The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Clinical Trial-Ipilumab & Nivolumab

dancnbear1
dancnbear1 CSN Member Posts: 86
edited February 2014 in Kidney Cancer #1

Well, after waiting some 4-5 months I finally got all the go heads from the Doctor, Cancer Center, Insurance Company, and the Sponsor. I signed my contract about two weeks ago and tomorrow I start the trial. Get both Ipilumab and Nivolumab every three (3) weeks for 4 sessions.then only one of the two drugs every three weeks. I got into the trial becuase I have metstatic stage 4 Renal Cell Carcanoma and have not taken any prior meds. Just surgery. Had the left kidney and renal gland removed 5 years ago.Have also had skin and prostate cancer both treated with surgery.

"I have walked into this tunnel three times before. Each time what I saw at the end of the tunnel was a light that god sent. As I enter that very same tunnel for a 4th time I hope that god sends me that very same light and pray that it is not an on coming train"

I send out nothing but good thoughts and prayers to all those that visit this site and wish you nothing but the best!

 

DB

 

Like Care

Comments

  • GSRon
    GSRon CSN Member Posts: 1,303 Member
    #2
    Go DB Go..!!  Praying you get

    Go DB Go..!!  Praying you get great results..!

    Ron

    Like Care
  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #3
    GSRon said:

    Go DB Go..!!  Praying you get

    Go DB Go..!!  Praying you get great results..!

    Ron

    Buy a lottery ticket

    You've been very fortunate with your cancer treatments. And now you are going to get the BEST stuff out there. We expect Great reports. Good for you!

    Like Care
  • BDS
    BDS CSN Member Posts: 172
    #4
    Ipilumab and Nivolumab

    Best of luck to you and godspeed - BDS

    Like Care
  • DMike
    DMike CSN Member Posts: 259
    #5
    Trial

    You are very lucky to be in that trial. In my opinion, that is the best trial going for RCC. Good Luck!

    David

    Like Care
  • I am alive
    I am alive CSN Member Posts: 315
    #6
    DMike said:

    Trial

    You are very lucky to be in that trial. In my opinion, that is the best trial going for RCC. Good Luck!

    David

    Exciting news

     Congratulations on getting into the trial. Please keep us posted. We expect the best for you!

    Smile. Today is a great day!Cool

    Like Care
  • dancnbear1
    dancnbear1 CSN Member Posts: 86
    #7
    Trial Update

    Well, the computer program that randomly assigns how much of each drug I get assigned me the max for both. They told me that there haven’t been too many trial participants that were assigned the max so any history of side effects and success rates are minimal. Today was my first day of infusion and I must say it went very well. Yes I am tired and yes I had a small period of time that I was extremely cold but got some warm blankets that we wrapped around my shoulders and body and then I quickly napped. It’s been about 3 hours since I have been home and I took another small nap and I ache a bit but that’s it so far. I think I am rather lucky at this point.

    Like Care
  • alice124
    alice124 CSN Member Posts: 896 Member
    #8
    Exciting news. Positive

    Exciting news. Positive thoughts coming your way.

    Like Care
  • Darron
    Darron CSN Member Posts: 310 Member
    #9
    dancnbear1 said:

    Trial Update

    Well, the computer program that randomly assigns how much of each drug I get assigned me the max for both. They told me that there haven’t been too many trial participants that were assigned the max so any history of side effects and success rates are minimal. Today was my first day of infusion and I must say it went very well. Yes I am tired and yes I had a small period of time that I was extremely cold but got some warm blankets that we wrapped around my shoulders and body and then I quickly napped. It’s been about 3 hours since I have been home and I took another small nap and I ache a bit but that’s it so far. I think I am rather lucky at this point.

    Great!

    Geat to hear you have your first infusion under your belt. rest up, my bet is that you will feel 100% in the morning.

     

    Like Care
  • garym
    garym CSN Member Posts: 1,647
    #10
    Keep Dancn...

    "I send out nothing but good thoughts and prayers to all those that visit this site and wish you nothing but the best!"  Late to the party because I was away, but wanted to saywhat goes around comes around, ALL THE BEST RIGHT BACK ATCHA!!!  You Rock!!!

    Like Care
  • Chung
    Chung CSN Member Posts: 2
    #11
    Trial question

    I hope you are doing well. Do you knwhether her this trial is still recruiting patients?

    Like Care

Discussion Boards