First chemo today

Freaking out again.....

Bendamustine and rituxen today.

Leaving for center now.

I got my smartphone with earbuds.

My note pad and pen

Water

And Me.

I don't want to have anything crazy happen. 

I pray I could sail threw this.

 

GG

Comments

  • jimwins
    jimwins Member Posts: 2,107
    Hey GG

    Good luck.  Hopefully it will be smooth sailing and you'll meet some nice people.  You're not alone. 

    Dog - Puppies Blinking photo AnimatedGIF-DogPuppiesBlinking.gif

  • givingrace
    givingrace Member Posts: 161
    jimwins said:

    Hey GG

    Good luck.  Hopefully it will be smooth sailing and you'll meet some nice people.  You're not alone. 

    Dog - Puppies Blinking photo AnimatedGIF-DogPuppiesBlinking.gif

    That's so cute !
    Everybody

    That's so cute !

    Everybody loves puppies in a basket huh. 

    I'm on rituxen pump now. Bendamustine next.

    My throat feels full and scratchy. Going to tell nurse.

    GG

  • givingrace
    givingrace Member Posts: 161

    That's so cute !
    Everybody

    That's so cute !

    Everybody loves puppies in a basket huh. 

    I'm on rituxen pump now. Bendamustine next.

    My throat feels full and scratchy. Going to tell nurse.

    GG

    Hi
    Other than the scratchy

    Hi

    Other than the scratchy throat and full ness. I sailed threw. I know things may change but I'm just staying in the moment. 

    Tomorrow will do Bendamustine alone and Neulasta shot thuresday. 

    Funny thing tho. I get so panicked watching the nurses put in IVs. It dawned on me....just stop watching !  Duh.  It worked alot better that way.

     Hugs

    GG

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,769 Member

    Hi
    Other than the scratchy

    Hi

    Other than the scratchy throat and full ness. I sailed threw. I know things may change but I'm just staying in the moment. 

    Tomorrow will do Bendamustine alone and Neulasta shot thuresday. 

    Funny thing tho. I get so panicked watching the nurses put in IVs. It dawned on me....just stop watching !  Duh.  It worked alot better that way.

     Hugs

    GG

    Super

    Sounds like you "sailed through," GG (spoken by a former submarine guy). You may remember from your previous treatments that chemo is a gift that "keeps on giving," and the effects often hit a day or two later.  I am not being a killjoy, but want you to recall that this is normal when it happens.

    If you have not had neulasta before, know that it can cause significant bone pain, but this is more common in older folks like me (I was 53 when I had my treatments) and anyone with significant arthritis.   Also -- I have always been very squimish, and have never watched an IV being inserted, or even a blood draw !   Wishing you well with a prayer,

    max

  • givingrace
    givingrace Member Posts: 161

    Super

    Sounds like you "sailed through," GG (spoken by a former submarine guy). You may remember from your previous treatments that chemo is a gift that "keeps on giving," and the effects often hit a day or two later.  I am not being a killjoy, but want you to recall that this is normal when it happens.

    If you have not had neulasta before, know that it can cause significant bone pain, but this is more common in older folks like me (I was 53 when I had my treatments) and anyone with significant arthritis.   Also -- I have always been very squimish, and have never watched an IV being inserted, or even a blood draw !   Wishing you well with a prayer,

    max

    Thanks Max.
    Yep I sailed

    Thanks Max.

    Yep I sailed threw  the infusion part.I was afraid of reactions. I had one my very first time.But the horrible pain in bones has found me. No fever but i do have  small tightness in chest. haven't lost apatite and haven't been sick so far.

    Your not being a killjoy...its all reality.

    Can't sleep but I learned years ago there is no use in tossing and turning just get up and read,work, or something till your tired again. I work in the disability community and I heard this tip and have done it ever sence. I am too afraid to take my head injury meds so sleep is a problem. Few days of headaches.

    I have had arthritis for long time so I'm preparing my self to the best of my ability. 

    I read comments about taking claritin before the shot. I will be doing that for sure.

    Well thanks again for encouragement. 

    Keep hope alive.

    GG

     

     

     

     

     

  • NANCYL1
    NANCYL1 Member Posts: 289

    Thanks Max.
    Yep I sailed

    Thanks Max.

    Yep I sailed threw  the infusion part.I was afraid of reactions. I had one my very first time.But the horrible pain in bones has found me. No fever but i do have  small tightness in chest. haven't lost apatite and haven't been sick so far.

    Your not being a killjoy...its all reality.

    Can't sleep but I learned years ago there is no use in tossing and turning just get up and read,work, or something till your tired again. I work in the disability community and I heard this tip and have done it ever sence. I am too afraid to take my head injury meds so sleep is a problem. Few days of headaches.

    I have had arthritis for long time so I'm preparing my self to the best of my ability. 

    I read comments about taking claritin before the shot. I will be doing that for sure.

    Well thanks again for encouragement. 

