Happy to Connect With Other Survivors

Hello all:

I'm Happy to connect with other survivors here in this group.

1987 & 1989: Hodgkin's disease; CLL: 1991-1996. Living with late-effects of (1987) radiation. Chronic fatigue most limiting

to my daily activities.

Glen

 

 

 

 

Comments

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,769 Member
    Welcome back...

    Highlander,

    I say "welcome back" because your data shows that you joined here in 2012, and were initially diagnosed in the 80s.  Let me be one of the first to say "Delighted you are here to share again."

    Like you, I have a fair number of apparantly permanent side effects: My severe neuropathy apparantly is not going away, and I too stay tired a lot.   But, I slept a lot even berfore I got sick, and need at least 10 hours a day now to function at all.  On r-abvd, I slept about 15 or more hours per day.  I marvel at folks who can get through chop or abvd and never miss a beat, and who seem to have few, or no, side-effects.  God bless them.  Since my lymphoma, I have had a Prostectomy for Stage II prostate cancer, but that bump in the road is over now as well.

    I encourage all to look at your "About Me" page on line here.  If your manuscript is related to cancer survivorship, I hope you let us know when it is published.

    I have had a motto since I began this cancer journey in 2009:  I'd rather have side-effects than have cancer. 

    In the big picture of life, how big a problem is needing a nap?   Not very.

    max

     

    .

  • Highlander56
    Highlander56 Member Posts: 16

    Welcome back...

    Highlander,

    I say "welcome back" because your data shows that you joined here in 2012, and were initially diagnosed in the 80s.  Let me be one of the first to say "Delighted you are here to share again."

    Like you, I have a fair number of apparantly permanent side effects: My severe neuropathy apparantly is not going away, and I too stay tired a lot.   But, I slept a lot even berfore I got sick, and need at least 10 hours a day now to function at all.  On r-abvd, I slept about 15 or more hours per day.  I marvel at folks who can get through chop or abvd and never miss a beat, and who seem to have few, or no, side-effects.  God bless them.  Since my lymphoma, I have had a Prostectomy for Stage II prostate cancer, but that bump in the road is over now as well.

    I encourage all to look at your "About Me" page on line here.  If your manuscript is related to cancer survivorship, I hope you let us know when it is published.

    I have had a motto since I began this cancer journey in 2009:  I'd rather have side-effects than have cancer. 

    In the big picture of life, how big a problem is needing a nap?   Not very.

    max

     

    .

    Warm Greeting

    Max:

     

    Thank you for the "welcome back"

    I recently completed the non-fiction manscript. This month I'll be sending it to the publisher. I'ts most definitely related to cancer survivorship. In fact one chapter is titled late effects, and another is titled survivorship.

    Glen

     

     

  • Highlander56
    Highlander56 Member Posts: 16

    Welcome back...

    Highlander,

    I say "welcome back" because your data shows that you joined here in 2012, and were initially diagnosed in the 80s.  Let me be one of the first to say "Delighted you are here to share again."

    Like you, I have a fair number of apparantly permanent side effects: My severe neuropathy apparantly is not going away, and I too stay tired a lot.   But, I slept a lot even berfore I got sick, and need at least 10 hours a day now to function at all.  On r-abvd, I slept about 15 or more hours per day.  I marvel at folks who can get through chop or abvd and never miss a beat, and who seem to have few, or no, side-effects.  God bless them.  Since my lymphoma, I have had a Prostectomy for Stage II prostate cancer, but that bump in the road is over now as well.

    I encourage all to look at your "About Me" page on line here.  If your manuscript is related to cancer survivorship, I hope you let us know when it is published.

    I have had a motto since I began this cancer journey in 2009:  I'd rather have side-effects than have cancer. 

    In the big picture of life, how big a problem is needing a nap?   Not very.

    max

     

    .

    Warm Greeting: Admin. please delete this duplicate message.

    Max:

     

    Thank you for the "welcome back"

    I recently completed the non-fiction manscript. This month I'll be sending it to the publisher. I'ts most definitely related to cancer survivorship. In fact one chapter is titled late effects, and another is titled survivorship.

    Glen