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Semi Colon ROLL CALL

dorookie
Posts: 1736
Joined: Jul 2007

Hi Everyone,

Back in 2007/2008 when I was deep in the fight I remember a thread that everyone listed where they lived and being amazed at how many people actually read this board (there are many more lurkers than posters!!!).

I will start a new one with a little twist, stage and current status (in treatment, starting treatment, surgery scheduled, NED, etc). As a stage IV survivor I remember how I felt that there were so many others fighting and beating the beast and the stats were so WRONG!! I think it was Stacy that said "numbers are for Vegas" and we all know medical science does not understand nor can it measure internal fortitude.

For the "newbies" NED means No Evidence Of Disease. You have to be NED 5 years before the docs and insurance companies deem you cancer free.

I will start.....................

Dxed 05/07stage III, had surgery, Chemo and radiation, clear for almost 6 months, came back in 10/08 stage IV with met to right lung, surgery again, more chemo, but currenly NED 5 1/2 years, I currently live in San Antonio, TX. USA

next..........

Trubrit's picture
Trubrit
Posts: 4828
Joined: Jan 2013

Diagnosed November 2012 Stage III B.

Colon Resection followed by nine rounds of FOLFOX - 5FU. Six weeks Radiation and six weeks 24 hour 5FU. 

Liver met found in April 2014 now Stage IV

Liver Ablation but no chemo.

Latest CEA 0.5 and NED

Sue - Trubrit

DD3's picture
DD3
Posts: 131
Joined: May 2013

I'll chime in as a caretaker.  Wife was diagnosed Stage IIIA.

28 rounds of chemo and radiation

Surgery

12 rounds of folfox

NED for 19 months so far.  (fingers crossed/toes crossed/four leaf clover on hand/rabbits foot and etc... ) Tongue Out

 

 

dorookie
Posts: 1736
Joined: Jul 2007

So glad to hear your wife is NED and i will pray for that to continue for say always!  Caregivers are just as much apart of our fight as our ONC teams, i know i would have been lost without my partner.

HUGS

BETH

Yolllmbs's picture
Yolllmbs
Posts: 361
Joined: May 2014

diagnosed April 2014 stage 3b. two lymph nodes out of fifteen effected. 

I did 10 out of 12 scheduled rounds of Folfox5

My oncologist and surgeon consider me NED

i live in Huntington Beach CA

 

no bloodwork or tests until March 2015

Yolanda

dorookie
Posts: 1736
Joined: Jul 2007

Great news to hear, keeping you in my prayers...

 

Maybe more will chime in too, its interesting to see where people are from and how their story goes

HUGS
BETH

Semira's picture
Semira
Posts: 378
Joined: Mar 2012

So here goes the "german branch" of this great board (Caregiver to husband with stage IV coloncancer):

Husband diagnosed in Nov 2011, 2 mets to liver and 1 met to peritoneum. All was removed during surgery. He got a temp. ileostomy for 8 months and did 6 months of chemo (Oxi + Xeloda). Then ileo-takedown and NED ever since.

In Aug 2013 there was some excitement when a suspect area was discovered on the peritoneum during a CT scan. But the following surgery revealed it was just scar tissue. PHEW!

Last CT in Oct 2014 was clear, next sono + bloodcheck will be in 4 weeks, next CT in next August. So he passed his 3 years cancerversary being NED.

Hugs to you all from Cologne, Germany
Petra

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

Dx'ed in 2009 stage 4 at the age of 43; had been misdiagnosed as having lupus; cancer was discovered in emergency surgery when my tumor ate through my colon and went on a little explore, causing peritonitis.

Unusual blended tumor type, called a carcinosarcoma.  Only about 25 documented cases of it occuring in the colon.  Took a couple of months to get correct dx, a process that involved our local Tumor Board and a trip to MA General for my tumor samples*; very scared during this time as my sister had died only a year after dx at the age 44 of a Cancer of Unknown Primary.

2nd surgery, with removel of 38 lymph nodes (5 cancerous), and spots on the peritoneum.

No "recipe" for me in the "oncology cookbook" (as my doc put it), but tried FOLFOX/Avastin...no dice, cancer spread (or was already there, just not visible on scans) to more of the colon, small bowel, peritoneum.

