Cancer in Lungs

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bat
bat Member Posts: 4 Member
in Sarcoma #1

I was just informed that I have cancer in my left upper lung.  Not for sure the type but almost sure it will be MPNST sarcoma.  I was diagnosed with MPNST sarcoma in my sciatic nereve in Dec 2012.  Had 25 rounds of radation then in Feb 2013 had operation and they removed my sciatic nerve in the upper right leg.  Now where brace for drop foot. Have had lung nodules show up around 5 months after surgery but doctors did not feel the cancer was metaszing to my lungs.  The next scan 3 months later the doctors said the nodules look better then before and felt they were scar tissue then set next scan for 6 months.  Had a few more scan up to now that were up and down but final descison was not cancer. Then had a bronchoscopy on Dec 11 2014 because the last CT scan in Nov showed an inflamation process and they wanted to get lung bisopy to find what it could be.  All the doctors felt it was not cancer from the last CT in Nov.  Then on Christmas Eve they called me to inform me I had cancer in my lung.  I'm not going to let this get me down because I have a strong will to live.  I guess what I'm look for is any info to MPNST in the lungs.  I want to prepare myself for what is ahead of me in the next month or longer.  I'm thinking this could all include chemo, radation, and surgery.  Either parts of them or all of them.  They set me up with a PET scan this Monday Dec 29.  Any information would be greatly appreciated.  Thank you for listening and look forward to replys.

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  • bat
    bat Member Posts: 4 Member
    #2
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    New info

    I received a call on New Years Eve about my PET scan I had on Monday.  They said it shows shadows in my right lung along with the cancer in my left lung.  He also said that there were shadows in two of my lymph nodes in my throat.  The said it was urgent that I get in to see them.  They set me up for an appointment at the MAYO clinic in Rochester to see a throat doctor along with my cancer doctor on Jan 2.  I’m thinking they may want to do another biopsy to make some better decisions that it is the MPNST sarcoma mets.  They could not determine this from the bronschopy I had on Dec 11. They were too small of samples because they were looking for something else but could determine that there was cancer in the lungs.  I’m very nervous at this time but going to put my best foot forward in beating this cancer.  They also set me up with the doctor that will decide what my treatment will be in Lacrosse Wi.  MPNST is such a nasty cancer.  My grandchildren just lost there other grandma 2 days ago to a rare sarcoma cancer.  It broke my heart to have to tell them that my cancer has returned.  I’m glad we told them the day before there grandma past away because it would of even been more difficult to have to tell them now when they are preparing to go to a funeral this Saturday.  The oldest on is 13 and will be turning 14 in 9 days.  Also one that just turned 8 just before Christmas.  Both girls.  Then a grandson who is almost 3 and 4 months.  It’s so sad for them at this time.  The grandkids were very close to her.  She was only 60 and should have had so much more time.  I to am only 58 and feel its going to be a tough road for awhile.  I love my grandkids so much and hate to see them feel this pain.  Its just not fare.  But I will beat this thing and will be enjoying every minute with my family.  I feel the same way with my wife.  She is my rock my life and it hurts me to see her having to go through this again.  She is very strong for me and I would be lost with out her.  She does so much for me.  I love her so much.  I’m sorry for this being so long just feeling a little down right now but I will snap out of it and move forward.  Thank you for listing.

  • bat
    bat Member Posts: 4 Member
    #3
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    Update


    Well I had a needle biopsy earler this week to a lung nodule to confirm that it was MPNST sarcoma mets to my lung.  My doctor told me the news Friday that it was positive for MPNST mets and that it was at stage 4.  Now they want to do a biopsy to my lymp nodes in my throat because they showed hot spots in the PET scan also.  They said if I have cancer in my lymph nodes then all that will be done would be chemo with a 20 to 30% chance it will work.  If there is no cancer then they would proceed with the surgery to remove part or all of my left lung.  They said they would need to get a clean margin so not sure how much of lung till they get in there.  He also said that I would have a good chance to do clinical trials and that all expenses would be paid for me to go.  I would only have to pay for my wife transportation and meals who I would want there by my side.  I posted info in the sarcoma area but had no replys so I thought I would post this here because it is rare cancer and sarcoma.  At this stage I'm looking for info on expericence with clinical trials.  If anybody has gone through these and what did they think of it.  Any info would be great.  Thank you.

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