Don't feel like it will ever end

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NewOne39
NewOne39 Member Posts: 29
in Breast Cancer #1

Bilateral breast surgery with node involvement

mets to lung

now mets to liver

has anyone survived liver mets ?

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  • camul
    camul Member Posts: 2,537
    #2
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    Sorry to hear this.
    I was diagnosed with mets to the skin and bones in 2010. The mets to the bones was and is "too numerous to count". I was on a chemo, forget which one, when I had a pet scan to see if chemo was working, I had increased bone mets and 3 lesions in my liver. Switched to a new chemo, I think Erubulin, and the liver and skin cleared. Neither has shown again and that was 2 years ago.
    Unfortunately, the chemo was not effective on my bones. I know there were a few others here where treatment worked on their liver mets.
    I was scanned 2 months ago and my liver is still clear. I have another gf here who was diagnosed with mets to liver and bones 4 years ago and she has been in 'in remission', for 3 years now. She is on Femara now and has been on bi-weekly infusions of Herceptin since being diagnosed in May of 2010.
    I know how much it helped when I got the liver mets and she was in my support group and told her story. She is still in remission....
    Isure wish you the beest. Hugs and Prayers,
    Carol
  • NewOne39
    NewOne39 Member Posts: 29
    #3
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    camul said:

    Sorry to hear this.
    I was diagnosed with mets to the skin and bones in 2010. The mets to the bones was and is "too numerous to count". I was on a chemo, forget which one, when I had a pet scan to see if chemo was working, I had increased bone mets and 3 lesions in my liver. Switched to a new chemo, I think Erubulin, and the liver and skin cleared. Neither has shown again and that was 2 years ago.
    Unfortunately, the chemo was not effective on my bones. I know there were a few others here where treatment worked on their liver mets.
    I was scanned 2 months ago and my liver is still clear. I have another gf here who was diagnosed with mets to liver and bones 4 years ago and she has been in 'in remission', for 3 years now. She is on Femara now and has been on bi-weekly infusions of Herceptin since being diagnosed in May of 2010.
    I know how much it helped when I got the liver mets and she was in my support group and told her story. She is still in remission....
    Isure wish you the beest. Hugs and Prayers,
    Carol

    I really needed you're kind words

    I sometimes feel so alone everyone tells me I don't look sick and I frequently hear "you look so good"

    They have no idea how crappy I feel inside

    now with new chemo I am excessively tired with loss of appitite that I end up sleeping or just laying around I am sure a lot of it is depression I do feel better laying around but then I think there's really no hope BUT today your words do give me hope

    thank you. I needed that. It does give me hope to hear that others are in remission and others are doing well

    thank you again

  • camul
    camul Member Posts: 2,537
    #4
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    NewOne39 said:

    I really needed you're kind words

    I sometimes feel so alone everyone tells me I don't look sick and I frequently hear "you look so good"

    They have no idea how crappy I feel inside

    now with new chemo I am excessively tired with loss of appitite that I end up sleeping or just laying around I am sure a lot of it is depression I do feel better laying around but then I think there's really no hope BUT today your words do give me hope

    thank you. I needed that. It does give me hope to hear that others are in remission and others are doing well

    thank you again

    NP. I do understand
    also when you feel so bad and people look at you and tell you how good you look. There have been times when I just want to scream! The cancer is not in my face. Now that I have hair again, it is even more so. Now, I just say thank you and go on.

    My friends and family can look at me and know how I am. They dont say anything, except for sometimes my boys will look at me and laugh and say I look like sh**. And we will all start laughing. I know they are not being mean, they are just calling it like they see it.

    Hope you start feeling better.
    Hugs,
    Carol
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #5
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    No advice...sorry you are

    No advice...sorry you are going through this...hugs...

     

    Thinking of you,

     

    Denise

  • NewOne39
    NewOne39 Member Posts: 29
    #6
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    disneyfan2008 said:

    No advice...sorry you are

    No advice...sorry you are going through this...hugs...

     

    Thinking of you,

     

    Denise

    Thank you for the support
    how

    Thank you for the support

    how do you know if the mets is better or getting worse?

    just when the onc dr says it's better the next visit it's mets

     they are putting me on carboplatiin (sp) for tthe liver mets so I am going from 3 times a month to once a month chemo

    i just want to walk away

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #7
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    I had bone and lung mets in

    I had bone and lung mets in 2005. Last year I was also diagnosed with liver mets. My last three PET scans have been clean.  With Stage 4, I suspect it will always be something as I am a lifer. But I am doing well and have had Stage 4  for 9  years now. Big hugs!!!!! 

  • NewOne39
    NewOne39 Member Posts: 29
    #8
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    CypressCynthia said:

    I had bone and lung mets in

    I had bone and lung mets in 2005. Last year I was also diagnosed with liver mets. My last three PET scans have been clean.  With Stage 4, I suspect it will always be something as I am a lifer. But I am doing well and have had Stage 4  for 9  years now. Big hugs!!!!! 