Had 3rd surgery (again emergency, as the CT scans TOTALLY dropped the ball), supposed to be palliative in nature due to the extensive spread (probably the lowest point in this whole journey, watching family and friends cry at the news was the worst), but surgeon felt he got it all, and surgery became possibly curative.

New chemo regimen (carbo-taxol), which also failed, as PET found one new tumor.  Decided no more chemo, move into "watch and wait" mode.  PET scans a must to make this approach viable.

2 more surgeries, to mop up minor spread to colon and uterus/rectum.  These last two tumors seemed to be escapees from the previous big surgery.

I took cimetidine with the last surgery, which may have helped eliminate the chance of further spread.

A high point came when the gynecological-oncology surgeon who worked with my regular guy on the last surgery tells me that she's never met a patient with my tumor type who is still alive two years in, as it's highly malignant and kills rapidly.  She is the first to use the other "C" word, and give me hope for the future.

I have been NED since Dec. 2011, which is considered more or less cured for a carcinosarcoma (not enough cases to know for sure, but it doesn't seem to be a lurking kind of cancer).  I have a PET scheduled for January, and if it's clear, I will be done with scanning, hopefully for a very long time.

 

*just realized my cancer has traveled to the east coast and I haven't...that lucky little SOB.

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

surgery is key, imo.  Getting as much cut out as you possibly can really does make a difference in outcome.  I was fortunate to have aggressive surgeons, and I also chose the most aggressive option, when I had the opportunity to make a decision.  I think it's always worth getting a 2nd opinion from a surgeon, rather than relying solely on the oncologist to make this call.

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Dx'ed stage III rectal cancer Nov 2004.  During PET scan to see how far it had spread (there was a worry it was all over abdomen), a lump in my breast that I had been 'watching' (mammograms yearly, self exams daily) 'lit up' as to being on the intake.  Most likely cancer, as well.  (Turned out to be stage II breast, second primary).

My oncologist said "If you survive the rectal cancer treatment, then we will treat the breast".  I responded:  "Change the 'If' to a 'When', and we have a deal!

Long story short, that was 10 years ago...

I was blessed to have both cancers respond to each of their first line protocols:  Chemo/rads and a J-pouch resection for the rectal, and lumpectomy chemo/rads following for the breast.  I remain NED....

I must add, though, that up until the time that it was waived, insurance companies refused to underwrite me....with dual primaries, there is no 'cancer free' consideration after 5 years.  So, I was one of the lucky ones that already had coverage(although VERY expensive), and then when the 'pre existing' clause was banished by the Obamacare, I quickly secured a new policy, at almost half the monthly premium....

As I posted a bit ago, I am living a totally different life.  I have retired, and with my beau of 23 years (who received a new heart transplant July 2013), live both in The States, and The Netherlands. And both of us are now authors....

*grin*.....what a lifestyle....*grin*...take THAT, cancer!!!!

 

Hugs, Kathi

dorookie
Posts: 1736
Joined: Jul 2007

What a great life you have, i would trade you in a second...ANd so good to actually hear from someone that benefited from Mr. Obama...LOL

 

Love you

HUGS
BETH

MrsCollazo
Posts: 6
Joined: Dec 2014

As a caregiver, I will respond for my new husband of two months but we have been together for for 10 years...  He was diagnosed December 2013 and staged at IIIC after surgery to remove the mass/blocked but I don't remember how many lymphnodes were effected, but obviously the count pushed him into C stage instead of B...  We were told it was an aggressive cancer, which in reading this network, I recently have come to think that the meaning of “aggressive” means "grows/spreads fast"...  Seven rounds of chemo until neuropathy set in unbearably...  

CEA test prior to his surgery showed 9 and after we stopped chemo 2.2, scan in July stated NED (thanks for the definition!)...  Then to return from our wedding and honeymoon in Europe to have a CEA elevate to 42...  Oncologist says we will need to start chemo treatments again, yet it has not spread to any other organs...  We will meet with him on Monday to determine length and regiment...  

Thank you ALL for your comments as we will take those suggestions and incorporate them into our treatment... Especially, speaking with our surgeon who we have an appointment with this month...  We will also start to monitor the medications/dosage so we can have further details...  

United in the FIGHT!

