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breast to bone

powermom
Posts: 22
Joined: Oct 2013

Checking in for my daughter, she is 31yrs old, and has mets for 4 yrs. at this point, the mets are quite invasive throughout the bones, many lesions etc.., the onc had her on cytoxan and aromasin, but being that it did not help, started her on Halaven. so, i'd like to ask how good are the results with Halaven? What's next? Very surprised with the quick spread from 2 months ago. Does Halaven shrink the cancer or just will keep it from going further? Thanks in advance for your comments

ggiampao's picture
ggiampao
Posts: 4
Joined: Oct 2014

sooooo sorry to hear, she is so young! my mother has breast cancer the mets to the bones and pretty much everywhere else...this is the nature of the diesease its so horrible....and that was all in 2 months aswell. my mom has opted out of chemo now because it makes her feel sick and she wants to have quality of life...my thoughts and prayers are with you and your daughter

powermom
Posts: 22
Joined: Oct 2013

Hey, so sorry to hear about ur mom, i could see ur pain. Did u guys discuss w the onc re-dif meds? mayb she cud take something milder, my daugher had to change many times, either it was not workg or it made her sick. Bone mets is something that ppl could live for awhile so i just would like to give u strengh and mayb try other things? If i could help, then let me know. Best of luck!

AMDouglas's picture
AMDouglas
Posts: 1
Joined: Dec 2014

my treatment is FASLODEX injections 3times first month and now once a month.  I also receive injection of XEGVA monthly.  My breast Cancer spread to cranium and pelvis as well as L4 and L5.  I am doing 15 radiation treatments to pelvis and L4 and L5.

powermom
Posts: 22
Joined: Oct 2013

So as it turns out, it did not get better on Halaven, she was started on Paclitaxel, and a biopsy was done yesterday to find out the genetics of this monster. Now we wait. But in the meantime, i did start looking into different places for a 2nd opinion, the onc told me she kinda ran out of ideas.... 

Magy
Posts: 2
Joined: Jan 2016

Hi am new here am so sorry for your daughter I hope she is well now I know it was from 2 years but I hope she is doing well xx

SLS100's picture
SLS100
Posts: 25
Joined: Jun 2016

i am new to discussion board. sounds like they will keep experimenting until they find the right thing. Good luck!

Tekirian's picture
Tekirian
Posts: 3
Joined: Dec 2016

Discovered this site about 2 weeks ago when I joined. This is my first time writing and I have so many questions I don't know where to start. I hope there are other survivors out there who are willing to share their story and knowledge with me. I was diagnosed with triple-negative breast cancer which spread to chest wall, top of lungs and bones. I am shocked at this discovery because I had a mammogram less than a year ago. I had chemo for the 2nd time Thursday. I've been having a lot of abdominal pain for 2 days and tested positive for a UTI with a test kit today. I also have an ulcer which has been causing pain. My question is, who do I call for help with this? I could not find any doctor or oncology nurse to return my calls due to the weekend. Any suggestions?

msgreen1958
Posts: 3
Joined: Dec 2016

Well I saw your post. I have metastatic breast cancer. I am not triple negative, but the cancer did spread to the spine and  liver. I finished my chemo on Dec. 29, 2015 almost a year. Thank God, that is over...I have been taking letrozole, which has kept my tumor markers down, infact almost normal. At this time I only have a little pain in my spine. My liver doesn't cause any problems at this time. I was diagnosi with breast cancer, April of 2012.  

Tekirian's picture
Tekirian
Posts: 3
Joined: Dec 2016

Sorry, I didn't re-enter this in my prior post when I edited. I finally got in touch with my GYN who called in a prescription for Nitrofurantoin for me. She said I needed call my oncologist. After explaining I could not get return calls and saying I was having pain she decided to help. This was very taxing and only added to my stress.

Thank You all for any suggestions.

gardens
Posts: 2
Joined: Jun 2016

 I have bone ca , it came from my breast which i think came from an  event i had with a car door jam.  which of course they don't xray because they won't do anything with broken ribs.  2 years later  i have this on that same side. and so never though much about the chronic pain on that side. and when finally got un bareable. ca in back of breast that even the mamogram didn't pick up.  oh i was upset to say the least.  and i love my dr but he said my bones were riddled with ca and that is something you don't really like to hear.  a little less word would have helped.  i have been on aramicex. off now ibrance, faslodyx, and xgeva . the only one now is xgeva and i have started tamoxifen as now in lung.  the pain is another issue. but try to tell myself its arthritis real bad.  i do guided imagery and that helps to. i am on pain meds and will probably go on fentanyl soon. sitting is not good for my body it hurts. sleeping is a mess. once out ok for few hours. i use menthol patches for my back. at present and that helps to relax the muscles around that part of spine. i use heating pads. and try to walk it least 1 hour total a day. to keep my bones building as best as can.  i use a prayer every night on internet around midnight to pray with others.  its one  about 8 mine 24 sec. power of christ. not sure of name. i figure if alot of us are praying at the same time we have more power to defeat this monster.  there is a book called radical remission  that we use at met ca group. . has some good thoughts. blessings to you .. those is this club that no one wants to be in. may  you have some peace to your day. gardens

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