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PET Scan yesterday... I won't find out the results until after christmas :(

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

I am having a hard time finding the joy this year with the results of a PET scan hanging over my head.  My husband doesn't understand...why I am tired...why I don't feel joyful right now... I guess I am alone... I cant share with him what I am feeling...he doesn't want to hear it.  I thought all of the Christmas shopping was done... But this morning I found out that while I thought that all of the last of the shopping was taken care of yesterday while I was up in Baltimore getting my scan... My husband did not take my daughter out to get something for my son.  And what he let my son get for her is an iPod case... She does not even have an ipod and we had agreed that she was not getting one this Christmas... What was he thinking?  So ontop of still having to bake today... Now I have to go shopping.  I hate shopping on Christmas Eve. :(. I just want to sit and wrap and enjoy the day and bake and not think about cancer.   I won't get my results until after Christmas... And I had a bad dream last night that I went in for the results and the dr said he could not talk to me because my disease progressed to far that I would now be under the care dr Alexander. (The sr dr at the university of MD that deals with signet ring).

alex

jen2012
Posts: 1607
Joined: Aug 2012

Hugs Alex. So overwhelming. Try to simplify if you can. Do you have an extra small gift that each kid can give each other? Or..make a new tradition of the kids buying each other a gift for new years or 3 kings. Prices will be cheaper and you may start a life long tradition.

Hang in there...special Christmas wishes and prayers for a great scan result!

janderson1964
Posts: 2215
Joined: Oct 2011

That's tough to have to wait for results until after Christmas. I understand your feelings. Last year I had a scan scheduled for the first of the year and 2 years ago I was recovering from surgery. It can be a real challenge to be joyful when you are waiting for scan results.

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

The Holidays are the worst time for a scan.  My cancer diagnosis came one day before Thanksgiving and it was a most difficult holiday to get through.  It's too bad you couldn't have called for the results.  Dreams can seem so real but they are only dreams and a lot of time they stem from fear, but they are only a dream.  I'm hoping that you can find some peace for Christmas and wishing the best outcome of your scan.

Kim

UncleBuddy
Posts: 1019
Joined: Aug 2013

Alex, I think the hardest part is the waiting for test results and appointments. It's frustrating.

Unfortunately, if you're the one who usually does the shopping, you know it's not going to get done the way you want. Most men typically don't do the Christmas shopping, so they are clueless when it comes to what to get. My husband is sitting here shaking his head and tells me that he could never do what I do. He'd rather just give them the money and let them figure it out. 

I'm sorry that you have to go out shopping on Christmas Eve. Maybe you can go to a drug store and pick something up? Maybe it won't be as crowded. 

I'm sorry, but I had to laugh when you said he bought her an ipod case and she doesn't have an ipod. LOL, that is something my husband would do.

Try to relax and enjoy time with your family, I know it's easy for me to say, but try to enjoy the holiday with your family. 

Let us know the results when you get them. I'm keeping my fingers crossed.

Lin

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Remember dreams are just dreams, otherwise I would be a rich person living in my mansion, clear of disease, cause that's what I dreamed a week ago, LOL.

Dont let the season stress you out, and a good laugh is needed over the iPod case, here's to a Merry Christmas  dear in spite of everything.

Winter Marie

zx10guy
Posts: 274
Joined: Dec 2013

Alex,

 

I know exactly how you feel.  I had a PET done last year on Christmas Eve too.  Christmas turned out to be more of a nightmare for me.  The irritating part of the whole scanxiety situation was my surgeon's office got insurance approval for a STAT order on the PET.  That meant the radiologist should have given his report a couple hours after the test was completed.  My surgeon tried calling the radiology department to get the results after they called and left a message with him.  He wasn't able to get a hold of anyone.  Being Christmas Eve, the office closed early and everyone took off.  We were only able to get the results of the PET the day after Christmas when I met with the liver surgeon.

Feel free to hit me up on private message.  I'm in your area too and also went through the U of MD medical system.

I'm wishing you can at least enjoy some of the holiday and that the PET results come back clear.

Phil64's picture
Phil64
Posts: 838
Joined: Apr 2012

Alex, I have an appointment on 1/2 to review results as well. I'll hear results from an ultrasound and I will have another CEA test. Unfortunately we can't control the results of these types of tests. All we can control is our reaction to them. So I try not to worry and tell myself that we'll cross the bridges that we come to when we come to them...