~Mrs

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

   I was dxed with an aggressive stage 3 c colon cancer that had invaded six lymph nodes. My surgeon took part of my transverse and descending colon. He was not optomistic and stated that it would probably get me within three years. Too aggressive , too many nodes were his words. My oncologist originally put me on infusions of 5fu and leucovorin but after a month and five days of continuous infusions he said I was fast approaching renal failure so he changed over to 5fu and a drug called levamisole and all up I had 48 weekly infusions of 5fu and 234 tablets of levamisole. My surgery was on the 22nd of jan 1998 and I have been cancer free ever since. I have a raft of ongoing auto- immune diseases that they believe are linked to the original chemo therapy I had. The drug levamisole is an immunomodulator normally used by vets to control parasites in domestic and farm animals. It was banned for use on humans in the US in 2001 because of often fatal side effects. It was a weight critical dose ,too much killed you ,too little did nothing to the cancer and just right seemed to work for some of us. Ron.

Easyflip's picture
Easyflip
Posts: 588
Joined: May 2013

Diagnosed IIIb march of 2013. 

Immediate colectomy plus 12 rounds of Folfox

Liver met removed sept 2014, no adjuvant chemo

First post surgery scan will be in early January 2015

Crossing fingers, carrying a rabbits foot holding a four leaf clover, avoiding ladders, black cats,broken mirrors and throwing handfuls of salt over my shoulder : )

wolfen's picture
wolfen
Posts: 1320
Joined: Apr 2009

A tough outlook, but we somehow adapt. I use the word adapt instead of accept as some things are just not acceptable.

I am Wolfen, mother of Johnnybegood and widow of Ron.

Ron lost his battle with H&N and Lung Cancer on May 5, 2013 only 6 monts after diagnosis and Johnnybegood lost her batlle with Colon Cancer on July 27, 2014 after 6 years. Both of them were true warriors.

Although I don't post often, I remain on the forum among my "family".

Luv,

Wolfen

dorookie
Posts: 1736
Joined: Jul 2007

I too dont post often, i get conflicted at times, because for whatever reason I am still here, stage 4, and yet just passed 6 years, i struggle with why me, although i know i shouldnt, we have lost so many to this beast, i am glad to see you still around, i am truly sorry for the loss of your husband and more recently your wonderful daughter, who we all loved so much!

HUGS
BETH

abrub's picture
abrub
Posts: 2094
Joined: Mar 2010

Dx'd April, 2007.  Surgery, intraperitoneal and systemic chemo.  NED since, and leading full, normal life.

Alice

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

diagnosed April 2011, blocked colon 3 places , left Hemi emergency operation , took out 10 lbs , stage III

i refused chemo and radiation, changed eating habits. CEA stays around 1.1  and declared NED.

i am a optimist and take things one day at a time, do I worry ......,, Ofcourse .....,, lately some stomach issues

will do test in 2015.  I am born in the Netherlands , met my husband when visiting friends of my mother in Montreal.  I have been living in Canada since 1970

wishing you all Merry  Christmas

lilpep1972's picture
lilpep1972
Posts: 80
Joined: Dec 2014

Hello im Chris.

i was Dx less then a week ago an my surgery will be tomorrow actually. They just told me a blockage in my sigmoid colon looks like late stage 2 early 3 ... I have been since arguing with my family about after care. I was very much thinking of NOT getting chemo going a holistic route and seeing what happens but I'm getting blasted for this.. Can you please give me some input on whT made you decide NOT todo chemo ?? Thank you sooooo much. Hope your felling wonderful today and may God bless your family during this holiday season :) :) 

Trubrit's picture
Trubrit
Posts: 4828
Joined: Jan 2013

You can also send a private message, Chris. Just in case Thingy doesn't get to see this post. 

Tru Sue

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

Thingy may comment too, but I thought I would also respond here...from what my doctor said, there is some thinking now that doing chemo when nothing is visible may not be the best approach, esp if no lymph nodes are involved.

Do you know if you had node involvement?

The things I think this approach requires are careful monitoring and access to surgery as needed.  For me that meant having regular PET scans once I was no longer doing chemo.

Good luck with your surgery, let us know how you're doing!

Lovekitties's picture
Lovekitties
Posts: 3327
Joined: Jan 2010

While I am not "Thingy" I also refused chemo and radiation.  I had a rectal tumor.

My surgeon offered both before surgery to try to save some organs, but I felt "out da.. spot" was best choice, even though I now have a perm colostomy.