    You are a survivor

    this last treatment has brought me to my knees

    i don't think I have been out of bed for more than 8-10 hours in the last three weeks

    this has taken me down and it's hard to see an end to it 

    i always thought i was strong but after reading about others with primary ( that's me) mets to lung ( that's me) now mets to liver (that's me) and you and they seem so positive and strong I don't know if I can survive

    sorry to be so negative but I feel very very weak right now

     

     

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #9
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    NewOne39 said:

    You are a survivor

    this last treatment has brought me to my knees

    i don't think I have been out of bed for more than 8-10 hours in the last three weeks

    this has taken me down and it's hard to see an end to it 

    i always thought i was strong but after reading about others with primary ( that's me) mets to lung ( that's me) now mets to liver (that's me) and you and they seem so positive and strong I don't know if I can survive

    sorry to be so negative but I feel very very weak right now

     

     

    NewOne39 -- How are you doing ???

    Worried about you - any updates?

     

    Vicki Sam

     

     

  • NewOne39
    NewOne39 Member Posts: 29
    #10
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    VickiSam said:

    NewOne39 -- How are you doing ???

    Worried about you - any updates?

     

    Vicki Sam

     

     

    Out of studies

    Had all my appts cx'D

    having extreme pain

    put on two very strong meds. Doesn't work well

    sleeping less the last couple of days. I had been sleeping 20 hrs a day

    i am really worried because they didn't say why they were canceling APPTS and treatment. Next appt and treatment on the 11th

    very. Restless legs and back

    I am also very worried 

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #11
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    NewOne39 said:

    Out of studies

    Had all my appts cx'D

    having extreme pain

    put on two very strong meds. Doesn't work well

    sleeping less the last couple of days. I had been sleeping 20 hrs a day

    i am really worried because they didn't say why they were canceling APPTS and treatment. Next appt and treatment on the 11th

    very. Restless legs and back

    I am also very worried 

    Think about making an

    Think about making an appointment with a psychiatrist. I wasn't sleeping either and felt like I was going nuts. Turns out the cancer treatment (steroids)  was keeping me in an anxious and hyper state. Luckily, I was also irritable, because the irritability had my family pushing me to get help. Then, it took awhile to get the appointment. 

    I was prescribed a very low dose of Seroquel (25 mg). Since the very first dose, I have slept. I am so glad I saw someone. 

    Also, my advice about the pain is to think about seeing a pain specialist. However, no sleep and anxiety can really exacerbate pain. 

    Gentle cyber hugs and sending healing vibes. Please keep us posted!!! 

  • New Flower
    New Flower Member Posts: 4,294
    #12
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    Please do not read

    Please do not read statistics. Numbers and survivor rate are not going to boost your mood. 

    Watch a good movie even in bed. Talk to your doctor and ask questions about your Chemo and mitigation of its side effects

    hugs

  • NewOne39
    NewOne39 Member Posts: 29
    #13
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    New Flower said:

    Please do not read

    Please do not read statistics. Numbers and survivor rate are not going to boost your mood. 

    Watch a good movie even in bed. Talk to your doctor and ask questions about your Chemo and mitigation of its side effects

    hugs

    Had treatment today
    my legs

    Had treatment today

    my legs and back were so restless that I felt like jumping out a window

    they are now giving me carboplatin once every three weeks then off three weeks

     

    onc said I would be on treatment till there were no treatments to try or I guess when I am no longer

     

    i was on a study for 2 years

     

     

     

     

  • GlowMore
    GlowMore Member Posts: 789 Member
    #14
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    CypressCynthia said:

    Think about making an

    Think about making an appointment with a psychiatrist. I wasn't sleeping either and felt like I was going nuts. Turns out the cancer treatment (steroids)  was keeping me in an anxious and hyper state. Luckily, I was also irritable, because the irritability had my family pushing me to get help. Then, it took awhile to get the appointment. 

    I was prescribed a very low dose of Seroquel (25 mg). Since the very first dose, I have slept. I am so glad I saw someone. 

    Also, my advice about the pain is to think about seeing a pain specialist. However, no sleep and anxiety can really exacerbate pain. 

    Gentle cyber hugs and sending healing vibes. Please keep us posted!!! 

    Agree with Cynthia...

    I agree with Cynthia about the psychiatrist being very helpful.   My Oncologist required an apptmt with one at the beginning of my treatment and I remember every minute of that two hour visit.  It helped me very much to put things into a proper perspective.  During my treatments I had to use a sleeping pill for awhile because of the exact same things going nerves and anxiety.  Never feel guilty about laying around ...that is your body telling you to rest and let it do it's work.   Praying for you and for better results each day.    xxoo  Glo

  • NewOne39
    NewOne39 Member Posts: 29
    #15
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    NewOne39 said:

    Had treatment today
    my legs

    Had treatment today

    my legs and back were so restless that I felt like jumping out a window

    they are now giving me carboplatin once every three weeks then off three weeks

     

    onc said I would be on treatment till there were no treatments to try or I guess when I am no longer

     

    i was on a study for 2 years

     

     

     

     

    I have
    stopped all meds

    I have

    stopped all meds between chemo

     

    feeling tiny tiny bit better.  Dizzy tired and want to lay down all the time

     

    this is so not easy

     

     

     

     

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