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positive scan results

janderson1964
Posts: 2215
Joined: Oct 2011

I saw the IR (interventional radiologist) today at UMMC. He was very pleased with the scan one month post ablation. He said the liver ablation looked great. He said I timed it perfectly after the y90 I had done in July. The chestwall ablation wasnt as clear. There might be a very thin line of tumor left next to my spine. Its hard to say at this point and will scan in three month intervals. He is 80% confident that he got all the chest wall tumor but he had to be real careful how much cryo he applied near my spine or run the risk of paralysis. If it turns out that that line is surviving tumor he will go back in with IRE (Nanoknife). Bottom line we were both very pleased with the results so far.

I asked about my enlarged spleen. He said not to worry unless my platelets drop to 50. He said the cause is portal hypertension. Basically when my liver grew back after my last resection it start putting some pressure on the portal vein causing some of the blood normally traveling through there to back up into the spleen and cause a build up.

If my platelets drop to 50 he can do a spleen embolization. It is a simple outpatient proceedure where he blocks off some of the blood supply to the spleen causing it to shink back its normal size and raise my platelets. What a relief. I know some people have had a splenectomy to raise thier platelets and i wanted to avoid another major surgery if i could. This doctor is amazing.

He thinks i should either stay off chemo or just do maintinance chemo. I will see my oncologist on wednesday to discuss either staying off chemo or do ADAPT therapy (xeloda and celebrex). I asked Dr Lin in Seattle to recommend the dosage since I MIGHT be NED now and he responded with his recommendation.

Oh and my IR thinks I might be at the point that when something pops up he can ablate.

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

well just look at you dear friend!!!! how good is all this? this is very very good.....well done.  Dear boy I know I have said it before but you have worked soooo hard ....and look at you.  I am teary and so so very happy....

keep marching....Kiss  mags

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Mags. It always warms my heart to hear your kind comments.

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

Glad to hear of your good results.  Hoping the thin line goes away.  Traci

janderson1964
Posts: 2215
Joined: Oct 2011

Thank you Traci. I hope you are well. The thin line might be nothing.

Brenda Bricco
Posts: 579
Joined: Aug 2011

Great news Jeff! I've been thinking about you a lot the last few days and am so happy for where you are.

Congrats!

Brenda

janderson1964
Posts: 2215
Joined: Oct 2011

Thank you Benda. I am glad to hear about Jasons good report.

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Annabelle41415
Posts: 6241
Joined: Feb 2009

You have been through so much and this is the result we were all hoping for and then some.  A good report plus a non-worry on the spleen or a simplier procedure if platlets fall.  You should just take a deep breath and let it out.  You deserve some relief from all this and I'm glad you got it. 

Kim

janderson1964
Posts: 2215
Joined: Oct 2011

Thank you Kim. You have always been so supportive.

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sdp
Posts: 181
Joined: Jan 2012

Hi janderson.,

hope all goes well for you and you remain NED forever .

after my last TACE AND ABLATION procedures in Nov 2014

i had a scan recently and it shows three mets in same place as that

which was there earlier - so I guess the ablation and TACE were not 

really successful especially the recurrence in a month and a half !

after looking at the pet-ct the drs are confident that the Sirt procedure would be better and more effective in my case.

 

i am back in germany and they are going to map the blood vessels in liver to check that they dont end up feeding the lungs / intestinal tract. IN the case the blood supply is all not proper than sirt is out - but they dont think so. Tomorrow is the angiogram for the mapping and then an overnite stay.

Back in hospital on 3rd feb for the sirt procedure - 

 They intend to do the whole liver at one time - there seem to be three mets at various locations - approx 1 cm or so is what dr says .

The ct-pet report shows stagnant / a stable disease compared to the last ct-pet which was pre TACE and ablation. seems some micro metastasis outside the area ablated is growing a bit and that is showing the FdG uptake in the pet-ct. The met size is shown to be 3 to 4 cm ! However radiologist disagrees and says that it is micro metastases - and uptake is SUV 10 - which is high. So, I won't know for sure what the actual fact is. 

 

Also, the dr in germany say that a three day hospital stay post SIRT is a must due to the radiation etx.

since you have had SIRT recently can you pl fill me in on what one should be careful regarding etc - you can pm me or mail me.

thanks in anticipation.

 

 

 

 

lp1964's picture
lp1964
Posts: 1238
Joined: Jun 2013

I always admired your determination not just in fighting cancer but maintaining a normal life. It goes back to Scott Stewart: it is not just about how you fight cancer, but also about how you live. You have never ignored living and your hard work now seems to be paying off. As we all know there is no fairness in cancer, but I wish that your efforts pay off. But I also know that no matter what happens, you will never stop living. 

All the best Friend,

Laz

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Laz. Stewart Scott was a real hero of mine. His speach at the ESPY awards brought me to tears. His passing is hearbreaking. His poor daughters.