I also declined any after surgery treatments.  I was never given a professional staging, but from what I have read and know of my situation it was either 2 or 3.  It has been 5 years since diagnosis.

I made my choices based on my age ( was 62 when diagnosed), personal circumstances ( grown children on their own, no spouse or significant other), and financial considerations (at the time no medical insurance).

I determined that quality of life was more important than quantity to me.  My family was accepting of my choice.

Each of us is different and can have very different results with the same treatments.  The best we can do is get the most information available.

The choice of what to do now is not an easy one, but it is one you ultimately must feel is right for you. 

Best wishes with the path you choose.

Marie who loves kitties

 

dorookie
Posts: 1736
Joined: Jul 2007

I am so happy you are LIVING and enjoying your life!!!

I have had aome serious issues since treatment, but in all i can say I am NED, and that makes it worth it...  One day i will be able to post i am out there LIVING as well :)

 

HUGS
BETH

lilpep1972's picture
lilpep1972
Posts: 80
Joined: Dec 2014

Just Dx four days ago. Colon, Dr is guessing right now late stage 2 early 3 maybe I should ask my team for the lotto #'s in next weeks drawing as well and take everyone on this board on a very well deserved trip to say Bora Bora.. Would that be ok with everyone??? lol....Sorry jus trying to keep positive,don't think it has actually sunk in yet. Last week I was in gym at 430 am then off to work then to coach my girls basketball team now I'm here..life is wacky sometimes I guess....I'm going in for surgery tomorrow Dec 16th with Dr.Paty at Sloan Kettering. Haven't even yet received my surgery time As of yet... It's 5am an I went to sleep at 12:30 I'm guessing my dreams weren't so pleasant :(  I would like to say hello to everyone on planet Colon and wish everyone happy holidays. I just joined this site two days ago and everyone on here is wonderful and very helpful. Thank you very much :) I guess I will be seeing a lot of everyone here and thank you for welcoming into your family I greatly appreciate it.  

DonnaLullo
Posts: 1
Joined: Dec 2014

Howdy,

I was dx 2 years ago with Stage IV colon cancer, mets to the liver.  Colon reseiction, 12 rounds of fulfox, 12 rounds of folfuri, Avasitin and Xeloda.  Chemo was working to keep my CEA's low, put can't seem to get a maintance chemo to work.

My last few rouinds of chemo doc put me on a lovely drug called Vectibix.  With all the side effects of chemo, the Vextibix took 1st place as far as bad side effects.  Horrible acne/rash on my face, next and back.  I got use to the ugly rash, hard to avoid mirrors, but the problem was the pain from the rash!  OUCH!!  Doc stopped the Vextibix after the 2nd treatment. Thank goodness.  I am scheduled for a liver resection late January and am hopeful that they can sucessfully remove my 3 tumors.

Can't wait...hopefully I will be on a chemo holidayCool 

It is heartwarming reading all the posts.  I just joined, so I have lots of posts to read. We need to keep our boxing gloves on tight and fight this beast! It's not a fun fight, but it's a fight we cannot give up on.

Happy Holidays to all you fighters out there, and a special thanks to all the caregivers. 

 

Donna

dorookie
Posts: 1736
Joined: Jul 2007

that you are here, but i have to say you have found the BEST group of people in all the lands, here you will find friends, strengh, courage, joy and some tears, but all in all, its the best place to be, so welcome sit back and enjoy the ride, oh wait we are not on southwest...LOL Seriously welcome, please feel free to ask anything at anytime, there will always be someone with an answer or some sort of support.

 

God Bless

HUGS
BETH

RickMurtagh's picture
RickMurtagh
Posts: 584
Joined: Feb 2010

DX III two tumors Feb 09

Chemo/rad March 09

Ileo June 09

FOLFOX July 09

Takedown April 10 (failure!)

Mets to the sacrum and presacral area March 11 - NOT

Chronic infection of sacrum that looked like cancer (including a blockage and bone loss)!

Permanent ileo April 11

almost 6 years NED!

happy to be alive!  6 grands and counting!

xmas reminds me how lucky i am to be here! like kathim, the "additional" time granted me has not been taken for granted.  and like kathim, i am really enjoying life - w/out speaking multiple languages, travelling the world, living in two countries or publushing a book :) (you go girl!)

pardone me now, i have to go change my appliance before it leaks all over the floor...or worse...

