Stage 4 Need encouragement
Can someone tell me if PT4 or T4N0M0 is stage 4. My husband's 14cm tumor was removed along with the adrenal gland and right kidney. Looks like we are looking at stage 4 and could use some encouragement.
Comments
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"Stage 4 but TNM staging"
Yes, it is stage 4 but without any metastatic disease at this point. He will need close and careful monitoring with CT scans as follow up. It is highest stage, but without any metastatic disease at this time is positive. See below information about the staging. You never mentioned Grade of the tumor, this also will factor into his follow up care.
T4: The tumor has spread beyond Gerota’s fascia (the fibrous layer that surrounds the kidney and nearby fatty tissue). The tumor may have grown into the adrenal gland (on top of the kidney).
N0: No spread to nearby lymph nodes
M0: There is no spread to distant lymph nodes or other organ
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Thank you for responding. Isblairc said:"Stage 4 but TNM staging"
Yes, it is stage 4 but without any metastatic disease at this point. He will need close and careful monitoring with CT scans as follow up. It is highest stage, but without any metastatic disease at this time is positive. See below information about the staging. You never mentioned Grade of the tumor, this also will factor into his follow up care.
T4: The tumor has spread beyond Gerota’s fascia (the fibrous layer that surrounds the kidney and nearby fatty tissue). The tumor may have grown into the adrenal gland (on top of the kidney).
N0: No spread to nearby lymph nodes
M0: There is no spread to distant lymph nodes or other organ
Thank you for responding. I don't know the grade yet, I was told the oncologist would be able to give me more information on our post op visit. 2/3/15.
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Just found out it's gradesblairc said:"Stage 4 but TNM staging"
Yes, it is stage 4 but without any metastatic disease at this point. He will need close and careful monitoring with CT scans as follow up. It is highest stage, but without any metastatic disease at this time is positive. See below information about the staging. You never mentioned Grade of the tumor, this also will factor into his follow up care.
T4: The tumor has spread beyond Gerota’s fascia (the fibrous layer that surrounds the kidney and nearby fatty tissue). The tumor may have grown into the adrenal gland (on top of the kidney).
N0: No spread to nearby lymph nodes
M0: There is no spread to distant lymph nodes or other organ
Just found out it's grade IV/IV. So I guess 4.
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Probably 3 months scans with this pathology.Terri065 said:Just found out it's grade
Just found out it's grade IV/IV. So I guess 4.
Hi Terri065,
I think it would be likely that your husband will have scans every 3 months. I don't know the exact protocol, but I think with a Stage 4, Grade 4 tumor they will want to watch it closely.
Also, perhaps you could ask the oncologist what other tests (if any) are warranted for this diagnosis. I know some oncologists or urologists order bone scans as a test. My husband (with a Stage 3 diagnosis) had a bone scan after his nephrectomy. I recommend asking for one, if only for some peace of mind.
It's such a scary, scary job to deal with your husband having cancer. It is a roller coaster ride, for sure, I hope you are taking care of yourself too! Take care.
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T4N0M0
Hi Terri065
My hubby's 13cm tumour also had T4N0M0. He had a full nephrectomy of his left kidney and adrenal gland in late Feb 2014, as it was extending into adrenal gland, and while clear cell also had extensive sarcomatoid change and rhabdoid morphology. We were told he was grade 4 but no one has ever really told us what stage he was/is. He has regular ct scans and now has mris as well. He also had a bone scan and chest xrays. There is talk of giving him a scan of his head too as he has had some loss of balance occasionally lately. It has been very hot in New Zealand lately though! He is currently NED but is having the next mri on 10 Feb. Don't know how encouraging this post is lol but he is still here and we are grateful. Hope all goes well with your husband.
Hugs Melissa
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Thank you, it is encouraging.Phredswife said:T4N0M0
Hi Terri065
My hubby's 13cm tumour also had T4N0M0. He had a full nephrectomy of his left kidney and adrenal gland in late Feb 2014, as it was extending into adrenal gland, and while clear cell also had extensive sarcomatoid change and rhabdoid morphology. We were told he was grade 4 but no one has ever really told us what stage he was/is. He has regular ct scans and now has mris as well. He also had a bone scan and chest xrays. There is talk of giving him a scan of his head too as he has had some loss of balance occasionally lately. It has been very hot in New Zealand lately though! He is currently NED but is having the next mri on 10 Feb. Don't know how encouraging this post is lol but he is still here and we are grateful. Hope all goes well with your husband.
Hugs Melissa
Thank you, it is encouraging. My husband retired from the fire department in October and was diagnosed in November. While am grateful he doesn't have to go back to work. My anxiety is getting the better of me. I just want him to be able to ride his motorcycle and go camping. We also have two daughters. One of which was married in 2013. I just want to stay on top of this so we can enjoy our grandchildren some day.
Thank you, Theresa
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MelissaPhredswife said:T4N0M0
Hi Terri065
My hubby's 13cm tumour also had T4N0M0. He had a full nephrectomy of his left kidney and adrenal gland in late Feb 2014, as it was extending into adrenal gland, and while clear cell also had extensive sarcomatoid change and rhabdoid morphology. We were told he was grade 4 but no one has ever really told us what stage he was/is. He has regular ct scans and now has mris as well. He also had a bone scan and chest xrays. There is talk of giving him a scan of his head too as he has had some loss of balance occasionally lately. It has been very hot in New Zealand lately though! He is currently NED but is having the next mri on 10 Feb. Don't know how encouraging this post is lol but he is still here and we are grateful. Hope all goes well with your husband.
Hugs Melissa
P.S. Our daughter is named Melissa after the Allman Brothers song.