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ron50
Posts: 1721
Joined: Nov 2001

And I love it when a cancer patient becomes their own advocate. You have obviously built a mutual respect with your treatment team and they are one hundred percent behind you. The rollercoaster is on the rise . I hope it keeps on going up, congratulations Ron.

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Ron. I am not sure if you can call it a team when I have doctors in Seattle Baltimore and parts of Virgina. I guess that is what self advocacy is all about.

Fight for my love
Posts: 1530
Joined: Jun 2009

Awsome and awsome news! I am so happy for you. You deserve the good results.

janderson1964
Posts: 2215
Joined: Oct 2011

Thank you for your support. I am still praying that your husband will have good results as well.

Fight for my love
Posts: 1530
Joined: Jun 2009

Thank you very much, Jeff. We got the scan done today.We will see doctors on Wed. I am praying very hard for a good result. I got to admit the scan day seems to be so long and exhausting.

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

sounds good jeff

janderson1964
Posts: 2215
Joined: Oct 2011

Craig your comment means the world to me especially with allyour struggles. You are always on my mind and in my prayers.

Cathleen Mary
Posts: 827
Joined: May 2011

Jeff, I was thrilled to read these good results. You are so persevering and it is working!  Enjoy.

CM

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Cathleen Mary.

Easyflip's picture
Easyflip
Posts: 588
Joined: May 2013

That's awesome! You could be NED! That's huge! I hope it all works out. You really deserve it after all the hard work you've put in. Congratulations!

Easyflip/Richard

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Richard. How was Vegas. 

Easyflip's picture
Easyflip
Posts: 588
Joined: May 2013

Vegas was a blast : )

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herdizziness
Posts: 3642
Joined: Apr 2010

I've been so worried about you and there you go doing the self advocacy thing that others of us have done and came away successful.  This makes me so happy to hear your news.!!!

Keep on living and enjoying the life Jeff.

Hugs and luv,

Winter Marie

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Marie. I have told you several times that you are an inspiration to me. I would like to think I have the same "Its not over until its over" attitude that you have. Hopefully we can both continue to live life in spite of all of the hurdles that cancer puts in front of us.

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annalexandria
Posts: 2573
Joined: Oct 2011

You rock, Jeff.  Your sheer grit and determination is just so admirable!

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Anna. I am just doing what I have to do in order to survive.

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Phil64
Posts: 835
Joined: Apr 2012

Wonderful news Jeff. Sending up prayers of thanks and appreciation. 

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aggie0053
Posts: 110
Joined: Mar 2011

GREAT NEWS  NED IS GOOD

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Phil. prayers are always appreciated.

jen2012
Posts: 1607
Joined: Aug 2012

Sounds like good news Jeff!   So happy for you.  Curious what did Dr. Lin recommend for a celebrex dose?  Have they reduced the xeloda because of low platelets?  My husbands xeloda has been stopped as they are trying to get the platelets to go back up.  

You are an inspiration!  Thanks for sharing and hope you and your wife feel some relief and enjoyed the weekend.

janderson1964
Posts: 2215
Joined: Oct 2011

I didn't discuss the low platelets with Dr Lin but his recommendation was basically the same amount of Xeloda as I was doing before but spread out over 2 weeks instead of 1 week. 1000mg twice daily, 2 weeks on 1 week off. 200mg celebrex continuously.

jen2012
Posts: 1607
Joined: Aug 2012

Thanks Jeff!

lilacbrroller's picture
lilacbrroller
Posts: 412
Joined: Jun 2012

belated congrats! There's some food left on the snack table, and sone of the guests are still lingering!  Always nice to hear good news.

glad it worked out

karin

janderson1964
Posts: 2215
Joined: Oct 2011

The party is stillgoing. Besides better late than never. Thanks karin

Trubrit's picture
Trubrit
Posts: 4886
Joined: Jan 2013

lets say four, and a spinning man to boot. 

 

Way to go, Jeff! 

Sue - Trubrit

janderson1964
Posts: 2215
Joined: Oct 2011

Thanks Sue. I love the happy men. It's good to hear from you.

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LivinginNH
Posts: 1458
Joined: Apr 2010

Congrats Jeff!!!   :) 

janderson1964
Posts: 2215
Joined: Oct 2011

THanks Cyn

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YoVita
Posts: 590
Joined: Mar 2010

So happy for you.  And it sounds like you have a reasonable plan ahead and possible NED.  Wonderful.

janderson1964
Posts: 2215
Joined: Oct 2011

Thank you. I did just see my oncologist today. He agrees with me that I should at least do ADAPT maintanance and left it up to me when I will start since it is just pills. I should start right away but I think I will wait until Monday. It is hard for me to start again even though it is a tolerable protocal. My rib pain is nearly gone now but my stomach is the issue as the day progresses and I eat more. My onc agrees that when my stomach starts to fill up it is pushing on my now very enlarged speen but it is not the time to embolize it.

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thingy45
Posts: 633
Joined: Apr 2011

so great to hear a bit of good news. Awesome . You are always in my thoughts, all of you. I'm very busy looking after my daughter and family not always time to come on.

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