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9 years and counting
janderson1964
Posts: 2215
Joined: Oct 2011
Oct 25, 2014 - 8:08 am
Today officially marks 9 years since I was diagnosed stage IV. I am going to buy a big steak for us to cook on the grill to celebrate making it 9 years but first a long mountain bike ride followed by a long motorcycle ride.
Amazing! Let's hope this becomes the new normal for everyone with stage 1V. Jeff, you are such an inspiration and support on this board....thank you. Enjoy!!!
I'll be at 6 years next month. If I could have anything to eat, it would be my Mom's crispy homemade tamales with fresh salsa on top And a cup of coffee. Yum!
nine years - fantastic. And, what's good about your situation is that you seem to have excellent quality of life. clearly if you are mountain biking, etc.,the beast has not defeated you, your immune system, or your spirit.
I think you have an indominatable spirit as well. You are always right on top of things asking questions and researching when you have a recurrence. Keep fighting brother.
Sweet ride. I am fortunate enough in Virginia that I can ride through most of the winter. In fact treatment holds me back from riding more than the weather does. I am on my off week from treatment now. I woke up this morning and was feeling pretty good and decided to ride to work. Then I got out of bed and started moving around which made me feel weak and dizzy. So no riding today. Hopefully tomorrow.
When my first husband passed away, he left a basket 64 pan head. It took my children and I 7 years to find all the original parts at the swap meets. I found a mechanic who would come to my house and teach us how to fix it. We were dirty, greasy and happy. We finally finished the project but found it was too big for us to handle. We ended up selling it but the project certainly kep us close to him in spirit.
I wish I could say I was NED but happy to be alive and stable. We don't get nearly enough good news on here. It is heartbreaking all of the great people that we lost.
Thank you so much for your positive post!!! I love hearing about how people are living and thriving. Just a few months ago I felt like I'd never be normal again but I'm riding my horse again and life is pretty good. I'm even going to work a couple of days next week where I used to work while an employee goes on a holiday. I'm on my third treatement and it's not bad this time, better than number two. They always talk about how the side effects are cumulative so I was scared.
Give Angel a hug for me,please!! I love that cute little face!
Cumilitive in some respects. I don't think so as far as nausea and dirarrhea. It seems like every time I have terrible side effects the next couple of rounds wouldm't be as bad.
Angel is doing great. they took the stitches out from the surgery and remobed the splint. She still has her whole lef wrapped up and is supposed to be confined to prevent running and jumping for another 6 weeks. It is so tough since she was always allowed to move freely and she is only 6 months old so lots of energy and she doesn't understand.
Thanks Craig. You still have me beat though. You are the real inspiration around here. I am just filling in until they can get your pain under control.
Joined: Aug 2012
You are an inspiration Jeff!
You are an inspiration Jeff! Enjoy your day..,and your steak!
Joined: May 2011
Amazing! Let's hope this
Amazing! Let's hope this becomes the new normal for everyone with stage 1V. Jeff, you are such an inspiration and support on this board....thank you. Enjoy!!!
CM
Joined: May 2009
I'll be at 6 years next
I'll be at 6 years next month. If I could have anything to eat, it would be my Mom's crispy homemade tamales with fresh salsa on top And a cup of coffee. Yum!
Joined: May 2012
Go Nana!!!!!!!!
Go Nana!!!!!!!!
Joined: Apr 2010
Jeff
Your anniversary day plans sounds fantastic, hoped you enjoyed it very much, and so glad to have you around. You go buddy!!!!
Winter Marie
Joined: Mar 2010
Congratulations on nine years
Your active life and fight for solutions is admirable. So happy for you!
Joined: Jun 2006
well done
congrats on that.....such a long time as stage IV....proud of you and still fighting. MMMMMMM nice big steak....good boy......enjoy
mags
Joined: Jan 2013
I'm having tonight steak too
but for me it's 30 years of marriage.
congratulations on nine years. Here's to another nine, and hopefully less treatments.
Sue - Trubrit
Joined: Oct 2011
Congratulations on 30 years
Congratulations on 30 years of marriage. That is impressive in this day and age with so much divorce.
Joined: Jun 2009
You are a hero! Your story
You are a hero! Your story really inspires me.
Joined: Oct 2010
Congrats!
You have been through so much and I am very impressed you can still mountain bike!! My husband's 6 yrs is in Dec.
Enjoy your steak!
Angela
Joined: Oct 2011
Steak was awesome. I mountain
Steak was awesome. I mountain biked Thursday, Friday, and saturday and did about a 3 hour ride on my motorcycle yesterday.
Joined: Oct 2014
9 yrs and counting
Hello,
That is wonderful. Do you still have to do chemo?
Joined: Oct 2011
Yes I am currently doing
Yes I am currently doing chemo. However I was fortunate enough to have 3 long periods of being NED.
Joined: Jun 2012
Congrats!
nine years - fantastic. And, what's good about your situation is that you seem to have excellent quality of life. clearly if you are mountain biking, etc.,the beast has not defeated you, your immune system, or your spirit.