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Hi Terri,I am glad that youTerri065 said:Melissa
P.S. Our daughter is named Melissa after the Allman Brothers song.
Hi Terri,
I am glad that you have found this forum. There is a wealth of information amongst all our members. And there are a lot of wonderful caregivers on this site who will (and already have) give you guidance on this.
Your support you give your husband will help him through this!
Hugs
Jojo
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Thank youJojo61 said:Hi Terri,I am glad that you
Hi Terri,
I am glad that you have found this forum. There is a wealth of information amongst all our members. And there are a lot of wonderful caregivers on this site who will (and already have) give you guidance on this.
Your support you give your husband will help him through this!
Hugs
Jojo
Thank you Jojo. I'm grateful for this forum and all of you.
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If I recall correctly, yourTerri065 said:Thank you, it is encouraging.
Thank you, it is encouraging. My husband retired from the fire department in October and was diagnosed in November. While am grateful he doesn't have to go back to work. My anxiety is getting the better of me. I just want him to be able to ride his motorcycle and go camping. We also have two daughters. One of which was married in 2013. I just want to stay on top of this so we can enjoy our grandchildren some day.
Thank you, Theresa
If I recall correctly, your husband went to Dr. Russoa at MSKCC? Coincidentally, I am a volunteer firefighter, and Dr. Russo handled my surgery. There are a couple of other firefighters on here. There's a firedude, and at least a couple of others. Congratultions on getting through the surgery, and I hope you and your husband enjoy retirement.
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Wishing for NEDs only!icemantoo said:The force
May the force be with you.
Icemantoo
Terri,
I was diagnosed Stage 4 in October 2011. I have head right kidney removed, and in 2013 lower portion of right lung removed, and another tumor removed from the brain. I have now been NED for 15 months. Have faith and courage and try to suppress the fear as much as possible! It can be ok!
Prayers for good health!
Brenda
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Hi
Stage 4 Grade 4 here. Diagnosed May 2013. Had bones and lungs scanned. No mets in the bones. Left kidney and adrenogland and large amount of vein removed. IL2 treatment August - November. On sutent since september 2014.
Aint dead yet!
Not planning on dying tomorrow
Not really planning on dying at all
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FDR saidTerri065 said:Thank you, it is encouraging.
Thank you, it is encouraging. My husband retired from the fire department in October and was diagnosed in November. While am grateful he doesn't have to go back to work. My anxiety is getting the better of me. I just want him to be able to ride his motorcycle and go camping. We also have two daughters. One of which was married in 2013. I just want to stay on top of this so we can enjoy our grandchildren some day.
Thank you, Theresa
Well he didnt quite but he could have. One of the worst things about cancer is the fear and anxiety it evokes. Nothing is as bad as our imaginations can make it seem. Nothing helps a cancer sufferer more than the love of those around.
But who cares for the carer? Dont forget to look after yourself.
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Hi Terri, I know you are
Hi Terri, I know you are afraid. Just try to get copies of all reports, blood reports, scans, etc. Keep them in a file. There doesn't seem to be any spread to lymph nodes or other mets at this time. The best thing to have done now is to ask for a full body pet/ct scan. I say sooner than later. This way you can catch anything that can be around now, and if nothing, which is hopefully the case, then going forward full body pet/ct scans every three months would be the right thing to do. I think you said he has been at Sloans, they are usually on top of it all! Keep on the boards here and continue to post updates. Don't worry too much, take one day at a time and don't forget to take care of you! Hugs! PS my mom was stage 4, she went on Votrient and is now NED. Hopefull still NED, scans in a month or so. Praying for us all!
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I totally agree with everyoneTerri065 said:Thank you
Thank you everyone for your support, it is deeply appreciate. We go back to Sloan on 2/3/15 will keep you updated.
God bless!
I totally agree with everyone who recommends bone and lung scans. Best to do it early just in case. I'm so happy that so far all is going well and hope that it continues that way. Wishing you both the best. You're in really good hands at MSK and with Dr. Russo.
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We are meeting the oncologistAPny said:I totally agree with everyone
I totally agree with everyone who recommends bone and lung scans. Best to do it early just in case. I'm so happy that so far all is going well and hope that it continues that way. Wishing you both the best. You're in really good hands at MSK and with Dr. Russo.
We are meeting the oncologist Dr Voss for the first time on February 3nd. We're hoping he's as amazing as Dr Rosso. Also my husband had a bone scan and MRIs of the head, chest and abdomen. I'm hoping we covered all our bases.
Theresa0 -
I'm sorry to hear you andTerri065 said:We are meeting the oncologist
We are meeting the oncologist Dr Voss for the first time on February 3nd. We're hoping he's as amazing as Dr Rosso. Also my husband had a bone scan and MRIs of the head, chest and abdomen. I'm hoping we covered all our bases.
TheresaI'm sorry to hear you and your husband had to join this club. The people on this site are very caring, helpful, and supportive. I am also stage IV/grade IV and am going through consultations to treat mets in the lungs. I met with Dr Voss @ MSK two weeks ago and have been in regular communication since. He has been the most impressive doctor my wife and I have met thus far. Intelligent, mindful of the patient, and thorough in his discussion. He also persuaded us to see two other doctors: Dr Walter Sadler @ U of Chicago and Dr David McDermott @ Beth Israel in Boston. That says a lot about a doctor who can give such top notch referrals yet still keep up with the patient to further inform and guide. You are in excellent hands.
There is a lot of anxiety associated with cancer, as others have pointed out. I don't know of a secret to keep yourself worry-free but I have found that associating with loved ones more relieves a lot of the pressure. Connecting with new people as well. Just jumping into life more has helped put things in perspective. I hope you find what works to pull up when you hit your lows (we all hit lows now and then). Don't be a stranger!
Joe
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