    Keep hope alive.

    GG

     

     

     

     

     

    Givingrace

    Hello GG:

    Checking in to see how you are doing today.

    I just had Rituxin infusions for my lymphoma.  The first time around, I told them not to use steroids with it and as a result, got a reaction.  After than, I had steroids, and things were much better other than getting somewhat hopped up from the steroids.

    I hope things are going OK for you today.

     

    Nancy

     

     

  • givingrace
    givingrace Member Posts: 161
    NANCYL1 said:

    Givingrace

    Hello GG:

    Checking in to see how you are doing today.

    I just had Rituxin infusions for my lymphoma.  The first time around, I told them not to use steroids with it and as a result, got a reaction.  After than, I had steroids, and things were much better other than getting somewhat hopped up from the steroids.

    I hope things are going OK for you today.

     

    Nancy

     

     

    Hi Nancy !
    Thank you for

    Hi Nancy !

    Thank you for checking in on me. I just got home from my Neulasta shot.  In the tummy but not so bad.I took claritin too so hopefully not much side effects.  I'm actually having bone pain , weakness , and horrible headache (headache could just be from my head injury tho. )from the last two days of Rituxin and Bendamustine.  I am also have nausea but I really feel like I got some grace here cuz it could always be worse.

    When my mom went threw treatment it was a train wreck. She was so very sick throwing up in parking lot and on way home. I remember my dad telling me to go outside and watch the bathroom window to make sure she didn't take off on the chemotherapy days. This was back in the early 80 s. So I'm counting my blessings today.

    I had reaction first time around in 2010 with the rituxen so I totally agree with the steroid.  

    How are you feeling ? Make sure you rest alot.

    You sound good. I am sending you great big hugs.

    GG

     

  • NANCYL1
    NANCYL1 Member Posts: 289

    Hi Nancy !
    Thank you for

    Hi Nancy !

    Thank you for checking in on me. I just got home from my Neulasta shot.  In the tummy but not so bad.I took claritin too so hopefully not much side effects.  I'm actually having bone pain , weakness , and horrible headache (headache could just be from my head injury tho. )from the last two days of Rituxin and Bendamustine.  I am also have nausea but I really feel like I got some grace here cuz it could always be worse.

    When my mom went threw treatment it was a train wreck. She was so very sick throwing up in parking lot and on way home. I remember my dad telling me to go outside and watch the bathroom window to make sure she didn't take off on the chemotherapy days. This was back in the early 80 s. So I'm counting my blessings today.

    I had reaction first time around in 2010 with the rituxen so I totally agree with the steroid.  

    How are you feeling ? Make sure you rest alot.

    You sound good. I am sending you great big hugs.

    GG

     

    GG

    Hello GG:

    You have a bad combination of side effects.  You do sound good despite all.

    I think I did not type correctly re Rituxan.  I had about 2 years of infusions which ended last Novemberf, 2013.  To help prevent side effects, I had Benedryl, Steroids and even 2 Tylenol in the mix.   Tired for a few days after and hopped up from steroids.   In January, 2014,  I had cardiac surgery.  In October, 2014. I will see my new Oncologist to find out where I stand with the Lymphoma.  I was told that it can't be cured, but it can be controlled.

    Your mom must have had a terrible time with the chemo.  I keep hearing that it is so much easier to take now.

    I am not very educated re cancer.  I do keep taking all kinds of pamphlets home from the Cancer Center with very good reading intentions.

    Hope things improve quickly for you.

    Nancy

     

     

     

     

     

     

     

     

  • Folks24
    Folks24 Member Posts: 106
    NANCYL1 said:

    GG

    Hello GG:

    You have a bad combination of side effects.  You do sound good despite all.

    I think I did not type correctly re Rituxan.  I had about 2 years of infusions which ended last Novemberf, 2013.  To help prevent side effects, I had Benedryl, Steroids and even 2 Tylenol in the mix.   Tired for a few days after and hopped up from steroids.   In January, 2014,  I had cardiac surgery.  In October, 2014. I will see my new Oncologist to find out where I stand with the Lymphoma.  I was told that it can't be cured, but it can be controlled.

    Your mom must have had a terrible time with the chemo.  I keep hearing that it is so much easier to take now.

    I am not very educated re cancer.  I do keep taking all kinds of pamphlets home from the Cancer Center with very good reading intentions.

    Hope things improve quickly for you.

    Nancy

     

     

     

     

     

     

     

     

    IVs

    When I was getting my chemo treatments, a couple of my friends on diets were envious.  My dr told me didn't care what it was to eat anything and everything!  In addition, due to the headaches, I was to increase my caffeine.  So -- drink more Pepsi and eat more chocolate.

    I had 5 days of pred after my chemo and learned the week following I'd feel like crap so I got prepared. I had to take my temp every 3-4 hrs. Yeah, I had the trouble sleeping also. Never knew what the line up was on TV prior to this.

    Just listen to your body and take care of yourself.