UncleBuddy
Posts: 1019
Joined: Aug 2013

My brother was diagnosed with stage 2a rectal cancer in 2011. He had a lower anterior resection, radiation and chemo.  

In 2012 he went to stage 4 with mets to the lungs and 1 in the liver. He is currently on chemo for palliative care. He's stable at the moment, so I count my blessings!

We live in NY state (neighboring towns) and I hate the winters here. I am trying to convince the husband to move south near the grandbabies, but he is a New Yorker at heart. I don't mind the cold as much as I hate the ice and snow. My dream home would be a condo on the ocean. Smile

dorookie
Posts: 1736
Joined: Jul 2007

Caregivers are just as much apart of this fight as the one in treatment.  I wasnt the caregiver my partner Wendy was, and seeing her go through some really tough times during treatment times and for several years after, she tries to hide her feelings about the fears or thoughts she has about the beast coming back, but we deal with it one day at a time.

I truly hope your dream comes through and you get your house on the beach near the warm ocean.  Wendy is from Buffalo and she swears she would never go back because of the cold, snow and the ice, she lived there for the first 35 years of her life and will not return...LOL So good luck on getting out of NY.

Merry Christmas and Happy New Year,

 

GOD BLESS
HUGS
BETH

 

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

hi again everyone. I have been very busy with my o so sick daughter. But I have replied back to Chris' in a private letter. I did have only one lymph node involved. I have been very lucky so far. Still lots of colon issues, now after 3 years no more colonoscopies and or ct scans scheduled here in Canada. Very scary for me indeed. Last time I was almost to late and don't want to go there again.

wishing you all a very healthy 2015 . Marjan

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Diagnosed with Stage 1 testicular cancer first in October 2011. Right testicle removed. 22 radiation treatments. Diagnosed Stage IV colon cancer in April 2012. Colon resection #1, Lung Resection, 11 rounds of FOLFOX, six rounds of FOLFIRI + Erbitux, Liver Resection #1, six more rounds of FOLFIRI + Erbitux, Colon Resection #2, Liver Resection #2, six rounds of FOLFOXIRI + Avastin, Liver Resection #3. 

After 7 surgeries, 22 radiation treatments, 29 chemo treatments...

I'm currently NED and still recovering from the most recent surgery (3rd liver resection on 12/5). Once I'm healed a bit more Onc wants to give me more 5FU and Erbitux, then switch over to just Erbitux. Hoping that will keep me NED. 

I'm still celebrating my 2013 Christmas Gift - CEA under 1.0.  

God bless us all, everywhere.

 

 

Helen321's picture
Helen321
Posts: 1388
Joined: May 2012

Nicccccceee! to that CEA!

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

dx in august 2006. 4 thoracic surgeries, colon surgery, liver surgery , 10 months of chemo. All this is over the last 8 years but still teaching,coaching,and surfing. Just got back from 1 week skiing at June Lake with family and friends. All my best to those caregivers and people struggling with this. It sucks, its unfair, it is frustrating. I hope and pray that all find some way to mentally and physically be stronger, level and enjoy moments. Thanks all.

Chip

Helen321's picture
Helen321
Posts: 1388
Joined: May 2012

Do you have any room in your suitcase?  I can ball up pretty small!

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

I've been in treatment (doing chemo) for almost 5 years with time off for various surgeries. I've really enjoyed the time off of chemo.  Right now I'm doing chemo weekly (oxiplatinum, levorcon and some other one that starts with an "L" sorry about the spelling chemo's wrong) I would love to be off of chemo, but it so far has kept me alive (along with surgeries) so on it I stay On it, so many surgeries I can't keep count, I think three on colon, three on liver, one for ureter tumor, and my lung ones have stayed small and pretty much left alone ai keep forgetting I actually have lung tumors) they grow a little then shrink a little) currently living in Santa Cruz, CA, and HAPPY to be alive and living life.

Winter Marie

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

   You have done it pretty tough over the years but you keep hanging in and waiting for the next big breakthru. Wishing you all the best for the New year ,hoping it brings something miraculous  your way. Ron.

