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Scan Time, Deep Joy!

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

I'm off for my three monthly scan this morning. I hate the early morning appointments it's over a two hour drive and the weather is wretched. I have to drink water on the way for the prep, hot coffee would be far more welcome in this weather. Brrrrr!

Things have not been going so well for me lately so I am much more gittery about the results of this scan. However I have to wait until next week for the them, so unless I want to become a basket case by then I will have to get my head on straight,lol! 

They say Spring has Sprung, exactly where was that then?

Djinnie x

Billy's Wife's picture
Billy's Wife
Posts: 52
Joined: Jan 2014

Djinnie,

Hot coffee, hot chocolate and hot totties when you return home to warm you body.  All good thoughts of all of us with you cheering you on and praying for you always to warm your heart and soul.

Arleen

 

As far as spring goes--I have no idea where it is certainly not in my neck of the woods either.  Lol 

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hi DJinnie!

Stay warm, and think warm thoughts. We will be thinking about you and sending our good thoughts, karma and prayers your way for great scans and good health.

Big hugs

Jojo

Allochka's picture
Allochka
Posts: 869
Joined: Nov 2014

Wishing you all the best with your scans!  And let the spring come to you asap :-)

APny's picture
APny
Posts: 1945
Joined: Mar 2014

You will be in my thoughts and prayers as always. I'm hoping for some good news for you. Hugs xx

Footstomper's picture
Footstomper
Posts: 1238
Joined: Dec 2014

Good luck with your scan

ConnieSW's picture
ConnieSW
Posts: 1456
Joined: Jun 2012

I do hope it goes well.  We will be anxiously waiting with you

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Djinnie

you are in my thoughts and prayers, good luck with your scan

Forough

Skagway Jack's picture
Skagway Jack
Posts: 221
Joined: Oct 2013

Djinnie,   Best regards and warmest wishes for a great result!   Hang in there. Skagway,  Jack

Ree_Maryland's picture
Ree_Maryland
Posts: 157
Joined: May 2014

Hoping all goes well with scans? keep us posted 

Srashedb
Posts: 482
Joined: Dec 2013

please post after you get to results; meanwhile know that you are in my thoughts 

Healing light 

Sarah

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

As always thank you so much for all of your support. I thought I was lined up for just the regular TAP Scan  but to my surprise I was also scheduled for a brain scan. This being my first brain scan since diagnosis, I am told I will have one every two years now. So positive thoughts! I will let you know how things go.

It was such a long day, I was pretty shattered when we arrived back. Hubby kindly made me a double whammy Irish coffee, scrummie! I treated myself to an early night and thankfully unlike the previous night I slept like a log. 

Thanks again:)

 

Djinnie x

I am alive
Posts: 316
Joined: Jul 2012

We're on the same 3-month schedule so I know exactly how you felt yesterday! It's amazing how we live in these 3 month bubbles, isn't it? My face today is tomato red - my reaction to the CT dye despite premedicating with Benadrlyl and Prednisone. It looks like we are getting near 8 inches of snow here today so no one will see me and my big red balloon face - it's definitely a stay-at-home day. Having a little toast and coffee then think I will climb back into bed. 

Yesterday, though, was quite the journey. I travel two hours, too, to get to my cancer center, but I use public  transportation. Took the suburban train into Philly where I caught a bus for the two-hour drive intoNYC, then walked 5 blocks to the subway station to shoot uptown (changing trains once, climbing up steep subway stairs, hanging onto the railing, being a slowpoke), then walked several blocks to the cancer center. After the tests I did everything in reverse - walk, subway (two trains), walk, bus, train, home. 

I actually prefer it this way. My husband drives fast and because of that the trip with him can be stressful, especially in inclement weather. Oh yes, yesterday was rainy and slushy, with ice and snow on the ground, here and there. Quite the adventure. But I am deeply grateful that I can still manage it on my own. A little short of breath now and then - especially going up those subway steps - but invigorating. I love walking in a big city, feeling swept along with humanity. An infinitesimal cog in the big machinery. It's a good perspective to have.

Now we wait for our dr appointments to get the results. Mine is next Tuesday. I can wait. I tend to get freaked out just before the tests. Once that's done I try very hard to block the fear and anxiety by keeping busy, refusing to "go there," which works pretty well until I'm actually in the doctor's office waiting to see him. You know the drill. What can we do? There's nothing we can do to alter the results. They will be what they will be and we - because we must - will deal with them. I'll be thinking of you, Djinnie! Sending light and love your way!

APny's picture
APny
Posts: 1945
Joined: Mar 2014

Keeping fingers crossed for both of you.

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

My goodness you're a trooper, I take my cap off to you, that is some journey and on your own. Sounds like a complete work out, and all in the cold weather too. I know it has been pretty bad in New York, my daughter lives there and has been moaning about it for weeks. Is that the first time you have suffered a reaction to the contrast? sounds miserable, but as you say with the heavy snow staying in right now sounds the best place to be.

Getting through these three monthly tests is always so difficult, like you I try to stay occupied so not to dwell on it, it's not always easy. The nights are the worst for me as I don't sleep well, so I usually listen to music if I wake up. My results are on Wednesday, my husband is taking me out on Tuesday to take my mind off it, although in this weather I am not sure where we are going. I agree whatever the results we have to accommodate them and deal with them as best we can. I will be thinking of you too, all the very best to you. Keep warm:)

 

Djinnie x

 

 

aamdsi
Posts: 284
Joined: Apr 2014

Great results!  AND for spring to come. We, in MI, have one more day of bitter record lows then it looks to start warming up...at least to be above zero.  Still, we have had it far better than you folks in the East - or even South of us!

