CSN Login
Members Online: 3

You are here

Life after cancer, the bathroom chronicles . . . .

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

I could write a book.  Let's just say, I wish I had an extra pair of pants (I wore them home the last time this happened), I'm so glad my company has a back staircase and private bathroom and thank goodness someone has a space heater (I had to wash my pants out by hand) and I have a sense of humor.  Yeahhhh cancer, yeahhhh mid 40s!  lol  Can't wait for what my 50s have to offer.

janderson1964
Posts: 2215
Joined: Oct 2011

I feel your pain. I have been fighting for nearly 10 years and I am now officially in my 50's. The bathroom issues never fully go away and strike without much warning. I was helping my wife in the garden on Easter and just barley ran up the stairs and made it to the bathroom. Good thing is that it cleanned me out so I could ride my motorcycle for a while with confidence.

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

I have an ostomy but when this happens, the bag is just useless.  That's the good side to all of this, generally 3 days before it kicks back in  to output again so I get 3 days off.  Of course I'm sitting at work with the loudest gas in history and I do believe I still slightly smell.  I can't wait to go home today.  Talk about humbling.

jen2012
Posts: 1607
Joined: Aug 2012

Sorry...not fun.  In the beginning, my husband had an issue with the bottom of the bag that seals would stick to his pants....and open.  He finally started using a binder clip to keep it sealed.  Kind of funny when we went to see the ortho onc and she said, why is there a binder clip in all of your X-rays?  

So I assume you will be putting together a new emergency kit for work.  I highly recommend a pack of baby wipes and a bottle of this:

http://www.amazon.com/Mustela-PhysiObebe-Rinse-Cleansing-Diaper/dp/B00021D1GC/ref=sr_1_4?ie=UTF8&qid=1428440645&sr=8-4&keywords=Baby+soap+mustela

has a nice soft scent and you don't have to wash it off.  Not for the stoma area,just for other areas you want to clean up.

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

Thanks yup new kits and a pair of pants and I use binder clips too!!! Lol They're so handy in an emergency. 

merrysmom's picture
merrysmom
Posts: 51
Joined: Jun 2011

I had to go to the doc today and felt pretty good and I thought well I feel so good that I think I will go to CVS and then get an ice tea for the drive home. I left the docs got in my truck and Omg . The cramps hit and there was no holding it. Needless to say I drove the 20 miles home really fast and prayed that I would not get stopped by the police. For the most part I do well and then surprise it hits. Always exciting. Hang in there. barb

Steve444
Posts: 105
Joined: Sep 2014

Doesn't it?  As soon as you're close to home the demons want to come out bad.

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

Barb and Steve, Isn't that always the way. If it wasn't so ridiculously funny, I'd cry. 

merrysmom's picture
merrysmom
Posts: 51
Joined: Jun 2011

It is so true that when you get close to home it gets REALLY bad. So many situations. I wrote a long time ago about when I was taking care of my dad and he wanted to get an icecream cone and I told him we really need to leave. He was about 85 at the time and wanted that icecream. He ignored me went into the store and got his cone. At that point I was almost crying and told him we needed to leave. Needless to say I filled my pants in the rite aid, then grabbed his icecream cone and through it away and we got in his nice van with my horrible stinky clothes and went home. He never understood why I through his cone away. He died last year and now thinking back I can find it funny. So many hard things to handle and yet I still appreciate the fact that if I had never had this disease I would have never met some of the most awesome and strong people. You all make it worth it. Helen you are so right if it wasn't so funny I would cry. I appreciate the fact that we can write this on the board and everyone understands and no one is offended. God bless you all. barb

Annabelle41415's picture
Annabelle41415
Posts: 6715
Joined: Feb 2009

Since my resection I've always had bathroom issues.  I'm never able to tell when I've got to go and sometimes I'll go while standing in the grocery store and there is nothing I'm able to do about it except just stand there until it quits coming out.  It's a very frustrating situation.  My ostomy was reversed and sometimes it can be a terrible curse.  There are days I'm going 15 times a day and leaving the house is a chance I'm not always wanting to take so therefore it keeps me inside and/or close to home.  Hoping that you do better though.  I've been where you are at as well and it's no fun either.

Kim

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

Hey Kim, Welcome back!  That's why my doctor said that he chose the permanent ostomy while I was under (he checked with my sister).  He said there would be permanent leakage if I didn't do it.  I am not sure which is worse sometimes.  

Trubrit's picture
Trubrit
Posts: 5489
Joined: Jan 2013

it still gets me now and again. 

I just got my old, one day a week job back. I told my boss that when I have to go, I have to go NOW. Literally drop everything and go, which isn't always possible when you're in the middle of a sterile procedure (I'm a podiatric medical assistant).  So far, it hasn't happened, and I hope it never will. 

About needing to go when you are close to home; you do realize that is psychological, right?  Believe it or not, you can learn to control that part.  When I was first home from radiation (which was what set me off), I had to stay close to the loo at all times.  I wanted to start on my morning walks again, but didn't dare. When I did, I Started with a block. Sure enough, as soon as I saw my house, the urge hit, and sometimes I didn't make it to the loo. I moved on to two blocks and three until I was doing my three mile walk. I learned pretty fast that my need to go when I knew I was close to home, was psychological, but I had no idea how to stop it. Mind over matter didn't work, when the matter was running down your legs. 

Ah, the good old days.

I loved my DEPENDS. My little saying was Depends are my freinds.  Luckily I don't have to wear them any more. 

Great thread. Not often do we discuss the messy side of things. 