Helen321's picture
Helen321
Posts: 1388
Joined: May 2012

Yeahhhh 5.5 years is awesome!  Helen Smith of Queens, NY, polyp found on rectum at age 28 by general practitioner who should have sent me to a gastroenterologist but instead told me to get it done eventually and not to worry because only 10% turn cancerous and I'm so young.  I was young, I was going to live forever,  what did I know, I was clueless as to what a polyp was and we didn't have the internet.   Had bleeding, diagnosed at age 42 Feb of 2012 as stage I.  Simple surgery, 10% chance of it coming back, was happy to move on.  Went for 9 week checkup and was shocked to hear tumor had grown back.  Doc suggested no chemo and another simple surgery, that didn't sound right (love the internet).  Switched to Sloan.  Tumor was indeed back, at some point scan showed lymph nodes and possible ovaries so chemo, rad, tumor to close to anus so full removal and ovary removal, colostomy and here I am almost 2 years out and planning to live forever again!  Yeah to life!

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 507
Joined: May 2012

Diagnosed Stage IV April 2012 1 met to liver, CEA 54,  6 weeks chemoradiation, surgery in a June. Surgery removed rectal tumor, liver tumor, and gallbladder.  12 of 21 positive lymph nodes.  Started Folfox July, 4 weeks after surgery.  CEA 0.5.  Finished all 12 rounds of Folfox December, PET scan clear and CEA 0.5.  I live in Braselton, Georgia with my husband and twin boys that are now Seniors in high school.  The picture is of my twin Grandbabies Harper and Lucy.  I am so happy to be here still and see things I didn't think I would see!

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

I was fortunate enough to be diagnosed at Stage 1 on Nov. 21, 2007. I had surgery and have been cancer free for 7 years! I did have a polyp found during a recent colonoscopy, and that was removed. I have a daily reminder of the experience via the abdominal pain that has been with me since the surgery. Frown

 

I don't come here as often or post as often as I did in early days, but I do think about and pray for those I have met on this board

 

*hugs*

Gail

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

I'm pretty sure very few remember me!  Dx 10/03/2001, been clear of stage 4 (liver mets) since 10 hr surgery on 01/26/2002.  No recurrences, nothing.  I'm happy to say I'm boring in the world of cancer these days!

 

Now...let's hear from Spongebob, Scouty, Lisa P, Suzanne, Ron, and the rest of us ancient cats!

 

 

--Stacy

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

I always reckoned the only reason I survived was because I refused to make a will. It is truly wonderful to see you again mate I hope the world is treating you right, Hugs Ron from downunder.

Momofbbcc
Posts: 15
Joined: Sep 2014

Hi Stacy -

My dad , who is 77, was diagnosed with colorectal cancer in July 2013.  He had oral chemo and radioation, had surgery, then did IV chemo.  We just founf out that his cancer has spread to his liver.  His oncologist said it is inoperable.  He has 1 tumor (1.2cm) on one lobe and 2 tumors (1.8 cm) on the other lobe. He started more IV chemo on 12/22.  Where did you get your suregery done?  Do you think we should seek an opinion about surgery from someone else other than his oncologist?  He aalso has multiple enlarged nodes.  We live in NJ.  Thanks for any help you can give.

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

I remember you, Stacy!!

 

*hugs*

Gail

Joy1216's picture
Joy1216
Posts: 293
Joined: Mar 2006

I was diagnosed with Stage I colon cancer in March of 2006.  I had a right hemi-colectomy and have been NED ever since.  I have had numerous colonoscopies since surgery.  The last few times polyps were discovered.  A couple were pre-cancerous but the last one was benign so I am now on the 5-year colonoscopy plan.  I often have digestive problems but they are just an inconvenience.  I suffer from survivor's guilt at times when others pass away.  My faith is strong and I believe there's still something God has for me to do on this earth.  Why am I still hanging around here?  Recurrence is still in the back of my mind and I want to know about all the latest treatments.  I also want to hear how others are doing and I pray daily for a cure for cancer, healing, and relief from side effects of treatment.

Joy

Cathleen Mary
Posts: 827
Joined: May 2011

My cancer made itself known in July of 2009.  Stage 2 with no lymph node involvement but some perineural  invasion. Infection causing 3 more hospitalizations and 3 IV antibiotics at home for 3 months.  Conflicting opinions re chemo. I chose to forego. NED ever since.  CEA hovers between 3 and 5. Clear scans, clear scope.  Repeat colonoscopy in February.  My Dad and 4 maternal aunts died of CRC but genetic studies have come up negative. In November, I had a small lacunar stroke. Deficits have pretty much gone except handwriting.

