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happy day

aggie0053's picture
Posts: 110
Joined: Mar 2011

had my 12th treatment 2 weeks ago had ct scan yesterday results said no active disease no mestastatic disease think i'm going on a maintenance program. just had to let you know, pretty much i'm telling everyone i know and some i don't

Posts: 2215
Joined: Oct 2011

That is great news. It makes you feel free doesnt it. I have experienced that feeling a few times and yern for it again. Go out and celebrate.

Yolllmbs's picture
Posts: 361
Joined: May 2014

congratulations! May you be Ned forever


Easyflip's picture
Posts: 588
Joined: May 2013

Congratulations! Keep us posted on 'maintenance chemo.' Not sure what that means when you're NED and it's effectiveness for overall survival. Anyway, good for you!


Cathleen Mary
Posts: 827
Joined: May 2011

We celebrate with you!!!!  Great news. Keep telling everyone you meet.


pilarica's picture
Posts: 44
Joined: Oct 2014

Wonderful news!!!!! Congratulations may you stay NED forever.


all the best,


herdizziness's picture
Posts: 3642
Joined: Apr 2010

That's wonderful news, so very happy for you, I bet those words were fantastic to hear!!!

Winter Marie

aggie0053's picture
Posts: 110
Joined: Mar 2011

thanks everyone, yes they were really good words to hear , but deep down you still have a feeling of (your cancer came back) just can't think about that, i go tomorrow to my onc shes talking about iv of avastin every 3 weeks and a pill daily for 2 weeks for 3 to 6 mths, don't know if i'm ned whats the chemo doing?

Posts: 105
Joined: Sep 2014

While they say you're NED because the PET scan doesn't show activity and no visible tumors, they still suspect cancer is there at a smaller cellular level.  I'm in the same boat as you, 13 treatments and NED.  I'm currently doing what they call maintenance chemo at a lower dose with Avastin, but am wondering how long I want to do that vs. take a break for a while.  My onc told me that if I stop chemo then almpost 100% chance it will come back.  What he didn't tell me is what's the percent chance it will come back if I remain on maintenance chemo.  I'd be interested in hearing how that differs from your doctors opinion/explanation.  Great news, and I hope you stay in NED long term.

aggie0053's picture
Posts: 110
Joined: Mar 2011

just got back from my onc she said she's satisfied that i don't have to go thru anymore chemo, i get ct scan in 3mths she said they will follow close.

Annabelle41415's picture
Posts: 6697
Joined: Feb 2009

That is excellent news.


Posts: 1019
Joined: Aug 2013

Great news!

Best wishes for the best of health.


lilacbrroller's picture
Posts: 412
Joined: Jun 2012

wonderful news! Congratulations



JanJan63's picture
Posts: 2482
Joined: Sep 2014

Hooray!!! Cool

lp1964's picture
Posts: 1240
Joined: Jun 2013

...the best of luck!!!


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