Of course this is easier said than done sometimes. But any worrying is a waste as it doesn't help at all.

enjoy the day!

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

I've had several Christmases in a row overshadowed by cancer, and it really is awful.  I think the holidays make all the cancer stuff even hader to take.  We're supposed to be "making merry", but how can we, when we have such a fearful thing in the back of our minds at all times?

I hope that, despite these challenges, you were able to find a few moments of brightness on Christmas Day.  And I also hope you told your husband exactly why you were feeling overwhelmed.  I think he needs to hear how you feel!

Many hugs and strength coming your way~AA

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

Its tough to wait for any test result when you have CRC, but right before a holiday, Yikes!  I hope you were able to get things done will little stress.  I must admit the ipod case was funny.  Hope your Christmas was merry and bright.  Let us know the results when you find out.  Traci

marbleotis's picture
marbleotis
Posts: 715
Joined: Mar 2012

Hi Maxicat it is Marbleotis - your signet cell buddy.

I know EXACTLY what you are saying.  No one truely knows the mental affect this has on us either waiting to take a test or waiting for the results.

I just goy my colonoscopy year 2 packet today for my Jan 17 colonoscopy.  Like hitting the reality brick wall. 

I have similar situations at home, the husband avoids talking about anything cancer.  It is very annoying.  My kids are older but they handle and handled it very well.  They are fantastic young women.  They are the 2 things I did very well.

As for shopping, just do your best.  You are the best present for your kids.  Most of the stuff we waste money on they really do not use.  I just wanted a relaxing and peaceful day.  You can always re-gift the case.  Or better yet re-gift to your husband!

Did you have an MRI or PET.  If PET, why?

Please update on the results.

relaxoutdoors08
Posts: 520
Joined: May 2011

Hi 

prayers for good news. Any results from tests. We are here for support. I share a similar medical history with colon cancer in the appendix and right colon With 5 nodes involved. Prayers

NB

marbleotis's picture
marbleotis
Posts: 715
Joined: Mar 2012

Bump up

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

Hoping that you have just been busy with the Holidays and haven't posted because of that, but just thinking about you and wondering what you found out.  Wishing for the best.

Kim

Cathleen Mary
Posts: 827
Joined: May 2011

Thinking of you and praying that all is well.  Just don't want you to think we've forgotten.

CM

UncleBuddy
Posts: 1019
Joined: Aug 2013

I hope that you're still not waiting... I'm hoping the results were excellent.

Lin

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Thank you everyone.   My scan came back good... they still have no clue why I have been in daily pain since February.  My dr is considering an MRI.  they did not have the results of my PT/CT scan until Friday afternoon... I had to call them twice to get it.... As of noon...on Friday the scan had not been read yet.... I had the test on. Monday the 23rd.  

it it has been a rocky couple of weeks... I was actually relived that 2013 is over and hopefully this year will be better.  A friend from another group who also had signet ring, passed away on the 29th...and another friend is in hospice.  It is just hard to let my guard down and relax... But I am going to try this year.  my husband really does not want to talk about cancer and I don't reLly have anyone close to me that I can just talk to... Other than mi mother in law... She is going through her 2nd battle with ovarian cancer. :(. Her scan was on. Monday and they won't have her results until next Monday.  So this year, I decide that I would start to journal... To get things out Nd on paper.  I may share it later with my husband... Maybe, maybe not.  But at least it will be out there And off of my shoulders...or out of my head.

oh and as for the iPod case... Both grandparents sent money to the kids... So that is what she is going to put her money towards.

i hope everyone had a nice holiday and a happy new year. ;). I am going to try to make 2014 much better than 2013.

alex

devotion10's picture
devotion10
Posts: 631
Joined: Jan 2010

I was unsure because you said it was good ... but, then said it has not been read yet.  I so hope it was good.  Please update as we are all hoping the best results for you and also that the doctors can find the cause of your discomfort and can provide you some relief.

Keeping a journal sounds like a wonderful idea. In a addition to the written word maybe try drawing or making a collage of images when you can't find the words to represent how you feel ... sometimes, this can be helpful.  Since it is private, you need not be concerned about what the drawing looks like.  Sometimes making self-portraits is interesting.

Peace. ~ Cynthia

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