I work full time and travel with my job. That will change...one stroke per job is enough :-)

This forum has been very helpful to me, particularly with my initial chemo decision and with an inconsistent CEA. A great place for a soft landing.

CM

Fight for my love
Posts: 1530
Joined: Jun 2009

My husband's stage 2 rectal cancer was diagnosed in May,2009. Followed by preoperative radiation and 5fu pump for 30 days, surgery removed the whole rectum, and 12 round chemo after surgery. He had been doing good until the end of 2013, after 4 years and a half, cancer came back. After going through CT scan,PET scan, finally biopsy found tumor came back at original resection site. Pelvic local recurrence is tough, not a lot of options because it is a tight area, all the organs in pelvic is so closed to each other. He had 8 rounds of folfiri with erbitux, followed by 28 days radiation and 5 fu oral pills, finally 5 surgeons did pelvic exenteration and reconstruction on Oct 29,2014( 9 surgeries at one time, it was a 10-hour surgery). Pathology report came back good with clear margin. He is still recovering from the surgery. He is going to have a CT scan on Jan 18, hope for a NED result.

dorookie
Posts: 1736
Joined: Jul 2007

Its so great to read everyone's story.  You never know who is lurking out there that will read one of our stories and can relate, maybe they will feel more comfortable about posting, or asking questions.  Thanks to all who have posted, looking forward to seeing many more stories, i know there are lots of us out there :)

 

HUGS Beth

 

danker's picture
danker
Posts: 1182
Joined: Apr 2012

At age 77 diagnosed as stage2 boardering on 3 1n 2009.  Chemo,resection,ilio and reversaal all in 2010. Colonoscopies in 2011, and 2014

both NED Will be 83 in June. Apparently this can be beat!!!

janderson1964
Posts: 2215
Joined: Oct 2011

Diagnosed 10/25/05 with stage IV colon cancer.

10/31/05 colon resection

12/16/05 liver resection

1/06 to 7/06 12 rounds FOLFOX plus Avastin, NED.

7/07 routine scan showed a new spot on liver

8/07 second liver resection

9/07 to 2/08 10 rounds of FOLFIRI plus Avastin NED

10/11 routine CT showed large mass in liver

12/11 third liver resection, 70% of liver and gall bladder removed plus part of diaphram

1/12 to 7/12 12 rounds of FOLFIRI plus Vectibix NED

2/14 routine scan showed new liver spot, 2 chest wall lesions

3/14 to 6/14 5 rounds of XELIRI plus Vectibix

7/14 y90 radioembolization to liver tumor

8/14 to 11/14 7 rounds of XELIRI plus Celebrex

12/14 cryoablation to remaining liver tumor and chest wall lesions

Scan scheduled for 1/8/15 to see how sucessful the ablations were

John212's picture
John212
Posts: 116
Joined: Jan 2015

I found out I had colon cancer just about one year ago (1/14/14) from my first-ever colonoscopy at age 62. That led to an immediate CEA test and a CT Scan and a recommendation that I find a surgeon and an oncologist. It's my sense of humor, I suppose, but I asked the gastroenterologist if the Yellow Pages would be a good place to start. He was less amused than I hoped.

Here's the rundown:

January, 2014 - Colon resection to remove a distal sigmoid tumor; dx T3 N1, two of twelve lymph nodes involved

February, 2014 - Install a Mediport in advance of chemo treatments

March, 2014 - Begin 12 rounds of FOLFOX with 5FU on a two-week cycle turnaround

June, 2014 - During treatment #7 I had a violent reaction to the oxaliplatin so we dropped it from the regimen

August, 2014 - Completed the FOLFOX treatments

January, 2015 - One-year followup colonoscopy and CT Scan scheduled for later this week

I have to say that I've been lurking on a few of the cancer forums and I've found this one to be especially warm and  welcoming. I plan to stick around - here and in life in general. I live in a suburb of Chicago.

janderson1964
Posts: 2215
Joined: Oct 2011

I am glad you like this forum and the folks here. Welcome. I might suggest that you start a new post introducing yourself so more people are likely to read it and get to know you.

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