Doctor in NYC to treat papillary serus uterine cancer

hello,

my friend was just diagnosed with papillary serus high grade uterine cancer. This was yesterday (catscan and utrasound). She was told to find an obgyn oncologist. No grading has been done yet. I do not know if you are allowed to share the name of your doctor on this site but if so, can you share the name of your doctor or know the name of a doctor who has treated this type of cancer? She lives in Staten Island but a good doctor in NYC- Sloan Kettering, Columbia would be fine. thank you in advance.

Wishing everyone good health.  

Comments

  • AWK
    AWK Member Posts: 364 Member
    Dr. Douglas Levine at Sloan Kettering

    I was diagnosed Stage IIIC UPSC or IVA depending on which opinion you want to use.  This was in Feb 2013.  I am in the Los Angeles area but my doctors out here brought Dr. Levine in as part of my peer review and tumor board last year due to progression and unique metatastic spreading.  I am chemo resistant.  My tissues are being used for research in addition to my treatment.  I have not met him in person but he, along with others from Dana Farber, UCLA, City of Hope and MD Anderson are part of my team. 

    Don't use my story as cause for alarm, I am still in treatment but working full time and riding my horses.  I live life fully.  I am sure other ladies will weigh in here.  Encourage her to get on this board, it is an amazing resource and source of encouragement!  Lucky her to have a friend like you.  Anne

  • rdt4
    rdt4 Member Posts: 3
    AWK said:

    Dr. Douglas Levine at Sloan Kettering

    I was diagnosed Stage IIIC UPSC or IVA depending on which opinion you want to use.  This was in Feb 2013.  I am in the Los Angeles area but my doctors out here brought Dr. Levine in as part of my peer review and tumor board last year due to progression and unique metatastic spreading.  I am chemo resistant.  My tissues are being used for research in addition to my treatment.  I have not met him in person but he, along with others from Dana Farber, UCLA, City of Hope and MD Anderson are part of my team. 

    Don't use my story as cause for alarm, I am still in treatment but working full time and riding my horses.  I live life fully.  I am sure other ladies will weigh in here.  Encourage her to get on this board, it is an amazing resource and source of encouragement!  Lucky her to have a friend like you.  Anne

    thank you

    wishing you well, thank you so much for answering.

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    rdt4 said:

    thank you

    wishing you well, thank you so much for answering.

    Sloan Kettering

    If I lived in or near NYC , I'd definitely go to Sloan Kettering as it is rated among the top 5 cancer centers in the nation. Your friend does need to see a gynecologic oncologist. I did not have a CA -125 blood test before surgery and knowing what I know now, I wish that I had. I was too ignorant then to ask for the blood test. Going in, my surgeon thought I had a grade 2 cancer.  Well , the pathology report showed otherwise. Hopefully , your friend's UPSC will be a stage 1.

    Cathy

    Stage 3a UPSC

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,360 Member
    Abbycat2 said:

    Sloan Kettering

    If I lived in or near NYC , I'd definitely go to Sloan Kettering as it is rated among the top 5 cancer centers in the nation. Your friend does need to see a gynecologic oncologist. I did not have a CA -125 blood test before surgery and knowing what I know now, I wish that I had. I was too ignorant then to ask for the blood test. Going in, my surgeon thought I had a grade 2 cancer.  Well , the pathology report showed otherwise. Hopefully , your friend's UPSC will be a stage 1.

    Cathy

    Stage 3a UPSC

    If I lived in NYC (again - I

    If I lived in NYC (again - I did years ago) I would go directly to Sloan.  Cathy is right, she needs a gynecological oncologist who specializes in cancers below the belt.  You can also look for a gyn onc here:

    http://www.foundationforwomenscancer.org/find-a-gynecologic-oncologist/

  • artist49
    artist49 Member Posts: 87
    doctors at Sloan

    I've been a patient at Sloan since my surgery in

    Sep. 2010 - stage 4B UPSC.  Had chemo and still

    in remission, My surgeon was Dr,  Richard Barakat

    and oncologist Dr. William Tew - both superb doctors

    and  caring people. Good luck. Please ask me anything

    you wish.

  • nempark
    nempark Member Posts: 681
    Just over the GW Bridge

    My Doc from the rock band NED. Director of robotic surgery, gyn/onc./surgeon excellent Doc. 5 year survivor stage 1a mmmt grade 3.

  • bluesmama
    bluesmama Member Posts: 125 Member
    MSKCC if her insurance covers it

    I'm a patient at Memorial Sloan Kettering. Feel free to private message me if you have any questions. They have the "luxury" of seeing many of the rare/difficult cancers as well as the most managable ones. They are also a very well-funded institution. I had two friends who have been unfortunately diagnosed with uterine cancer since mine and they did not receive the same care as I did. They are also located in NYC. It's a shame because their insurance would have covered MSKCC but because of the sequence of events, they found themselves somewhere else. I'm not saying MSKCC is perfect but your friend is near the #1 cancer hospital in the country, so why not? My family was shocked when they heard I was a patient at MSKCC because they thought MSKCC only handles the most rare and difficult cancers... My second choice would have been NYU. They have excellent doctors there too and are up-and-comers in the field of gyno-onc. Good luck.

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,360 Member
    artist49 said:

    doctors at Sloan

    I've been a patient at Sloan since my surgery in

    Sep. 2010 - stage 4B UPSC.  Had chemo and still

    in remission, My surgeon was Dr,  Richard Barakat

    and oncologist Dr. William Tew - both superb doctors

    and  caring people. Good luck. Please ask me anything

    you wish.

    I have seen Dr Barakat

    I have seen Dr Barakat speak.  He is a gyn onc and knows about the agressive gyn cancers.  As a friend, and what a good friend you are, I would suggest if she doesn't have anyone to go with her to the doctor appointments maybe she will let you go with her.  My BFF was invaluable to me, sitting and taking notes the entire time for my appointments so I could pay attention to the doctor and someone was "scribing" all that was said. 

    Your friend is in my prayers.