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osteopoikilasis
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Oct 31, 2013 - 10:28 am
I orginally was told that I had stage 4 lung cancer, a c.t. scan showed that the cancer had spread to my spine, ribs, and all my bones. I have recently founmd out that I do not have stage 4 but rather stage 3. What they thought was cancer in mybones, etc. was a rare genetic dease called "osteopoikilasis". It show up on a scan as it glows and has uptake just like cancer. If anyone need information let me know. |
Joined: Apr 2013
It does nothing to you and it
It does nothing to you and it does not need to be treated.
Joined: May 2009
Patricia
I am so glad your drs found out that its not stage IV. It looks like from what you wrote there is no treatment is necessary for the osteopoikilasis. I hope that you will have treatment to get rid of the stage III cancer. I wish you well, Lori
Joined: Jul 2013
Very happy that you are not
Very happy that you are not stage iv. What treatment are you having? Good luck to you!