I am going in for my 1 year next week.  It was a year to the day this past Monday.  Seems both so long ago and just yesterday.

 

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

aamdsi, I know what you mean about the time, that being the anomaly of the Cancer experience. I wish you well with your scan results too, I hope the three of us have good results. I will be praying for a hat trick.

I hope you get some sunshine, I'm in France so we are experiencing a different weather pattern. Never the less we are desperate for some warmth, the sooner the better:)

 

Djinnie x

donna_lee's picture
donna_lee
Posts: 900
Joined: Feb 2009

All of you.  Or is that the postal service workers who slog through rain, sleet and snow?  In any kind of weather, those of us here seem to take what is thrown our way and get to the tests, wait on the results, and move on with living.

My next batch is not until May, but it hits with a bang.  Follow up Mammogram based upon what they found 6 months ago, fasting labs and then my PC Dr., Chest X-ray and US to monitor the RCC and then results with the oncology office.

Oh, and my husband does his fasting labs and PC appt., and sees his Ophtalmologist to follow an auto-immune disease that affects his eyes.

At least I can say it is sunny here and I have the office door open.  It's frosty in the early mornings and then warms to the hi 50's-low 60's.

Keep on, keeping on.  Hugs to all.

Donna

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Hey Donna,

Haven't had a chance to speak to you in a while. Both you and your husband have a lot going on too, I hope all goes well for you, as you say no matter what we move on with living. There is no acceptable alternative really.

Sounds lovely where you are, at least the sun is pushing through somewhere.

Take care, all the best:)

 

Djinnie x

I am alive
Posts: 316
Joined: Jul 2012

France is so lovely. We were in Paris a year ago last November to visit  our daughter who was studying abroad. I was so taken with the beauty of the city that I read voraciously about its history and that of the French Revolution when I got home. Couldn't get enough. And I still miss the bread! We visited the Loire region too. Gotta love those castles.

Regarding my allergy to contrast dye, I broke out in severe hives along the chest and neck some 10 years ago when I was first diagnosed and had my first scan. Since then I've premedicated with 150 mg of Prednisone (one 50 mg pill 13 hrs  before the CT, another 50mg pill 7 hrs before and the third pill 1 hr before),  and also take two 25 mg pills of Benadryl an hour before. The docs recently switched me to a banana-flavored barium kind of contrast drink beforehand that has either less or no iodine - I can't remember. Seems to lessen the red face syndrome the next day.

I wish I could send you the picture outside my front window. It's a symphony of white - thick, fluffy white carpet of snow, snow-laden trees standing utterly still as more soft flakes keep falling from the white sky. And everything is so QUIET!! Beautiful (and just a tad spooky). Exciting, though, to know spring is right around the corner. Thanks everybody for all the good wishes!! They're like flower seeds planted 'neath this snow.

I am alive
Posts: 316
Joined: Jul 2012

For some reason that's what I'm thinking, office door open and all. Well enjoy! Wow, you and your husband will be hit up with quite the whammy come May but you have a couple of months now to dance in the sun. I'll be thinking of you doing that. Wishing you all the best.

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Hi I am alive, 

I agree France is beautiful, one of it's attractions being the diversity of the landscape. I grew up in the rural countryside of the UK which is beautiful too, but the Island has become too overcrowded for me. We moved to France for the wide spaces, cleaner air and fantastic scenery. I love it here, it's so peaceful and secure.

It sounds lovely where you are right now too, there is nothing quite like the look and feel of freshly fallen snow. It is like a soft whisper! I loved your last paragraph, it was quite a beautiful turn of phrase.

 

Djinnie x

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hi I am alive,

Keeping my fingers crossed for you as well for good results - and so sorry about your reaction to the dye. Hope you are feeling better soon!

Hugs,

Jojo

Jan4you's picture
Jan4you
Posts: 1320
Joined: Oct 2013

{{{{ DJINNIE }}}}} Hugs to you and yours~

 

You ARE a trooper! I admire you so much. Just know that even when you are "challenged", I am thinking of you, spirit-to-spirit, heart-to-heart! Never feel you are not connected okay my dear?

I'll be looking foward to a better report which makes it worth it. No matter what, YOU will never go through this alone, for you are part of us, THE CNS POSSE!!!

Hugs and prayers, Jan

cran1's picture
cran1
Posts: 139
Joined: Mar 2013

Hey D my thoughts are with you. Scan anxiety gets me also everytime.

danbren2's picture
danbren2
Posts: 311
Joined: May 2013

Djinnie,

     March must be the scan month, mine is coming up on March 21.  Sending prayers, great karma, and anything else that will help us all to get all clean scans!

                                        Brenda 

angec's picture
angec
Posts: 923
Joined: Mar 2012

Hi DJ and I'm alive!  How did the scans go?  You two are such troopers!  I got energized just by reading your posts!  Sending love, hugs, good wishes to all of you warriors here.

 

Ange

 

 

Billy's Wife's picture
Billy's Wife
Posts: 52
Joined: Jan 2014

Dear Ange,

I just happened upon your post and thought I should tell you to check Dijinnie's thread of 3/11/15.  I wish I had good news.

I am sorry.

Arleen

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