is still my best friend and has my welfare in mind.  Just try to hold on to how your wife was before chemo.  It really messes with their brains and feelings at times.  We have had to change his chemo cocktail several times and each time I meet a new version of my husband.  Perhaps her oncologist can be notified of her change and make some adjustments.  Until then, tie a knot in your rope and hold on tighter for the both of you!

  • Sigother
    Sigother Member Posts: 2
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    Tie another knot

    I'm sorry - sounds like you deserve better.  I can relate.  my significant other of 25+ years has always had a "sharp tongue" which only got worse when he didn't feel well and was frustrated, scared and unhappy with his health situation.  He is now starting second round of chemo after recurrence, and I just dread what is coming.  What really hurts is that he is SO nice to nurses, friends, etc., and reserves his anger for me - so it is NOT that the chemo affects his brain, as he controls what he says to others quite easily.  For ex., when his son comes down he resents the loss of privacy and interruption in his routine, but takes it out on me, not his son. I finally told him I'd just leave for the weekend his son was here if that was how it was going to be, and he was better for a while. I just try to go outside, run an errand, take a drive - anything to leave when he gets like that so it doesn't blow up into a huge fight. He doesn't have the strength for that and I just hate the stress and resulting resentment.  By the time I come back it's usually ok.  He does apologize sometimes, but....does nothing to stop it from happening again, even when I mention he is starting to do it again.  I did spend some time in the past year trying to learn meditation, which I hope will help me keep calmer this time around. One thing I've considered is recording what he says .....I think he might be shocked at how horrible he is during those times..... Anyway, consider your wife is understandably angry at the world in general - what she didn't do that she wishes she would have, the unfairness of the diagnosis, the indignity imposed by treatment, etc., and you are the one she feels safe to vent on.  Remind her you are doing your best.  Good luck.....hang in there.  And of course you have a "right" to post!!  Isn't that what this is for?

  • SharonH56
    SharonH56 Member Posts: 16 Member
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    So sorry you're going through

    So sorry you're going through this. So far, my husband hasn't been that way but I know that being a caregiver is a very stressful experience. I think you just need to calmly voice your concerns to your wife...or, perhaps ask her what she expects of you. If that doesn't clear the air, then just keep doing what you've been doing with the knowledge that you're giving all you possibly can. Good luck!

  • Tallulah51
    Tallulah51 Member Posts: 3
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    End of my rope

    Every relationship is different, so what I have to say might not even apply. My husband was diagnosed two years and two months ago. After the shock wore off, we both realized that I was going to be his primary caregiver with no help from anyone. Our kids are either too far away to help or they just don't want to be bothered. We've been married almost 38 years.

    I told my husband in no uncertain terms that I wasn't going to be treated like a non-entity that existed only to take care of him. I would do everything I could for him, but he had no right to treat me poorly just because he had cancer. Everything went smoothly until this past Sunday when I finally lost it after over two years of caregiving with no respite at all. I told him outright that if he insisted on acting the way he was I would put him in a nursing home. That seemed to get his attention.

    Like I said, every relationship is different, but your wife has no right to treat you like she has been. I can understand her being angry for a while, but it sounds like she is just bound and determined to take her fear, grief, anger, and whatever else she's feeling out on you and it doesn't sound like she has any intention of letting up. You might just continue on, doing everything right and being treated miserably in return, or you might try what I did. People who are sick and scared often become so focused on themselves and their disease that they don't see what all is being done for them. They resent the fact that you're not sick, too. Sometimes you have to get their attention to try to get them to realize that you're there for them when everyone else has abandoned you. Try to get her on a good day and explain how you feel. Then tell her that her mistreatment of you is going to stop.

  • Hussy
    Hussy Member Posts: 29
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    Set boundaries and enforce

    Set boundaries and enforce them.  Really.  Cancer is no excuse for mistreating someone.

  • SpTeach
    SpTeach Member Posts: 32
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    Hussy said:

    Set boundaries and enforce

    Set boundaries and enforce them.  Really.  Cancer is no excuse for mistreating someone.

    Thank You

    I appreciate the advice.  It can really be a struggle.  We've been dealing with her diagnosis since 10/13.  her Mom came out "to help" in November of 13.  She refused to cook or to drive my wife anywhere.  I had to continue working everyday so I would catch an earful when I came home.  Then my mother-in-law got sick.  Broke her foot, then had to have a carotid artery cleaned out.  So I had her Mom in one place and was running between parking lots when my wife did infusions.  Looking back I have to laugh, I don't know how I kept my sanity.  My wife God Bless her dealt with her Mom much more than i did since i got to go to work.  As her primary caregiver we had very little support.  People would ask how she was but nobody wanted to be at the hospital or bring meals or the like.  We got through the majority of it, now we are dealing with the emotional aspects.  Thank you for your advice and for listening.  I appreciate you and your time.

     

    Doug