Sue - Trubrit

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I had IBS as long as I can remember and my surgeon said it would likely get worse once I get ressected. It has been so nice to not worry about it that I don't know if I even want to. I can eat what I want, when I want. However, I have what my surgeon calls mucous that comes out rectally. Sometimes I don't have it for days and other times it's hard to stay safe from havng it mess my pants or bed. For some strange reason, even if I'm lying on my back in bed, it goes forward so it gives me UTIs. I had to listen to several lectures in the hospital about not wiping back to front with me trying to explain that I don't, that stuff just goes that way. My surgeon says it's normal but there's so much sometimes it's crazy. I suspect it's actually from one of the abcesses I had after the surgery because it has a similar smell. The abcesses are still there, I do know that.

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

My doctor told me that too.  That if he had not done the ostomy, I would have had a lot of mucous and stool leakage.

Annabelle41415's picture
Annabelle41415
Posts: 6715
Joined: Feb 2009

Having my rectum removed and redone to make a j-pouch from my large colon my stools are always loose.  You can't hold liquid in with your butt cheeks.  Don't care how hard you try - it will just pass through that opening and make a mess.  We have others on the board that has had much more success from j-pouch than me.  Diet changes never worked for me either.  But I'm not letting it get me down.  I'm glad I'm here being a part of life when I'm able and that's good enough for me Laughing

Kim

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

   Contribute to this conversation , but in the interests of being positive , I think I will just be quiet. Ron.

Steve444
Posts: 105
Joined: Sep 2014

Thanks for making me smile...

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

lol Ron.  Poop conversations, oh the joy.

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

o yes, I so acknowledge all the stories. I'm going on 4 years now Since my surgery. Going out for dinner and then a movie, makes me real nervous.

indeed when I have to go I have to go, NOW. The cramps and the growling noises sometimes are sometimes louder then the movie and I have to leave. I know where all the bathrooms are in my town. Going for a long drive to visit my son and family, means  no food  then only arrow root cookies and water. After all you never know? When and where. It makes my life really more exciting then I planned. I know I'm not the only one, but it makes for a really crappy move lol.

 

Trubrit's picture
Trubrit
Posts: 5489
Joined: Jan 2013

Yeah, me again.

Its a two - three hour trip to the big city, and I am learning what NOT to eat or drink the day before and morning of a long journey. There are definitely foods and drinks that kick off the bad stuff, so I keep away from that. 

And you may not want to hear this, but when I am out in the wilds for hours on end, and nature calls, I find myself a hidden spot and do my thing. I'm not letting this stop me enjoying the joys that life brings. 

Sue - Trubrit

RickMurtagh's picture
RickMurtagh
Posts: 586
Joined: Feb 2010

I work in a warehouse. I bring an entire change of clothes AND four sets of appliance.  On a good day I have just what I need. On bad days I end up going home and have a mulligan. On my worst day I repeated that process. Thankfully work is really understanding and I only had to do that once. 

Sounds like you have the same good fortune of having understanding coworkers. 

I used to worry that all these bad things might happen. Now that they all have happened, it is all a walk in the park. The only way things could be worse than anything that has happened is if I passed out during a huge blowout or my small intestine pushed out of my ostomy and exited my body. So really it's all good. Since there is an extremely low probability that either of those would happen, I am good. 

Here is to being able to laugh at the things we go through, at least some day!

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

My coworkers have no idea!!!!!!  I work in a building with 14 floors and we are all spaced about 20 feet apart except for the attorneys in the offices behind me (who got an earful the other day).  The other secretaries just hear me say "I"LL BE RIGHT BACK".  I zoom past everyone by sticking to the wall so they can't smell me and I run to the private bathroom which is by the private stairs.  Talk about a well designed building!  lol  So far I have not run into anyone on the private stairs, knock on wood!  Most of us use the public stairs between floors.

GSP2's picture
GSP2
Posts: 103
Joined: Feb 2015

Was out for most of the day at a crew meet. Notorious for porta Johns running out of toilet paper. Notorious for the local Starbucks

running out of everything - food, toilet paper, towels. So before I left our hotel I tucked the remains of a small roll of toilet paper in my jacket and waited in

line to finally come to the conclusion that I had to pee. OK, well let's try to introduce some food and see what happens. SUre enough

just like a baby's gastro-colic reflex, I felt the rumbles start and got back in line at the Starbucks that I had left 15 minutes before.

Yes another line. But by this time they had repopulated the toilet paper and paper towel dispensers.  I knew afternoon races would be

starting soon so this was my opportunity to clear the way for happy spectating...even with some snacking later and finishing off the Chai

that I had bought. When I returned to my spouse I got the expected look - "were you successful" ?  and not "where were you for the last

hour and ...whatever.

Helen321's picture
Helen321
Posts: 1428
Joined: May 2012

lol  Note to self, always carry spare toilet paper on the run.  

UncleBuddy
Posts: 1019
Joined: Aug 2013

I can't believe how strong you guys stay through all of this!

God bless!

LIN

 

PS my brother has accidents and pulls ups are now his best friends. :)

 

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

I've been getting all sorts of tips.  I've two 2-day meetings coming up in the next two weeks that I have to fly to.  I'm thinking of cleaning myself out, a la Laz, so I don't have to worry about it while traveling or in all day meetings, especially since I'm the chair for the second one and can't get up and leave or adjust my backed up poop!

By the way, I've had a couple of near mishaps--one at home thankfully.  I thought I had bad gas and my bag was filling with air.  Wrong!  The bag was so full it was hard to get off without spilling all over.  Somehow I managed.  The other was on the way back from Vegas.  We had just gone through security and I went to the restroom and low and behold my wafer had come unsealed in one spot and no spares in my purse!  I cleaned out as best I could and used some wet wipes in the hole to plug it.  Thank goodness it wasn't active and it was a short flight.  I don't want to go through that again.

Subscribe to Comments for "Life after cancer, the bathroom chronicles . . . ."