Hubby had this condition for 17 years, Why medicine now? Get a second opinion. I know nothing of this disease, but if he is still going strong. Why go putting toxicity in his body now. GET A SECOND OPINION. Wish you and huby well. please let me know what the outcome is.
I am 71. I was diagnosed with CLL at 61 in 2004. I began IV Rituximab, floudairabin (sp) and Coll (sp) in 2007 every 28 days for 6 mos. No problem with side effects, good meds for side effects increased appitite and gained a few pds. My advice is that his age may present a few challenges. Both chemos were supposed to be easliy tolerable. The Rituximab was, but I was younger. The last round in the spring of 2014 (can't remember the name of the drug) was a big challenge.
My story is below:
then...Last fall 2013 I began another round of chemo (not the same as before) and had physical challenges with appetitie and fatigue. I chose to stop treatment afer #5 and skip the final #6 since I was so weak and thin. Dr did not agree at first, but eventually did go along with my decision to stop. I took a month off to recoup my energy. Dr ageed that it was a good decision when we met a few months later, he indiecated that my age (69 at the time) may have been a factor in the challenges I had. He recommend I join clinical trials with Revelimid. This my 12 month in trials. Last week I had a CAT that indicated lymphs were beginning to grow again. Now what? I will see him next week to determine if I can remain in study or not and what could be next. I am considering another break from any chemo like med for 90 days and instead embark on a more hemeopathic treatment that may include alternatives such as no animal protein and ingesting Phoenix tears. This is all new to me even though I was diagnosed 10 yrs ago and continue to work. Fatigue is a factor always. You should be in charge of your treatment, inform yourself, and if at 78, the treatment is too much, then consider quailty of life vs quantiy. I do know that after a yr away from chemo, I have recovered more of my energy than I expected.
Joined: Apr 2010
Hi
Hubby had this condition for 17 years, Why medicine now? Get a second opinion. I know nothing of this disease, but if he is still going strong. Why go putting toxicity in his body now. GET A SECOND OPINION. Wish you and huby well. please let me know what the outcome is.
Joined: Jul 2014
rituximab
Hi Sue,
I am 71. I was diagnosed with CLL at 61 in 2004. I began IV Rituximab, floudairabin (sp) and Coll (sp) in 2007 every 28 days for 6 mos. No problem with side effects, good meds for side effects increased appitite and gained a few pds. My advice is that his age may present a few challenges. Both chemos were supposed to be easliy tolerable. The Rituximab was, but I was younger. The last round in the spring of 2014 (can't remember the name of the drug) was a big challenge.
My story is below:
then...Last fall 2013 I began another round of chemo (not the same as before) and had physical challenges with appetitie and fatigue. I chose to stop treatment afer #5 and skip the final #6 since I was so weak and thin. Dr did not agree at first, but eventually did go along with my decision to stop. I took a month off to recoup my energy. Dr ageed that it was a good decision when we met a few months later, he indiecated that my age (69 at the time) may have been a factor in the challenges I had. He recommend I join clinical trials with Revelimid. This my 12 month in trials. Last week I had a CAT that indicated lymphs were beginning to grow again. Now what? I will see him next week to determine if I can remain in study or not and what could be next. I am considering another break from any chemo like med for 90 days and instead embark on a more hemeopathic treatment that may include alternatives such as no animal protein and ingesting Phoenix tears. This is all new to me even though I was diagnosed 10 yrs ago and continue to work. Fatigue is a factor always. You should be in charge of your treatment, inform yourself, and if at 78, the treatment is too much, then consider quailty of life vs quantiy. I do know that after a yr away from chemo, I have recovered more of my energy than I expected.