Here's to nine more!
atb
Karin
Joined: Oct 2011
Thank you Karen. You are one
Thank you Karen. You are one of my hero's. A real pioneer in my mind trying Dendritic cell vaccine and trials.
Joined: Sep 2010
yay yay
yay im so happy for you
Joined: May 2005
Congrats Jeff!
Keep on bikin'
Joined: Oct 2011
Thanks Phil. Its good to hear
Thanks Phil. Its good to hear from you.
Joined: Apr 2012
Congratulations Jeff. I would
Congratulations Jeff. I would say I'd ride with you but it is very cold here in Michigan. Yesterday marked 3 years for me.
Sending Love your way as you celebrate.
Joined: Oct 2011
Congratulations on your 3
Congratulations on your 3 years. Wht knid of bike do you ride. I have a triumph america which i have done several modifications.
Joined: Jan 2012
Congrats
Wish you the best j Anderson ! Here's to your indomitable spirit !
Joined: Oct 2011
I think you have an
I think you have an indominatable spirit as well. You are always right on top of things asking questions and researching when you have a recurrence. Keep fighting brother.
Joined: Apr 2012
I have a 1998 Softail Custom.
I have a 1998 Softail Custom. I need to connect the trickle charge for the winter.
Joined: Oct 2011
Sweet ride. I am fortunate
Sweet ride. I am fortunate enough in Virginia that I can ride through most of the winter. In fact treatment holds me back from riding more than the weather does. I am on my off week from treatment now. I woke up this morning and was feeling pretty good and decided to ride to work. Then I got out of bed and started moving around which made me feel weak and dizzy. So no riding today. Hopefully tomorrow.
Joined: May 2014
64 panhead
When my first husband passed away, he left a basket 64 pan head. It took my children and I 7 years to find all the original parts at the swap meets. I found a mechanic who would come to my house and teach us how to fix it. We were dirty, greasy and happy. We finally finished the project but found it was too big for us to handle. We ended up selling it but the project certainly kep us close to him in spirit.
Yolanda
Joined: May 2012
You're one kick ***
You're one kick *** dude!!!!!!!!!!!!! Congrats on showing the odds who's boss!
Joined: May 2014
Congratulations
good job to everyone who is celebrating anniversarie. It's great news. Keep up the good work!
Joined: Feb 2009
Celebrate Your Life
Glad that you are getting that steak and celebrating. Wishing you the best in the future and thank you for being such an inspiration on this board.
Kim
Joined: Oct 2011
I love everyone here and feel
I love everyone here and feel it is my obligation to give back as much as I can through my years of experience surviving.
Joined: Nov 2013
Congratulations!
That's so amazing!! 9 years!!! Gd bless you!!
Joined: Oct 2011
Thank you. It has been
Thank you. It has been certainly tough almost unbearable at times but well worht it to be here for my wife.
Joined: Aug 2005
Dancing and dancing and dancing!!!
Hugs, Kathi
Joined: Oct 2011
You should be dancing as well
You should be dancing as well for your long term survivorship.
Joined: Oct 2011
How the heck did I miss this?
You're one of my heroes, Jeff. You've showed a lot of class and good spirit during an unbelievably long battle. I really admire you for it.
Keep it up!
Joined: Oct 2011
Thanks for the kind words.
Thanks for the kind words. Although I don't know if I deserve all of that.
Joined: Sep 2012
I love to hear such great
Joined: Oct 2011
I wish I could say I was NED
I wish I could say I was NED but happy to be alive and stable. We don't get nearly enough good news on here. It is heartbreaking all of the great people that we lost.
Joined: Sep 2014
Thank you so much for your
Thank you so much for your positive post!!! I love hearing about how people are living and thriving. Just a few months ago I felt like I'd never be normal again but I'm riding my horse again and life is pretty good. I'm even going to work a couple of days next week where I used to work while an employee goes on a holiday. I'm on my third treatement and it's not bad this time, better than number two. They always talk about how the side effects are cumulative so I was scared.
Give Angel a hug for me,please!! I love that cute little face!
Joined: Oct 2011
Cumilitive in some respects.
Cumilitive in some respects. I don't think so as far as nausea and dirarrhea. It seems like every time I have terrible side effects the next couple of rounds wouldm't be as bad.
Angel is doing great. they took the stitches out from the surgery and remobed the splint. She still has her whole lef wrapped up and is supposed to be confined to prevent running and jumping for another 6 weeks. It is so tough since she was always allowed to move freely and she is only 6 months old so lots of energy and she doesn't understand.
Joined: Mar 2012
wohooow
Always good to hear such longtimers stories. Go on and let nothing stop you!
Hugs from Germany
Petra
Joined: Oct 2011
Mountain biking and motorcyle
Mountain biking and motorcyle riding today. Insurance is really trying to stop me lately.
Joined: May 2013
That's awesome Jeff!
Way to beat the odds! You are one tough guy, keep on pioneering and blazing the trail!
Easyflip/Richard
Joined: Jun 2009
i wanna be like jeff
w2go man.
Joined: Oct 2011
Thanks Craig. You still have
Thanks Craig. You still have me beat though. You are the real inspiration around here. I am just filling in until they can get your pain under control.