CA125 levels increasing after removal of two tumors

lmede64
lmede64 Member Posts: 32 Member

My sister is in recurrence--original DX in 02/11, stage IV B. She is scheduled to start chemo in a couple of weeks but has some concerns about the treatment plan. Her GYN had her tested for targeted chemo, but before the results have come back, her ONC has scheduled her for chemo. Additionally, she is not going to give her the same chemo she had three years ago but is planning to administer the other standard one (the one where you may not lose your hair). She is planning to question the ONC about this choice but communication has not always been optimal. I was more on top of this the first time around but am feeling a little overwhelmed right now (too many things going on lately). Any advice/help will be greatly appreciated.

Comments

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    Hi Imede64

    I am so sorry that your sister is in recurrence.  She should make a list of her questions (such as why is she starting chemo before her results have come back and why is she being given a different chemo) to ask her oncologist.  You indicated that communication has not always been optimal.  Does this mean that her oncologist has a habit of not returning her calls?  Or does her oncologist not take the time to explain procedures or other aspects of her cancer in an understandable way?  If yes, your sister may want to consider changing oncologists.

    Best of luck to your sister.

    Kelly

  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    Sorry for the recurrence

    Kelly gave you the best advice, your doctor should explain your treatment plan completely to your sister.

    Making a list of questions and don't put it in your purse make sure it is in your hand when you walk in to your appointment, too many times I left without asking my questions because the list was in my purse.

    If you leave without getting your questions answered it might be time to find a new doctor. Such a long time between treatments is a very good sign she will do well. Good Luck !

    Colleen